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Hello again group,

Felt the need to clarify for those reading my last post. I'm not downing

anyone in terms of the docs, I know they are busy busy people. But I just feel

that 6 years of your life without a real aggressive effort to diagnose someone

and get them the help that they need borderlines on the cruel side.Can chiari

progress? If I continue to wait can I expect symptoms to exaserbate, or have

more symptoms to add to the alredy seemingly endless list? I know that I

definately have way more symptoms now than I did 6 years ago. The floating head

stuff is constant the disturbed vision is constant, the pain in my neck and

shoulder are constant. I also have atypical facial pain and ear pain that occur

randomly and when I get the pain in my ears, it hurts bad. Ive been told its

not related to chiari, does anyone else have ear pain? But some symptoms seem

to come and go, and it could be that is because of the degenerative disc

disease. But I cant sort these things out alone, but when I went to the NS,

neither he or the resident asked me nothing about my symptoms. Nothing. And

that was quite upsetting to me. Beside the fact that he said he didnt think he

could help me without even having seen the one and only head MRI and CAT. Just

something doesnt seem right. When you go to someone becuase you have heard

they are good and yo experience a visit like that, it is truly upsetting.

Thanks again

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