Anne

[Guest guest]

In a message dated 12/22/99 6:07:14 AM Pacific Standard Time,

chestnutt@... writes:

<<

I thank you for your response to my diet suggestion. I am also glad

that you have lost some weight in the process. That always is a great

thing for women no matter how thin we are!!! >>

Oh that's a healthy attitude.

[Guest guest]

>

>Message: 2

> Date: Wed, 22 Dec 1999 09:03:11 -0800

> From: a Perza <chestnutt@...>

>Subject: Anne

>

>I thank you for your response to my diet suggestion. I am also glad

>that you have lost some weight in the process. That always is a great

>thing for women no matter how thin we are!!!

OY!!!!!!! I've had enough!!

Losing weight is not always a great thing. I weigh around 115-120 lbs and

am 5' 7 " . When I'm on the anti-Candida diet it's all I can do to keep from

wasting away into nothingness. It's really fun when your waistbands are all

sagging and none of your bras fit anymore because you dropped 5 or 10

pounds. It's really fun when your face looks totally gaunt.....

I don't know if it's my high metabolism or what (if you remember, my first

post to this list a month or so ago was regarding this very topic and I

think I got maybe one reply) but I literally have to eat constantly to

maintain my weight. What a picnic......

later,

the " other " Anne

Anne Sneddon

Las Vegas, Nevada

Subscribe to the Las Vegas Rockabilly Mailing List!

/subscribe.cgi/vegasrockabilly

[Guest guest]

Hi Joan,

I don't mind the questions. When I was firs dx my liver function was up to

the 700,s. I was put on Prednisone 10mg. i reacted really well and each

month after my blood test, he would drop the dose 1mg. I also had the

biopsy about 3 months after dx. The result was good. Only a small amount of

scare tissue. Eventually I was down to 3mg per day and the dr spoke to me

about Imuran. He said if I wanted to have another baby to do so now as I

was in remission and to have one prior to goning onto Imuran. I check with

my gyno/ob and he said no worries.

So I stayed on 3mg Pred. the whole pregancy. My husband and I thought from

being so sick that I might have trouble falling pregnant. But no. One

month later, I was. I had blood tests every week for the first month to

make sure my liver was ok. I had on problem during the pregancy,until 32

weeks. I started going into prem labour, and I was admitted to hospital.

For five weeks I was in hospital, going into partial labour nearly every

second day. I was put on ventalin, to stop contractions. My uterus was

contracting, but I would not dialiate. This was very hard, and very

depressing, as I was in pain most days, put they would keep stopping my

labour, so the baby was not born to early. I got to 37 weeks, they stopped

the ventilan, and I had my son in under two hours.!!!!( I said to them, 'I

told you that he wanted to get out! " ) LOL

Anyway, they said that they don't know if the AIH caused this to happen, or

maybe it would of happened anyway.

I was dx about 6 months after having my first son, and about 7 months after

my second, they now have dx me with Sjogren Syndrom aswell. So Im happy

with my two boys Jack and . We are not going to have any more. I

don't think I could go through another pregancy. It's to risky for me and

the baby, mentally, and a very high chance of miscarrage and prem birth.

What do you have now a boy or girl?

This might not happen to you. I had my first son at 36 weeks, I went into

early labour with him also. So it might not have been the AIH. I got very

tired through the pregancy, but thats AIH and pregnancy anyway, but the two

together does make you very tired.

was fine, they said he was very healthy 6 pound 8. The steriods

didn't effect him at all.

I think, I'm not sure, but with Imuran, I don't think you can have a baby

for about 6 months after stopping taking the drug. But don't quote me on

that, I'm not sure.

Sorry for the large answer, I hope it helps. I'm glad, even as hard as it

was, I love my son.!!!

Please let me know how you are going.

Stay well and keep smiling - Anne

[ ] Anne

> Hi,

> I hope you don't mind all the questions but when I was diagnosed 11/98 I

> was planning to have another child. But that was put off. Why weren't

> you started on Imuran right away? Was your condition mild at the time?

> I was told that if I am able to come off my 6mp I should be able to try

> and have another child.

> I'm not sure if I will but I just need to have the choice.

> Did you have a biopsy before you got pregnant?

> If I'm getting too personal just let me know.

> If you would prefer email me personally mclaffey@...

> Thanks

> Joan Claffey

> NJ

>

>

>

[Guest guest]

Dear Anne,

I know how you feel. If you could only sit down and talk to another PBCer,

it sure would help.

Have you registered with the PBCers support group? They will give you a list

of others with PBC. I know there are serveral from the UK on that list. One

in particular is a nice lady named Caroline from London. You register by

going to PBCers.com. I rarely post to that group. I get the info in digest

form. There is a lot of information for people with PBC.

Take care,

[Guest guest]

I watched a program the othere

> night showing people getting their gas mask instructions and you came to

mind

> and again yesterday when I heard of that mother and two chldren who were

> asfixiated (? Phonetic) in Israel in their sealed room! I guess they must

> have sealed their door too! I'll keep you in my prayers.>

yes, Anne, thank you. and the story of the mother and two sons is really

hoprrific but they did many mistakes. they closed the door too and they used

a grill(!) to heat up the room. you are not supposed to heat up the room at

all, but certainly not with a grill (the open fire type!) inside a sealed

room, for God's sake!! terrible, terrible.

>

> Anne

>

>

>

[Guest guest]

Hi Anne! We've all missed hearing from you and glad to see you are back

posting! Sorry your visit didn't work out.....how frustrating!!! I'm making

a mental note about transition planning even though I have a lot of years to

go....I know we will cross that bridge before I know it.

Johanna

In a message dated 5/6/2003 5:51:37 PM Pacific Daylight Time,

MiseEire52@... writes:

> Kathy,

> This sounds very interesting and I will be curious

> to see how it all plays out with the new psychoogist. The inflexibility

> and

> literalness can really be difficult to live with.

> Last week Cian and I agreed I would go visit him

> on Tuesday evening at 8:00 p.m instead of him coming home for that

> afternoon

> as it had rained and I suggested he wait till the next day as that was

> suppposed to be dry. He said he wanted to come home to cut the grass for

> me

> which I thought was very nice of him though I knew the real reason was that

>

> he wanted a CD from Best Buys that came out that day!

> My daughter and I pulled into the parking lot of

> his (Group Home) townhouse at 8:03 p.m. and knocked on the door at 8:05

> p.m.

> He opened the door and said " Oh Hi Mom we thought you weren't coming so we

> were about to leave to go to Wal*mart!' His two house mates were there

> with

> their jackets on ready to go and the care taker only allowed me a ten

> minute

> visit. I asked if I could take my son for an icecream while they went to

> Wal*mart just so I could have a chance to talk to him privately as I hadn't

>

> been able to do so since Easter Sunday. The caretaker said No because I

> didn't call two days in advance eventhough my son had set it up with his

> caretaker's boss but she didn't tell him. Thank God it is only a ten mile

> round trip! That is just a sample of what life is like when dealing with a

>

> Group Home situation. Already I could write a book on this since Feb 19th.

>

> It has been very stressful and I can't suggest strongly enough that people

> make sure that transition planning is done at age 14 and that FAPE is

> adhered

> too! Also if necessary to make yourself Guardian do so before age 18 while

>

> you still have some control though they say in matters of psychiatry they

> don't need to talk to parents once the child turns 16!

>

> Anne

>

[Guest guest]

Thanks for the credit, Anne, we ARE here to help each other !

F

[Guest guest]

In a message dated 5/29/2003 8:11:58 PM Pacific Daylight Time,

MiseEire52@... writes:

> Johanna,

> It's really interesting to see how much you have

> learned and shared in the time we have been in this group!

Isn't that the truth! Thanks everyone!!!

Johanna

[Guest guest]

In a message dated 6/9/2003 8:04:26 AM Pacific Daylight Time,

MiseEire52@... writes:

> Can I identify with that!! I had the meeting form

> hell last Thursday which I haven't posted about yet as Ihaven't had time and

> I

> am still a week behind in reading my digests. Glad to know you and Roxanna

> had nice breaks. I enjoyed my trip to Massachusettsfor the conference in

> early

> May but it seems so long ago after all I've been through these last two

> weeks

> that I am ready to go again! Enjoy your Summer.

> Anne

>

I know what you mean about being ready to go again! The weekend was much

too short meaning I needed more time to unwind. I think when you get

overwhelmed it takes more than a couple of days to really work. Though I am not

complaining...I take whatever breaks I can get! My dh just had hernia/repair

surgery

on Friday and we assumed via the dr.'s office that it would be 2 weeks

recover. On the way home he tells me he can't lift the kids (meaning take care

of

them himself) for 4 to 6 weeks!!! I was not ready to hear that. I am going to

hire babysitters lest I go insane which is a possibility by week 3. LOL!!!

People in general need a balance and parent's of special needs kids just need

it more often....however, we usually get it less.

Take care Anne and hope you get another break soon!

Johanna

[Guest guest]

Hi, Anne, thank you for your post. I was wondering where you were...

jump right in to update us in what is going on with you whenever you have the

time... Fania

[Guest guest]

Anne

> First of all, I'm far from an expert on most of these Dr.

protocol, but I try to keep an open mind! I've been a member of this

group for several years not to try and find if and how much a quack she

may be, but to learn if there is some legitimacy to her work in case I

find the time/need to read and try her methods.

>

> Secondly, there is nothig wrong with the " placebo " effect as it only

shows that people who want something bad enough and believe they have a

chance, can beat most all odds; is the power of the mind a bad thing??

If you find it so, then you must be from the conventional side and are

either here to start trouble, or will never be convinced anyway at the

least.

>

> Thirdly, PROVE that they DID land on the moon!

>

> .and lastly, believing in the " accepted standard " not only leads to

closed minds, but also makes us susceptible to being lemings or sheep!!

Anyone for a cliff dive w/o the water??

>

> Steve

[Guest guest]

In a message dated 8/20/2003 4:19:27 PM Pacific Daylight Time,

uplift@... writes:

> Hi, Anne, thank you for your post. I was wondering where you were...

> jump right in to update us in what is going on with you whenever you have

> the time... Fania

>

>

I was thinking about you too. How is your son doing??? Hope you and your

family are doing well. miss your posts

Johanna

[Guest guest]

don't worry about it , Anne, I too sometimes don't keep up with memorizing

everyone's children, gender, names, ages.......

heck! but I have a good excuse, I can show you my doctor's letter referring me

to a memory-testing lab. what's yours ?? lol!

F

<<<<< Apparently I goofed when I said niece when mentioning your sister's

baby!Sorry about that! I had read about the baby the other night and I guess I

ad a senior moment (having lots lately) when it came to the sex!

Anne

[Guest guest]

anne,

I'm so happy for you and Daryl. I too hope the call comes quickly for the transplant. I know it would be the most blessed Christmas gift ever. You too enjoy Christmas and I will keep you both in my prayers.

[Guest guest]

anne, I am so happy for you and Daryl. Will continue to keep you both in my Prayers. Merry Christmas

Take Care,

Shirlee (Wa State)

[Guest guest]

Hello, Anne. I'm glad to hear from you. I think of you often.

Harper

[Guest guest]

Patty, thank you for your kind words. I'm having more good days than bad ones now, it seems the intensity of the grief is finally lifting.

I will stick around as you've all asked me too. I have to keep an eye on you all afterall.<grin> Just to make sure you're all taking the best care of yourselves that you can. Thank you for your wonderful support. I couldn't do as well as I'm doing without seeing others doing the best they can too!

Love

anne

[ ] anne

anne,I'm so sorry to hear about Daryl, wow two months is such a short time.Please stay with the group, it is duch a great group of people and you havealways had a lot to offer. I'll say a prayer for him on liver heaven (thereis a special place for us up there). How are you doing? Yeah, I agree Tonyand Kelsey are amazing, So is everyone else! Including you!Patty

[Guest guest]

Sorry l have taken so long to thankyou for the websits.I haven't had

a

chance to look at them yet but l defintely will.You asked what l had

and if there is a possibility of a live doner. There is no chance of

a

live doner. What l have is schlorosing Choliangitis that is the

medical word for it. My problems actualy started about 4 years ago

with my gale bladder. It started making hundreds and hundreds of very

small gale stones which started to block the bile ducts and my body

started destroying its self l spent about 4 weeks in intensive care

my

family was told to prepare themselves the doctor were convinced l was

going to die thankfully l didn't. I also had 2 operations within 3

months afterwards which has caused alot of damage in the stomach.

Because of it l am now an insulin diabetic. The bile ducts that are

at

the top of the liver are closing and they can't put anything inside

them to keep them open. The blood vessels in the liver are blocking

and not letting enough blood through.Sorry if the notes a bit long

but

thanks again for the web sites. I am sorry to hear about Daryl l hope

you are doing well. Bye for now

[Guest guest]

Anne,

I guess I was going from my experience with our previous doctor who was so

called " familiar " with the Dan! protocol. Starting out he came recommended to

me, but, other parents starting leaving because he was only focusing on certain

things and not doing any thing that they were interested in. Personally, he

was very compassionate and wanted to help. Needless to say, he closed his

practice in November and we need a new doctor. I di not mean to imply that DAN!

doctors are ignorant, I just think some of them go about doing things

differently

and if you are going to use one, make sure that they have a good reputation

and what kind of protcols they use or advocate. Blessings!

Ginger

[Guest guest]

Also remember that the same doctor that one person raves about may be

terrible for you. Check out how they approach treatment and how they listen to

and

respect you.

All DAN doctors are not alike. They vary widely.

[Guest guest]

Anne,

I have been reading you posts for the last several days. What d think is good for spasticity? I have tried several things and gotten no relief from any of them.

Appreciate your comments,

-- [low dose naltrexone] Re: *Copaxone.....go to the homepage of Copaxone for info..

> > When looking at Nutritonal and Natural Protocols such as:> > > > Proteins: Vitamins; Minerals; Herbs; sunlight; clean water; fresh > air> > > > You want to see your Protocol as a square or a pyramid not "flat.> > > > For example; you begin with a Protocl like > > > > Copaxone; LDN and Thiamine Vitamin B1 or Vitamin B-Complex; Vit. D.> > > > This is your foundation(square); then you add Vitamin C; Calcium > > Magsnium to build up the Pyramid within the Sqaure; then your Herbs.> > Then you go on a better diet. This is called "Building up a > protocol.> > This is why Nutrition is composed of various aspects of Nature. > Anne.> > > > >> > > Yes, there are test for amino acids and really she should be > tested > > and > > > aminos and other nutrients added to her formula based on those > > tests. Find a > > > DAN! doc or orthomolecular doc to do the testing. Metametrix is > the > > name of one > > > lab that does those tests. > > > > > > How much LDN is she on for what period of time. > > > > > > mjh > > > > > > > > > Posted by: "alrightguy123" _alrightguy123@ _ > > > (mailto:alrightguy123@?Subject= > > > Re:%20*Copaxone.....go%20to%20the%20homepage%20of%20Copaxone%> 20for%> > 20info..) _alrightguy123 _ > > (alrightguy123) > > > Mon Mar 19, 2007 8:46 pm (PST) > > > personal opinion: I don't think the length of the chains have > much> > > to do with how well the amino acids are used. Our bodies make > > quite a> > > few amino acids on their own. There are something like 7 or 10 > > amino> > > acids our bodies don't make but need. Maybe a better question is > > what> > > is her body making or not making and which amino acids does she > > need.> > > I don't know if there is a blood test, stool test, urine test > that> > > would answer these questions. > > > > > > > > > > > > > > > > > > ************************************** AOL now offers free email > to > > everyone. > > > Find out more about what's free from AOL at http://www.aol.com.> > >> >>

[Guest guest]

Hello my friends: I appreciate your reply:

For spasitiy; which I surmise are caused by an interference of some

sort from the Mind to the Nerves which are called Nuerotranmitters.

I would therefore advise Nutrients comprised of various known

enablers of Neurotrnamitters such as:

" CHOLINE

*INOSITOL

*THIAMINE VITAMIN B1

*OMEGA'S 3'S; 6'S AND 9'S such as *Fish Oils; Borage Oils;

Primrose;Flax;Hemp-Seed Oil.

You want to strengthen up the nerves with Neurotransmitters; Vitamins

and proteins; esp. plant proteins; like fresh and steamed Greens.

If you told me which protocols you have already tried I could help you

OH AND I ALMOST FORGOT; VITAMIN D IS ESSENTIAL FOR SPASICITY;ASK DOC.

*Vitamin D is found in Sunlight;Fish;Fish-bones;Fish-oils;Egg-Yolks.

(a very scare Vitamin in Nature this is why *Cod-Liver Oil is used

because Cod-Liver Oil has both Vit. A(pure form Retinol and Vit. D.

Sunshine is actually one of the best sources;get sun on legs not face.

> > > >

> > > > Yes, there are test for amino acids and really she should be

> > tested

> > > and

> > > > aminos and other nutrients added to her formula based on

those

> > > tests. Find a

> > > > DAN! doc or orthomolecular doc to do the testing. Metametrix

is

> > the

> > > name of one

> > > > lab that does those tests.

> > > >

> > > > How much LDN is she on for what period of time.

> > > >

> > > > mjh

> > > >

> > > >

> > > > Posted by: " alrightguy123 " _alrightguy123@ _

> > > > (mailto:alrightguy123@?Subject=

> > > > Re:%20*Copaxone.....go%20to%20the%20homepage%20of%20Copaxone%

> > 20for%

> > > 20info..) _alrightguy123 _

> > > (alrightguy123)

> > > > Mon Mar 19, 2007 8:46 pm (PST)

> > > > personal opinion: I don't think the length of the chains have

> > much

> > > > to do with how well the amino acids are used. Our bodies make

> > > quite a

> > > > few amino acids on their own. There are something like 7 or

10

> > > amino

> > > > acids our bodies don't make but need. Maybe a better question

> is

> > > what

> > > > is her body making or not making and which amino acids does

> she

> > > need.

> > > > I don't know if there is a blood test, stool test, urine test

> > that

> > > > would answer these questions.

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > ************************************** AOL now offers free

> email

> > to

> > > everyone.

> > > > Find out more about what's free from AOL at

http://www.aol.com.

> > > >

> > >

> >

>

[Guest guest]

Just in case anyone is interested Vit. B6 is needed: GABA is good also

I herby unsubscribe because i was only trying to help not hinder. Anne

> > > >

> > > > Yes, there are test for amino acids and really she should be

> > tested

> > > and

> > > > aminos and other nutrients added to her formula based on

those

> > > tests. Find a

> > > > DAN! doc or orthomolecular doc to do the testing. Metametrix

is

> > the

> > > name of one

> > > > lab that does those tests.

> > > >

> > > > How much LDN is she on for what period of time.

> > > >

> > > > mjh

> > > >

> > > >

> > > > Posted by: " alrightguy123 " _alrightguy123@ _

> > > > (mailto:alrightguy123@?Subject=

> > > > Re:%20*Copaxone.....go%20to%20the%20homepage%20of%20Copaxone%

> > 20for%

> > > 20info..) _alrightguy123 _

> > > (alrightguy123)

> > > > Mon Mar 19, 2007 8:46 pm (PST)

> > > > personal opinion: I don't think the length of the chains have

> > much

> > > > to do with how well the amino acids are used. Our bodies make

> > > quite a

> > > > few amino acids on their own. There are something like 7 or

10

> > > amino

> > > > acids our bodies don't make but need. Maybe a better question

> is

> > > what

> > > > is her body making or not making and which amino acids does

> she

> > > need.

> > > > I don't know if there is a blood test, stool test, urine test

> > that

> > > > would answer these questions.

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > ************************************** AOL now offers free

> email

> > to

> > > everyone.

> > > > Find out more about what's free from AOL at

http://www.aol.com.

> > > >

> > >

> >

>

[Guest guest]

Anne, if you are still here, I think

anyone who has an autoimmune condition has to be interested in nutrition,

vitamins, and supplements.

I just find it all very hard to

understand, & find it easier to follow a list of recommended supplements

such as provided by Dr Bob Lawrence, & Ashton Embry on the MSRC website, www.msrc.co.uk

Tommy

From:

low dose naltrexone

[mailto:low dose naltrexone ]

On Behalf Of Anne

Sent: 03 April 2007 20:03

low dose naltrexone

Subject: [low dose naltrexone] Re:

Anne

Just in case anyone is interested Vit. B6 is needed:

GABA is good also

I herby unsubscribe because i was only trying to help not hinder. Anne

[Guest guest]

Ann I have been through so much because

I was chemically poisoned from the implants

Just wanted to tell you my health is improving

I am detoxing which is not an easy task

Hope this never happens to you

No implant is safe unless you know

how to protect yourself right away

The ladies at

educated me and Dr. Kolb saved my life

Hope I have educated you in some way,

Sandy~

Before Implants:110 -118 lbs

After Implants: 180 lbs

After Capsule Removal:174

Juicing:160 lbs

Ann here is my detox menu - No Entrees !

Juicing organic carrots and apples

Organic Broth

Water

&

coffee enemas everyday /supplements