Guest guest Posted June 8, 2008 Report Share Posted June 8, 2008 Ooops somehow the end of that email got cut off. What it said was I pay out of pocket for the least expensive of my meds and the others I've been able to obtain at no charge from the manufacturers.(for example I receive my Nexium directly from Astra Zeneca at no charge. The Caring Voice Coalition helped me to find the way to apply for these programs. There are lots of them though there are forms to fill out and hoops to jump through. A great website for this is www.needymeds.com. I think that's about it. I will be Medicare eligible in November. If I have to be hospitalized before then I know Medicaid will cover me and there is comfort in that. This is all somewhat stressful, when you're sick you shouldn't have to do all this legwork for your own care but that's just the way it is and I can't waste energy being upset about it. What I've put together will work for the next few months and then I get to do battle with Medicare... Fun! Beth Age 48 Fibrotic NSIP 06/06 Change everything. Love and Forgive Back up oxygen systems Hi list friendsMy insurance company (not medicare) is billed for a liquid o2 system with a Companion T(I think that's the name) portable. The o2 dealer also supplies (they say free of charge) a l0 liter concentrator (which I use in the house). The 02 supplier says the concentrator is for their convenience as far as scheduling and refilling. I get the liquid refilled about every 2 weeks. I also have one of those HUGE tanks in case the electricity fails (which happened for the first time yesterday for about 2 hrs).For my own peace of mind, my other "back up" (for which I am billed)is the cart that holds one E-tank. I have to use that at Pulmonary rehab to get the proper o2 flow. The o2 supplier is charging me $45 a month for cart rental plus $10 for each E-Tank I order. I have been online and find I can buy one of those carts for under $30. i feel I am getting "ripped off" by the o2 supplier on what I have to pay out of pocket. I am not expecting the ins co. to pay for this other system. Have any of you faced this? What is your solution? Appreciate your insight.Sue D, 62, fibrotic NSIP, dx. 10/07, VA Quote Link to comment Share on other sites More sharing options...
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