Guest guest Posted August 20, 2000 Report Share Posted August 20, 2000 Jenna, It definitely sounds as if you have your work cut out for you anyway with your kids etc! Thanks for replying about my healthcare question. It's always good to know that your bills will mostly be paid if you have to go to hospital. I've never had to go for my RA and hopefully never will...I'll just have to wait and see how it goes as time goes by. I've been grateful for my insurance for all the other things though. I had to get orthotics to support my flat feet (to get the pressure off my swollen ankles). A very expensive piece of rubber I must say! Holly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2000 Report Share Posted August 20, 2000 Jenna, I just had a thought..I wonder if there are any big name celebrities with RA...they could be a spokesperson to make the community more aware of what the disease is and what it does. Some of my bosses have been very understanding, but some just have NO idea and think I am just whinging and lazy. Sort of like how J Fox has Parkinsons, now everyone seems to have a bit of an idea about that...we need someone with RA to go on Oprah...yeahh we'll write to Oprah..hehe (then, if we're unsuccessful there, we'll go down the list..next to Ricki Lake....if worst comes to the worst, Jerry Springer...that'd be funny...a bunch of arthritics on Jerry's show, instead of the usual fighting and chair throwing, it'd be people trying to stand up to fight, but not able to...--- I just have to be silly sometimes or I'll go insane..hehe I hope you win the lottery Jenna..then you wouldn't have to worry about money to support your kids, and you could afford to just relax! Or at least work in the sort of job you wanted and only when you felt up to it. My Mum wishes we won lotto (Australian name for the lottery) too, so that I could give up my crappy job at Red Rooster...hehe I've been going for job interviews lately in the Australian Public Service. They're all graduate jobs designed to train uni grads to work their way up the ladder to management positions...luckily so far no-one's asked anything remotely medical...I dont' know how discriminatory a company would be if they thought they were taking someone with RA on...arghh that reminds me, it's about one week to go before I find out if I have the job I really want...I'm so nervous! hehe Holly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2000 Report Share Posted August 20, 2000 i work full time, sort of!! i am on fmla and seems like there are times i need to be off about once a week. but at least fmla saves my job. unfortunatly, i do not get paid and i am a widow with a 17 yr old son. hard to make ends meet sometimes with all the meds Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2000 Report Share Posted August 21, 2000 >Dear Kringlemom, I'm sorry, what is FMLA? Holly > >i work full time, sort of!! i am on fmla and seems like there are times i >need to be off about once a week. but at least fmla saves my job. >unfortunatly, i do not get paid and i am a widow with a 17 yr old son. hard >to make ends meet sometimes with all the meds ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2000 Report Share Posted September 13, 2000 Dear Holly: I hope you got the job you wanted. Godbless you, how do you work with RA? I give you a lot of credit. I hope you and your Mom do hit the lotto. My name is , from Linden, New Jersey, USA. I would like to hear from you. I don't know anyone that lives in Australia. It would be nice to hear from you. I would like to write to you again too. Take care and Godbless. Sincerely, My address: Anjillah@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2000 Report Share Posted September 18, 2000 Hi, Esther and Carol. Glad to hear that things have been relatively calm for you. I hope the doctor gives you the OK to go back to work (if you want to), Esther. So happy to hear that is working out. That's a big relief. I'm wondering about Judy, too. We haven't heard from her in a very long time. ----- Original Message ----- From: " Esther & Carol " <cheerios@...> < egroups> Sent: Sunday, September 17, 2000 8:29 PM Subject: [ ] hello > > First we would like to welcome all you new people. This list is growing > with new names > > Thought I would report in. I go back to the doctor's on Wed. regarding > my wrist injury from work. It is getting better now that I wear a splint > all the time on it. I am sure he will release me back to work. > > , my new home health aide is working out great. I am glad to have > someone young because I can relate to her. > > a, sounds like the AB treatment is working for you. > This is about your 5 weekend isn't it? How are you doing this weekend > now that it is a little cooler here? (we both live in Southern N.J. for > those who > don't know) > > Kim, we will be thinking of you on the 22nd. Hope all goes well and you > get the relief that you need. > > Tery and Elaine in Florida hope that you two are safe during the storm. > > It was good to see Jon posting again. We wonder how Lancaster Judy and > her son are doing? > > , my Aunt Esther for whom I am named after.......had 5 sons and then > she had a daughter. Right after the birth of her daughter she said that she > was in shock LOL......because she really thought the baby would be another > boy hehehee. Aunt Esther is very close to her daughter, Holly......in fact, > her > daughter moved to Florida and so did she. Holly and her husband just had a > baby girl this past August 5. > > Hope everyone is feeling well. > > ~ Esther & Carol ~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2000 Report Share Posted October 16, 2000 Hi! Hey I've got some news I just have to share.... Can you believe, my husband has decided to give up his precious Vitabrits for breakfast. For four days now he's been cooking eggs sausages and bacon. I know, there are better choices, but I'm pleased that he's looking at what he eats and doing something. He's always been a big Mueslie man, so I'm amazed that he's even considering that it might not be a good thing for him. I havent pushed him, but I do mention interesting findings, and I guess he knows how I feel, because he can see what I eat (and what I don't eat). Likewise he thinks the Zone makes lots of sense but wont read the books. Sometimes he even tells people at dinner parties just how 'unnatural' grains are (aka the paleo diet). Yet he LOVES his grains. I doubt the change will last, but its nice to know that by setting a good example, sooner or later you might get to them. Joanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2000 Report Share Posted October 16, 2000 Good for you Joanne, being a good role model is one of the most powerful ways we influence other people's behavior. joanne nova wrote: > Hi! Hey I've got some news I just have to share.... > Can you believe, my husband has decided to give up his precious > Vitabrits for breakfast. For four days now he's been cooking eggs > sausages and bacon. I know, there are better choices, but I'm pleased > that he's looking at what he eats and doing something. He's always been > a big Mueslie man, so I'm amazed that he's even considering that it > might not be a good thing for him. I havent pushed him, but I do mention > interesting findings, and I guess he knows how I feel, because he can > see what I eat (and what I don't eat). > > Likewise he thinks the Zone makes lots of sense but wont read the books. > Sometimes he even tells people at dinner parties just how 'unnatural' > grains are (aka the paleo diet). Yet he LOVES his grains. > > I doubt the change will last, but its nice to know that by setting a > good example, sooner or later you might get to them. > > Joanne > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2000 Report Share Posted October 16, 2000 ----- Original Message ----- From: " joanne nova " <joanne@...> < egroups> Sent: Monday, October 16, 2000 5:03 PM Subject: Re: [ ] Hello > Likewise he thinks the Zone makes lots of sense but wont read the books. > Sometimes he even tells people at dinner parties just how 'unnatural' > grains are (aka the paleo diet). Yet he LOVES his grains. > > I doubt the change will last, but its nice to know that by setting a > good example, sooner or later you might get to them. > > Joanne Hi Joanne, Likewise most of our friends no longer eat white bread & go for whole grains. Not a big shift, but still a shift in the right direction. Sometimes you gotta take what you can get. ======================== Good Health & Long Life, Greg , http://www.ozemail.com.au/~gowatson gowatson@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2000 Report Share Posted October 16, 2000 ----- Original Message ----- From: <sstubsjo@...> < egroups> Sent: Monday, October 16, 2000 4:29 PM Subject: [ ] Hello > how we cope with hunger, > Sigurd Hi Sigurd, I find that 2-3 g of Glutamine works well for me. ======================== Good Health & Long Life, Greg , http://www.ozemail.com.au/~gowatson gowatson@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2000 Report Share Posted October 16, 2000 > Hi Joanne, > > Likewise most of our friends no longer eat white bread & go for whole grains. > Not a big shift, but still a shift in the right direction. > > Sometimes you gotta take what you can get. > Greg SigH! I know. I'm happy I'm happy! But jsut give me time..... I have a plan... ....nutrition by stealth Cheers, Joanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2001 Report Share Posted March 1, 2001 Ranae: I agree with you about this group - it's great to have such AWESOME support!!!! Marci (Mom to ) Oklahoma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2001 Report Share Posted April 23, 2001 Vicki: I, too, am in Dallas (Frisco to be exact). Annie is my second child too. I share the same feelings you do. Annie's helmet will be here Thursday! HOORAY! I am so thankful to God for the technology to correct this. Unless my feelings change I am not concerned with what people will say or think or do concerning Annie's helmet. Again, I'm just proud there is a way to correct it. For me, that overshadows anything else. Call me if ever you'd like to get together. 972-668-6233. There is a little girl in my neighborhood who is a helmet graduate. She is in my play group (which is soooo coincidental since we both just moved into the neighborhood 4 or 5 months ago). It's a small world after all. Benita Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2001 Report Share Posted April 24, 2001 Hi Vicki, I live in Mckinney, TX how cool! When I read your e-mail, that was exactly how I felt. My daughter Loren is 11mon. and has been in a helmet since Dec. and now we are in the process of getting a second band. Loren's case is a little different because her clavical was broken during delivery and for the first couple of months, she would turn her head to one side only. It was weird because her face looked real flat on one side and the other was puffier ( cheek area ). I was sooo scared of what we were going through and didn't know anything about positional plagiocephaly/torticollis. Her head tilts slightly now and although, it's not as noticeable. Because I didn't know too much, I relied on the what the docs./technicians said. With 2 kids 17 months apart, didn't have alot of time to look up infor. on the internet. When she got the helmet at 7 mon., we were supposed to do neck exercises along with the helmet therapy and didn't for the first couple of months. I do it now as I am suppose to and tretching is suppose to help with the assyemetries. If I knew how important it was, I would have done all along. At first when I would take my 2 yr and Loren (with helmet) to the gym, I would take off the helmet. I hate that people stared at her. Their are some intelligent people with intelliegant questions and their are the ignorant. I had a tough time with it but it does get better. Since I didn't do the exercises, i have to do them now and her being 11 months old, she screams and doing them while they are little it's easier for you and your baby. Good luck with the research on torticollis and good luck with Collin. steph mom of Loren & ----- Original Message ----- From: neus@... Plagiocephaly Sent: Monday, April 23, 2001 7:28 PM Subject: Hello My name is Vicki and my 3 m.o. son Collin was casted Thursday for a band. We started to notice asymmetry in his forehead around 8 weeks, but the doctor did not catch it at his 2 month checkup. I guess I need to do more research on torticollis. No one has mentioned that to me, but Collin does have a tendency to look left when he is on his back (of course that's how all this got started). He is my second child, so I feel really stupid not to have kept up better with how he was sleeping, but I wonder too how much I could have prevented.I am thankful that our doctor referred us right away when we brought it to his attention at 10 weeks. The longest wait has been to get into the craniofacial center here. It has been a month now since we started the process and although I don't want to see Collin in a band, I am anxious that it is taking so long to get started. I live near Dallas and am hoping and praying we can get done in the minimum time so we don't have to go through August and September in the band. (I noticed someone else here - ?)I came here from looking at the discussion board at CranialTech - we had no problem getting approved by United Health Care, maybe things have changed in the past month?I am really anxious about all the stares and stupid questions we are going to get. My first thought was I'm not leaving the house until it's off! I am getting over that now, I know it's a relatively short time in the grand scheme of things. I thank God for my healthy baby who is still perfect, if a little lopsided. :)I am looking forward to getting to know you and I will keep you updated on our progress. BTW, (sorry I don't know names yet) tell your friend to have her child evaluated, if they're a true friend they'll appreciate it.Vicki & Collin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2001 Report Share Posted April 24, 2001 Hi Vicki my child is a Doc grad and going out the 1st time was rough but after that I got used to it and I can honestly say we got alot of nice people talking to us who probably would not have talked to us. We also decorated it and it was fun to look at. Check out our pics on FILE under Lorraine sonntag. -- In Plagiocephaly@y..., neus@a... wrote: > My name is Vicki and my 3 m.o. son Collin was casted Thursday for a > band. We started to notice asymmetry in his forehead around 8 weeks, > but the doctor did not catch it at his 2 month checkup. I guess I > need to do more research on torticollis. No one has mentioned that > to me, but Collin does have a tendency to look left when he is on his > back (of course that's how all this got started). He is my second > child, so I feel really stupid not to have kept up better with how he > was sleeping, but I wonder too how much I could have prevented. > > I am thankful that our doctor referred us right away when we brought > it to his attention at 10 weeks. The longest wait has been to get > into the craniofacial center here. It has been a month now since we > started the process and although I don't want to see Collin in a > band, I am anxious that it is taking so long to get started. I live > near Dallas and am hoping and praying we can get done in the minimum > time so we don't have to go through August and September in the > band. (I noticed someone else here - ?) > > I came here from looking at the discussion board at CranialTech - we > had no problem getting approved by United Health Care, maybe things > have changed in the past month? > > I am really anxious about all the stares and stupid questions we are > going to get. My first thought was I'm not leaving the house until > it's off! I am getting over that now, I know it's a relatively short > time in the grand scheme of things. I thank God for my healthy baby > who is still perfect, if a little lopsided. > > I am looking forward to getting to know you and I will keep you > updated on our progress. BTW, (sorry I don't know names yet) tell > your friend to have her child evaluated, if they're a true friend > they'll appreciate it. > > Vicki & Collin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2001 Report Share Posted April 24, 2001 Hey, Steph! We live in McKinney, too! We are in Stonebridge Ranch. Who is your pediatrician? We see Dr. Kessinger at Pediatric Healthcare Associates on Eldorado. He was really good about catching 's plagio and recommending the DOC band. is 10 months and got his band 2 months ago. Call me if you want to get together sometime! 972-540-0079 (mommy to DOC band 3-9-01) ----- Original Message ----- From: Todd Dunayer Plagiocephaly Sent: Monday, April 23, 2001 7:55 PM Subject: Re: Hello Hi Vicki, I live in Mckinney, TX how cool! When I read your e-mail, that was exactly how I felt. My daughter Loren is 11mon. and has been in a helmet since Dec. and now we are in the process of getting a second band. Loren's case is a little different because her clavical was broken during delivery and for the first couple of months, she would turn her head to one side only. It was weird because her face looked real flat on one side and the other was puffier ( cheek area ). I was sooo scared of what we were going through and didn't know anything about positional plagiocephaly/torticollis. Her head tilts slightly now and although, it's not as noticeable. Because I didn't know too much, I relied on the what the docs./technicians said. With 2 kids 17 months apart, didn't have alot of time to look up infor. on the internet. When she got the helmet at 7 mon., we were supposed to do neck exercises along with the helmet therapy and didn't for the first couple of months. I do it now as I am suppose to and tretching is suppose to help with the assyemetries. If I knew how important it was, I would have done all along. At first when I would take my 2 yr and Loren (with helmet) to the gym, I would take off the helmet. I hate that people stared at her. Their are some intelligent people with intelliegant questions and their are the ignorant. I had a tough time with it but it does get better. Since I didn't do the exercises, i have to do them now and her being 11 months old, she screams and doing them while they are little it's easier for you and your baby. Good luck with the research on torticollis and good luck with Collin. steph mom of Loren & ----- Original Message ----- From: neus@... Plagiocephaly Sent: Monday, April 23, 2001 7:28 PM Subject: Hello My name is Vicki and my 3 m.o. son Collin was casted Thursday for a band. We started to notice asymmetry in his forehead around 8 weeks, but the doctor did not catch it at his 2 month checkup. I guess I need to do more research on torticollis. No one has mentioned that to me, but Collin does have a tendency to look left when he is on his back (of course that's how all this got started). He is my second child, so I feel really stupid not to have kept up better with how he was sleeping, but I wonder too how much I could have prevented.I am thankful that our doctor referred us right away when we brought it to his attention at 10 weeks. The longest wait has been to get into the craniofacial center here. It has been a month now since we started the process and although I don't want to see Collin in a band, I am anxious that it is taking so long to get started. I live near Dallas and am hoping and praying we can get done in the minimum time so we don't have to go through August and September in the band. (I noticed someone else here - ?)I came here from looking at the discussion board at CranialTech - we had no problem getting approved by United Health Care, maybe things have changed in the past month?I am really anxious about all the stares and stupid questions we are going to get. My first thought was I'm not leaving the house until it's off! I am getting over that now, I know it's a relatively short time in the grand scheme of things. I thank God for my healthy baby who is still perfect, if a little lopsided. :)I am looking forward to getting to know you and I will keep you updated on our progress. BTW, (sorry I don't know names yet) tell your friend to have her child evaluated, if they're a true friend they'll appreciate it.Vicki & Collin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2001 Report Share Posted April 24, 2001 Hello Vicki and welcome to the group. You can rest easy that you have noticed his shape at such a young age because the head growth is so much faster. I also have an older child who thankfully has a perfectly round head. As for the looks unfortunately there will be the few that don't have a clue but then you will come across the ones who have manners and are asking questions because they are genuinely interested in learning and that will make your day. Good Luck, April Mommy to Bri and Mandy > My name is Vicki and my 3 m.o. son Collin was casted Thursday for a > band. We started to notice asymmetry in his forehead around 8 weeks, > but the doctor did not catch it at his 2 month checkup. I guess I > need to do more research on torticollis. No one has mentioned that > to me, but Collin does have a tendency to look left when he is on his > back (of course that's how all this got started). He is my second > child, so I feel really stupid not to have kept up better with how he > was sleeping, but I wonder too how much I could have prevented. > > I am thankful that our doctor referred us right away when we brought > it to his attention at 10 weeks. The longest wait has been to get > into the craniofacial center here. It has been a month now since we > started the process and although I don't want to see Collin in a > band, I am anxious that it is taking so long to get started. I live > near Dallas and am hoping and praying we can get done in the minimum > time so we don't have to go through August and September in the > band. (I noticed someone else here - ?) > > I came here from looking at the discussion board at CranialTech - we > had no problem getting approved by United Health Care, maybe things > have changed in the past month? > > I am really anxious about all the stares and stupid questions we are > going to get. My first thought was I'm not leaving the house until > it's off! I am getting over that now, I know it's a relatively short > time in the grand scheme of things. I thank God for my healthy baby > who is still perfect, if a little lopsided. > > I am looking forward to getting to know you and I will keep you > updated on our progress. BTW, (sorry I don't know names yet) tell > your friend to have her child evaluated, if they're a true friend > they'll appreciate it. > > Vicki & Collin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2001 Report Share Posted April 24, 2001 Vicki, Welcome to the group. I am glad that you made your way over here! It sounds like you have a GREAT ped. I wish we were all so lucky. I didn't convince my ped until was 7 months old and we noticed the problem when she was 4 months old! I understand the frustration of waiting to get things accomplished. We got the referral when Meg was 7 mo, but didn't see the specialist until she was 8 mo. Then we couldn't get the helmet until she was 9 mo!!!! It only happened that fast because I bugged everyone I could everyday until I got in! LOL You are getting a very early start and I think you are going to see excellent results. As far as the stares and comments, that is going to happen. You will become more and more comfortable with it over time and maybe you will be able to help educate people about plagio through their questions and comments. I never really got any ugly comments from anyone and lots of people go through the whole process and never get rude remarks. The staring on the other hand is going to happen one way or the other. I just ignored it and went on with my life knowing that I was doing right by my child. If you have any concerns about tort then joining torticolliskids would be a good idea. If you think it might be tort you will need a diagnosis from your ped and physical therapy to correct the problem. Good luck to you and Collin. I hope you will stick with us and keep us posted on your progress. We have a regular Tuesday night chat session in our plagio group chat room. We are usually there from about 8pm CST until late! I try to be there every Tuesday from 9pm CST until 10:30pm CST. Come join us if you can! Marci (Mom to - helmet grad) Oklahoma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2001 Report Share Posted April 24, 2001 Vicki, Welcome to the board! You are in good company here! You are not the only one with a second (or third or fourth) child that has Plagio. My 2nd daughter also had Plagio and just recently graduated from the DOC Band. It is wonderful that you are starting at such a young age! You should see very good improvement in a relatively short time frame. And don't worry about other people. It can be very hard at first - you notice EVERY person that stares. But as time goes on, you don't even see those people anymore. Your doing the right thing - getting treatment for your son - and that is all that matters! ) Best of luck to you! Sincerely, Jaya Dong http://www.CAPPSkids.org Mom to Cheyenne (6/15/97) and i (6/19/00) DOC Banded 11/31/00-4/19/01 > My name is Vicki and my 3 m.o. son Collin was casted Thursday for a > band. We started to notice asymmetry in his forehead around 8 weeks, > but the doctor did not catch it at his 2 month checkup. I guess I > need to do more research on torticollis. No one has mentioned that > to me, but Collin does have a tendency to look left when he is on his > back (of course that's how all this got started). He is my second > child, so I feel really stupid not to have kept up better with how he > was sleeping, but I wonder too how much I could have prevented. > > I am thankful that our doctor referred us right away when we brought > it to his attention at 10 weeks. The longest wait has been to get > into the craniofacial center here. It has been a month now since we > started the process and although I don't want to see Collin in a > band, I am anxious that it is taking so long to get started. I live > near Dallas and am hoping and praying we can get done in the minimum > time so we don't have to go through August and September in the > band. (I noticed someone else here - ?) > > I came here from looking at the discussion board at CranialTech - we > had no problem getting approved by United Health Care, maybe things > have changed in the past month? > > I am really anxious about all the stares and stupid questions we are > going to get. My first thought was I'm not leaving the house until > it's off! I am getting over that now, I know it's a relatively short > time in the grand scheme of things. I thank God for my healthy baby > who is still perfect, if a little lopsided. > > I am looking forward to getting to know you and I will keep you > updated on our progress. BTW, (sorry I don't know names yet) tell > your friend to have her child evaluated, if they're a true friend > they'll appreciate it. > > Vicki & Collin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2001 Report Share Posted April 24, 2001 Hey, where is Stonebridge Ranch? I take my girls all the way to walnut hill to see Dr. because I couldn't find one here in Mckinney! I would like to change to be closer. Do you really like Dr. Kessinger? My daughter Loren is 11 months and my other daughter, is 28 months. steph ----- Original Message ----- From: Lemmons Plagiocephaly Sent: Monday, April 23, 2001 10:20 PM Subject: Re: Hello Hey, Steph! We live in McKinney, too! We are in Stonebridge Ranch. Who is your pediatrician? We see Dr. Kessinger at Pediatric Healthcare Associates on Eldorado. He was really good about catching 's plagio and recommending the DOC band. is 10 months and got his band 2 months ago. Call me if you want to get together sometime! 972-540-0079 (mommy to DOC band 3-9-01) ----- Original Message ----- From: Todd Dunayer Plagiocephaly Sent: Monday, April 23, 2001 7:55 PM Subject: Re: Hello Hi Vicki, I live in Mckinney, TX how cool! When I read your e-mail, that was exactly how I felt. My daughter Loren is 11mon. and has been in a helmet since Dec. and now we are in the process of getting a second band. Loren's case is a little different because her clavical was broken during delivery and for the first couple of months, she would turn her head to one side only. It was weird because her face looked real flat on one side and the other was puffier ( cheek area ). I was sooo scared of what we were going through and didn't know anything about positional plagiocephaly/torticollis. Her head tilts slightly now and although, it's not as noticeable. Because I didn't know too much, I relied on the what the docs./technicians said. With 2 kids 17 months apart, didn't have alot of time to look up infor. on the internet. When she got the helmet at 7 mon., we were supposed to do neck exercises along with the helmet therapy and didn't for the first couple of months. I do it now as I am suppose to and tretching is suppose to help with the assyemetries. If I knew how important it was, I would have done all along. At first when I would take my 2 yr and Loren (with helmet) to the gym, I would take off the helmet. I hate that people stared at her. Their are some intelligent people with intelliegant questions and their are the ignorant. I had a tough time with it but it does get better. Since I didn't do the exercises, i have to do them now and her being 11 months old, she screams and doing them while they are little it's easier for you and your baby. Good luck with the research on torticollis and good luck with Collin. steph mom of Loren & ----- Original Message ----- From: neus@... Plagiocephaly Sent: Monday, April 23, 2001 7:28 PM Subject: Hello My name is Vicki and my 3 m.o. son Collin was casted Thursday for a band. We started to notice asymmetry in his forehead around 8 weeks, but the doctor did not catch it at his 2 month checkup. I guess I need to do more research on torticollis. No one has mentioned that to me, but Collin does have a tendency to look left when he is on his back (of course that's how all this got started). He is my second child, so I feel really stupid not to have kept up better with how he was sleeping, but I wonder too how much I could have prevented.I am thankful that our doctor referred us right away when we brought it to his attention at 10 weeks. The longest wait has been to get into the craniofacial center here. It has been a month now since we started the process and although I don't want to see Collin in a band, I am anxious that it is taking so long to get started. I live near Dallas and am hoping and praying we can get done in the minimum time so we don't have to go through August and September in the band. (I noticed someone else here - ?)I came here from looking at the discussion board at CranialTech - we had no problem getting approved by United Health Care, maybe things have changed in the past month?I am really anxious about all the stares and stupid questions we are going to get. My first thought was I'm not leaving the house until it's off! I am getting over that now, I know it's a relatively short time in the grand scheme of things. I thank God for my healthy baby who is still perfect, if a little lopsided. :)I am looking forward to getting to know you and I will keep you updated on our progress. BTW, (sorry I don't know names yet) tell your friend to have her child evaluated, if they're a true friend they'll appreciate it.Vicki & Collin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2001 Report Share Posted April 24, 2001 That sounds great, call me when your available @ 972-529-5294. How many kiddies do you have, i forgot. I have Loren the 11mon. and , she is 28 months steph ----- Original Message ----- From: Dominika White Plagiocephaly Sent: Tuesday, April 24, 2001 10:08 AM Subject: Re: Hello Hey Steph and ... I just wanted to chime in and say that I live in Plano! If anyone wants to get together let me know! We could meet at the outlet mall in maybe? Talk to y'all soon! Domi ----- Original Message ----- From: Todd Dunayer Plagiocephaly Sent: Tuesday, April 24, 2001 7:45 AM Subject: Re: Hello Hey, where is Stonebridge Ranch? I take my girls all the way to walnut hill to see Dr. because I couldn't find one here in Mckinney! I would like to change to be closer. Do you really like Dr. Kessinger? My daughter Loren is 11 months and my other daughter, is 28 months. steph ----- Original Message ----- From: Lemmons Plagiocephaly Sent: Monday, April 23, 2001 10:20 PM Subject: Re: Hello Hey, Steph! We live in McKinney, too! We are in Stonebridge Ranch. Who is your pediatrician? We see Dr. Kessinger at Pediatric Healthcare Associates on Eldorado. He was really good about catching 's plagio and recommending the DOC band. is 10 months and got his band 2 months ago. Call me if you want to get together sometime! 972-540-0079 (mommy to DOC band 3-9-01) ----- Original Message ----- From: Todd Dunayer Plagiocephaly Sent: Monday, April 23, 2001 7:55 PM Subject: Re: Hello Hi Vicki, I live in Mckinney, TX how cool! When I read your e-mail, that was exactly how I felt. My daughter Loren is 11mon. and has been in a helmet since Dec. and now we are in the process of getting a second band. Loren's case is a little different because her clavical was broken during delivery and for the first couple of months, she would turn her head to one side only. It was weird because her face looked real flat on one side and the other was puffier ( cheek area ). I was sooo scared of what we were going through and didn't know anything about positional plagiocephaly/torticollis. Her head tilts slightly now and although, it's not as noticeable. Because I didn't know too much, I relied on the what the docs./technicians said. With 2 kids 17 months apart, didn't have alot of time to look up infor. on the internet. When she got the helmet at 7 mon., we were supposed to do neck exercises along with the helmet therapy and didn't for the first couple of months. I do it now as I am suppose to and tretching is suppose to help with the assyemetries. If I knew how important it was, I would have done all along. At first when I would take my 2 yr and Loren (with helmet) to the gym, I would take off the helmet. I hate that people stared at her. Their are some intelligent people with intelliegant questions and their are the ignorant. I had a tough time with it but it does get better. Since I didn't do the exercises, i have to do them now and her being 11 months old, she screams and doing them while they are little it's easier for you and your baby. Good luck with the research on torticollis and good luck with Collin. steph mom of Loren & ----- Original Message ----- From: neus@... Plagiocephaly Sent: Monday, April 23, 2001 7:28 PM Subject: Hello My name is Vicki and my 3 m.o. son Collin was casted Thursday for a band. We started to notice asymmetry in his forehead around 8 weeks, but the doctor did not catch it at his 2 month checkup. I guess I need to do more research on torticollis. No one has mentioned that to me, but Collin does have a tendency to look left when he is on his back (of course that's how all this got started). He is my second child, so I feel really stupid not to have kept up better with how he was sleeping, but I wonder too how much I could have prevented.I am thankful that our doctor referred us right away when we brought it to his attention at 10 weeks. The longest wait has been to get into the craniofacial center here. It has been a month now since we started the process and although I don't want to see Collin in a band, I am anxious that it is taking so long to get started. I live near Dallas and am hoping and praying we can get done in the minimum time so we don't have to go through August and September in the band. (I noticed someone else here - ?)I came here from looking at the discussion board at CranialTech - we had no problem getting approved by United Health Care, maybe things have changed in the past month?I am really anxious about all the stares and stupid questions we are going to get. My first thought was I'm not leaving the house until it's off! I am getting over that now, I know it's a relatively short time in the grand scheme of things. I thank God for my healthy baby who is still perfect, if a little lopsided. :)I am looking forward to getting to know you and I will keep you updated on our progress. BTW, (sorry I don't know names yet) tell your friend to have her child evaluated, if they're a true friend they'll appreciate it.Vicki & Collin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2001 Report Share Posted April 24, 2001 sounds good and I'm a stay at home mommy so any day is fine with me to. my number is 972-529-5294. we are right behind 720 in seville heights. it would be so nice to actually sit down with other mommies and their kids that have helmets of their own. i don't know anyone who even knows about these types of conditions, including my family. call me steph (mom of and Loren) ----- Original Message ----- From: Lemmons Plagiocephaly Sent: Tuesday, April 24, 2001 10:26 AM Subject: Re: Hello Stonebridge Ranch is a huge development west of Central Expressway. We have a bunch of different neighborhoods and stuff inside the development. Dr. Kessinger is great! The phone number for his office is 972-548-7888. He takes ALL insurances. His office is on Eldorado Parkway at Hardin Rd (right by that huge Tom Thumb). I think you would really like him. He is a teddy bear of a man who is great with children. adores him and the nurse that always sees us. The only drawback is that they are always really busy. I have never had a problem getting an appointment, but it is sometimes a zoo in there while you are waiting. He is in practice with 3 other doctors and 2 nurse practitioners - all are great. They hold office hours on Saturday morning for sick kids. They will see sick kids during the week, too, but are open additional hours on Saturday for sick kids. That has been a life saver! I wouldn't drive down to Walnut Hill anymore! That's a long drive with 2 kids! I think we should definitely get together with all the other DOC families in the area. I will send out an e-mail so we can pick a time to meet. (mommy to DOC band 3-9-01) ----- Original Message ----- From: Todd Dunayer Plagiocephaly Sent: Tuesday, April 24, 2001 7:45 AM Subject: Re: Hello Hey, where is Stonebridge Ranch? I take my girls all the way to walnut hill to see Dr. because I couldn't find one here in Mckinney! I would like to change to be closer. Do you really like Dr. Kessinger? My daughter Loren is 11 months and my other daughter, is 28 months. steph ----- Original Message ----- From: Lemmons Plagiocephaly Sent: Monday, April 23, 2001 10:20 PM Subject: Re: Hello Hey, Steph! We live in McKinney, too! We are in Stonebridge Ranch. Who is your pediatrician? We see Dr. Kessinger at Pediatric Healthcare Associates on Eldorado. He was really good about catching 's plagio and recommending the DOC band. is 10 months and got his band 2 months ago. Call me if you want to get together sometime! 972-540-0079 (mommy to DOC band 3-9-01) ----- Original Message ----- From: Todd Dunayer Plagiocephaly Sent: Monday, April 23, 2001 7:55 PM Subject: Re: Hello Hi Vicki, I live in Mckinney, TX how cool! When I read your e-mail, that was exactly how I felt. My daughter Loren is 11mon. and has been in a helmet since Dec. and now we are in the process of getting a second band. Loren's case is a little different because her clavical was broken during delivery and for the first couple of months, she would turn her head to one side only. It was weird because her face looked real flat on one side and the other was puffier ( cheek area ). I was sooo scared of what we were going through and didn't know anything about positional plagiocephaly/torticollis. Her head tilts slightly now and although, it's not as noticeable. Because I didn't know too much, I relied on the what the docs./technicians said. With 2 kids 17 months apart, didn't have alot of time to look up infor. on the internet. When she got the helmet at 7 mon., we were supposed to do neck exercises along with the helmet therapy and didn't for the first couple of months. I do it now as I am suppose to and tretching is suppose to help with the assyemetries. If I knew how important it was, I would have done all along. At first when I would take my 2 yr and Loren (with helmet) to the gym, I would take off the helmet. I hate that people stared at her. Their are some intelligent people with intelliegant questions and their are the ignorant. I had a tough time with it but it does get better. Since I didn't do the exercises, i have to do them now and her being 11 months old, she screams and doing them while they are little it's easier for you and your baby. Good luck with the research on torticollis and good luck with Collin. steph mom of Loren & ----- Original Message ----- From: neus@... Plagiocephaly Sent: Monday, April 23, 2001 7:28 PM Subject: Hello My name is Vicki and my 3 m.o. son Collin was casted Thursday for a band. We started to notice asymmetry in his forehead around 8 weeks, but the doctor did not catch it at his 2 month checkup. I guess I need to do more research on torticollis. No one has mentioned that to me, but Collin does have a tendency to look left when he is on his back (of course that's how all this got started). He is my second child, so I feel really stupid not to have kept up better with how he was sleeping, but I wonder too how much I could have prevented.I am thankful that our doctor referred us right away when we brought it to his attention at 10 weeks. The longest wait has been to get into the craniofacial center here. It has been a month now since we started the process and although I don't want to see Collin in a band, I am anxious that it is taking so long to get started. I live near Dallas and am hoping and praying we can get done in the minimum time so we don't have to go through August and September in the band. (I noticed someone else here - ?)I came here from looking at the discussion board at CranialTech - we had no problem getting approved by United Health Care, maybe things have changed in the past month?I am really anxious about all the stares and stupid questions we are going to get. My first thought was I'm not leaving the house until it's off! I am getting over that now, I know it's a relatively short time in the grand scheme of things. I thank God for my healthy baby who is still perfect, if a little lopsided. :)I am looking forward to getting to know you and I will keep you updated on our progress. BTW, (sorry I don't know names yet) tell your friend to have her child evaluated, if they're a true friend they'll appreciate it.Vicki & Collin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2001 Report Share Posted April 24, 2001 Hey Steph and ... I just wanted to chime in and say that I live in Plano! If anyone wants to get together let me know! We could meet at the outlet mall in maybe? Talk to y'all soon! Domi ----- Original Message ----- From: Todd Dunayer Plagiocephaly Sent: Tuesday, April 24, 2001 7:45 AM Subject: Re: Hello Hey, where is Stonebridge Ranch? I take my girls all the way to walnut hill to see Dr. because I couldn't find one here in Mckinney! I would like to change to be closer. Do you really like Dr. Kessinger? My daughter Loren is 11 months and my other daughter, is 28 months. steph ----- Original Message ----- From: Lemmons Plagiocephaly Sent: Monday, April 23, 2001 10:20 PM Subject: Re: Hello Hey, Steph! We live in McKinney, too! We are in Stonebridge Ranch. Who is your pediatrician? We see Dr. Kessinger at Pediatric Healthcare Associates on Eldorado. He was really good about catching 's plagio and recommending the DOC band. is 10 months and got his band 2 months ago. Call me if you want to get together sometime! 972-540-0079 (mommy to DOC band 3-9-01) ----- Original Message ----- From: Todd Dunayer Plagiocephaly Sent: Monday, April 23, 2001 7:55 PM Subject: Re: Hello Hi Vicki, I live in Mckinney, TX how cool! When I read your e-mail, that was exactly how I felt. My daughter Loren is 11mon. and has been in a helmet since Dec. and now we are in the process of getting a second band. Loren's case is a little different because her clavical was broken during delivery and for the first couple of months, she would turn her head to one side only. It was weird because her face looked real flat on one side and the other was puffier ( cheek area ). I was sooo scared of what we were going through and didn't know anything about positional plagiocephaly/torticollis. Her head tilts slightly now and although, it's not as noticeable. Because I didn't know too much, I relied on the what the docs./technicians said. With 2 kids 17 months apart, didn't have alot of time to look up infor. on the internet. When she got the helmet at 7 mon., we were supposed to do neck exercises along with the helmet therapy and didn't for the first couple of months. I do it now as I am suppose to and tretching is suppose to help with the assyemetries. If I knew how important it was, I would have done all along. At first when I would take my 2 yr and Loren (with helmet) to the gym, I would take off the helmet. I hate that people stared at her. Their are some intelligent people with intelliegant questions and their are the ignorant. I had a tough time with it but it does get better. Since I didn't do the exercises, i have to do them now and her being 11 months old, she screams and doing them while they are little it's easier for you and your baby. Good luck with the research on torticollis and good luck with Collin. steph mom of Loren & ----- Original Message ----- From: neus@... Plagiocephaly Sent: Monday, April 23, 2001 7:28 PM Subject: Hello My name is Vicki and my 3 m.o. son Collin was casted Thursday for a band. We started to notice asymmetry in his forehead around 8 weeks, but the doctor did not catch it at his 2 month checkup. I guess I need to do more research on torticollis. No one has mentioned that to me, but Collin does have a tendency to look left when he is on his back (of course that's how all this got started). He is my second child, so I feel really stupid not to have kept up better with how he was sleeping, but I wonder too how much I could have prevented.I am thankful that our doctor referred us right away when we brought it to his attention at 10 weeks. The longest wait has been to get into the craniofacial center here. It has been a month now since we started the process and although I don't want to see Collin in a band, I am anxious that it is taking so long to get started. I live near Dallas and am hoping and praying we can get done in the minimum time so we don't have to go through August and September in the band. (I noticed someone else here - ?)I came here from looking at the discussion board at CranialTech - we had no problem getting approved by United Health Care, maybe things have changed in the past month?I am really anxious about all the stares and stupid questions we are going to get. My first thought was I'm not leaving the house until it's off! I am getting over that now, I know it's a relatively short time in the grand scheme of things. I thank God for my healthy baby who is still perfect, if a little lopsided. :)I am looking forward to getting to know you and I will keep you updated on our progress. BTW, (sorry I don't know names yet) tell your friend to have her child evaluated, if they're a true friend they'll appreciate it.Vicki & Collin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2001 Report Share Posted April 24, 2001 Stonebridge Ranch is a huge development west of Central Expressway. We have a bunch of different neighborhoods and stuff inside the development. Dr. Kessinger is great! The phone number for his office is 972-548-7888. He takes ALL insurances. His office is on Eldorado Parkway at Hardin Rd (right by that huge Tom Thumb). I think you would really like him. He is a teddy bear of a man who is great with children. adores him and the nurse that always sees us. The only drawback is that they are always really busy. I have never had a problem getting an appointment, but it is sometimes a zoo in there while you are waiting. He is in practice with 3 other doctors and 2 nurse practitioners - all are great. They hold office hours on Saturday morning for sick kids. They will see sick kids during the week, too, but are open additional hours on Saturday for sick kids. That has been a life saver! I wouldn't drive down to Walnut Hill anymore! That's a long drive with 2 kids! I think we should definitely get together with all the other DOC families in the area. I will send out an e-mail so we can pick a time to meet. (mommy to DOC band 3-9-01) ----- Original Message ----- From: Todd Dunayer Plagiocephaly Sent: Tuesday, April 24, 2001 7:45 AM Subject: Re: Hello Hey, where is Stonebridge Ranch? I take my girls all the way to walnut hill to see Dr. because I couldn't find one here in Mckinney! I would like to change to be closer. Do you really like Dr. Kessinger? My daughter Loren is 11 months and my other daughter, is 28 months. steph ----- Original Message ----- From: Lemmons Plagiocephaly Sent: Monday, April 23, 2001 10:20 PM Subject: Re: Hello Hey, Steph! We live in McKinney, too! We are in Stonebridge Ranch. Who is your pediatrician? We see Dr. Kessinger at Pediatric Healthcare Associates on Eldorado. He was really good about catching 's plagio and recommending the DOC band. is 10 months and got his band 2 months ago. Call me if you want to get together sometime! 972-540-0079 (mommy to DOC band 3-9-01) ----- Original Message ----- From: Todd Dunayer Plagiocephaly Sent: Monday, April 23, 2001 7:55 PM Subject: Re: Hello Hi Vicki, I live in Mckinney, TX how cool! When I read your e-mail, that was exactly how I felt. My daughter Loren is 11mon. and has been in a helmet since Dec. and now we are in the process of getting a second band. Loren's case is a little different because her clavical was broken during delivery and for the first couple of months, she would turn her head to one side only. It was weird because her face looked real flat on one side and the other was puffier ( cheek area ). I was sooo scared of what we were going through and didn't know anything about positional plagiocephaly/torticollis. Her head tilts slightly now and although, it's not as noticeable. Because I didn't know too much, I relied on the what the docs./technicians said. With 2 kids 17 months apart, didn't have alot of time to look up infor. on the internet. When she got the helmet at 7 mon., we were supposed to do neck exercises along with the helmet therapy and didn't for the first couple of months. I do it now as I am suppose to and tretching is suppose to help with the assyemetries. If I knew how important it was, I would have done all along. At first when I would take my 2 yr and Loren (with helmet) to the gym, I would take off the helmet. I hate that people stared at her. Their are some intelligent people with intelliegant questions and their are the ignorant. I had a tough time with it but it does get better. Since I didn't do the exercises, i have to do them now and her being 11 months old, she screams and doing them while they are little it's easier for you and your baby. Good luck with the research on torticollis and good luck with Collin. steph mom of Loren & ----- Original Message ----- From: neus@... Plagiocephaly Sent: Monday, April 23, 2001 7:28 PM Subject: Hello My name is Vicki and my 3 m.o. son Collin was casted Thursday for a band. We started to notice asymmetry in his forehead around 8 weeks, but the doctor did not catch it at his 2 month checkup. I guess I need to do more research on torticollis. No one has mentioned that to me, but Collin does have a tendency to look left when he is on his back (of course that's how all this got started). He is my second child, so I feel really stupid not to have kept up better with how he was sleeping, but I wonder too how much I could have prevented.I am thankful that our doctor referred us right away when we brought it to his attention at 10 weeks. The longest wait has been to get into the craniofacial center here. It has been a month now since we started the process and although I don't want to see Collin in a band, I am anxious that it is taking so long to get started. I live near Dallas and am hoping and praying we can get done in the minimum time so we don't have to go through August and September in the band. (I noticed someone else here - ?)I came here from looking at the discussion board at CranialTech - we had no problem getting approved by United Health Care, maybe things have changed in the past month?I am really anxious about all the stares and stupid questions we are going to get. My first thought was I'm not leaving the house until it's off! I am getting over that now, I know it's a relatively short time in the grand scheme of things. I thank God for my healthy baby who is still perfect, if a little lopsided. :)I am looking forward to getting to know you and I will keep you updated on our progress. BTW, (sorry I don't know names yet) tell your friend to have her child evaluated, if they're a true friend they'll appreciate it.Vicki & Collin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2001 Report Share Posted April 24, 2001 I am so jealous- I just moved from Plano to TN and there is no one here-yet! Have fun you guys! Beck Quote Link to comment Share on other sites More sharing options...
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