Guest guest Posted June 11, 2008 Report Share Posted June 11, 2008 Has anyone heard of Scleroderma? I went to U of M(Center of Excellence) last week to see Pulminalogist while there the Doctor was really concerned about my hands. He thinks I may have Scleroderma. he had another doctor come in and also look at my hands. I go back July 14th to see a Rheumatology doctor. Thinks I might have Rheumatoid Arthrist. Had blood work done and also had x-ray of my hands. I thought that was pretty funny, go to doctor because can't breathe, have x-ray of hands. I go back August 4th to see Pulmo doctor and also have echo to check for PH. Would appreciate any info I can get. Thank you Jo Ann UIP 9/07 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2008 Report Share Posted June 12, 2008 Jo Ann, I went to the Rheumy because of my rheumatoid arthritis and ended up also having lupus, and scleroderma. Next thing I knew I also had PF... Scleroderma is a thickening of the skin due to collagen build-up. It's an Auto-Immune disease also. I would suggest you go to WebMD for more info and ask your rheumy for a hand out when you see him/her. This is a serious disease and is what caused my pulmonary fibrosis. You can have different types of scleroderma. So far mine is attacking only my lungs, with some tightening of my face starting last year. They treat it with the same meds as lupus or rheumatoid arthritis, mainly prednisone or plaquenil. Please keep us posted as to how you're doing and what your Docs say. Hugs! Babs in Texas > > Has anyone heard of Scleroderma? > > I went to U of M(Center of Excellence) last week to see Pulminalogist > while there the Doctor was really concerned about my hands. He thinks > I may have Scleroderma. he had another doctor come in and also look at > my hands. I go back July 14th to see a Rheumatology doctor. Thinks I > might have Rheumatoid Arthrist. Had blood work done and also had x-ray > of my hands. I thought that was pretty funny, go to doctor because > can't breathe, have x-ray of hands. > > I go back August 4th to see Pulmo doctor and also have echo to check > for PH. > > Would appreciate any info I can get. > > Thank you > Jo Ann > UIP 9/07 > Quote Link to comment Share on other sites More sharing options...
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