Re: aba coverage : self funded : federally regulated ..NJ ..Help

January 30, 2011

Hi All,

Wanted to let u all know that starting this year my insurance company covers Autism.

Cigna was actually looking into the state mandated law. This is great news.

Which means ABA will be covered. This was not covered last year.

I casually checked with my insurance and voila!!!. You guys might want to chk with your insurance companies also.

3yrs old ASD ... will start cheltion soon

Subject: Re: aba coverage : self funded : federally regulated ..NJ ..HelpTo: lesliemom99@...Date: Wednesday, 15 December, 2010, 5:00 AM

you should be able to tap into aba services via early intervention.

where do you live?

i always call senator kean's office when i get in a pickle....meeting with children's emergency fund...forward you along when i catch up with them....but all $$$ has to come out of your child's name and apparently we can get medicaid. but school/IEI should provide ABA....you have to get really LOUD and support from neurologists go a long way.

lisa

January 30, 2011

Hi All,

Wanted to let u all know that starting this year my insurance company covers Autism.

Cigna was actually looking into the state mandated law. This is great news.

Which means ABA will be covered. This was not covered last year.

I casually checked with my insurance and voila!!!. You guys might want to chk with your insurance companies also.

3yrs old ASD ... will start cheltion soon

Subject: Re: aba coverage : self funded : federally regulated ..NJ ..HelpTo: lesliemom99@...Date: Wednesday, 15 December, 2010, 5:00 AM

you should be able to tap into aba services via early intervention.

where do you live?

i always call senator kean's office when i get in a pickle....meeting with children's emergency fund...forward you along when i catch up with them....but all $$$ has to come out of your child's name and apparently we can get medicaid. but school/IEI should provide ABA....you have to get really LOUD and support from neurologists go a long way.

lisa

January 31, 2011

I didn't write it bash on Marcia - please, Marcia, I wasn't directing anything toward you personally. I'm just frustrated by this story. I wrote this because I want people to know the truth. Words have power. What you say and what you *don't* say is important and vital in the dissemination of information. It's easy to read all the haters out there and think that chelation killed Tariq. And that's because they are telling the truth, not lies - a boy was chelated and he died. But they aren't telling the *whole* truth. And the whole truth paints a very different picture. It wasn't chelation that killed him, it was carelessness and the wrong medication. If anything, this is cautionary tale to make sure you read the label of everything you allow anyone to give your child and make sure you know what the hell it is. Research and know about the medicines and supplements you are giving.

Cheryl ~http://www.gryffins-tail.blogspot.com~~@Gryffins_Tail~

You go, girl. ; )To: mb12 valtrex Sent: Mon, January 31, 2011 1:09:08 PMSubject: Re: Re: aba coverage : self funded : federally regulated ..NJ ..Help

> > Please don’t exhaust other options before chelating. I know I’m going to be blasted by others on this list for saying that,No, you're not. Caution is, in my opinion, always warranted in everything you do. That doesn't mean that everyone is going to have your opinion on chelation, though. > but I can’t in good conscience watch a child possibly have negative consequences from not speaking up especially when there are so many other options to try first.. I was just told by another mom about a kid who was chelated and died as a result. This doctor’s credentials are being looked into and who knows if things were done right. But this can be dangerous. I have no intention of arguing with you about the merits of chelation. I really just want to address the very tragic death.This is an old story. He is not currently being investigated for

anything related to this because it's over and done. Here is what happened to the doctor. http://www.casewatch.org/board/med/kerry/complaint.shtml (this of course, was posted by someone who is very much anti-biomed since he left out some very important information - meaning what he says is very true, but certain things left out to give a certain impression). You'll notice he says what medication the boy was given, that he has autism and then goes into the theory of metals/autism. But he leaves out one very crucial piece of information. The fact of the matter is, he was given the wrong medication and did die as a result. The boy's name was Abubakar Tariq Nadama and it was tragic. There are lots of stories online that make a lot of claims and assumptions but it wasn't chelation that killed him, it was the

wrong drug. This was in 2005, I believe. To my knowledge, he's the only child that has died from chelation with a DAN (I believe Usman was his actual Dr. - he went to Kerry for the IV). There are two types of EDTA and he was given Disodium EDTA instead of Calcium Disodium EDTA. Here is the autopsy report, interpreted by the CDC, from the Pittsburgh Post Gazette http://www.post-gazette.com/pg/06018/639721.stmI specifically chose not to send a link from a pro-biomed source so you can see that it's not something just made up by the autism community.You can google his name and you will find a slew of negative things being said. I'm telling you this because the information is readily available and much of it is completely unreliable - but out there. It's easy for people that don't actually know anything about it to sling

the mud. It's easy for those that only hear the horror of Tariq's death to sit in judgment. There's more than one way to chelate. And there are alternatives to IV and high dose chelation. But the baby gets thrown out with the bath water because people that don't actually know anything about chelation think it's okay to sit in judgment and yack loudly and proudly about something they don't even understand and leave out certain details in order to make themselves sound more compelling. The story is used to somehow "prove" that chelation is dangerous and terrible and unfounded when the sad fact is the boy died. And died because he was given the wrong medication. It's tragic and the whole ordeal has been used as some kind of pawn in the autism vs. the rest of medicine game. Clearly something went wrong and I would have sued that a$$hole doctor that did something so careless and permanent myself. And I

don't doubt he tried to do whatever he could to try to worm his way out of it - it's human nature to want to save yourself. Mistakes happen - unfortunately this one took a life. My husbands former boss's wife also had the wrong lung removed in a transplant surgery. It happens in mainstream medicine, too.t happened 6 years ago and is no less tragic now than it was then. His story keeps getting passed around and somehow, it keeps sounding like this is something that just happened recently and then there's confusion that this is a *new* boy. It's one boy's story being told over and over trying to make people believe it happened yesterday and trying to make people believe that chelation is unwarranted - something that today is still unproven *either way*.Safety and efficacy of the choices anyone makes should always be researched. There's plenty of debate *within* biomed about the different types of

chelation therapies and there safety. Personally, I would never IV chelate. Nor would I consider high dose chelation. But that's because I researched and made a choice that was right for us.A family was crushed and will never fully recover. I don't blame the parents for any reaction they have, even if it's to rain down hellfire on any kind of alternative treatments. They have that right, they lost a child in their quest for help. I don't know how I would react in their shoes.He needs to be remembered for being a boy that needed help. A boy that could have had a future and parents that could have had their son for so much longer than they got. A boy that died because of a mistake. Not some poster-child to support an agenda he doesn't even fit. Cheryl------------------------------------

January 31, 2011

I didn't write it bash on Marcia - please, Marcia, I wasn't directing anything toward you personally. I'm just frustrated by this story. I wrote this because I want people to know the truth. Words have power. What you say and what you *don't* say is important and vital in the dissemination of information. It's easy to read all the haters out there and think that chelation killed Tariq. And that's because they are telling the truth, not lies - a boy was chelated and he died. But they aren't telling the *whole* truth. And the whole truth paints a very different picture. It wasn't chelation that killed him, it was carelessness and the wrong medication. If anything, this is cautionary tale to make sure you read the label of everything you allow anyone to give your child and make sure you know what the hell it is. Research and know about the medicines and supplements you are giving.

Cheryl ~http://www.gryffins-tail.blogspot.com~~@Gryffins_Tail~

You go, girl. ; )To: mb12 valtrex Sent: Mon, January 31, 2011 1:09:08 PMSubject: Re: Re: aba coverage : self funded : federally regulated ..NJ ..Help

> > Please don’t exhaust other options before chelating. I know I’m going to be blasted by others on this list for saying that,No, you're not. Caution is, in my opinion, always warranted in everything you do. That doesn't mean that everyone is going to have your opinion on chelation, though. > but I can’t in good conscience watch a child possibly have negative consequences from not speaking up especially when there are so many other options to try first.. I was just told by another mom about a kid who was chelated and died as a result. This doctor’s credentials are being looked into and who knows if things were done right. But this can be dangerous. I have no intention of arguing with you about the merits of chelation. I really just want to address the very tragic death.This is an old story. He is not currently being investigated for

anything related to this because it's over and done. Here is what happened to the doctor. http://www.casewatch.org/board/med/kerry/complaint.shtml (this of course, was posted by someone who is very much anti-biomed since he left out some very important information - meaning what he says is very true, but certain things left out to give a certain impression). You'll notice he says what medication the boy was given, that he has autism and then goes into the theory of metals/autism. But he leaves out one very crucial piece of information. The fact of the matter is, he was given the wrong medication and did die as a result. The boy's name was Abubakar Tariq Nadama and it was tragic. There are lots of stories online that make a lot of claims and assumptions but it wasn't chelation that killed him, it was the

wrong drug. This was in 2005, I believe. To my knowledge, he's the only child that has died from chelation with a DAN (I believe Usman was his actual Dr. - he went to Kerry for the IV). There are two types of EDTA and he was given Disodium EDTA instead of Calcium Disodium EDTA. Here is the autopsy report, interpreted by the CDC, from the Pittsburgh Post Gazette http://www.post-gazette.com/pg/06018/639721.stmI specifically chose not to send a link from a pro-biomed source so you can see that it's not something just made up by the autism community.You can google his name and you will find a slew of negative things being said. I'm telling you this because the information is readily available and much of it is completely unreliable - but out there. It's easy for people that don't actually know anything about it to sling

the mud. It's easy for those that only hear the horror of Tariq's death to sit in judgment. There's more than one way to chelate. And there are alternatives to IV and high dose chelation. But the baby gets thrown out with the bath water because people that don't actually know anything about chelation think it's okay to sit in judgment and yack loudly and proudly about something they don't even understand and leave out certain details in order to make themselves sound more compelling. The story is used to somehow "prove" that chelation is dangerous and terrible and unfounded when the sad fact is the boy died. And died because he was given the wrong medication. It's tragic and the whole ordeal has been used as some kind of pawn in the autism vs. the rest of medicine game. Clearly something went wrong and I would have sued that a$$hole doctor that did something so careless and permanent myself. And I

don't doubt he tried to do whatever he could to try to worm his way out of it - it's human nature to want to save yourself. Mistakes happen - unfortunately this one took a life. My husbands former boss's wife also had the wrong lung removed in a transplant surgery. It happens in mainstream medicine, too.t happened 6 years ago and is no less tragic now than it was then. His story keeps getting passed around and somehow, it keeps sounding like this is something that just happened recently and then there's confusion that this is a *new* boy. It's one boy's story being told over and over trying to make people believe it happened yesterday and trying to make people believe that chelation is unwarranted - something that today is still unproven *either way*.Safety and efficacy of the choices anyone makes should always be researched. There's plenty of debate *within* biomed about the different types of

chelation therapies and there safety. Personally, I would never IV chelate. Nor would I consider high dose chelation. But that's because I researched and made a choice that was right for us.A family was crushed and will never fully recover. I don't blame the parents for any reaction they have, even if it's to rain down hellfire on any kind of alternative treatments. They have that right, they lost a child in their quest for help. I don't know how I would react in their shoes.He needs to be remembered for being a boy that needed help. A boy that could have had a future and parents that could have had their son for so much longer than they got. A boy that died because of a mistake. Not some poster-child to support an agenda he doesn't even fit. Cheryl------------------------------------

January 31, 2011

I didn't write it bash on Marcia - please, Marcia, I wasn't directing anything toward you personally. I'm just frustrated by this story. I wrote this because I want people to know the truth. Words have power. What you say and what you *don't* say is important and vital in the dissemination of information. It's easy to read all the haters out there and think that chelation killed Tariq. And that's because they are telling the truth, not lies - a boy was chelated and he died. But they aren't telling the *whole* truth. And the whole truth paints a very different picture. It wasn't chelation that killed him, it was carelessness and the wrong medication. If anything, this is cautionary tale to make sure you read the label of everything you allow anyone to give your child and make sure you know what the hell it is. Research and know about the medicines and supplements you are giving.

Cheryl ~http://www.gryffins-tail.blogspot.com~~@Gryffins_Tail~

You go, girl. ; )To: mb12 valtrex Sent: Mon, January 31, 2011 1:09:08 PMSubject: Re: Re: aba coverage : self funded : federally regulated ..NJ ..Help

> > Please don’t exhaust other options before chelating. I know I’m going to be blasted by others on this list for saying that,No, you're not. Caution is, in my opinion, always warranted in everything you do. That doesn't mean that everyone is going to have your opinion on chelation, though. > but I can’t in good conscience watch a child possibly have negative consequences from not speaking up especially when there are so many other options to try first.. I was just told by another mom about a kid who was chelated and died as a result. This doctor’s credentials are being looked into and who knows if things were done right. But this can be dangerous. I have no intention of arguing with you about the merits of chelation. I really just want to address the very tragic death.This is an old story. He is not currently being investigated for

anything related to this because it's over and done. Here is what happened to the doctor. http://www.casewatch.org/board/med/kerry/complaint.shtml (this of course, was posted by someone who is very much anti-biomed since he left out some very important information - meaning what he says is very true, but certain things left out to give a certain impression). You'll notice he says what medication the boy was given, that he has autism and then goes into the theory of metals/autism. But he leaves out one very crucial piece of information. The fact of the matter is, he was given the wrong medication and did die as a result. The boy's name was Abubakar Tariq Nadama and it was tragic. There are lots of stories online that make a lot of claims and assumptions but it wasn't chelation that killed him, it was the

wrong drug. This was in 2005, I believe. To my knowledge, he's the only child that has died from chelation with a DAN (I believe Usman was his actual Dr. - he went to Kerry for the IV). There are two types of EDTA and he was given Disodium EDTA instead of Calcium Disodium EDTA. Here is the autopsy report, interpreted by the CDC, from the Pittsburgh Post Gazette http://www.post-gazette.com/pg/06018/639721.stmI specifically chose not to send a link from a pro-biomed source so you can see that it's not something just made up by the autism community.You can google his name and you will find a slew of negative things being said. I'm telling you this because the information is readily available and much of it is completely unreliable - but out there. It's easy for people that don't actually know anything about it to sling

the mud. It's easy for those that only hear the horror of Tariq's death to sit in judgment. There's more than one way to chelate. And there are alternatives to IV and high dose chelation. But the baby gets thrown out with the bath water because people that don't actually know anything about chelation think it's okay to sit in judgment and yack loudly and proudly about something they don't even understand and leave out certain details in order to make themselves sound more compelling. The story is used to somehow "prove" that chelation is dangerous and terrible and unfounded when the sad fact is the boy died. And died because he was given the wrong medication. It's tragic and the whole ordeal has been used as some kind of pawn in the autism vs. the rest of medicine game. Clearly something went wrong and I would have sued that a$$hole doctor that did something so careless and permanent myself. And I

don't doubt he tried to do whatever he could to try to worm his way out of it - it's human nature to want to save yourself. Mistakes happen - unfortunately this one took a life. My husbands former boss's wife also had the wrong lung removed in a transplant surgery. It happens in mainstream medicine, too.t happened 6 years ago and is no less tragic now than it was then. His story keeps getting passed around and somehow, it keeps sounding like this is something that just happened recently and then there's confusion that this is a *new* boy. It's one boy's story being told over and over trying to make people believe it happened yesterday and trying to make people believe that chelation is unwarranted - something that today is still unproven *either way*.Safety and efficacy of the choices anyone makes should always be researched. There's plenty of debate *within* biomed about the different types of

chelation therapies and there safety. Personally, I would never IV chelate. Nor would I consider high dose chelation. But that's because I researched and made a choice that was right for us.A family was crushed and will never fully recover. I don't blame the parents for any reaction they have, even if it's to rain down hellfire on any kind of alternative treatments. They have that right, they lost a child in their quest for help. I don't know how I would react in their shoes.He needs to be remembered for being a boy that needed help. A boy that could have had a future and parents that could have had their son for so much longer than they got. A boy that died because of a mistake. Not some poster-child to support an agenda he doesn't even fit. Cheryl------------------------------------

January 31, 2011

there has been ONE child who died from chelation in decades of chelation and tens if not hundreds of thousands of cases of chelation. just to put that into perspective, and it was the nurse who grabbed the wrong vile of stuff to chelate with not the dr. and he has been cleared of all wrong doing. you have greater odds of being hit by a car crossing the road tonight then dieing from chelation....

From: and Marcia Hinds

Sent: Monday, January 31, 2011 10:50 AM

To: lesliemom99@... ; mb12 valtrex

Subject: Re: aba coverage : self funded : federally regulated ..NJ ..Help

Please don’t exhaust other options before chelating. I know I’m going to be blasted by others on this list for saying that, but I can’t in good conscience watch a child possibly have negative consequences from not speaking up especially when there are so many other options to try first.. I was just told by another mom about a kid who was chelated and died as a result. This doctor’s credentials are being looked into and who knows if things were done right. But this can be dangerous. And our doctor says the damage from chelation can be seen on brain neurospects.

My son is recovered and in college at 22 as a result of the NIDS protocol. Please know your son can get better with proper medical treatment and then rehabilitation. No parent should accept that their child cannot be helped. We treated with antivirals on the NIDS protocol. Maybe he has the XMRV retrovirus, and it was addressed by using the antivirals and other things we did to help his immune problem. I don’t know the answer to that question. However, is living proof that kids can get better.

was diagnosed when he was four years old. A psychiatrist who was the leading authority on autism said my child would never be okay. According to this expert, was going to end up in an institution or group home. Now at 22, the only institution attends is a University where he studies mechanical engineering on a merit scholarship. excels academically and is in the Engineering Honor Society (top 10% GPA). He‘s a member of Sigma Chi Fraternity and was president of the Jewish Student Association. And he just received a NASA paid internship and scholarship. But more importantly, is a typical college student who drinks an occasional beer, goes on dates, stays out too late with friends and then sleeps through eight o’clock classes. I couldn’t be more proud!

Unbelievable as it seems, this is the same child who wanted to spend all day, every day, plugging in a portable radio into each outlet in the house. Back then, I wasn’t sure if I had the strength to be more stubborn than my son. There were mornings I didn’t want to get out of bed to face another day filled with autism. The worst times were when I didn’t have a direction or a plan. I was hanging onto my sanity by my fingernails. But, at the end of the day, I was faced with a choice: let drift off forever into his own world, or drag him kicking and screaming into ours.

Now it may look like we knew what we were doing back then. But we didn’t. It was trial and error to see what worked to help him. After we helped medically, it was possible for him to learn. Behavioral and educational interventions were used in conjunction with the medical treatment to catch up on everything he missed. Initially, we used Applied Behavior Analysis (ABA) for his rehabilitation and when he was ready we moved towards more natural ways of teaching. It took years to correct ’s deficits in speech and social skills. It was almost like taking a stroke victim and bringing them back. Our story is not about coping with autism, but rather fighting back and not accepting the misconceptions associated with this diagnosis. This process is definitely not for sissies or parents looking for that magic cure. If you would like more info on what we did medically, please email me privately.

Hope this helps,

Marcia

January 31, 2011

there has been ONE child who died from chelation in decades of chelation and tens if not hundreds of thousands of cases of chelation. just to put that into perspective, and it was the nurse who grabbed the wrong vile of stuff to chelate with not the dr. and he has been cleared of all wrong doing. you have greater odds of being hit by a car crossing the road tonight then dieing from chelation....

From: and Marcia Hinds

Sent: Monday, January 31, 2011 10:50 AM

To: lesliemom99@... ; mb12 valtrex

Subject: Re: aba coverage : self funded : federally regulated ..NJ ..Help

Please don’t exhaust other options before chelating. I know I’m going to be blasted by others on this list for saying that, but I can’t in good conscience watch a child possibly have negative consequences from not speaking up especially when there are so many other options to try first.. I was just told by another mom about a kid who was chelated and died as a result. This doctor’s credentials are being looked into and who knows if things were done right. But this can be dangerous. And our doctor says the damage from chelation can be seen on brain neurospects.

My son is recovered and in college at 22 as a result of the NIDS protocol. Please know your son can get better with proper medical treatment and then rehabilitation. No parent should accept that their child cannot be helped. We treated with antivirals on the NIDS protocol. Maybe he has the XMRV retrovirus, and it was addressed by using the antivirals and other things we did to help his immune problem. I don’t know the answer to that question. However, is living proof that kids can get better.

was diagnosed when he was four years old. A psychiatrist who was the leading authority on autism said my child would never be okay. According to this expert, was going to end up in an institution or group home. Now at 22, the only institution attends is a University where he studies mechanical engineering on a merit scholarship. excels academically and is in the Engineering Honor Society (top 10% GPA). He‘s a member of Sigma Chi Fraternity and was president of the Jewish Student Association. And he just received a NASA paid internship and scholarship. But more importantly, is a typical college student who drinks an occasional beer, goes on dates, stays out too late with friends and then sleeps through eight o’clock classes. I couldn’t be more proud!

Unbelievable as it seems, this is the same child who wanted to spend all day, every day, plugging in a portable radio into each outlet in the house. Back then, I wasn’t sure if I had the strength to be more stubborn than my son. There were mornings I didn’t want to get out of bed to face another day filled with autism. The worst times were when I didn’t have a direction or a plan. I was hanging onto my sanity by my fingernails. But, at the end of the day, I was faced with a choice: let drift off forever into his own world, or drag him kicking and screaming into ours.

Now it may look like we knew what we were doing back then. But we didn’t. It was trial and error to see what worked to help him. After we helped medically, it was possible for him to learn. Behavioral and educational interventions were used in conjunction with the medical treatment to catch up on everything he missed. Initially, we used Applied Behavior Analysis (ABA) for his rehabilitation and when he was ready we moved towards more natural ways of teaching. It took years to correct ’s deficits in speech and social skills. It was almost like taking a stroke victim and bringing them back. Our story is not about coping with autism, but rather fighting back and not accepting the misconceptions associated with this diagnosis. This process is definitely not for sissies or parents looking for that magic cure. If you would like more info on what we did medically, please email me privately.

Hope this helps,

Marcia

January 31, 2011

there has been ONE child who died from chelation in decades of chelation and tens if not hundreds of thousands of cases of chelation. just to put that into perspective, and it was the nurse who grabbed the wrong vile of stuff to chelate with not the dr. and he has been cleared of all wrong doing. you have greater odds of being hit by a car crossing the road tonight then dieing from chelation....

From: and Marcia Hinds

Sent: Monday, January 31, 2011 10:50 AM

To: lesliemom99@... ; mb12 valtrex

Subject: Re: aba coverage : self funded : federally regulated ..NJ ..Help

Please don’t exhaust other options before chelating. I know I’m going to be blasted by others on this list for saying that, but I can’t in good conscience watch a child possibly have negative consequences from not speaking up especially when there are so many other options to try first.. I was just told by another mom about a kid who was chelated and died as a result. This doctor’s credentials are being looked into and who knows if things were done right. But this can be dangerous. And our doctor says the damage from chelation can be seen on brain neurospects.

My son is recovered and in college at 22 as a result of the NIDS protocol. Please know your son can get better with proper medical treatment and then rehabilitation. No parent should accept that their child cannot be helped. We treated with antivirals on the NIDS protocol. Maybe he has the XMRV retrovirus, and it was addressed by using the antivirals and other things we did to help his immune problem. I don’t know the answer to that question. However, is living proof that kids can get better.

was diagnosed when he was four years old. A psychiatrist who was the leading authority on autism said my child would never be okay. According to this expert, was going to end up in an institution or group home. Now at 22, the only institution attends is a University where he studies mechanical engineering on a merit scholarship. excels academically and is in the Engineering Honor Society (top 10% GPA). He‘s a member of Sigma Chi Fraternity and was president of the Jewish Student Association. And he just received a NASA paid internship and scholarship. But more importantly, is a typical college student who drinks an occasional beer, goes on dates, stays out too late with friends and then sleeps through eight o’clock classes. I couldn’t be more proud!

Unbelievable as it seems, this is the same child who wanted to spend all day, every day, plugging in a portable radio into each outlet in the house. Back then, I wasn’t sure if I had the strength to be more stubborn than my son. There were mornings I didn’t want to get out of bed to face another day filled with autism. The worst times were when I didn’t have a direction or a plan. I was hanging onto my sanity by my fingernails. But, at the end of the day, I was faced with a choice: let drift off forever into his own world, or drag him kicking and screaming into ours.

Now it may look like we knew what we were doing back then. But we didn’t. It was trial and error to see what worked to help him. After we helped medically, it was possible for him to learn. Behavioral and educational interventions were used in conjunction with the medical treatment to catch up on everything he missed. Initially, we used Applied Behavior Analysis (ABA) for his rehabilitation and when he was ready we moved towards more natural ways of teaching. It took years to correct ’s deficits in speech and social skills. It was almost like taking a stroke victim and bringing them back. Our story is not about coping with autism, but rather fighting back and not accepting the misconceptions associated with this diagnosis. This process is definitely not for sissies or parents looking for that magic cure. If you would like more info on what we did medically, please email me privately.

Hope this helps,

Marcia

January 31, 2011

I believe it was buttar not Usman before her name has a smear campain on it

--------------------------------------------------

Sent: Monday, January 31, 2011 1:09 PM

To: <mb12 valtrex >

Subject: Re: Re: aba coverage : self funded : federally

regulated ..NJ ..Help

>>

>> Please don’t exhaust other options before chelating. I know I’m going to

>> be blasted by others on this list for saying that,

>

> No, you're not. Caution is, in my opinion, always warranted in everything

> you do. That doesn't mean that everyone is going to have your opinion on

> chelation, though.

>

>> but I can’t in good conscience watch a child possibly have negative

>> consequences from not speaking up especially when there are so many other

>> options to try first.. I was just told by another mom about a kid who

>> was chelated and died as a result. This doctor’s credentials are being

>> looked into and who knows if things were done right. But this can be

>> dangerous.

>

> I have no intention of arguing with you about the merits of chelation. I

> really just want to address the very tragic death.

>

> This is an old story. He is not currently being investigated for anything

> related to this because it's over and done. Here is what happened to the

> doctor. http://www.casewatch.org/board/med/kerry/complaint.shtml (this of

> course, was posted by someone who is very much anti-biomed since he left

> out some very important information - meaning what he says is very true,

> but certain things left out to give a certain impression). You'll notice

> he says what medication the boy was given, that he has autism and then

> goes into the theory of metals/autism. But he leaves out one very crucial

> piece of information.

>

> The fact of the matter is, he was given the wrong medication and did die

> as a result. The boy's name was Abubakar Tariq Nadama and it was tragic.

> There are lots of stories online that make a lot of claims and assumptions

> but it wasn't chelation that killed him, it was the wrong drug. This was

> in 2005, I believe. To my knowledge, he's the only child that has died

> from chelation with a DAN (I believe Usman was his actual Dr. - he went to

> Kerry for the IV). There are two types of EDTA and he was given Disodium

> EDTA instead of Calcium Disodium EDTA. Here is the autopsy report,

> interpreted by the CDC, from the Pittsburgh Post Gazette

> http://www.post-gazette.com/pg/06018/639721.stm

>

> I specifically chose not to send a link from a pro-biomed source so you

> can see that it's not something just made up by the autism community.

>

> You can google his name and you will find a slew of negative things being

> said. I'm telling you this because the information is readily available

> and much of it is completely unreliable - but out there. It's easy for

> people that don't actually know anything about it to sling the mud. It's

> easy for those that only hear the horror of Tariq's death to sit in

> judgment. There's more than one way to chelate. And there are

> alternatives to IV and high dose chelation. But the baby gets thrown out

> with the bath water because people that don't actually know anything about

> chelation think it's okay to sit in judgment and yack loudly and proudly

> about something they don't even understand and leave out certain details

> in order to make themselves sound more compelling. The story is used to

> somehow " prove " that chelation is dangerous and terrible and unfounded

> when the sad fact is the boy died. And died because he was given the

> wrong medication. It's tragic and the whole ordeal has been used as some

> kind of pawn in the autism vs. the rest of medicine game. Clearly

> something went wrong and I would have sued that a$$hole doctor that did

> something so careless and permanent myself. And I don't doubt he tried to

> do whatever he could to try to worm his way out of it - it's human nature

> to want to save yourself. Mistakes happen - unfortunately this one took a

> life. My husbands former boss's wife also had the wrong lung removed in a

> transplant surgery. It happens in mainstream medicine, too.

>

> t happened 6 years ago and is no less tragic now than it was then. His

> story keeps getting passed around and somehow, it keeps sounding like this

> is something that just happened recently and then there's confusion that

> this is a *new* boy. It's one boy's story being told over and over trying

> to make people believe it happened yesterday and trying to make people

> believe that chelation is unwarranted - something that today is still

> unproven *either way*.

>

> Safety and efficacy of the choices anyone makes should always be

> researched. There's plenty of debate *within* biomed about the different

> types of chelation therapies and there safety. Personally, I would never

> IV chelate. Nor would I consider high dose chelation. But that's because

> I researched and made a choice that was right for us.

>

> A family was crushed and will never fully recover. I don't blame the

> parents for any reaction they have, even if it's to rain down hellfire on

> any kind of alternative treatments. They have that right, they lost a

> child in their quest for help. I don't know how I would react in their

> shoes.

>

> He needs to be remembered for being a boy that needed help. A boy that

> could have had a future and parents that could have had their son for so

> much longer than they got. A boy that died because of a mistake. Not

> some poster-child to support an agenda he doesn't even fit.

>

> Cheryl

>

> ------------------------------------

>

January 31, 2011