Guest guest Posted December 4, 2003 Report Share Posted December 4, 2003 --- In , " Bernadette Czernik " <czernib@w...> wrote: > Hi, > > What causes the numbness and tingling in my hands and feet? Many times it is high doses of B vitamins. Someone mentioned that maybe it is too-low B vitamins also, so if you are not using high doses of B vitamins, try taking a B50 tablet or something similar, see if that helps. Would yeast cause this, or > yeast die-off? I have been on a probiotic for two weeks, and it seems to > be getting worse. Is this the only new thing you tried since it started? If so, try removing it and see if that helps. >>I am only taking Isocort (2 at 7am, 2 at 12 noon and 1 at > 3:30 pm) What is this? Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2003 Report Share Posted December 4, 2003 Many times it is high doses of B vitamins. Someone mentioned that maybe it is too-low B vitamins also, so if you are not using high > doses of B vitamins, try taking a B50 tablet or something similar, see if that helps. I was taking a B50 for two weeks, stopped and noticed no improvement. I added it back this morning to see if it helps. > > Is this the only new thing you tried since it started? If so, try removing it and see if that helps. I will try stopping the probiotic. Too bad, because my gut symptoms were better. > > > >>I am only taking Isocort (2 at 7am, 2 at 12 noon and 1 at > > 3:30 pm) > > > What is this? Isocort is a hydrocortisone supplement, 2.5 mg per tablet, I think. Should I try my first chelation as scheduled tomorrow? Thanks, Bernadette > > Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2003 Report Share Posted December 4, 2003 >>What causes the numbness and tingling in my hands and feet? It started out with them falling asleep all the time, now sometimes they suddenly jerk, and I feel tingling and some burning. Does anyone else have this?<< Bernadette, Our daughter dealt with what you are decribing for many years. At times she could stand or get up from a chair because her 'feet and legs were asleep.' Same complaints about hands and arms. From knees and elbows down her extremities were COLD and mottled with very poor capilary refill. High B's did not help, low B's did not help, no B's did not help. We're almost 2 years into chelation. These symptoms slowly disappeared and at about 8 months were gone. I've not heard a complaint about 'falling asleep' hands and feet in more than a year. She has been very sensitive to the chelating agents and we've not gone higher than 50mg per dose for either DMSA or ALA for a 130#. B. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2003 Report Share Posted December 4, 2003 Thank you ! It is good to know I am not crazy. My symptoms always seem to be different than everyone elses. I know it sounds stupid, but I have been wanting to try melatonin to help me sleep, but I am afraid my feet will be asleep and I won't wake up to move them and end up losing my feet. I will try the DMSA, 25 mg recommended by my doctor. Did you chelate every weekend or every other? How did your daughter feel while chelating? I am glad she is doing so well. It is an awful thing to live with. Bernadette > Bernadette, > Our daughter dealt with what you are decribing for many years. At > times she could stand or get up from a chair because her 'feet and > legs were asleep.' Same complaints about hands and arms. From knees > and elbows down her extremities were COLD and mottled with very poor > capilary refill. High B's did not help, low B's did not help, no B's > did not help. We're almost 2 years into chelation. These symptoms > slowly disappeared and at about 8 months were gone. I've not heard a > complaint about 'falling asleep' hands and feet in more than a year. > She has been very sensitive to the chelating agents and we've not > gone higher than 50mg per dose for either DMSA or ALA for a 130#. > B. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2003 Report Share Posted December 4, 2003 I had PN along with parestheses(numbness in extremeties) and chronic fatigue, brain fog, balance problems, etc. from mercury/amalgam/metal crowns over amalgam. After amalgam replacement and detox,etc. I'm much better, much better than most my age; playing sports again, etc. Bernie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2003 Report Share Posted December 5, 2003 Hi Bernie, Thanks for your reply. I am glad to hear of your recovery. Can I ask how you did your detox, and how long it took to notice an improvement? I just started my first round of DMSA today, and hope to be back in karate by summer the latest. Thanks, Bernadette > I had PN along with parestheses(numbness in extremeties) and chronic fatigue, brain fog, balance problems, etc. from mercury/amalgam/metal crowns over amalgam. After amalgam replacement and detox,etc. I'm much better, much better than most my age; > playing sports again, etc. > Bernie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2003 Report Share Posted December 5, 2003 > > Is this the only new thing you tried since it started? If so, try > removing it and see if that helps. > I will try stopping the probiotic. Too bad, because my gut symptoms > were better. The probiotic may have been causing the problems. You might want to switch to a different probiotic, see if that helps the gut without causing the other problems. Yeast die off may also cause that problem, try activated charcoal about 30 minutes after the probiotic. > Isocort is a hydrocortisone supplement, 2.5 mg per tablet, I think. I had some very strange reactions when I was using hydrocortisone, and I seem to vaguely remember tingling associated with it. This was a looooong time ago tho, so not sure. > Should I try my first chelation as scheduled tomorrow? I would. If you start feeling worse and you can't attribute it to yeast, then stop. Be sure you increase your yeast protocol during the round tho, because chelators can aggravate yeast. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2003 Report Share Posted December 10, 2003 I think I have figured this one out. It becomes worse when I take probiotics, coconut oil or oil of oregano. I guess I am not going to take anything for yeast because the side effects are worse than the yeast. Anyone else experience this? > Hi, > > What causes the numbness and tingling in my hands and feet? It started > out with them falling asleep all the time, now sometimes they suddenly > jerk, and I feel tingling and some burning. Does anyone else have this? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2003 Report Share Posted December 10, 2003 > I think I have figured this one out. It becomes worse when I take > probiotics, coconut oil or oil of oregano. I guess I am not going to > take anything for yeast because the side effects are worse than the > yeast. Interesting. I know that my family did not do well on ANY anti-yeast supplements except GSE plus No-Fenol enzyme, so you can consider that. Glad you figured it out tho! >>I just finished my first round of chelation with DMSA. I felt better on the DMSA, more energy, better mood, head clearer, etc. Does this mean I should be eating sulfur foods? Sulfur feeds yeast, so not sure you should do that. Maybe your body is just glad to be getting rid of the metals? Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2008 Report Share Posted April 27, 2008 I wonder if Alpha L. Acid would be helpful? I am sorry this happened to you. I will send you the trouble shooting guide. How long did you trial LDN for? What other supplements are you taking and where were you getting your LDN from? My best Aletha [low dose naltrexone] Peripheral Neuropathy LDN unfortunately didnt help my Sjogrens nor unexplained constant motion sickness even when not in motion.I am wondering if it has helped anyones peripheral neuropathy? I had it before but it was manageable, now the constant electrecutions are out of control.I dont know if i should get back on it. Any info appreciated. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2008 Report Share Posted April 27, 2008 Hi Aletha, I got my LDN from the Compounder and then later Skips Pharmacy. I know thye used different fillers but forget which. I was on for 3 months. At the time it was my Sjogrens and chronic dizziness without vertigo that was the main problems, the PN was totally manageable. Now its as bad as the rest. I take so much stuff and now doing a colon cleanse too. NAC, CQ10, B12, Folic acid (a different form than the regular though), tons of Omega 3, Vit D on and off (sometimes I hear it can cause inflammation other times its good I dont know anymore), good multi, Phosphatidylserine, digestive enzymes, milk thistle as my liver was overloaded, iron as I am anemic, protein powder as it suppose to have benefitial stuff, oil of oregano, collonstrum, vit C, probiotics, sometimes Vitamin B5 and kelp. I take more stuff but cant remember now...I got off antibiotics but will get back on again in hopes of it helping with the PN, unexplained chronic motion sicknes & Sjogrens, was on for 6 months. If milk thistle helps the liver when my liver enzymes increase due to all the supplements and antibiotics, then what helps the kidneys and other organs as they too have to absorb some of this stuff? I will buy ALA and ALC as I heard it can help the PN, you're the 2nd person to mention ALA. I did a search adn cannot find anyone whose PN got better with LDN thats why I thought I'd ask in case somene knew something or heard something. THanks for your help! > > I wonder if Alpha L. Acid would be helpful? > > I am sorry this happened to you. I will send you the trouble shooting guide. How long did you trial LDN for? What other supplements are you taking and where were you getting your LDN from? > > My best > Aletha > [low dose naltrexone] Peripheral Neuropathy > > > LDN unfortunately didnt help my Sjogrens nor unexplained constant > motion sickness even when not in motion. > > I am wondering if it has helped anyones peripheral neuropathy? I had > it before but it was manageable, now the constant electrecutions are > out of control. > > I dont know if i should get back on it. > > Any info appreciated. Thanks! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2008 Report Share Posted April 27, 2008 It sounds like you are taking a lot of good things. I wish I knew what was making your motion sickness (without motion) worse. I will see if I have any other posts under neuropathy. I might have some posts regarding vit. D as well. Hang in there kiddo Aletha [low dose naltrexone] Peripheral Neuropathy> > > LDN unfortunately didnt help my Sjogrens nor unexplained constant > motion sickness even when not in motion.> > I am wondering if it has helped anyones peripheral neuropathy? I had > it before but it was manageable, now the constant electrecutions are > out of control.> > I dont know if i should get back on it. > > Any info appreciated. Thanks!> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2008 Report Share Posted April 28, 2008 for a better functioneing of the kidneys you can try cordyseps. > > > > I wonder if Alpha L. Acid would be helpful? > > > > I am sorry this happened to you. I will send you the trouble > shooting guide. How long did you trial LDN for? What other > supplements are you taking and where were you getting your LDN from? > > > > My best > > Aletha > > [low dose naltrexone] Peripheral Neuropathy > > > > > > LDN unfortunately didnt help my Sjogrens nor unexplained > constant > > motion sickness even when not in motion. > > > > I am wondering if it has helped anyones peripheral neuropathy? I > had > > it before but it was manageable, now the constant electrecutions > are > > out of control. > > > > I dont know if i should get back on it. > > > > Any info appreciated. Thanks! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2008 Report Share Posted May 4, 2008 I would appreciate the trouble shooting guide and any thing you can furnish about ldn and neuropathy > > I wonder if Alpha L. Acid would be helpful? > > I am sorry this happened to you. I will send you the trouble shooting guide. How long did you trial LDN for? What other supplements are you taking and where were you getting your LDN from? > > My best > Aletha > [low dose naltrexone] Peripheral Neuropathy > > > LDN unfortunately didnt help my Sjogrens nor unexplained constant > motion sickness even when not in motion. > > I am wondering if it has helped anyones peripheral neuropathy? I had > it before but it was manageable, now the constant electrecutions are > out of control. > > I dont know if i should get back on it. > > Any info appreciated. Thanks! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2009 Report Share Posted January 21, 2009 Joanne**************A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola.com/promoclk/100000075x1215855013x1201028747/aol?redir=http://www.freecreditreport.com/pm/default.aspx?sc=668072%26hmpgID=62%26bcd=DecemailfooterNO62) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2009 Report Share Posted January 21, 2009 Hi Patty, I want to thank you from the bottom of my heart for suggesting this. I had another horrific night and have been researching neuropathy and found actual names for what I have. It is also called parasthesia. It feels so good to know that I am not crazy or have silicone stuck in my body. There are conventional treatments like Elevil and Neurontin and I am not opposed to that if it gives me some relief but I want a cure, of course and I may need IV or IM injections of vitamins. I am seeing the naturopath this afternoon. I can use some prayers today. I have been living with this thing for 4 years, always thinking that it would go away in time. Thanks to all, Joanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2010 Report Share Posted February 10, 2010 Nate is currently in DI. He is 4 and doesn't communicate pain yet, but I firmly believe that he has neuropathy because of the Vincristine. I can post to my ALL listserv as there are alot of veterans on there that are OT like your son. Maybe it doesn't clear as fast with the DS. I do know that it does take a long time for nerves to regenerate and that the Vincristine does cause damage... I'll run it by my ONC too... I'll let you know. Quote Link to comment Share on other sites More sharing options...
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