Re: Don't know how much more I can take......

[Guest guest]

are you doing anything now to treat the PANDAS?

From: kldett@...

Sent: Saturday, January 29, 2011 2:00 PM

To: mb12 valtrex

Cc: Fund

Subject: Re: Don't know how much more I can take......

, I know my son has PANDAS.....we did 6 months of IVIG and it as going well until his anxiety and OCD got so bad we could not come near him with the IV. No matter how much sedation we tried it always backfired. So - we had to stop and it broke my heart because I felt like it was helping him. So then we did the respen A which he is still on - and it did a really nice job of putting him more on an even keel....but not really helping much else. So I wanted to try the antiviral.....I just don't know what to do, because you're right....he could have been exposed to something else and this would happen. He has these bouts when he is sick....that's part of the issue.....it is just so stressful and taxing....and my husband has an especially difficult time with it....just don't know what to do anymore.....we have done almost every therapy out there.....--Kasey Dettinger---- Fund wrote: > We did 80 days of valtrex w/ my 13 yr old son last winter. The first 3 weeks were fine and then he broke out in rashes all over and his behavior became dangerous to himself and others. I do feel he responded cause of the rasheds but we could not safely continue. WHat I did not realize at the time was that he has PANDAS and was most likely exposed to strep around that time. The PANDAS caused the wild behavior and not the valtrex. You may have something else going on.> > > > > > > > Subject: Don't know how much more I can take......> To: mb12 valtrex > Date: Saturday, January 29, 2011, 10:19 AM> > > > > > > I wrote a few days ago how awful this regression has been from the valtrex and diflucan....and someone suggested to go back and read Stan's paper which I did. It's been about 5 weeks and seriously I don't know how much longer I can watch him hit his head and bite and scratch himself/others. I am afraid he is going to hurt his sister. I can tell something is coming out of him right now because he is very raspy and sounds like his throat hurts. How bad do you let it get before you call it quits.....it is really affecting everyone in our home.....> --> Kasey> > > > > > > > > >

[Guest guest]

PANDAS isn't tested in a culture. It's not about strep, it's the antibodies to strep.

Cheryl ~http://www.gryffins-tail.blogspot.com~~@Gryffins_Tail~

He always comes up negative on a culture.....even when I know he has it.....

--

Kasey Dettinger

---- Christel Church wrote:

> RUN to your dr and get him tested for strep you just discribed PANDAS to a T and it's treatable and you can get QUICK results with the right antibiotic

>

>

>

> From: kldett@...

> Sent: Saturday, January 29, 2011 10:19 AM

> To: mb12 valtrex

> Subject: Don't know how much more I can take......

>

>

>

> I wrote a few days ago how awful this regression has been from the valtrex and diflucan....and someone suggested to go back and read Stan's paper which I did. It's been about 5 weeks and seriously I don't know how much longer I can watch him hit his head and bite and scratch himself/others. I am afraid he is going to hurt his sister. I can tell something is coming out of him right now because he is very raspy and sounds like his throat hurts. How bad do you let it get before you call it quits.....it is really affecting everyone in our home.....

> --

> Kasey

>

>

>

[Guest guest]

PANDAS isn't tested in a culture. It's not about strep, it's the antibodies to strep.

Cheryl ~http://www.gryffins-tail.blogspot.com~~@Gryffins_Tail~

He always comes up negative on a culture.....even when I know he has it.....

--

Kasey Dettinger

---- Christel Church wrote:

> RUN to your dr and get him tested for strep you just discribed PANDAS to a T and it's treatable and you can get QUICK results with the right antibiotic

>

>

>

> From: kldett@...

> Sent: Saturday, January 29, 2011 10:19 AM

> To: mb12 valtrex

> Subject: Don't know how much more I can take......

>

>

>

> I wrote a few days ago how awful this regression has been from the valtrex and diflucan....and someone suggested to go back and read Stan's paper which I did. It's been about 5 weeks and seriously I don't know how much longer I can watch him hit his head and bite and scratch himself/others. I am afraid he is going to hurt his sister. I can tell something is coming out of him right now because he is very raspy and sounds like his throat hurts. How bad do you let it get before you call it quits.....it is really affecting everyone in our home.....

> --

> Kasey

>

>

>

[Guest guest]

PANDAS isn't tested in a culture. It's not about strep, it's the antibodies to strep.

Cheryl ~http://www.gryffins-tail.blogspot.com~~@Gryffins_Tail~

He always comes up negative on a culture.....even when I know he has it.....

--

Kasey Dettinger

---- Christel Church wrote:

> RUN to your dr and get him tested for strep you just discribed PANDAS to a T and it's treatable and you can get QUICK results with the right antibiotic

>

>

>

> From: kldett@...

> Sent: Saturday, January 29, 2011 10:19 AM

> To: mb12 valtrex

> Subject: Don't know how much more I can take......

>

>

>

> I wrote a few days ago how awful this regression has been from the valtrex and diflucan....and someone suggested to go back and read Stan's paper which I did. It's been about 5 weeks and seriously I don't know how much longer I can watch him hit his head and bite and scratch himself/others. I am afraid he is going to hurt his sister. I can tell something is coming out of him right now because he is very raspy and sounds like his throat hurts. How bad do you let it get before you call it quits.....it is really affecting everyone in our home.....

> --

> Kasey

>

>

>

[Guest guest]

No - we did 6 months of IVIG and we saw some nice things - but then his OCD and

anxiety kicked in and we couldn't get near him with an IV after several tries

with sedation and all. But - this is the reaction that we get also with strep.

Last time we did a streptozyme his titers were high. I do and always have

believed he has PANDAS....but have never tried antibiotic therapy.....but that's

such a hard pill to swallow - no pun intended when he had so many antibitoics

early on and they were a major part of the problem.....what else do you do? We

have done LDN, IVIG, along with many supplements and it always comes back to his

immune system. You make a very good point....this may not be the valtrex.....it

could be strep. But that just leaves another big question mark.....but of

course these epiphanies always come on a saturday......

--

Kasey Dettinger

---- Christel Church wrote:

> are you doing anything now to treat the PANDAS?

>

>

>

> From: kldett@...

> Sent: Saturday, January 29, 2011 2:00 PM

> To: mb12 valtrex

> Cc: Fund

> Subject: Re: Don't know how much more I can take......

>

>

>

> ,

>

> I know my son has PANDAS.....we did 6 months of IVIG and it as going well

until his anxiety and OCD got so bad we could not come near him with the IV. No

matter how much sedation we tried it always backfired. So - we had to stop and

it broke my heart because I felt like it was helping him. So then we did the

respen A which he is still on - and it did a really nice job of putting him more

on an even keel....but not really helping much else. So I wanted to try the

antiviral.....I just don't know what to do, because you're right....he could

have been exposed to something else and this would happen. He has these bouts

when he is sick....that's part of the issue.....it is just so stressful and

taxing....and my husband has an especially difficult time with it....just don't

know what to do anymore.....we have done almost every therapy out there.....

> --

> Kasey Dettinger

>

> ---- Fund wrote:

> > We did 80 days of valtrex w/ my 13 yr old son last winter. The first 3 weeks

were fine and then he broke out in rashes all over and his behavior became

dangerous to himself and others. I do feel he responded cause of the rasheds but

we could not safely continue. WHat I did not realize at the time was that he has

PANDAS and was most likely exposed to strep around that time. The PANDAS caused

the wild behavior and not the valtrex. You may have something else going on.

> >

> >

> >

> >

> >

> >

> >

> > Subject: Don't know how much more I can take......

> > To: mb12 valtrex

> > Date: Saturday, January 29, 2011, 10:19 AM

> >

> >

> >

> >

> >

> >

> > I wrote a few days ago how awful this regression has been from the valtrex

and diflucan....and someone suggested to go back and read Stan's paper which I

did. It's been about 5 weeks and seriously I don't know how much longer I can

watch him hit his head and bite and scratch himself/others. I am afraid he is

going to hurt his sister. I can tell something is coming out of him right now

because he is very raspy and sounds like his throat hurts. How bad do you let it

get before you call it quits.....it is really affecting everyone in our

home.....

> > --

> > Kasey

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

>

>

>

[Guest guest]

No - we did 6 months of IVIG and we saw some nice things - but then his OCD and

anxiety kicked in and we couldn't get near him with an IV after several tries

with sedation and all. But - this is the reaction that we get also with strep.

Last time we did a streptozyme his titers were high. I do and always have

believed he has PANDAS....but have never tried antibiotic therapy.....but that's

such a hard pill to swallow - no pun intended when he had so many antibitoics

early on and they were a major part of the problem.....what else do you do? We

have done LDN, IVIG, along with many supplements and it always comes back to his

immune system. You make a very good point....this may not be the valtrex.....it

could be strep. But that just leaves another big question mark.....but of

course these epiphanies always come on a saturday......

--

Kasey Dettinger

---- Christel Church wrote:

> are you doing anything now to treat the PANDAS?

>

>

>

> From: kldett@...

> Sent: Saturday, January 29, 2011 2:00 PM

> To: mb12 valtrex

> Cc: Fund

> Subject: Re: Don't know how much more I can take......

>

>

>

> ,

>

> I know my son has PANDAS.....we did 6 months of IVIG and it as going well

until his anxiety and OCD got so bad we could not come near him with the IV. No

matter how much sedation we tried it always backfired. So - we had to stop and

it broke my heart because I felt like it was helping him. So then we did the

respen A which he is still on - and it did a really nice job of putting him more

on an even keel....but not really helping much else. So I wanted to try the

antiviral.....I just don't know what to do, because you're right....he could

have been exposed to something else and this would happen. He has these bouts

when he is sick....that's part of the issue.....it is just so stressful and

taxing....and my husband has an especially difficult time with it....just don't

know what to do anymore.....we have done almost every therapy out there.....

> --

> Kasey Dettinger

>

> ---- Fund wrote:

> > We did 80 days of valtrex w/ my 13 yr old son last winter. The first 3 weeks

were fine and then he broke out in rashes all over and his behavior became

dangerous to himself and others. I do feel he responded cause of the rasheds but

we could not safely continue. WHat I did not realize at the time was that he has

PANDAS and was most likely exposed to strep around that time. The PANDAS caused

the wild behavior and not the valtrex. You may have something else going on.

> >

> >

> >

> >

> >

> >

> >

> > Subject: Don't know how much more I can take......

> > To: mb12 valtrex

> > Date: Saturday, January 29, 2011, 10:19 AM

> >

> >

> >

> >

> >

> >

> > I wrote a few days ago how awful this regression has been from the valtrex

and diflucan....and someone suggested to go back and read Stan's paper which I

did. It's been about 5 weeks and seriously I don't know how much longer I can

watch him hit his head and bite and scratch himself/others. I am afraid he is

going to hurt his sister. I can tell something is coming out of him right now

because he is very raspy and sounds like his throat hurts. How bad do you let it

get before you call it quits.....it is really affecting everyone in our

home.....

> > --

> > Kasey

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

>

>

>

[Guest guest]

No - we did 6 months of IVIG and we saw some nice things - but then his OCD and

anxiety kicked in and we couldn't get near him with an IV after several tries

with sedation and all. But - this is the reaction that we get also with strep.

Last time we did a streptozyme his titers were high. I do and always have

believed he has PANDAS....but have never tried antibiotic therapy.....but that's

such a hard pill to swallow - no pun intended when he had so many antibitoics

early on and they were a major part of the problem.....what else do you do? We

have done LDN, IVIG, along with many supplements and it always comes back to his

immune system. You make a very good point....this may not be the valtrex.....it

could be strep. But that just leaves another big question mark.....but of

course these epiphanies always come on a saturday......

--

Kasey Dettinger

---- Christel Church wrote:

> are you doing anything now to treat the PANDAS?

>

>

>

> From: kldett@...

> Sent: Saturday, January 29, 2011 2:00 PM

> To: mb12 valtrex

> Cc: Fund

> Subject: Re: Don't know how much more I can take......

>

>

>

> ,

>

> I know my son has PANDAS.....we did 6 months of IVIG and it as going well

until his anxiety and OCD got so bad we could not come near him with the IV. No

matter how much sedation we tried it always backfired. So - we had to stop and

it broke my heart because I felt like it was helping him. So then we did the

respen A which he is still on - and it did a really nice job of putting him more

on an even keel....but not really helping much else. So I wanted to try the

antiviral.....I just don't know what to do, because you're right....he could

have been exposed to something else and this would happen. He has these bouts

when he is sick....that's part of the issue.....it is just so stressful and

taxing....and my husband has an especially difficult time with it....just don't

know what to do anymore.....we have done almost every therapy out there.....

> --

> Kasey Dettinger

>

> ---- Fund wrote:

> > We did 80 days of valtrex w/ my 13 yr old son last winter. The first 3 weeks

were fine and then he broke out in rashes all over and his behavior became

dangerous to himself and others. I do feel he responded cause of the rasheds but

we could not safely continue. WHat I did not realize at the time was that he has

PANDAS and was most likely exposed to strep around that time. The PANDAS caused

the wild behavior and not the valtrex. You may have something else going on.

> >

> >

> >

> >

> >

> >

> >

> > Subject: Don't know how much more I can take......

> > To: mb12 valtrex

> > Date: Saturday, January 29, 2011, 10:19 AM

> >

> >

> >

> >

> >

> >

> > I wrote a few days ago how awful this regression has been from the valtrex

and diflucan....and someone suggested to go back and read Stan's paper which I

did. It's been about 5 weeks and seriously I don't know how much longer I can

watch him hit his head and bite and scratch himself/others. I am afraid he is

going to hurt his sister. I can tell something is coming out of him right now

because he is very raspy and sounds like his throat hurts. How bad do you let it

get before you call it quits.....it is really affecting everyone in our

home.....

> > --

> > Kasey

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

>

>

>

[Guest guest]

right....that's what I meant.....his antibodies were high.....but again....the

antibiotics scare me.....don't you have to do them for months?

--

Kasey Dettinger

---- " cheryl biomed.mom " wrote:

> PANDAS isn't tested in a culture. It's not about strep, it's the antibodies

to strep.

>

> Cheryl

> ~http://www.gryffins-tail.blogspot.com~

> ~@Gryffins_Tail~

>

>

>

>

> On Jan 29, 2011, at 11:44 AM,

wrote:

>

> > He always comes up negative on a culture.....even when I know he has it.....

> > --

> > Kasey Dettinger

> >

> > ---- Christel Church wrote:

> > > RUN to your dr and get him tested for strep you just discribed PANDAS to a

T and it's treatable and you can get QUICK results with the right antibiotic

> > >

> > >

> > >

> > > From: kldett@...

> > > Sent: Saturday, January 29, 2011 10:19 AM

> > > To: mb12 valtrex

> > > Subject: Don't know how much more I can take......

> > >

> > >

> > >

> > > I wrote a few days ago how awful this regression has been from the valtrex

and diflucan....and someone suggested to go back and read Stan's paper which I

did. It's been about 5 weeks and seriously I don't know how much longer I can

watch him hit his head and bite and scratch himself/others. I am afraid he is

going to hurt his sister. I can tell something is coming out of him right now

because he is very raspy and sounds like his throat hurts. How bad do you let it

get before you call it quits.....it is really affecting everyone in our

home.....

> > > --

> > > Kasey

> > >

> > >

> > >

> >

> >

>

[Guest guest]

right....that's what I meant.....his antibodies were high.....but again....the

antibiotics scare me.....don't you have to do them for months?

--

Kasey Dettinger

---- " cheryl biomed.mom " wrote:

> PANDAS isn't tested in a culture. It's not about strep, it's the antibodies

to strep.

>

> Cheryl

> ~http://www.gryffins-tail.blogspot.com~

> ~@Gryffins_Tail~

>

>

>

>

> On Jan 29, 2011, at 11:44 AM,

wrote:

>

> > He always comes up negative on a culture.....even when I know he has it.....

> > --

> > Kasey Dettinger

> >

> > ---- Christel Church wrote:

> > > RUN to your dr and get him tested for strep you just discribed PANDAS to a

T and it's treatable and you can get QUICK results with the right antibiotic

> > >

> > >

> > >

> > > From: kldett@...

> > > Sent: Saturday, January 29, 2011 10:19 AM

> > > To: mb12 valtrex

> > > Subject: Don't know how much more I can take......

> > >

> > >

> > >

> > > I wrote a few days ago how awful this regression has been from the valtrex

and diflucan....and someone suggested to go back and read Stan's paper which I

did. It's been about 5 weeks and seriously I don't know how much longer I can

watch him hit his head and bite and scratch himself/others. I am afraid he is

going to hurt his sister. I can tell something is coming out of him right now

because he is very raspy and sounds like his throat hurts. How bad do you let it

get before you call it quits.....it is really affecting everyone in our

home.....

> > > --

> > > Kasey

> > >

> > >

> > >

> >

> >

>

[Guest guest]

right....that's what I meant.....his antibodies were high.....but again....the

antibiotics scare me.....don't you have to do them for months?

--

Kasey Dettinger

---- " cheryl biomed.mom " wrote:

> PANDAS isn't tested in a culture. It's not about strep, it's the antibodies

to strep.

>

> Cheryl

> ~http://www.gryffins-tail.blogspot.com~

> ~@Gryffins_Tail~

>

>

>

>

> On Jan 29, 2011, at 11:44 AM,

wrote:

>

> > He always comes up negative on a culture.....even when I know he has it.....

> > --

> > Kasey Dettinger

> >

> > ---- Christel Church wrote:

> > > RUN to your dr and get him tested for strep you just discribed PANDAS to a

T and it's treatable and you can get QUICK results with the right antibiotic

> > >

> > >

> > >

> > > From: kldett@...

> > > Sent: Saturday, January 29, 2011 10:19 AM

> > > To: mb12 valtrex

> > > Subject: Don't know how much more I can take......

> > >

> > >

> > >

> > > I wrote a few days ago how awful this regression has been from the valtrex

and diflucan....and someone suggested to go back and read Stan's paper which I

did. It's been about 5 weeks and seriously I don't know how much longer I can

watch him hit his head and bite and scratch himself/others. I am afraid he is

going to hurt his sister. I can tell something is coming out of him right now

because he is very raspy and sounds like his throat hurts. How bad do you let it

get before you call it quits.....it is really affecting everyone in our

home.....

> > > --

> > > Kasey

> > >

> > >

> > >

> >

> >

>

[Guest guest]

You need to get blood work such as ASO and anti-Dnase antibody titers to see if

there has ever been a strep exposure, in the present or past. PANDAS experts are

finding that not only strep is causing symptoms of PANDAS, but mycoplasma

pneumonia (test myco-p IgA and IgM), lyme, and viral infections. Strep is often

the first infection to start it, but any of these subsequent infections can

exacerbate the craziness again.

> > > RUN to your dr and get him tested for strep you just discribed PANDAS to a

T and it's treatable and you can get QUICK results with the right antibiotic

> > >

> > >

> > >

> > > From: kldett@...

> > > Sent: Saturday, January 29, 2011 10:19 AM

> > > To: mb12 valtrex

> > > Subject: Don't know how much more I can take......

> > >

> > >

> > >

> > > I wrote a few days ago how awful this regression has been from the valtrex

and diflucan....and someone suggested to go back and read Stan's paper which I

did. It's been about 5 weeks and seriously I don't know how much longer I can

watch him hit his head and bite and scratch himself/others. I am afraid he is

going to hurt his sister. I can tell something is coming out of him right now

because he is very raspy and sounds like his throat hurts. How bad do you let it

get before you call it quits.....it is really affecting everyone in our

home.....

> > > --

> > > Kasey

> > >

> > >

> > >

> >

> >

>

[Guest guest]

He has had those tests and it did show high antibodies.....and, interestingly

about 2 months ago my husband had walking pneumonia which I believe is the

mycoplasma.....

--

Kasey Dettinger

---- pom5903 wrote:

> You need to get blood work such as ASO and anti-Dnase antibody titers to see

if there has ever been a strep exposure, in the present or past. PANDAS experts

are finding that not only strep is causing symptoms of PANDAS, but mycoplasma

pneumonia (test myco-p IgA and IgM), lyme, and viral infections. Strep is often

the first infection to start it, but any of these subsequent infections can

exacerbate the craziness again.

>

>

> > > > RUN to your dr and get him tested for strep you just discribed PANDAS to

a T and it's treatable and you can get QUICK results with the right antibiotic

> > > >

> > > >

> > > >

> > > > From: kldett@...

> > > > Sent: Saturday, January 29, 2011 10:19 AM

> > > > To: mb12 valtrex

> > > > Subject: Don't know how much more I can take......

> > > >

> > > >

> > > >

> > > > I wrote a few days ago how awful this regression has been from the

valtrex and diflucan....and someone suggested to go back and read Stan's paper

which I did. It's been about 5 weeks and seriously I don't know how much longer

I can watch him hit his head and bite and scratch himself/others. I am afraid he

is going to hurt his sister. I can tell something is coming out of him right now

because he is very raspy and sounds like his throat hurts. How bad do you let it

get before you call it quits.....it is really affecting everyone in our

home.....

> > > > --

> > > > Kasey

> > > >

> > > >

> > > >

> > >

> > >

> >

>

>

[Guest guest]

Talked with the DOC....THANK GOD for our DAN docs! He is going to run the

bloodwork but is convinced that a round of zythromax is in order to see how he

responds.....Worth a try.....I will try anything at this point!

Thanks!

--

Kasey Dettinger

---- pom5903 wrote:

> You need to get blood work such as ASO and anti-Dnase antibody titers to see

if there has ever been a strep exposure, in the present or past. PANDAS experts

are finding that not only strep is causing symptoms of PANDAS, but mycoplasma

pneumonia (test myco-p IgA and IgM), lyme, and viral infections. Strep is often

the first infection to start it, but any of these subsequent infections can

exacerbate the craziness again.

>

>

> > > > RUN to your dr and get him tested for strep you just discribed PANDAS to

a T and it's treatable and you can get QUICK results with the right antibiotic

> > > >

> > > >

> > > >

> > > > From: kldett@...

> > > > Sent: Saturday, January 29, 2011 10:19 AM

> > > > To: mb12 valtrex

> > > > Subject: Don't know how much more I can take......

> > > >

> > > >

> > > >

> > > > I wrote a few days ago how awful this regression has been from the

valtrex and diflucan....and someone suggested to go back and read Stan's paper

which I did. It's been about 5 weeks and seriously I don't know how much longer

I can watch him hit his head and bite and scratch himself/others. I am afraid he

is going to hurt his sister. I can tell something is coming out of him right now

because he is very raspy and sounds like his throat hurts. How bad do you let it

get before you call it quits.....it is really affecting everyone in our

home.....

> > > > --

> > > > Kasey

> > > >

> > > >

> > > >

> > >

> > >

> >

>

>

[Guest guest]

yes but a culture can catch A source of entry and flare

From: cheryl biomed.mom

Sent: Saturday, January 29, 2011 2:56 PM

To: mb12 valtrex

Subject: Re: Don't know how much more I can take......

PANDAS isn't tested in a culture. It's not about strep, it's the antibodies to strep.

Cheryl

~http://www.gryffins-tail.blogspot.com~

~@Gryffins_Tail~

He always comes up negative on a culture.....even when I know he has it.....--Kasey Dettinger---- Christel Church wrote: > RUN to your dr and get him tested for strep you just discribed PANDAS to a T and it's treatable and you can get QUICK results with the right antibiotic> > > > From: kldett@... > Sent: Saturday, January 29, 2011 10:19 AM> To: mb12 valtrex > Subject: Don't know how much more I can take......> > > > I wrote a few days ago how awful this regression has been from the valtrex and diflucan....and someone suggested to go back and read Stan's paper which I did. It's been about 5 weeks and seriously I don't know how much longer I can watch him hit his head and bite and scratch himself/others. I am afraid he is going to hurt his sister. I can tell something is coming out of him right now because he is very raspy and sounds like his throat hurts. How bad do you let it get before you call it quits.....it is really affecting everyone in our home.....> --> Kasey> > >

[Guest guest]

ti esche odna ili uge Vova vernulsya? > You need to get blood work such as ASO and anti-Dnase antibody titers to see if there has ever been a strep exposure, in the present or past. PANDAS experts are finding that not only strep is causing symptoms of PANDAS, but mycoplasma pneumonia (test myco-p IgA and IgM), lyme, and viral infections. Strep is often the first infection to start it, but any of these subsequent infections can exacerbate the craziness again. > > > > > > RUN to your dr and get him tested for strep you just discribed PANDAS to a T and

it's treatable and you can get QUICK results with the right antibiotic> > > > > > > > > > > > > > > > From: kldett@... > > > > Sent: Saturday, January 29, 2011 10:19 AM> > > > To: mb12 valtrex > > > > Subject: Don't know how much more I can take......> > > > > > > > > > > > > > > > I wrote a few days ago how awful this regression has been from the valtrex and diflucan....and someone suggested to go back and read Stan's paper which I did. It's been about 5 weeks and seriously I don't know how much longer I can watch him hit his head and bite and scratch himself/others. I am afraid he is going

to hurt his sister. I can tell something is coming out of him right now because he is very raspy and sounds like his throat hurts. How bad do you let it get before you call it quits.....it is really affecting everyone in our home.....> > > > --> > > > Kasey> > > > > > > > > > > > > > > > > >> >> >

[Guest guest]

ti esche odna ili uge Vova vernulsya? > You need to get blood work such as ASO and anti-Dnase antibody titers to see if there has ever been a strep exposure, in the present or past. PANDAS experts are finding that not only strep is causing symptoms of PANDAS, but mycoplasma pneumonia (test myco-p IgA and IgM), lyme, and viral infections. Strep is often the first infection to start it, but any of these subsequent infections can exacerbate the craziness again. > > > > > > RUN to your dr and get him tested for strep you just discribed PANDAS to a T and

it's treatable and you can get QUICK results with the right antibiotic> > > > > > > > > > > > > > > > From: kldett@... > > > > Sent: Saturday, January 29, 2011 10:19 AM> > > > To: mb12 valtrex > > > > Subject: Don't know how much more I can take......> > > > > > > > > > > > > > > > I wrote a few days ago how awful this regression has been from the valtrex and diflucan....and someone suggested to go back and read Stan's paper which I did. It's been about 5 weeks and seriously I don't know how much longer I can watch him hit his head and bite and scratch himself/others. I am afraid he is going

to hurt his sister. I can tell something is coming out of him right now because he is very raspy and sounds like his throat hurts. How bad do you let it get before you call it quits.....it is really affecting everyone in our home.....> > > > --> > > > Kasey> > > > > > > > > > > > > > > > > >> >> >

[Guest guest]

ti esche odna ili uge Vova vernulsya? > You need to get blood work such as ASO and anti-Dnase antibody titers to see if there has ever been a strep exposure, in the present or past. PANDAS experts are finding that not only strep is causing symptoms of PANDAS, but mycoplasma pneumonia (test myco-p IgA and IgM), lyme, and viral infections. Strep is often the first infection to start it, but any of these subsequent infections can exacerbate the craziness again. > > > > > > RUN to your dr and get him tested for strep you just discribed PANDAS to a T and

it's treatable and you can get QUICK results with the right antibiotic> > > > > > > > > > > > > > > > From: kldett@... > > > > Sent: Saturday, January 29, 2011 10:19 AM> > > > To: mb12 valtrex > > > > Subject: Don't know how much more I can take......> > > > > > > > > > > > > > > > I wrote a few days ago how awful this regression has been from the valtrex and diflucan....and someone suggested to go back and read Stan's paper which I did. It's been about 5 weeks and seriously I don't know how much longer I can watch him hit his head and bite and scratch himself/others. I am afraid he is going

to hurt his sister. I can tell something is coming out of him right now because he is very raspy and sounds like his throat hurts. How bad do you let it get before you call it quits.....it is really affecting everyone in our home.....> > > > --> > > > Kasey> > > > > > > > > > > > > > > > > >> >> >

[Guest guest]

please disregard previous email. > You need to get blood work such as ASO and anti-Dnase antibody titers to see if there has ever been a strep exposure, in the present or past. PANDAS experts are finding that not only strep is causing symptoms of PANDAS, but mycoplasma pneumonia (test myco-p IgA and IgM), lyme, and viral infections. Strep is often the first infection to start it, but any of these subsequent infections can exacerbate the craziness again. > > > > > > RUN to your dr and get him tested for strep you just discribed PANDAS to a T and it's treatable and you can get QUICK results with the right antibiotic> > > >

> > > > > > > > > > > > From: kldett@... > > > > Sent: Saturday, January 29, 2011 10:19 AM> > > > To: mb12 valtrex > > > > Subject: Don't know how much more I can take......> > > > > > > > > > > > > > > > I wrote a few days ago how awful this regression has been from the valtrex and diflucan....and someone suggested to go back and read Stan's paper which I did. It's been about 5 weeks and seriously I don't know how much longer I can watch him hit his head and bite and scratch himself/others. I am afraid he is going to hurt his sister. I can tell something is coming out of him right now because he is very raspy and sounds like his throat hurts. How bad

do you let it get before you call it quits.....it is really affecting everyone in our home.....> > > > --> > > > Kasey> > > > > > > > > > > > > > > > > >> >> >

[Guest guest]

please disregard previous email. > You need to get blood work such as ASO and anti-Dnase antibody titers to see if there has ever been a strep exposure, in the present or past. PANDAS experts are finding that not only strep is causing symptoms of PANDAS, but mycoplasma pneumonia (test myco-p IgA and IgM), lyme, and viral infections. Strep is often the first infection to start it, but any of these subsequent infections can exacerbate the craziness again. > > > > > > RUN to your dr and get him tested for strep you just discribed PANDAS to a T and it's treatable and you can get QUICK results with the right antibiotic> > > >

> > > > > > > > > > > > From: kldett@... > > > > Sent: Saturday, January 29, 2011 10:19 AM> > > > To: mb12 valtrex > > > > Subject: Don't know how much more I can take......> > > > > > > > > > > > > > > > I wrote a few days ago how awful this regression has been from the valtrex and diflucan....and someone suggested to go back and read Stan's paper which I did. It's been about 5 weeks and seriously I don't know how much longer I can watch him hit his head and bite and scratch himself/others. I am afraid he is going to hurt his sister. I can tell something is coming out of him right now because he is very raspy and sounds like his throat hurts. How bad

do you let it get before you call it quits.....it is really affecting everyone in our home.....> > > > --> > > > Kasey> > > > > > > > > > > > > > > > > >> >> >

[Guest guest]

please disregard previous email. > You need to get blood work such as ASO and anti-Dnase antibody titers to see if there has ever been a strep exposure, in the present or past. PANDAS experts are finding that not only strep is causing symptoms of PANDAS, but mycoplasma pneumonia (test myco-p IgA and IgM), lyme, and viral infections. Strep is often the first infection to start it, but any of these subsequent infections can exacerbate the craziness again. > > > > > > RUN to your dr and get him tested for strep you just discribed PANDAS to a T and it's treatable and you can get QUICK results with the right antibiotic> > > >

> > > > > > > > > > > > From: kldett@... > > > > Sent: Saturday, January 29, 2011 10:19 AM> > > > To: mb12 valtrex > > > > Subject: Don't know how much more I can take......> > > > > > > > > > > > > > > > I wrote a few days ago how awful this regression has been from the valtrex and diflucan....and someone suggested to go back and read Stan's paper which I did. It's been about 5 weeks and seriously I don't know how much longer I can watch him hit his head and bite and scratch himself/others. I am afraid he is going to hurt his sister. I can tell something is coming out of him right now because he is very raspy and sounds like his throat hurts. How bad

do you let it get before you call it quits.....it is really affecting everyone in our home.....> > > > --> > > > Kasey> > > > > > > > > > > > > > > > > >> >> >

[Guest guest]

Google Translate says this is Croatian but can't translate it completely.

Cheryl ~http://www.gryffins-tail.blogspot.com~~@Gryffins_Tail~

ti esche odna ili uge Vova vernulsya?

[Guest guest]

Google Translate says this is Croatian but can't translate it completely.

Cheryl ~http://www.gryffins-tail.blogspot.com~~@Gryffins_Tail~

ti esche odna ili uge Vova vernulsya?

[Guest guest]

Google Translate says this is Croatian but can't translate it completely.

Cheryl ~http://www.gryffins-tail.blogspot.com~~@Gryffins_Tail~

ti esche odna ili uge Vova vernulsya?

[Guest guest]

WE are using Dr Usmans biofilm protocol in conjunction with azithromycin to treat my sons PANDAS and we are eeing very good things across the board: happier child, aggressions are gone, anxiety is way down, language is up, math/handwriting has improved, less OCD but still there. Overall we are happy w/ his progress over the past 30 days.

> > > > Subject: Don't know how much more I can take......> To: mb12 valtrex > Date: Saturday, January 29, 2011, 10:19 AM> > > > > > > I

wrote a few days ago how awful this regression has been from the valtrex and diflucan....and someone suggested to go back and read Stan's paper which I did. It's been about 5 weeks and seriously I don't know how much longer I can watch him hit his head and bite and scratch himself/others. I am afraid he is going to hurt his sister. I can tell something is coming out of him right now because he is very raspy and sounds like his throat hurts. How bad do you let it get before you call it quits.....it is really affecting everyone in our home.....> --> Kasey> > > > > > > > > >

[Guest guest]

That is awesome news! To: mb12 valtrex Sent: Sun, January 30, 2011 8:54:59 AMSubject: Re: Don't know how much more I can take......

WE are using Dr Usmans biofilm protocol in conjunction with azithromycin to treat my sons PANDAS and we are eeing very good things across the board: happier child, aggressions are gone, anxiety is way down, language is up, math/handwriting has improved, less OCD but still there. Overall we are happy w/ his progress over the past 30 days.

> >

> > Subject: Don't know how much more I can take......> To: mb12 valtrex > Date: Saturday, January 29, 2011, 10:19 AM> > > > > > > I

wrote a few days ago how awful this regression has been from the valtrex and diflucan....and someone suggested to go back and read Stan's paper which I did. It's been about 5 weeks and seriously I don't know how much longer I can watch him hit his head and bite and scratch himself/others. I am afraid he is going to hurt his sister. I can tell something is coming out of him right now because he is very raspy and sounds like his throat hurts. How bad do you let it get before you call it quits.....it is really affecting everyone in our home.....> --> Kasey> > > > > > > > > >