Guest guest Posted June 8, 2008 Report Share Posted June 8, 2008 Hi Peg, I've been having a lotta trouble breathing lately too, but the humidity up here has been high and its been in the 80's, hot for Michigan this time of year. Gene went out and got a air conditioner for our living room cause the one that "comes" with our apt doesn't do squat. We have one in the b edroom too. Love, Vicky81856Get trade secrets for amazing burgers. Watch "Cooking with Tyler Florence" on AOL Food. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2008 Report Share Posted June 8, 2008 Hi Peg, I've been having a lotta trouble breathing lately too, but the humidity up here has been high and its been in the 80's, hot for Michigan this time of year. Gene went out and got a air conditioner for our living room cause the one that "comes" with our apt doesn't do squat. We have one in the b edroom too. Love, Vicky81856Get trade secrets for amazing burgers. Watch "Cooking with Tyler Florence" on AOL Food. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2008 Report Share Posted June 8, 2008 MY sweet precious lil Abby is in heat!!!!!! I need to get her fixed, just never got around to it, bless her heart shes mopeing around like she has doggie cramps...LOL Oh and....the little traitor has become a Daddys girl, she sleeps in his arms on a pillow, fine then, I still have my 2 kittys, hmmpptt...lol Vicky81856Get trade secrets for amazing burgers. Watch "Cooking with Tyler Florence" on AOL Food. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2008 Report Share Posted June 8, 2008 MY sweet precious lil Abby is in heat!!!!!! I need to get her fixed, just never got around to it, bless her heart shes mopeing around like she has doggie cramps...LOL Oh and....the little traitor has become a Daddys girl, she sleeps in his arms on a pillow, fine then, I still have my 2 kittys, hmmpptt...lol Vicky81856Get trade secrets for amazing burgers. Watch "Cooking with Tyler Florence" on AOL Food. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2008 Report Share Posted June 8, 2008 MY sweet precious lil Abby is in heat!!!!!! I need to get her fixed, just never got around to it, bless her heart shes mopeing around like she has doggie cramps...LOL Oh and....the little traitor has become a Daddys girl, she sleeps in his arms on a pillow, fine then, I still have my 2 kittys, hmmpptt...lol Vicky81856Get trade secrets for amazing burgers. Watch "Cooking with Tyler Florence" on AOL Food. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2008 Report Share Posted June 8, 2008 Bruce, I'll let ya know when Disney is doable, It would be best now to wait for this summer to pass. I think we are about to explode here. Peggy, ipf 6/04 Florida Happy moments, praise God.Difficult moments, seek God.Quiet moments, worship God.Painful moments, trust God.Every moment, thank God. Hi MB & All, I had an experience yesterday and thought I would run it by y'all to see if this has happened to anyone. I was out on my porch for about 10 or so minutes, It was just so hot it was hard to breathe. I came back in and could hardly breathe, my chest felt like a truck hit me HARD. I think it was the temp. change. ??? anyone else this happened to? We have been 98, 99 degrees for over three weeks. On the way home from 's sister the other day the ext. temp. on the car at 65 MPH was 109.. you know that is just TOOOOOOOOO hot. I won't be making bible covers unless it's early in the AM. Peggy, ipf 6/04 Florida Happy moments, praise God.Difficult moments, seek God.Quiet moments, worship God.Painful moments, trust God.Every moment, thank God.Sue,Try not to get too down because you've had a few cruddy days. The heat we've been having is brutal and I'm sure your air quality in VA isn't any better than ours here in NC when we have a stationary front like we do now. This kind of stuff can wreak havoc with our breathing. Just go slow and don't panic. I hate when doctors circumstances change and we have to make adjustments. I go to Duke also, it's actually practically in my backyard. LOL Only about 4 miles from my house to the clinc building where I see Dr. on. I'm sure whoever you choose at Duke will be fine. My only advice would be make sure the doctor you choose is a specialist in interstitial lung diseases as opposed to a general pulmonologist or a specialist in some other type of lung disease. You can get some info about the doctors their educations, background and areas of expertise at this website. http://www.dukehealth.org/physicians Hope that helps! Beth Age 48 Fibrotic NSIP 06/06 Change everything. Love and Forgive Re: Back up oxygen systemsThanks guys for your responses. To answer some of your questions –MB: the cart is not made of platinum with mink tips (too bad) in fact, the wheels are well worn and the screw that holds the cylinder is almost stripped. When I said Pulmonaryrehab, I actually meant a cardiac and pulmonary maintenance program at the local wellness center. When I went through the hospital approved program, they supplied the o2. I am on 4 liters at rest, but I find 3 is OK too, but I’m on 6-8 on exertion. When I’m exercising, I also have to use a rebreather mask which I hate to keep the o2 levels up. I am going to take Bruce’s advice and “diplomatically” inquire of the o2 supplier about the cost of the cart rental. I guess what really got me to thinking about this, is that I got a bill for over $200 which covered several months. It’s much easier to pay a smaller amount each month than be hit with a whopper of a bill. I have my 3-month check up coming in a week and I guess I’m nervous about that. I just have this gnawing feeling that the disease has progressed. When you have a few bad days, you can’t help but think it’s the disease, but it could be the weather or meds too. I have been going to Duke for my care, and was told that my dr. is going to be taking over the medical aspects of the transplant program and has to give up his fibrosis patients. I’ve heard a couple of you mention Dr. on and a dr. friend also suggested a Dr. Govert. I will see who Dr. Steele recommends and go from there. Thanks for your suggestions.Sue D, 62 yr old, Fibrotic NSIP dx 9/07, VA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2008 Report Share Posted June 8, 2008 Bruce, I'll let ya know when Disney is doable, It would be best now to wait for this summer to pass. I think we are about to explode here. Peggy, ipf 6/04 Florida Happy moments, praise God.Difficult moments, seek God.Quiet moments, worship God.Painful moments, trust God.Every moment, thank God. Hi MB & All, I had an experience yesterday and thought I would run it by y'all to see if this has happened to anyone. I was out on my porch for about 10 or so minutes, It was just so hot it was hard to breathe. I came back in and could hardly breathe, my chest felt like a truck hit me HARD. I think it was the temp. change. ??? anyone else this happened to? We have been 98, 99 degrees for over three weeks. On the way home from 's sister the other day the ext. temp. on the car at 65 MPH was 109.. you know that is just TOOOOOOOOO hot. I won't be making bible covers unless it's early in the AM. Peggy, ipf 6/04 Florida Happy moments, praise God.Difficult moments, seek God.Quiet moments, worship God.Painful moments, trust God.Every moment, thank God.Sue,Try not to get too down because you've had a few cruddy days. The heat we've been having is brutal and I'm sure your air quality in VA isn't any better than ours here in NC when we have a stationary front like we do now. This kind of stuff can wreak havoc with our breathing. Just go slow and don't panic. I hate when doctors circumstances change and we have to make adjustments. I go to Duke also, it's actually practically in my backyard. LOL Only about 4 miles from my house to the clinc building where I see Dr. on. I'm sure whoever you choose at Duke will be fine. My only advice would be make sure the doctor you choose is a specialist in interstitial lung diseases as opposed to a general pulmonologist or a specialist in some other type of lung disease. You can get some info about the doctors their educations, background and areas of expertise at this website. http://www.dukehealth.org/physicians Hope that helps! Beth Age 48 Fibrotic NSIP 06/06 Change everything. Love and Forgive Re: Back up oxygen systemsThanks guys for your responses. To answer some of your questions –MB: the cart is not made of platinum with mink tips (too bad) in fact, the wheels are well worn and the screw that holds the cylinder is almost stripped. When I said Pulmonaryrehab, I actually meant a cardiac and pulmonary maintenance program at the local wellness center. When I went through the hospital approved program, they supplied the o2. I am on 4 liters at rest, but I find 3 is OK too, but I’m on 6-8 on exertion. When I’m exercising, I also have to use a rebreather mask which I hate to keep the o2 levels up. I am going to take Bruce’s advice and “diplomatically” inquire of the o2 supplier about the cost of the cart rental. I guess what really got me to thinking about this, is that I got a bill for over $200 which covered several months. It’s much easier to pay a smaller amount each month than be hit with a whopper of a bill. I have my 3-month check up coming in a week and I guess I’m nervous about that. I just have this gnawing feeling that the disease has progressed. When you have a few bad days, you can’t help but think it’s the disease, but it could be the weather or meds too. I have been going to Duke for my care, and was told that my dr. is going to be taking over the medical aspects of the transplant program and has to give up his fibrosis patients. I’ve heard a couple of you mention Dr. on and a dr. friend also suggested a Dr. Govert. I will see who Dr. Steele recommends and go from there. Thanks for your suggestions.Sue D, 62 yr old, Fibrotic NSIP dx 9/07, VA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2008 Report Share Posted June 8, 2008 Bruce, I'll let ya know when Disney is doable, It would be best now to wait for this summer to pass. I think we are about to explode here. Peggy, ipf 6/04 Florida Happy moments, praise God.Difficult moments, seek God.Quiet moments, worship God.Painful moments, trust God.Every moment, thank God. Hi MB & All, I had an experience yesterday and thought I would run it by y'all to see if this has happened to anyone. I was out on my porch for about 10 or so minutes, It was just so hot it was hard to breathe. I came back in and could hardly breathe, my chest felt like a truck hit me HARD. I think it was the temp. change. ??? anyone else this happened to? We have been 98, 99 degrees for over three weeks. On the way home from 's sister the other day the ext. temp. on the car at 65 MPH was 109.. you know that is just TOOOOOOOOO hot. I won't be making bible covers unless it's early in the AM. Peggy, ipf 6/04 Florida Happy moments, praise God.Difficult moments, seek God.Quiet moments, worship God.Painful moments, trust God.Every moment, thank God.Sue,Try not to get too down because you've had a few cruddy days. The heat we've been having is brutal and I'm sure your air quality in VA isn't any better than ours here in NC when we have a stationary front like we do now. This kind of stuff can wreak havoc with our breathing. Just go slow and don't panic. I hate when doctors circumstances change and we have to make adjustments. I go to Duke also, it's actually practically in my backyard. LOL Only about 4 miles from my house to the clinc building where I see Dr. on. I'm sure whoever you choose at Duke will be fine. My only advice would be make sure the doctor you choose is a specialist in interstitial lung diseases as opposed to a general pulmonologist or a specialist in some other type of lung disease. You can get some info about the doctors their educations, background and areas of expertise at this website. http://www.dukehealth.org/physicians Hope that helps! Beth Age 48 Fibrotic NSIP 06/06 Change everything. Love and Forgive Re: Back up oxygen systemsThanks guys for your responses. To answer some of your questions –MB: the cart is not made of platinum with mink tips (too bad) in fact, the wheels are well worn and the screw that holds the cylinder is almost stripped. When I said Pulmonaryrehab, I actually meant a cardiac and pulmonary maintenance program at the local wellness center. When I went through the hospital approved program, they supplied the o2. I am on 4 liters at rest, but I find 3 is OK too, but I’m on 6-8 on exertion. When I’m exercising, I also have to use a rebreather mask which I hate to keep the o2 levels up. I am going to take Bruce’s advice and “diplomatically” inquire of the o2 supplier about the cost of the cart rental. I guess what really got me to thinking about this, is that I got a bill for over $200 which covered several months. It’s much easier to pay a smaller amount each month than be hit with a whopper of a bill. I have my 3-month check up coming in a week and I guess I’m nervous about that. I just have this gnawing feeling that the disease has progressed. When you have a few bad days, you can’t help but think it’s the disease, but it could be the weather or meds too. I have been going to Duke for my care, and was told that my dr. is going to be taking over the medical aspects of the transplant program and has to give up his fibrosis patients. I’ve heard a couple of you mention Dr. on and a dr. friend also suggested a Dr. Govert. I will see who Dr. Steele recommends and go from there. Thanks for your suggestions.Sue D, 62 yr old, Fibrotic NSIP dx 9/07, VA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2008 Report Share Posted June 8, 2008 Hi Vicky. I thank God for our AC everyday. I am glad you are going to get your self COOOOOLLLLLLLL. LOLHow is your little Abby doing ?? I think of her when my little spoiled rotten one being so cute.. Oh I am such a nut overthese dogs..lol Peggy, ipf 6/04 Florida Happy moments, praise God.Difficult moments, seek God.Quiet moments, worship God.Painful moments, trust God.Every moment, thank God. Hi Peg, I've been having a lotta trouble breathing lately too, but the humidity up here has been high and its been in the 80's, hot for Michigan this time of year. Gene went out and got a air conditioner for our living room cause the one that "comes" with our apt doesn't do squat. We have one in the b edroom too. Love, Vicky81856Get trade secrets for amazing burgers. Watch "Cooking with Tyler Florence" on AOL Food. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2008 Report Share Posted June 8, 2008 Hi Vicky. I thank God for our AC everyday. I am glad you are going to get your self COOOOOLLLLLLLL. LOLHow is your little Abby doing ?? I think of her when my little spoiled rotten one being so cute.. Oh I am such a nut overthese dogs..lol Peggy, ipf 6/04 Florida Happy moments, praise God.Difficult moments, seek God.Quiet moments, worship God.Painful moments, trust God.Every moment, thank God. Hi Peg, I've been having a lotta trouble breathing lately too, but the humidity up here has been high and its been in the 80's, hot for Michigan this time of year. Gene went out and got a air conditioner for our living room cause the one that "comes" with our apt doesn't do squat. We have one in the b edroom too. Love, Vicky81856Get trade secrets for amazing burgers. Watch "Cooking with Tyler Florence" on AOL Food. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2008 Report Share Posted June 8, 2008 Peggy, YES< YES<YES I had the identical experience over this week-end!!! My sats were fine but my chest felt like an elephant was sitting on it!!! The weather here has been so very hot for this time ofthe year..90's and very high humidity. Stay inside!!!! Z fibriotic NSIP/05 Z 64, fibriotic NSIP/o5/PA And “mild” PH/10/07 and Reynaud’s too!! No, NSIP was not self-inflicted…I never smoked! Potter, reader,carousel lover and MomMom to Darah and Sara “I’m gonna be iron like a lion in Zion” Bob Marley Peggy wrote: Hi MB & All, I had an experience yesterday and thought I would run it by y'all to see if this has happened to anyone. I was out on my porch for about 10 or so minutes, It was just so hot it was hard to breathe. I came back in and could hardly breathe, my chest felt like a truck hit me HARD. I think it was the temp. change. ??? anyone else this happened to? We have been 98, 99 degrees for over three weeks. On the way home from 's sister the other day the ext. temp. on the car at 65 MPH was 109.. you know that is just TOOOOOOOOO hot. I won't be making bible covers unless it's early in the AM. Peggy, ipf 6/04 Florida Happy moments, praise God. Difficult moments, seek God. Quiet moments, worship God. Painful moments, trust God. Every moment, thank God. Sue, Try not to get too down because you've had a few cruddy days. The heat we've been having is brutal and I'm sure your air quality in VA isn't any better than ours here in NC when we have a stationary front like we do now. This kind of stuff can wreak havoc with our breathing. Just go slow and don't panic. I hate when doctors circumstances change and we have to make adjustments. I go to Duke also, it's actually practically in my backyard. LOL Only about 4 miles from my house to the clinc building where I see Dr. on. I'm sure whoever you choose at Duke will be fine. My only advice would be make sure the doctor you choose is a specialist in interstitial lung diseases as opposed to a general pulmonologist or a specialist in some other type of lung disease. You can get some info about the doctors their educations, background and areas of expertise at this website. http://www.dukehealth.org/physicians Hope that helps! Beth Age 48 Fibrotic NSIP 06/06 Change everything. Love and Forgive ----- Original Message ---- From: Sue Dassel <sdasselverizon (DOT) net> To: Breathe-Support Sent: Sunday, June 8, 2008 9:59:02 PM Subject: Re: Back up oxygen systems Thanks guys for your responses. To answer some of your questions –MB: the cart is not made of platinum with mink tips (too bad) in fact, the wheels are well worn and the screw that holds the cylinder is almost stripped. When I said Pulmonary rehab, I actually meant a cardiac and pulmonary maintenance program at the local wellness center. When I went through the hospital approved program, they supplied the o2. I am on 4 liters at rest, but I find 3 is OK too, but I’m on 6-8 on exertion. When I’m exercising, I also have to use a rebreather mask which I hate to keep the o2 levels up. I am going to take Bruce’s advice and “diplomatically” inquire of the o2 supplier about the cost of the cart rental. I guess what really got me to thinking about this, is that I got a bill for over $200 which covered several months. It’s much easier to pay a smaller amount each month than be hit with a whopper of a bill. I have my 3-month check up coming in a week and I guess I’m nervous about that. I just have this gnawing feeling that the disease has progressed. When you have a few bad days, you can’t help but think it’s the disease, but it could be the weather or meds too. I have been going to Duke for my care, and was told that my dr. is going to be taking over the medical aspects of the transplant program and has to give up his fibrosis patients. I’ve heard a couple of you mention Dr. on and a dr. friend also suggested a Dr. Govert. I will see who Dr. Steele recommends and go from there. Thanks for your suggestions. Sue D, 62 yr old, Fibrotic NSIP dx 9/07, VA No virus found in this incoming message. Checked by AVG. Version: 8.0.100 / Virus Database: 270.0.0/1489 - Release Date: 6/7/2008 11:17 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2008 Report Share Posted June 8, 2008 Peggy, YES< YES<YES I had the identical experience over this week-end!!! My sats were fine but my chest felt like an elephant was sitting on it!!! The weather here has been so very hot for this time ofthe year..90's and very high humidity. Stay inside!!!! Z fibriotic NSIP/05 Z 64, fibriotic NSIP/o5/PA And “mild” PH/10/07 and Reynaud’s too!! No, NSIP was not self-inflicted…I never smoked! Potter, reader,carousel lover and MomMom to Darah and Sara “I’m gonna be iron like a lion in Zion” Bob Marley Peggy wrote: Hi MB & All, I had an experience yesterday and thought I would run it by y'all to see if this has happened to anyone. I was out on my porch for about 10 or so minutes, It was just so hot it was hard to breathe. I came back in and could hardly breathe, my chest felt like a truck hit me HARD. I think it was the temp. change. ??? anyone else this happened to? We have been 98, 99 degrees for over three weeks. On the way home from 's sister the other day the ext. temp. on the car at 65 MPH was 109.. you know that is just TOOOOOOOOO hot. I won't be making bible covers unless it's early in the AM. Peggy, ipf 6/04 Florida Happy moments, praise God. Difficult moments, seek God. Quiet moments, worship God. Painful moments, trust God. Every moment, thank God. Sue, Try not to get too down because you've had a few cruddy days. The heat we've been having is brutal and I'm sure your air quality in VA isn't any better than ours here in NC when we have a stationary front like we do now. This kind of stuff can wreak havoc with our breathing. Just go slow and don't panic. I hate when doctors circumstances change and we have to make adjustments. I go to Duke also, it's actually practically in my backyard. LOL Only about 4 miles from my house to the clinc building where I see Dr. on. I'm sure whoever you choose at Duke will be fine. My only advice would be make sure the doctor you choose is a specialist in interstitial lung diseases as opposed to a general pulmonologist or a specialist in some other type of lung disease. You can get some info about the doctors their educations, background and areas of expertise at this website. http://www.dukehealth.org/physicians Hope that helps! Beth Age 48 Fibrotic NSIP 06/06 Change everything. Love and Forgive ----- Original Message ---- From: Sue Dassel <sdasselverizon (DOT) net> To: Breathe-Support Sent: Sunday, June 8, 2008 9:59:02 PM Subject: Re: Back up oxygen systems Thanks guys for your responses. To answer some of your questions –MB: the cart is not made of platinum with mink tips (too bad) in fact, the wheels are well worn and the screw that holds the cylinder is almost stripped. When I said Pulmonary rehab, I actually meant a cardiac and pulmonary maintenance program at the local wellness center. When I went through the hospital approved program, they supplied the o2. I am on 4 liters at rest, but I find 3 is OK too, but I’m on 6-8 on exertion. When I’m exercising, I also have to use a rebreather mask which I hate to keep the o2 levels up. I am going to take Bruce’s advice and “diplomatically” inquire of the o2 supplier about the cost of the cart rental. I guess what really got me to thinking about this, is that I got a bill for over $200 which covered several months. It’s much easier to pay a smaller amount each month than be hit with a whopper of a bill. I have my 3-month check up coming in a week and I guess I’m nervous about that. I just have this gnawing feeling that the disease has progressed. When you have a few bad days, you can’t help but think it’s the disease, but it could be the weather or meds too. I have been going to Duke for my care, and was told that my dr. is going to be taking over the medical aspects of the transplant program and has to give up his fibrosis patients. I’ve heard a couple of you mention Dr. on and a dr. friend also suggested a Dr. Govert. I will see who Dr. Steele recommends and go from there. Thanks for your suggestions. Sue D, 62 yr old, Fibrotic NSIP dx 9/07, VA No virus found in this incoming message. Checked by AVG. Version: 8.0.100 / Virus Database: 270.0.0/1489 - Release Date: 6/7/2008 11:17 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2008 Report Share Posted June 8, 2008 Peggy, YES< YES<YES I had the identical experience over this week-end!!! My sats were fine but my chest felt like an elephant was sitting on it!!! The weather here has been so very hot for this time ofthe year..90's and very high humidity. Stay inside!!!! Z fibriotic NSIP/05 Z 64, fibriotic NSIP/o5/PA And “mild” PH/10/07 and Reynaud’s too!! No, NSIP was not self-inflicted…I never smoked! Potter, reader,carousel lover and MomMom to Darah and Sara “I’m gonna be iron like a lion in Zion” Bob Marley Peggy wrote: Hi MB & All, I had an experience yesterday and thought I would run it by y'all to see if this has happened to anyone. I was out on my porch for about 10 or so minutes, It was just so hot it was hard to breathe. I came back in and could hardly breathe, my chest felt like a truck hit me HARD. I think it was the temp. change. ??? anyone else this happened to? We have been 98, 99 degrees for over three weeks. On the way home from 's sister the other day the ext. temp. on the car at 65 MPH was 109.. you know that is just TOOOOOOOOO hot. I won't be making bible covers unless it's early in the AM. Peggy, ipf 6/04 Florida Happy moments, praise God. Difficult moments, seek God. Quiet moments, worship God. Painful moments, trust God. Every moment, thank God. Sue, Try not to get too down because you've had a few cruddy days. The heat we've been having is brutal and I'm sure your air quality in VA isn't any better than ours here in NC when we have a stationary front like we do now. This kind of stuff can wreak havoc with our breathing. Just go slow and don't panic. I hate when doctors circumstances change and we have to make adjustments. I go to Duke also, it's actually practically in my backyard. LOL Only about 4 miles from my house to the clinc building where I see Dr. on. I'm sure whoever you choose at Duke will be fine. My only advice would be make sure the doctor you choose is a specialist in interstitial lung diseases as opposed to a general pulmonologist or a specialist in some other type of lung disease. You can get some info about the doctors their educations, background and areas of expertise at this website. http://www.dukehealth.org/physicians Hope that helps! Beth Age 48 Fibrotic NSIP 06/06 Change everything. Love and Forgive ----- Original Message ---- From: Sue Dassel <sdasselverizon (DOT) net> To: Breathe-Support Sent: Sunday, June 8, 2008 9:59:02 PM Subject: Re: Back up oxygen systems Thanks guys for your responses. To answer some of your questions –MB: the cart is not made of platinum with mink tips (too bad) in fact, the wheels are well worn and the screw that holds the cylinder is almost stripped. When I said Pulmonary rehab, I actually meant a cardiac and pulmonary maintenance program at the local wellness center. When I went through the hospital approved program, they supplied the o2. I am on 4 liters at rest, but I find 3 is OK too, but I’m on 6-8 on exertion. When I’m exercising, I also have to use a rebreather mask which I hate to keep the o2 levels up. I am going to take Bruce’s advice and “diplomatically” inquire of the o2 supplier about the cost of the cart rental. I guess what really got me to thinking about this, is that I got a bill for over $200 which covered several months. It’s much easier to pay a smaller amount each month than be hit with a whopper of a bill. I have my 3-month check up coming in a week and I guess I’m nervous about that. I just have this gnawing feeling that the disease has progressed. When you have a few bad days, you can’t help but think it’s the disease, but it could be the weather or meds too. I have been going to Duke for my care, and was told that my dr. is going to be taking over the medical aspects of the transplant program and has to give up his fibrosis patients. I’ve heard a couple of you mention Dr. on and a dr. friend also suggested a Dr. Govert. I will see who Dr. Steele recommends and go from there. Thanks for your suggestions. Sue D, 62 yr old, Fibrotic NSIP dx 9/07, VA No virus found in this incoming message. Checked by AVG. Version: 8.0.100 / Virus Database: 270.0.0/1489 - Release Date: 6/7/2008 11:17 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2008 Report Share Posted June 9, 2008 and Peggy Thank you for confirming it happens to other people. I had the breathing problem this weekend with the weather change also. I live in IL and it has gotten hot and humid here very quickly. I have the same feeling in my chest when in the hot humid weather. I have a problem breathing until I get somewhere that has moving air. A fan in the face helps a lot for me. I guess we just have to enjoy the summer. LOL Fay 64 IPF 06/06 IL Re: Back up oxygen systems Thanks guys for your responses. To answer some of your questions –MB: the cart is not made of platinum with mink tips (too bad) in fact, the wheels are well worn and the screw that holds the cylinder is almost stripped. When I said Pulmonary rehab, I actually meant a cardiac and pulmonary maintenance program at the local wellness center. When I went through the hospital approved program, they supplied the o2. I am on 4 liters at rest, but I find 3 is OK too, but I’m on 6-8 on exertion. When I’m exercising, I also have to use a rebreather mask which I hate to keep the o2 levels up. I am going to take Bruce’s advice and “diplomatically” inquire of the o2 supplier about the cost of the cart rental. I guess what really got me to thinking about this, is that I got a bill for over $200 which covered several months. It’s much easier to pay a smaller amount each month than be hit with a whopper of a bill. I have my 3-month check up coming in a week and I guess I’m nervous about that. I just have this gnawing feeling that the disease has progressed. When you have a few bad days, you can’t help but think it’s the disease, but it could be the weather or meds too. I have been going to Duke for my care, and was told that my dr. is going to be taking over the medical aspects of the transplant program and has to give up his fibrosis patients. I’ve heard a couple of you mention Dr. on and a dr. friend also suggested a Dr. Govert. I will see who Dr. Steele recommends and go from there. Thanks for your suggestions. Sue D, 62 yr old, Fibrotic NSIP dx 9/07, VA No virus found in this incoming message. Checked by AVG. Version: 8.0.100 / Virus Database: 270.0.0/1489 - Release Date: 6/7/2008 11:17 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2008 Report Share Posted June 9, 2008 and Peggy Thank you for confirming it happens to other people. I had the breathing problem this weekend with the weather change also. I live in IL and it has gotten hot and humid here very quickly. I have the same feeling in my chest when in the hot humid weather. I have a problem breathing until I get somewhere that has moving air. A fan in the face helps a lot for me. I guess we just have to enjoy the summer. LOL Fay 64 IPF 06/06 IL Re: Back up oxygen systems Thanks guys for your responses. To answer some of your questions –MB: the cart is not made of platinum with mink tips (too bad) in fact, the wheels are well worn and the screw that holds the cylinder is almost stripped. When I said Pulmonary rehab, I actually meant a cardiac and pulmonary maintenance program at the local wellness center. When I went through the hospital approved program, they supplied the o2. I am on 4 liters at rest, but I find 3 is OK too, but I’m on 6-8 on exertion. When I’m exercising, I also have to use a rebreather mask which I hate to keep the o2 levels up. I am going to take Bruce’s advice and “diplomatically” inquire of the o2 supplier about the cost of the cart rental. I guess what really got me to thinking about this, is that I got a bill for over $200 which covered several months. It’s much easier to pay a smaller amount each month than be hit with a whopper of a bill. I have my 3-month check up coming in a week and I guess I’m nervous about that. I just have this gnawing feeling that the disease has progressed. When you have a few bad days, you can’t help but think it’s the disease, but it could be the weather or meds too. I have been going to Duke for my care, and was told that my dr. is going to be taking over the medical aspects of the transplant program and has to give up his fibrosis patients. I’ve heard a couple of you mention Dr. on and a dr. friend also suggested a Dr. Govert. I will see who Dr. Steele recommends and go from there. Thanks for your suggestions. Sue D, 62 yr old, Fibrotic NSIP dx 9/07, VA No virus found in this incoming message. Checked by AVG. Version: 8.0.100 / Virus Database: 270.0.0/1489 - Release Date: 6/7/2008 11:17 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2008 Report Share Posted June 9, 2008 Bruce Thank you for the info. I will do my shopping now. As to weather, I think we share most of the experiences with your area. The only thing we do not experience is wild fires. All the other goodies we enjoy a day or two after you. Thank you again. Fay Re: Back up oxygen systems>>>>> Thanks guys for your responses. To answer some of your questions–MB: the cart is not made of platinum with mink tips (too bad) infact, the wheels are well worn and the screw that holds the cylinder isalmost stripped. When I said Pulmonary> rehab, I actually meant a cardiac and pulmonary maintenance programat the local wellness center. When I went through the hospitalapproved program, they supplied the o2.. I am on 4 liters at rest, but Ifind 3 is OK too, but I'm on 6-8 on exertion. When I'mexercising, I also have to use a rebreather mask which I hate to keepthe o2 levels up.> I am going to take Bruce's advice and"diplomatically" inquire of the o2 supplier about the cost ofthe cart rental. I guess what really got me to thinking about this, is that I got a bill for over $200 which covered severalmonths. It's much easier to pay a smaller amount each month thanbe hit with a whopper of a bill.> I have my 3-month check up coming in a week and Iguess I'm nervous about that. I just have this gnawing feelingthat the disease has progressed. When you have a few bad days, youcan't help but think it's the disease, but it could be theweather or meds too. I have been going to Duke for my care, and wastold that my dr. is going to be taking over the medical aspects of thetransplant program and has to give up his fibrosis patients. I've heard a couple of you mention Dr.. on and a dr. friendalso suggested a Dr. Govert. I will see who Dr. Steele recommends andgo from there.> Thanks for your suggestions.> Sue D, 62 yr old, Fibrotic NSIP dx 9/07, VA>>>>>>>>>> ____________ _________ _________ __>>> No virus found in this incoming message.> Checked by AVG.> Version: 8.0.100 / Virus Database: 270.0.0/1489 - Release Date:6/7/2008 11:17 AM> __._,_..___> Messages in this topic (18) Reply (via web post) | Start a new topic> Messages | Database | Polls | Members | Calendar> MARKETPLACE>> ____________ _________ _________ __> Blockbuster is giving away a FREE trial of - Blockbuster Total Access.>> Change settings via the Web (Yahoo! ID required)> Change settings via email: Switch delivery to Daily Digest | Switchformat to Traditional> Visit Your Group | Yahoo! Groups Terms of Use | Unsubscribe> Recent Activity> * 4> New Members> * 41> New Photos> * 1> New LinksVisit Your Group> Meditation and> Lovingkindness> A Yahoo! Group> to share and learn.> Yahoo! Health> Healthy Aging> Improve your> quality of life.> Cat Groups> on Yahoo! Groups> discuss everything> related to cats.> .> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2008 Report Share Posted June 9, 2008 Here, in Toronto we had over 88 & 90 dgrees (only from this weekend). We had our first heat wave of the summer, and they asked people with respiratory problems to stay inside. All weekend and today I have the A/C on. Peggy, I haven't been out all weekend, if I did go, I would have trouble breathing and because I'm still feeling crappy, I stayed inside. I need to go out today to buy some things. Take CareIrenePF 03/07 Raynaud's Disease 09/07Crohn's Disease 03/95 Asthma 02/92 Re: Back up oxygen systems Thanks guys for your responses. To answer some of your questions –MB: the cart is not made of platinum with mink tips (too bad) in fact, the wheels are well worn and the screw that holds the cylinder is almost stripped. When I said Pulmonary rehab, I actually meant a cardiac and pulmonary maintenance program at the local wellness center. When I went through the hospital approved program, they supplied the o2. I am on 4 liters at rest, but I find 3 is OK too, but I’m on 6-8 on exertion. When I’m exercising, I also have to use a rebreather mask which I hate to keep the o2 levels up. I am going to take Bruce’s advice and “diplomatically” inquire of the o2 supplier about the cost of the cart rental. I guess what really got me to thinking about this, is that I got a bill for over $200 which covered several months. It’s much easier to pay a smaller amount each month than be hit with a whopper of a bill. I have my 3-month check up coming in a week and I guess I’m nervous about that. I just have this gnawing feeling that the disease has progressed. When you have a few bad days, you can’t help but think it’s the disease, but it could be the weather or meds too. I have been going to Duke for my care, and was told that my dr. is going to be taking over the medical aspects of the transplant program and has to give up his fibrosis patients. I’ve heard a couple of you mention Dr. on and a dr. friend also suggested a Dr. Govert. I will see who Dr. Steele recommends and go from there. Thanks for your suggestions. Sue D, 62 yr old, Fibrotic NSIP dx 9/07, VA Instant message from any web browser! Try the new Yahoo! Canada Messenger for the Web BETA Quote Link to comment Share on other sites More sharing options...
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