Re: Newbie/VERY SICK CHILD

January 28, 2011

Hi Wilma. I am not much help with this,but I wanted to tell you your

not alone.Most of my sons things are broke in some way.When he comes

to his senses for periods(when he is not taking any meds or

naturals) he is sad that he has broken so much.He is angry with all

doctors now and can see they are the ones prescribing.He is 11 and

has been to doctors constantly through out his whole

life.

Throughout his life he has been sick but doctors couldn't pinpoint

what to do.Finally 3 years ago he got the Lyme,diagnoses.I thought

here we go he can finally get well.But no he has been sick on all

the meds..I tried all different kinds of Lyme docs. The docs keep

thinking its "die off" of the infections.Well I have never heard of

die off lasting for2-3 yearsSo .I stopped it all.I was on board of

the autism Lyme yahoo group,and it had led me to this yahoo

group.Now I have tried Valtrex and have had some positives(the first

time in his life).So that idea led me to Dr.Usmans office.That was a

waste.Now as of 2 weeks ago my son goes to Dr. NIDS.My

thought are,that there is something up with his immune system so he

reacts abnormal to things. My son is now reacting to the first med

prescribed from Dr..He says stay on them.So we will see.Only

time will tell us. So far my son should be in a crazy house for

children. Please keep in touch or call (785)842-1725

MY child has so many wierd psychiatric symptoms. All

meds. and supps make her rage even more. The teeniest bit

of any med. makes her want to tear the house apart. I am

treating for PANDAS but even the meds for that make her

crazy. I am really at a loss. I have been to dozens of

doctors and had tons of tests. The last test showeed a

lyme "band 41" as abnormal. One doc says it is nothing to

look into and others say it is. i need help. she is only

11 and has rages since 2, with no help or relief. thanks

January 28, 2011

Hi Wilma. I am not much help with this,but I wanted to tell you your

not alone.Most of my sons things are broke in some way.When he comes

to his senses for periods(when he is not taking any meds or

naturals) he is sad that he has broken so much.He is angry with all

doctors now and can see they are the ones prescribing.He is 11 and

has been to doctors constantly through out his whole

life.

Throughout his life he has been sick but doctors couldn't pinpoint

what to do.Finally 3 years ago he got the Lyme,diagnoses.I thought

here we go he can finally get well.But no he has been sick on all

the meds..I tried all different kinds of Lyme docs. The docs keep

thinking its "die off" of the infections.Well I have never heard of

die off lasting for2-3 yearsSo .I stopped it all.I was on board of

the autism Lyme yahoo group,and it had led me to this yahoo

group.Now I have tried Valtrex and have had some positives(the first

time in his life).So that idea led me to Dr.Usmans office.That was a

waste.Now as of 2 weeks ago my son goes to Dr. NIDS.My

thought are,that there is something up with his immune system so he

reacts abnormal to things. My son is now reacting to the first med

prescribed from Dr..He says stay on them.So we will see.Only

time will tell us. So far my son should be in a crazy house for

children. Please keep in touch or call (785)842-1725

MY child has so many wierd psychiatric symptoms. All

meds. and supps make her rage even more. The teeniest bit

of any med. makes her want to tear the house apart. I am

treating for PANDAS but even the meds for that make her

crazy. I am really at a loss. I have been to dozens of

doctors and had tons of tests. The last test showeed a

lyme "band 41" as abnormal. One doc says it is nothing to

look into and others say it is. i need help. she is only

11 and has rages since 2, with no help or relief. thanks

January 28, 2011

Rages for us were due to PANDAS.....getting worse and worse over the years. in NJ was able to help us . www.drneubrander.com. He got some relief w/ high dose steroids and augmentin but what worked much better was high dose azithromycin and the biofilm protocol.

SUsan

Subject: Re: Newbie/VERY SICK CHILDTo: mb12 valtrex Date: Friday, January 28, 2011, 10:29 AM

Hi Wilma. I am not much help with this,but I wanted to tell you your not alone.Most of my sons things are broke in some way.When he comes to his senses for periods(when he is not taking any meds or naturals) he is sad that he has broken so much.He is angry with all doctors now and can see they are the ones prescribing.He is 11 and has been to doctors constantly through out his whole life. Throughout his life he has been sick but doctors couldn't pinpoint what to do.Finally 3 years ago he got the Lyme,diagnoses.I thought here we go he can finally get well.But no he has been sick on all the meds..I tried all different kinds of Lyme

docs. The docs keep thinking its "die off" of the infections.Well I have never heard of die off lasting for2-3 yearsSo .I stopped it all.I was on board of the autism Lyme yahoo group,and it had led me to this yahoo group.Now I have tried Valtrex and have had some positives(the first time in his life).So that idea led me to Dr.Usmans office.That was a waste.Now as of 2 weeks ago my son goes to Dr. NIDS.My thought are,that there is something up with his immune system so he reacts abnormal to things. My son is now reacting to the first med prescribed from Dr..He says stay on them.So we will see.Only time will tell us. So far my son should be in a crazy house for children. Please keep in touch or call (785)842-1725

MY child has so many wierd psychiatric symptoms. All meds. and supps make her rage even more. The teeniest bit of any med. makes her want to tear the house apart. I am treating for PANDAS but even the meds for that make her crazy. I am really at a loss. I have been to dozens of doctors and had tons of tests. The last test showeed a lyme "band 41" as abnormal. One doc says it is nothing to look into and others say it is. i need help. she is only 11 and has rages since 2, with no help or relief. thanks

January 28, 2011

Although band 41 is not a lyme specific marker, it does indicate bacteria.

Strep is a good thought. Which antibiotic (or other meds) are you using?

Caryn

>

> MY child has so many wierd psychiatric symptoms. All meds. and supps make her

rage even more. The teeniest bit of any med. makes her want to tear the house

apart. I am treating for PANDAS but even the meds for that make her crazy. I am

really at a loss. I have been to dozens of doctors and had tons of tests. The

last test showeed a lyme " band 41 " as abnormal. One doc says it is nothing to

look into and others say it is. i need help. she is only 11 and has rages since

2, with no help or relief. thanks

>

January 28, 2011

Although band 41 is not a lyme specific marker, it does indicate bacteria.

Strep is a good thought. Which antibiotic (or other meds) are you using?

Caryn

>

> MY child has so many wierd psychiatric symptoms. All meds. and supps make her

rage even more. The teeniest bit of any med. makes her want to tear the house

apart. I am treating for PANDAS but even the meds for that make her crazy. I am

really at a loss. I have been to dozens of doctors and had tons of tests. The

last test showeed a lyme " band 41 " as abnormal. One doc says it is nothing to

look into and others say it is. i need help. she is only 11 and has rages since

2, with no help or relief. thanks

>

January 28, 2011

Although band 41 is not a lyme specific marker, it does indicate bacteria.

Strep is a good thought. Which antibiotic (or other meds) are you using?

Caryn

>

> MY child has so many wierd psychiatric symptoms. All meds. and supps make her

rage even more. The teeniest bit of any med. makes her want to tear the house

apart. I am treating for PANDAS but even the meds for that make her crazy. I am

really at a loss. I have been to dozens of doctors and had tons of tests. The

last test showeed a lyme " band 41 " as abnormal. One doc says it is nothing to

look into and others say it is. i need help. she is only 11 and has rages since

2, with no help or relief. thanks

>

January 28, 2011

My sister worked with a woman who went through this with her teenage son for years. She was finally able to find a doctor who could help. we are on the east coast. If you would like, I can leave your e-mail address with my sister to pass along to this woman. I will ask her to contact you.

-Tammy

To: mb12 valtrex Sent: Thu, January 27, 2011 11:39:04 PMSubject: Newbie/VERY SICK CHILD

MY child has so many wierd psychiatric symptoms. All meds. and supps make her rage even more. The teeniest bit of any med. makes her want to tear the house apart. I am treating for PANDAS but even the meds for that make her crazy. I am really at a loss. I have been to dozens of doctors and had tons of tests. The last test showeed a lyme "band 41" as abnormal. One doc says it is nothing to look into and others say it is. i need help. she is only 11 and has rages since 2, with no help or relief. thanks

January 28, 2011

My sister worked with a woman who went through this with her teenage son for years. She was finally able to find a doctor who could help. we are on the east coast. If you would like, I can leave your e-mail address with my sister to pass along to this woman. I will ask her to contact you.

-Tammy

To: mb12 valtrex Sent: Thu, January 27, 2011 11:39:04 PMSubject: Newbie/VERY SICK CHILD

MY child has so many wierd psychiatric symptoms. All meds. and supps make her rage even more. The teeniest bit of any med. makes her want to tear the house apart. I am treating for PANDAS but even the meds for that make her crazy. I am really at a loss. I have been to dozens of doctors and had tons of tests. The last test showeed a lyme "band 41" as abnormal. One doc says it is nothing to look into and others say it is. i need help. she is only 11 and has rages since 2, with no help or relief. thanks

January 28, 2011

My sister worked with a woman who went through this with her teenage son for years. She was finally able to find a doctor who could help. we are on the east coast. If you would like, I can leave your e-mail address with my sister to pass along to this woman. I will ask her to contact you.

-Tammy

To: mb12 valtrex Sent: Thu, January 27, 2011 11:39:04 PMSubject: Newbie/VERY SICK CHILD

MY child has so many wierd psychiatric symptoms. All meds. and supps make her rage even more. The teeniest bit of any med. makes her want to tear the house apart. I am treating for PANDAS but even the meds for that make her crazy. I am really at a loss. I have been to dozens of doctors and had tons of tests. The last test showeed a lyme "band 41" as abnormal. One doc says it is nothing to look into and others say it is. i need help. she is only 11 and has rages since 2, with no help or relief. thanks

January 28, 2011

I'd send this post below. He'll be able to loo 360 at the whole child.

>

January 28, 2011

I'd send this post below. He'll be able to loo 360 at the whole child.

>

January 28, 2011

I'd send this post below. He'll be able to loo 360 at the whole child.

>

January 28, 2011

what does MP stand for?

You should seriously consider working with MP. Here is a link to his office.

http://lwtinternational.com/

I had been to several places for treatment for my aspie daughter when I found him as well, and everyone who ever helped her....it was just temporary. This man literally saved my daughter's life (sorry for the drama), but it is true, she was suicidal; had symptoms of everything you can imagine. My next option for her was institutionalization b/c I didn't know what else to do. She's been working with him approx two years now and is living on her own, working and going to school.....and the best part, she is HAPPY

He is a very knowledgeable man and has worked with a lot of well known autism doctors, although he is not a doctor himself. He really knows his stuff, and really listens to you as a mom. I cannot say enough about his compassion.

He works with something called a Zyto which he sends to you in the mail, you hook up to your computer and at the time of your appt he calls you. From his end he sends a signal through his end of the computer to yours and it sends it through the Zyto hand cradle and that is what reads what's going on in your daughter. I know this part sounds sort of off the wall, and there hasn't been a discussion about Zyto on this group in quite some time, but I LOVE that Zyto. It is amazing, it can read everything...everything, from brain activity to Lyme to stomache issues. MP was able to tell me when my daugher had a headache....I'm not kidding.

The amazing thing about working with him is he will run a scan, find out what your daughter's biggest stressors are, then plug in recommended supplements...there is just no guess work, and I just loved that part of his treatment.

If you would like to know more, please email me, but another thing you could do is just call and talk to someone there at their office. It's a family owned business and everyone there is wonderful

To: mb12 valtrex Sent: Thu, January 27, 2011 11:39:04 PMSubject: Newbie/VERY SICK CHILD MY child has so many wierd psychiatric symptoms. All meds. and supps make her rage even more. The teeniest bit of any med. makes her want to tear the house apart. I am treating for PANDAS but even the meds for that make her crazy. I am really at a loss. I have been to dozens of doctors and had tons of tests. The last test showeed a lyme "band 41" as abnormal. One doc says it is nothing to look into and others say it is. i need help. she is only 11 and has rages since 2, with no help or relief. thanks

January 28, 2011

So so sorry -- such bad typing on the iPhone.

" I will second the post below, 's post

will be able to look at the whole child, 360. " You can send

all of your paperwork to review and talk on the phone before he meets her or

after -- Sending good thoughts your way, you've got your hands full.

> > >

> > > Rages for us were due to PANDAS.....getting worse and worse over the

years. in NJ was able to help us .Â www.drneubrander.com.Â He got

some relief w/ high dose steroids and augmentin but what worked much better was

high dose azithromycin and the biofilm protocol.

> > > Â

> > > SUsan

January 29, 2011

This is similar to my girl. What I found with her was that her adrenals

and thyroid and such are out of whack. She needs many things for

digestion, a very careful diet (organic, and pretty much grain-free

because not only does wheat and oats make her worse, but most flours

do. I guess it's has to do with the structure of flours in general.)

She has responded the best to Ashwagandha. She also does well with

monolaurin, Carnivora (venus fly trap) and Mellatonin (at night only).

But, if she does not get digestive enzymes or eats off her diet, nothing

works. She also has many other types of infections, but treating for

those is a slow process since she will react badly to die-off. Turmeric

and Modifilan are also a mainstay in her treatments. Cod liver oil has

helped some. Also, when I took her recently to a chiropractor, he said

that she had a very significant problem in her neck that had been

causing brain stem pressure probably since she her birth.

Unfortunately, correcting this misalignment did not correct her

problems, but I am sure it was something that needed to be done in order

to get her to heal. If this had been corrected at birth, I think she

would have had a lot less developmental symptoms and rages.

Love and prayers,

Heidi N

MY child has so many wierd psychiatric symptoms. All meds. and supps

make her rage even more. The teeniest bit of any med. makes her want to

tear the house apart. I am treating for PANDAS but even the meds for

that make her crazy. I am really at a loss. I have been to dozens of

doctors and had tons of tests. The last test showeed a lyme " band 41 " as

abnormal. One doc says it is nothing to look into and others say it is.

i need help. she is only 11 and has rages since 2, with no help or

relief. thanks

January 29, 2011