Re: Re: looking for information & friends

[Guest guest]

Gagrandma

I'm not the one who knows enough to help another. There are many in this support group who are gold mines of knowledge. If you will present your questions, you will get answers.

You didn't say if you are under the care of a pulmonologist. If not, you should be.

For my part, despite having fibrosis for three years, I have no limitations on my activities except mountain climbing and those that are illegal. Or illicit. I look for the laughs, and if there is no one to make me laugh, I laugh at myself. And I've got plenty of reasons for that.

I try to help those who need it, and in my neighborhood there are a lot of old folks that I can help even though I am the oldest. As a result of my good deeds, I get quite a few home cooked meals, pies, cakes, cookies and other goodies from several of the ladies who no longer have anybody to cook for. We call that a quid pro quo. That's English for tit for tat. So you see, I'm just a big show off.

So the best advice I can give you is to always look at the positive side and do what you can with the negative. Find at least on laugh everyday even if you have to make a fool of yourself. I do that, but only in the bathroom mirror.

I wish the best for both of you, and feel free to write me anytime, and all the other loving and giving members of the group.

Jack

79/UIP - IPF/06/05 Maine

looking for information & friends> > > hi Everyone,just wanted to drop in and say hello.I have read some of > your post and found them very interesting. Hope you didn't mind.> I was introduced to PF years ago. I am on oxygen.> I can tell my breathing is getting a lot worse. > My dh has had COPD for years, and i have been takeing care

of him. > So if i get really bad then we will be in bad shape.> This computer is the only friend I have to the out side world.I'm not > really good on it but i do like to visit and learn what I can.> Thanks for shareing with me,>

[Guest guest]

Gagrandma

I'm not the one who knows enough to help another. There are many in this support group who are gold mines of knowledge. If you will present your questions, you will get answers.

You didn't say if you are under the care of a pulmonologist. If not, you should be.

For my part, despite having fibrosis for three years, I have no limitations on my activities except mountain climbing and those that are illegal. Or illicit. I look for the laughs, and if there is no one to make me laugh, I laugh at myself. And I've got plenty of reasons for that.

I try to help those who need it, and in my neighborhood there are a lot of old folks that I can help even though I am the oldest. As a result of my good deeds, I get quite a few home cooked meals, pies, cakes, cookies and other goodies from several of the ladies who no longer have anybody to cook for. We call that a quid pro quo. That's English for tit for tat. So you see, I'm just a big show off.

So the best advice I can give you is to always look at the positive side and do what you can with the negative. Find at least on laugh everyday even if you have to make a fool of yourself. I do that, but only in the bathroom mirror.

I wish the best for both of you, and feel free to write me anytime, and all the other loving and giving members of the group.

Jack

79/UIP - IPF/06/05 Maine

looking for information & friends> > > hi Everyone,just wanted to drop in and say hello.I have read some of > your post and found them very interesting. Hope you didn't mind.> I was introduced to PF years ago. I am on oxygen.> I can tell my breathing is getting a lot worse. > My dh has had COPD for years, and i have been takeing care

of him. > So if i get really bad then we will be in bad shape.> This computer is the only friend I have to the out side world.I'm not > really good on it but i do like to visit and learn what I can.> Thanks for shareing with me,>

[Guest guest]

Gagrandma

I'm not the one who knows enough to help another. There are many in this support group who are gold mines of knowledge. If you will present your questions, you will get answers.

You didn't say if you are under the care of a pulmonologist. If not, you should be.

For my part, despite having fibrosis for three years, I have no limitations on my activities except mountain climbing and those that are illegal. Or illicit. I look for the laughs, and if there is no one to make me laugh, I laugh at myself. And I've got plenty of reasons for that.

I try to help those who need it, and in my neighborhood there are a lot of old folks that I can help even though I am the oldest. As a result of my good deeds, I get quite a few home cooked meals, pies, cakes, cookies and other goodies from several of the ladies who no longer have anybody to cook for. We call that a quid pro quo. That's English for tit for tat. So you see, I'm just a big show off.

So the best advice I can give you is to always look at the positive side and do what you can with the negative. Find at least on laugh everyday even if you have to make a fool of yourself. I do that, but only in the bathroom mirror.

I wish the best for both of you, and feel free to write me anytime, and all the other loving and giving members of the group.

Jack

79/UIP - IPF/06/05 Maine

looking for information & friends> > > hi Everyone,just wanted to drop in and say hello.I have read some of > your post and found them very interesting. Hope you didn't mind.> I was introduced to PF years ago. I am on oxygen.> I can tell my breathing is getting a lot worse. > My dh has had COPD for years, and i have been takeing care

of him. > So if i get really bad then we will be in bad shape.> This computer is the only friend I have to the out side world.I'm not > really good on it but i do like to visit and learn what I can.> Thanks for shareing with me,>

[Guest guest]

Hi Ruth and welcome! I just started using o2 when sleeping and it made an immediate difference. I wake up feeling rested and not so tired. I thought I would have a hard time getting used to it, but I seem to fall asleep just fine. Right now I am only using 2L. Hope this helps.

Sarcoid/PF 3/2006 California

looking for information & friends> > > > > > > > > hi Everyone,just wanted to drop in and say hello..I have read > some > > of > > > your post and found them very interesting. Hope you didn't mind.> > > I was introduced to PF years ago. I am on oxygen.> > > I can tell my breathing is getting a lot worse. > > > My dh has had

COPD for years, and i have been takeing care of > him. > > > So if i get really bad then we will be in bad shape.> > > This computer is the only friend I have to the out side world.I'm > > not > > > really good on it but i do like to visit and learn what I can.> > > Thanks for shareing with me,> > >> >>

[Guest guest]

Hi Ruth and welcome! I just started using o2 when sleeping and it made an immediate difference. I wake up feeling rested and not so tired. I thought I would have a hard time getting used to it, but I seem to fall asleep just fine. Right now I am only using 2L. Hope this helps.

Sarcoid/PF 3/2006 California

looking for information & friends> > > > > > > > > hi Everyone,just wanted to drop in and say hello..I have read > some > > of > > > your post and found them very interesting. Hope you didn't mind.> > > I was introduced to PF years ago. I am on oxygen.> > > I can tell my breathing is getting a lot worse. > > > My dh has had

COPD for years, and i have been takeing care of > him. > > > So if i get really bad then we will be in bad shape.> > > This computer is the only friend I have to the out side world.I'm > > not > > > really good on it but i do like to visit and learn what I can.> > > Thanks for shareing with me,> > >> >>

[Guest guest]

Ruth I wish had some answers for you, but I am the least knowledable guy in this group aabout matters pertaining to our disease. I am too new to it to know much, particularly because I do not use oxygen, bottled oxygen, that is. I am sure you will get many replies to your question, because these folks make it a top priority to help others. Even if I did not have fibrosis, I would want to be in this group and be among so many who are so generous in helping others.

The Rolls Royces are not for me. I'm shopping for a scooter. Not only will I save money on gas, I won't need a chaufeur.

My best to you and your dh.

Jack

79/UOP - IPF/06/05 Maine

looking for information & friends> > > > > > > > > hi Everyone,just wanted to drop in and say hello..I have read > some > > of > > > your post and found them very interesting. Hope you didn't mind.> > > I was introduced to PF years ago. I am on oxygen.> > > I can tell my breathing is getting a lot worse. > > > My dh has had

COPD for years, and i have been takeing care of > him. > > > So if i get really bad then we will be in bad shape.> > > This computer is the only friend I have to the out side world.I'm > > not > > > really good on it but i do like to visit and learn what I can.> > > Thanks for shareing with me,> > >> >>

[Guest guest]

Ruth... by now you know we are back from out little gathering and had a wonderful time. Meeting other members is such a treat.

My birthday is Aug. 4th.

MamaSher, age 69. IPF 3-06, OR.Don't fret about tomorrow, God is already there!

looking for information & friends> > > > > > > > > > > > hi Everyone,just wanted to drop in and say hello.I have read > > some > > > of > > > > your post and found them very interesting. Hope you didn't > mind.> > > > I was introduced to PF years ago. I am on oxygen.> > > > I can tell my breathing is getting a lot worse. > > > > My dh has had COPD for years, and i have been takeing care of > > him. > > > > So if i get really bad then we will be in bad shape.> > > > This computer is the only friend I have to the out side > > world.I'm > > > not > > > > really good on it but i do like to visit and learn what I can.> > > > Thanks for shareing with me,> > > >> > >> >>

[Guest guest]

Ruth... by now you know we are back from out little gathering and had a wonderful time. Meeting other members is such a treat.

My birthday is Aug. 4th.

MamaSher, age 69. IPF 3-06, OR.Don't fret about tomorrow, God is already there!

looking for information & friends> > > > > > > > > > > > hi Everyone,just wanted to drop in and say hello.I have read > > some > > > of > > > > your post and found them very interesting. Hope you didn't > mind.> > > > I was introduced to PF years ago. I am on oxygen.> > > > I can tell my breathing is getting a lot worse. > > > > My dh has had COPD for years, and i have been takeing care of > > him. > > > > So if i get really bad then we will be in bad shape.> > > > This computer is the only friend I have to the out side > > world.I'm > > > not > > > > really good on it but i do like to visit and learn what I can.> > > > Thanks for shareing with me,> > > >> > >> >>

[Guest guest]

Ruth... by now you know we are back from out little gathering and had a wonderful time. Meeting other members is such a treat.

My birthday is Aug. 4th.

MamaSher, age 69. IPF 3-06, OR.Don't fret about tomorrow, God is already there!

looking for information & friends> > > > > > > > > > > > hi Everyone,just wanted to drop in and say hello.I have read > > some > > > of > > > > your post and found them very interesting. Hope you didn't > mind.> > > > I was introduced to PF years ago. I am on oxygen.> > > > I can tell my breathing is getting a lot worse. > > > > My dh has had COPD for years, and i have been takeing care of > > him. > > > > So if i get really bad then we will be in bad shape.> > > > This computer is the only friend I have to the out side > > world.I'm > > > not > > > > really good on it but i do like to visit and learn what I can.> > > > Thanks for shareing with me,> > > >> > >> >>