Re: Re: Newbie/VERY SICK CHILD

[Guest guest]

we just got off of azith. nystatin and charcoal and she was bouncing off of the walls and super impulsive. we had to stop after a month becuase she was too out of control on it. doctor said stop it.

Although band 41 is not a lyme specific marker, it does indicate bacteria. Strep is a good thought. Which antibiotic (or other meds) are you using?

Caryn

>

> MY child has so many wierd psychiatric symptoms. All meds. and supps make her rage even more. The teeniest bit of any med. makes her want to tear the house apart. I am treating for PANDAS but even the meds for that make her crazy. I am really at a loss. I have been to dozens of doctors and had tons of tests. The last test showeed a lyme "band 41" as abnormal. One doc says it is nothing to look into and others say it is. i need help. she is only 11 and has rages since 2, with no help or relief. thanks

>

[Guest guest]

we just got off of azith. nystatin and charcoal and she was bouncing off of the walls and super impulsive. we had to stop after a month becuase she was too out of control on it. doctor said stop it.

Although band 41 is not a lyme specific marker, it does indicate bacteria. Strep is a good thought. Which antibiotic (or other meds) are you using?

Caryn

>

> MY child has so many wierd psychiatric symptoms. All meds. and supps make her rage even more. The teeniest bit of any med. makes her want to tear the house apart. I am treating for PANDAS but even the meds for that make her crazy. I am really at a loss. I have been to dozens of doctors and had tons of tests. The last test showeed a lyme "band 41" as abnormal. One doc says it is nothing to look into and others say it is. i need help. she is only 11 and has rages since 2, with no help or relief. thanks

>

[Guest guest]

we tried, depakote, gabapentin, trileptal, celexa, luvox. seroquel. ALL made her much worse. No help at atll. She is currently on 8mg. lamictal, which stops her from attacking us, and running into the street at all hours of the night, but she does not look good. she scratches moles off of her body because she thinks she is ugly. she won't get near me, because she said i look to ugly. very distorted thingking. i am NOT that ugly. LOL

Although band 41 is not a lyme specific marker, it does indicate bacteria. Strep is a good thought. Which antibiotic (or other meds) are you using?

Caryn

>

> MY child has so many wierd psychiatric symptoms. All meds. and supps make her rage even more. The teeniest bit of any med. makes her want to tear the house apart. I am treating for PANDAS but even the meds for that make her crazy. I am really at a loss. I have been to dozens of doctors and had tons of tests. The last test showeed a lyme "band 41" as abnormal. One doc says it is nothing to look into and others say it is. i need help. she is only 11 and has rages since 2, with no help or relief. thanks

>

[Guest guest]

we tried, depakote, gabapentin, trileptal, celexa, luvox. seroquel. ALL made her much worse. No help at atll. She is currently on 8mg. lamictal, which stops her from attacking us, and running into the street at all hours of the night, but she does not look good. she scratches moles off of her body because she thinks she is ugly. she won't get near me, because she said i look to ugly. very distorted thingking. i am NOT that ugly. LOL

Although band 41 is not a lyme specific marker, it does indicate bacteria. Strep is a good thought. Which antibiotic (or other meds) are you using?

Caryn

>

> MY child has so many wierd psychiatric symptoms. All meds. and supps make her rage even more. The teeniest bit of any med. makes her want to tear the house apart. I am treating for PANDAS but even the meds for that make her crazy. I am really at a loss. I have been to dozens of doctors and had tons of tests. The last test showeed a lyme "band 41" as abnormal. One doc says it is nothing to look into and others say it is. i need help. she is only 11 and has rages since 2, with no help or relief. thanks

>

[Guest guest]

we tried, depakote, gabapentin, trileptal, celexa, luvox. seroquel. ALL made her much worse. No help at atll. She is currently on 8mg. lamictal, which stops her from attacking us, and running into the street at all hours of the night, but she does not look good. she scratches moles off of her body because she thinks she is ugly. she won't get near me, because she said i look to ugly. very distorted thingking. i am NOT that ugly. LOL

Although band 41 is not a lyme specific marker, it does indicate bacteria. Strep is a good thought. Which antibiotic (or other meds) are you using?

Caryn

>

> MY child has so many wierd psychiatric symptoms. All meds. and supps make her rage even more. The teeniest bit of any med. makes her want to tear the house apart. I am treating for PANDAS but even the meds for that make her crazy. I am really at a loss. I have been to dozens of doctors and had tons of tests. The last test showeed a lyme "band 41" as abnormal. One doc says it is nothing to look into and others say it is. i need help. she is only 11 and has rages since 2, with no help or relief. thanks

>

[Guest guest]

what post.?

I'd send this post below. He'll be able to loo 360 at the whole child.

>

[Guest guest]

Please please give me the go ahead to leave your email address with my sister's friend...I think she might be able to put you in the right direction. Your daughter's story sounds very much like her son's. (All the rage, all the drugs that did not work). Towards the end, it had gotten so bad that she had to send him to live with his dad when he was 16 or so. He was so big and so strong, she could no longer physically control him. Finally she found a doctor who could help him and he's doing great! He's still got some issues left over from all the years of destructive rx's and such....but he's doing awesome! It can't hurt to talk to her....

To: mb12 valtrex Sent: Fri, January 28, 2011 3:47:47 PMSubject: Re: Re: Newbie/VERY SICK CHILD

we tried, depakote, gabapentin, trileptal, celexa, luvox. seroquel. ALL made her much worse. No help at atll. She is currently on 8mg. lamictal, which stops her from attacking us, and running into the street at all hours of the night, but she does not look good. she scratches moles off of her body because she thinks she is ugly. she won't get near me, because she said i look to ugly. very distorted thingking. i am NOT that ugly. LOL

Although band 41 is not a lyme specific marker, it does indicate bacteria. Strep is a good thought. Which antibiotic (or other meds) are you using?Caryn>> MY child has so many wierd psychiatric symptoms. All meds. and supps make her rage even more. The teeniest bit of any med. makes her want to tear the house apart. I am treating for PANDAS but even the meds for that make her crazy. I am really at a loss. I have been to dozens of doctors and had tons of tests. The last test showeed a lyme "band 41" as abnormal. One doc says it is nothing to look into and others say it is. i need help. she is only 11 and has rages since 2, with no help or relief.

thanks>

[Guest guest]

Please please give me the go ahead to leave your email address with my sister's friend...I think she might be able to put you in the right direction. Your daughter's story sounds very much like her son's. (All the rage, all the drugs that did not work). Towards the end, it had gotten so bad that she had to send him to live with his dad when he was 16 or so. He was so big and so strong, she could no longer physically control him. Finally she found a doctor who could help him and he's doing great! He's still got some issues left over from all the years of destructive rx's and such....but he's doing awesome! It can't hurt to talk to her....

To: mb12 valtrex Sent: Fri, January 28, 2011 3:47:47 PMSubject: Re: Re: Newbie/VERY SICK CHILD

we tried, depakote, gabapentin, trileptal, celexa, luvox. seroquel. ALL made her much worse. No help at atll. She is currently on 8mg. lamictal, which stops her from attacking us, and running into the street at all hours of the night, but she does not look good. she scratches moles off of her body because she thinks she is ugly. she won't get near me, because she said i look to ugly. very distorted thingking. i am NOT that ugly. LOL

Although band 41 is not a lyme specific marker, it does indicate bacteria. Strep is a good thought. Which antibiotic (or other meds) are you using?Caryn>> MY child has so many wierd psychiatric symptoms. All meds. and supps make her rage even more. The teeniest bit of any med. makes her want to tear the house apart. I am treating for PANDAS but even the meds for that make her crazy. I am really at a loss. I have been to dozens of doctors and had tons of tests. The last test showeed a lyme "band 41" as abnormal. One doc says it is nothing to look into and others say it is. i need help. she is only 11 and has rages since 2, with no help or relief.

thanks>

[Guest guest]

Please please give me the go ahead to leave your email address with my sister's friend...I think she might be able to put you in the right direction. Your daughter's story sounds very much like her son's. (All the rage, all the drugs that did not work). Towards the end, it had gotten so bad that she had to send him to live with his dad when he was 16 or so. He was so big and so strong, she could no longer physically control him. Finally she found a doctor who could help him and he's doing great! He's still got some issues left over from all the years of destructive rx's and such....but he's doing awesome! It can't hurt to talk to her....

To: mb12 valtrex Sent: Fri, January 28, 2011 3:47:47 PMSubject: Re: Re: Newbie/VERY SICK CHILD

we tried, depakote, gabapentin, trileptal, celexa, luvox. seroquel. ALL made her much worse. No help at atll. She is currently on 8mg. lamictal, which stops her from attacking us, and running into the street at all hours of the night, but she does not look good. she scratches moles off of her body because she thinks she is ugly. she won't get near me, because she said i look to ugly. very distorted thingking. i am NOT that ugly. LOL

Although band 41 is not a lyme specific marker, it does indicate bacteria. Strep is a good thought. Which antibiotic (or other meds) are you using?Caryn>> MY child has so many wierd psychiatric symptoms. All meds. and supps make her rage even more. The teeniest bit of any med. makes her want to tear the house apart. I am treating for PANDAS but even the meds for that make her crazy. I am really at a loss. I have been to dozens of doctors and had tons of tests. The last test showeed a lyme "band 41" as abnormal. One doc says it is nothing to look into and others say it is. i need help. she is only 11 and has rages since 2, with no help or relief.

thanks>

[Guest guest]

Agree with and . I've spoken to many docs over the past 8 yrs and is the most impressive and thorough I've met. To: mb12 valtrex Sent: Fri, January 28, 2011 7:48:41 PMSubject: Re: Newbie/VERY SICK CHILD

So so sorry -- such bad typing on the iPhone.

"I will second the post below, 's post

will be able to look at the whole child, 360." You can send all of your paperwork to review and talk on the phone before he meets her or after -- Sending good thoughts your way, you've got your hands full.

> > >

> > > Rages for us were due to PANDAS.....getting worse and worse over the years. in NJ was able to help us . www.drneubrander.com. He got some relief w/ high dose steroids and augmentin but what worked much better was high dose azithromycin and the biofilm protocol.

> > > Â

> > > SUsan

[Guest guest]

Agree with and . I've spoken to many docs over the past 8 yrs and is the most impressive and thorough I've met. To: mb12 valtrex Sent: Fri, January 28, 2011 7:48:41 PMSubject: Re: Newbie/VERY SICK CHILD

So so sorry -- such bad typing on the iPhone.

"I will second the post below, 's post

will be able to look at the whole child, 360." You can send all of your paperwork to review and talk on the phone before he meets her or after -- Sending good thoughts your way, you've got your hands full.

> > >

> > > Rages for us were due to PANDAS.....getting worse and worse over the years. in NJ was able to help us . www.drneubrander.com. He got some relief w/ high dose steroids and augmentin but what worked much better was high dose azithromycin and the biofilm protocol.

> > > Â

> > > SUsan

[Guest guest]

yeah. he sounds great so far.

Agree with and . I've spoken to many docs over the past 8 yrs and is the most impressive and thorough I've met. To: mb12 valtrex Sent: Fri, January 28, 2011 7:48:41 PMSubject: Re: Newbie/VERY SICK CHILD

So so sorry -- such bad typing on the iPhone.

"I will second the post below, 's post

will be able to look at the whole child, 360." You can send all of your paperwork to review and talk on the phone before he meets her or after -- Sending good thoughts your way, you've got your hands full.

> > >

> > > Rages for us were due to PANDAS.....getting worse and worse over the years. in NJ was able to help us . www.drneubrander.com. He got some relief w/ high dose steroids and augmentin but what worked much better was high dose azithromycin and the biofilm protocol.

> > > Â

> > > SUsan

[Guest guest]

yeah. he sounds great so far.

Agree with and . I've spoken to many docs over the past 8 yrs and is the most impressive and thorough I've met. To: mb12 valtrex Sent: Fri, January 28, 2011 7:48:41 PMSubject: Re: Newbie/VERY SICK CHILD

So so sorry -- such bad typing on the iPhone.

"I will second the post below, 's post

will be able to look at the whole child, 360." You can send all of your paperwork to review and talk on the phone before he meets her or after -- Sending good thoughts your way, you've got your hands full.

> > >

> > > Rages for us were due to PANDAS.....getting worse and worse over the years. in NJ was able to help us . www.drneubrander.com. He got some relief w/ high dose steroids and augmentin but what worked much better was high dose azithromycin and the biofilm protocol.

> > > Â

> > > SUsan

[Guest guest]

yeah. he sounds great so far.

Agree with and . I've spoken to many docs over the past 8 yrs and is the most impressive and thorough I've met. To: mb12 valtrex Sent: Fri, January 28, 2011 7:48:41 PMSubject: Re: Newbie/VERY SICK CHILD

So so sorry -- such bad typing on the iPhone.

"I will second the post below, 's post

will be able to look at the whole child, 360." You can send all of your paperwork to review and talk on the phone before he meets her or after -- Sending good thoughts your way, you've got your hands full.

> > >

> > > Rages for us were due to PANDAS.....getting worse and worse over the years. in NJ was able to help us . www.drneubrander.com. He got some relief w/ high dose steroids and augmentin but what worked much better was high dose azithromycin and the biofilm protocol.

> > > Â

> > > SUsan