Re: Re: heat ?????????

[Guest guest]

and Peggy

Thank you for confirming it happens to other people. I had the breathing problem this weekend with the weather change also. I live in IL and it has gotten hot and humid here very quickly. I have the same feeling in my chest when in the hot humid weather. I have a problem breathing until I get somewhere that has moving air. A fan in the face helps a lot for me. I guess we just have to enjoy the summer. LOL

Fay

64 IPF 06/06 IL

Re: Back up oxygen systems

Thanks guys for your responses. To answer some of your questions –MB: the cart is not made of platinum with mink tips (too bad) in fact, the wheels are well worn and the screw that holds the cylinder is almost stripped. When I said Pulmonary

rehab, I actually meant a cardiac and pulmonary maintenance program at the local wellness center. When I went through the hospital approved program, they supplied the o2. I am on 4 liters at rest, but I find 3 is OK too, but I’m on 6-8 on exertion. When I’m exercising, I also have to use a rebreather mask which I hate to keep the o2 levels up.

I am going to take Bruce’s advice and “diplomatically” inquire of the o2 supplier about the cost of the cart rental. I guess what really got me to thinking about this, is that I got a bill for over $200 which covered several months. It’s much easier to pay a smaller amount each month than be hit with a whopper of a bill.

I have my 3-month check up coming in a week and I guess I’m nervous about that. I just have this gnawing feeling that the disease has progressed. When you have a few bad days, you can’t help but think it’s the disease, but it could be the weather or meds too. I have been going to Duke for my care, and was told that my dr. is going to be taking over the medical aspects of the transplant program and has to give up his fibrosis patients. I’ve heard a couple of you mention Dr. on and a dr. friend also suggested a Dr. Govert. I will see who Dr. Steele recommends and go from there.

Thanks for your suggestions.

Sue D, 62 yr old, Fibrotic NSIP dx 9/07, VA

No virus found in this incoming message.

Checked by AVG. Version: 8.0.100 / Virus Database: 270.0.0/1489 - Release Date: 6/7/2008 11:17 AM

[Guest guest]

Here, in Toronto we had over 88 & 90 dgrees (only from this weekend). We had our first heat wave

of the summer, and they asked people with respiratory problems to stay inside. All weekend and

today I have the A/C on.

Peggy, I haven't been out all weekend, if I did go, I would have trouble breathing and because

I'm still feeling crappy, I stayed inside.

I need to go out today to buy some things.

Take CareIrenePF 03/07 Raynaud's Disease 09/07Crohn's Disease 03/95 Asthma 02/92

Re: Back up oxygen systems

Thanks guys for your responses. To answer some of your questions –MB: the cart is not made of platinum with mink tips (too bad) in fact, the wheels are well worn and the screw that holds the cylinder is almost stripped. When I said Pulmonary

rehab, I actually meant a cardiac and pulmonary maintenance program at the local wellness center. When I went through the hospital approved program, they supplied the o2. I am on 4 liters at rest, but I find 3 is OK too, but I’m on 6-8 on exertion. When I’m exercising, I also have to use a rebreather mask which I hate to keep the o2 levels up.

I am going to take Bruce’s advice and “diplomatically” inquire of the o2 supplier about the cost of the cart rental. I guess what really got me to thinking about this, is that I got a bill for over $200 which covered several months. It’s much easier to pay a smaller amount each month than be hit with a whopper of a bill.

I have my 3-month check up coming in a week and I guess I’m nervous about that. I just have this gnawing feeling that the disease has progressed. When you have a few bad days, you can’t help but think it’s the disease, but it could be the weather or meds too. I have been going to Duke for my care, and was told that my dr. is going to be taking over the medical aspects of the transplant program and has to give up his fibrosis patients. I’ve heard a couple of you mention Dr. on and a dr. friend also suggested a Dr. Govert. I will see who Dr. Steele recommends and go from there.

Thanks for your suggestions.

Sue D, 62 yr old, Fibrotic NSIP dx 9/07, VA

Instant message from any web browser! Try the new Yahoo! Canada Messenger for the Web BETA