Guest guest Posted June 5, 2008 Report Share Posted June 5, 2008 Hi Air Family, I'm back down in wintery Tassie for my grand-daughter's school holidays. Even though I've been in 'Lurking' mode for a while lately I'd like to comment on the unfortunate turn that the debate has taken over Caregiver's Presence on the Patient's Forum. I'm so saddened to think that Teri/Jon or K/Don could leave us due to this....I've found their presence & experience as Caregivers to be really valuable for me. It seems to me that they are being 'Patients by Proxy' for both Jon & Don. Couldn't this be the exception to the rule & that it is totally appropriate. Where the Patient is too ill or a computer-phobic for example! Having said that I can see that a separate Forum is also valuable in the usual context where 'venting' might be needed. But HECK we only have a couple of Caregivers on our Patients Forum & their presence is quite in order I reckon, given the circumstances of their patients. If their Patients didn't want the connection then it would be a different matter. None of us are hardly likely to be venting about either Teri OR Lind a K.....that would only be an issue if the 2 Forums were joined as one big open Forum (THAT I don't think is a good idea!) Can't we make a case by case decision...gently lead those to the Caregivers Board if they seem to be on the Patients one in isolation from their own PAtient. Hope that was understandable!!!! Sincerely, from OZ IPF: Fibrotic NSIP/ UIP????? Reynauds' May 2007 Quote Link to comment Share on other sites More sharing options...
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