RE: Elaine's update/Carmela

[Guest guest]

Hi Carmela,

Well I have good days and bad days. Unfortunately right now the good days

are only two in the middle of the metho cycle per week. I'm hoping my body

will get used to this stuff and the days will increase. I'm still on 25mgs

of pred and 12.5mgs of metho. The pred gets lowered each week by 2mgs one

week and 3 mgs the next, which I think is a little fast. The metho gets

increased 2.5mgs every 3 weeks.

I'm planning to see the art exhibit next weekend so I'll have to rest a lot

before hand. We are planning to go on the Friday because that's usually one

of my good days of the week. It's so weird planning around being sick.

To test blood sugars, I bought some urine test strips from the pharmacy.

Diabetes runs in my family and I want to make sure that's not why I'm so

tired. So far all the tests have been negative so that is good. They're

called Diastix and only cost around $8 for a bottle of 25. That's cheap for

the piece of mind, I think.

I've gained so much weight over the last 4 years I started out going to the

doc with joint pains and he put me on antidepressants and I gained 40

pounds. Then the doc committed suicide and we all realized he was the one

depressed. Since the prednisone I've gained another 15 pounds. I'm now 210

and that's not so good when you're short. Oh well when my legs get tired

they can roll me around!!!

Anyhow I have 120 more emails and I don't think I'm going to catch up on

them all today. Hope you are feeling well. Take care,

Elaine

RE: Questions from new members

>Date: Tue, 10 Oct 2000 11:55:08 -0700

>

>Hi Carmela,

>I have talked to the doc about the nose bleeds and he thinks it's a sinus

>infection because my white count is up. He put me on an antibiotic and said

>to use Vaseline so my nose wouldn't dry out. I've only had one nose bleed

>since last Wednesday so I hope it's sorted out. My doc likes to see me once

>a week, frankly I'm a little tired of seeing him. I will see him again

>tomorrow.

>How are you feeling? I haven't seen you post much. I haven't been able to

>get over to Vancouver for the art show but I am planning to go in a couple

>of weeks. I hope I feel better by then.

>Hope you are feeling well, take care,

>Elaine

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