Guest guest Posted June 2, 2008 Report Share Posted June 2, 2008 > > > > Dear Vrinda, > > > > Thank you for the information about that site. > > > > I wish your mother well. She is somewhat more incapacitated than I am. I > > have not yet obtained oxygen, though I suspect I should have done so. I do a > > lot of huffing and puffing. People keep asking me if I am OK and one rather > > nasty immigration official asked me not to breathe on her when I came back > > from an overseas trip. > > > > Please keep me updated on her course. How old is she? I am at Columbia > > and luckily they seem to accept us old goats (not that your mother is anywhere > > near as old as I am). > > > > Best, > > > > Wayne Hening > > NY/63/IPF 5/06 > > > > Re: Lung Transplant > > Posted by: " v_since1982 " v_since1982@ v_since1982 > > Mon Jun 2, 2008 1:14 am (PDT) > > > > Hi Wayne, > > > > my mom is currently being evaluated for a transplant. a few tests are > > pending. she was > > diagnosed with IPF in june '04. a series of infections after july '07 made > > her condition > > worse, and the last couple of months she has been on o2 24/7. we have been > > reading a > > lot about the transplant process - pre and post. i found the website > > www.2ndwind. lot > > particularly resourceful. > > > > regards, > > > > vrinda > > > > > > > > ************** > > Get trade secrets for amazing burgers. Watch " Cooking with > > Tyler Florence " on AOL Food. > > (http://food.aol.com/tyler-florence?video=4 & amp; > > ?NCID=aolfod00030000000002) > > > > > > > > > K > Central Il > Hubby ipf- 2006 > As for me and my house, we will serve the Lord > 14 > Hi Vrinda, I know how tiring it is to have people ask if your all right. I want to say of course not, I have an addition to tubes up my nose. But the one that bothers me most is when they say how long will you need O2. I always answer " Hopefully a very long time " . Then I have to repeat myself and they kinda get it and say sorry and walk off. in CA Quote Link to comment Share on other sites More sharing options...
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