Re: Infectious Disease Doctor

[Guest guest]

In a message dated 8/11/99 10:31:19 PM Eastern Daylight Time,

Prinny328@... writes:< Does anyone know of a good infectious disease

doctor that is LL? My uncle

called me today and said I'm seeing the wrong type of doctor. He thinks I

should see an infectious disease doctor for babesia and lyme. >>

What you need most is a doctor you trust...and one who understands

co-infections...the type of specialty they have is not really the most

important...getting treatment is....do YOU feel you need to change doctors???

TRUST YOURSELF Bernadette

[Guest guest]

In a message dated 8/11/99 11:39:47 PM Eastern Daylight Time, BratDet@...

writes:

<<

What you need most is a doctor you trust...and one who understands

co-infections...the type of specialty they have is not really the most

important...getting treatment is....do YOU feel you need to change

doctors???

TRUST YOURSELF Bernadette

>>

Thanks Bernadette.. I don't feel I should switch doctors

[Guest guest]

Where are you from ? Sorry, I can't remember where everyone

lives.

Don't think just one type of Dr. is going to be the right one. I've seen,

3 Internists,

3 Rheumatologists, 3 Infectious Disease Drs, 3 Alternative Drs.,2 Primary

Care, even 3 Eye Drs......and the best for me was one of the

Rheumatologists, and all of the Alternative Drs. have helped me

improve......I don't think this helps too much....certainly ask around for

someone who is Lyme Literate. Connie NJ

[Guest guest]

hi christine,

if you post where you live and ask for a LLMD in your area you should get

several private responses quickly.

peace,

kay

http://www.remarq.com/threads.asp?group=sci%2Emed%2Ediseases%2Elyme & nav=LAST

[Guest guest]

Kim, have you tried Children's Hosp of Phila? Mark was seen in immuno

there when he was a baby. They are in the top 10 hospitals in the

nation.

Hershey Medical Center also has an excellent reputation for their

immunology clinic.

Best wishes,

mom to Mark 7 CVID

>

> Can anyone recommend an infectious Disease doctor? Preferrably on

the east coast. We are

> from Pennsylvania (one hour north of Phila). Thank you, Kim

>

[Guest guest]

,It all depends on the astuteness of the Infectious Disease doctor. He will have to act like a sleuth to figure out if there are any organisms in your body that could be causing you to have symptoms, so he will have to be patient and thorough.Are you still suffering from the effects of the flu shot?Some doctors have suspected that we are struggling with a form of bacteria called mycoplasma which is a very small bacteria that lacks cell walls. For this reason, they are not eradicated with common antibiotics, but rather long term antibiotic therapy using low dose antibiotics in the class of tetracyclines (minocycline, doxycycline). These are broad term antibiotics that have certain side effects, (such as discoloration of the teeth) but some people suffering from illness have seen improvement on them. The dose is so low the drug does not act to kill bacteria, but rather to change the way the body responds to infection. However, since their main action involves suppression of the enzymes involved in the inflammatory process, not killing of the bacteria, the approach brings relief, not cure. One of our members, Kathy, was on low dose antibiotic therapy, and she felt better while on them, but when she went off, her symptoms returned. I'll see if she can come back to the group and discuss it with us.I hope this doesn't become another goose chase for you ! Keep taking good care of yourself. What have you been doing for yourself since you got the flu shot? Are you working?Patty>> My GP wants me to go see a Infectious Disease Doctor, after I explained all my symptoms, yet another doctor...wil I get anyway with this doctor ? What all can he do ?>

[Guest guest]

---Is there anyway I can send this message to my other emal ? I want

to save it. Thank you again Patty. I would love to talk to Kathy, the

flu symtoms went away after about 5 days. I'm working. My blood work

all came back fine, the ones for imflammation and mercury, this is so

strange. In , " glory2glory1401 "

<glory2glory1401@...> wrote:

>

> ,

> It all depends on the astuteness of the Infectious Disease doctor.

He

> will have to act like a sleuth to figure out if there are any

organisms

> in your body that could be causing you to have symptoms, so he will

have

> to be patient and thorough.

>

> Are you still suffering from the effects of the flu shot?

>

> Some doctors have suspected that we are struggling with a form of

> bacteria called mycoplasma which is a very small bacteria that lacks

> cell walls. For this reason, they are not eradicated with common

> antibiotics, but rather long term antibiotic therapy using low dose

> antibiotics in the class of tetracyclines (minocycline,

doxycycline).

> These are broad term antibiotics that have certain side effects,

(such

> as discoloration of the teeth) but some people suffering from

illness

> have seen improvement on them. The dose is so low the drug does

not

> act to kill bacteria, but rather to change the way the body

responds to

> infection. However, since their main action involves suppression

of the

> enzymes involved in the inflammatory process, not killing of the

> bacteria, the approach brings relief, not cure.

>

> One of our members, Kathy, was on low dose antibiotic therapy, and

she

> felt better while on them, but when she went off, her symptoms

returned.

> I'll see if she can come back to the group and discuss it with us.

>

> I hope this doesn't become another goose chase for you ! Keep

> taking good care of yourself. What have you been doing for

yourself

> since you got the flu shot? Are you working?

> Patty

>

>

>

>

>

>

>

>

>

>

> >

> > My GP wants me to go see a Infectious Disease Doctor, after I

> explained all my symptoms, yet another doctor...wil I get anyway

with

> this doctor ? What all can he do ?

> >

>

[Guest guest]

,

I forgot to mention...you can send post from this board to yourself by

using the forward option at the top of the message.

Patty

> > >

> > > My GP wants me to go see a Infectious Disease Doctor, after I

> > explained all my symptoms, yet another doctor...wil I get anyway

> with

> > this doctor ? What all can he do ?

> > >

> >

>

[Guest guest]

Hi ,

I'm really glad to hear that your flu symptoms went away quickly!

And a relief that your blood work came back fine. Sounds like things

are back to normal for you.

I talked to Kathy on the phone the other day, and hopefully she will

be able to join us...she's working too.

Take care and stay healthy!

Patty

> > >

> > > My GP wants me to go see a Infectious Disease Doctor, after I

> > explained all my symptoms, yet another doctor...wil I get anyway

> with

> > this doctor ? What all can he do ?

> > >

> >

>