Guest guest Posted February 3, 2011 Report Share Posted February 3, 2011 The insurance sent a letter saying that will only cover antiviral therapy for immunosuppressed patients or with HIV. We've done a basic immune panel with an allergist and nothing showed up, perhaps b/c he was on valtrex for 6 months at that point. Anyway, I think they are probably going to blacklist us now. My son has always been stimmy and it comes and goes in waves even when on Valtrex. He has really good days and really bad ones even when we haven't added anything new. We have never been able to pinpoint it, and I suspect it is food related (we are on GFCFSF but I think he may have other sensitivities even though his food allergy test came back ok.) The things we saw Valtrex really help with was strengthening the immune system, getting rid off small red dots around the mouth, and more physical awareness of his environment. But he is still very much autistic and it doesn't seem to have made a significant improvement in that area after 9 months. He still stims and repeats sentences all the time and says things out of context and makes inappropriate noises. We started AC chelation and want to see where that will take us. But I guess right now we have to watch him closely to see if he regresses without the Valtrex or doesn't respond to natural antivirals. If that's the case we'll have to get back on it and take out a loan We'll keep you updated if we succeed! Thanks again! Shiri > > > Hi all, > > We've been on Valtrex/diflucan or Nizoral for the past 9 months. 2 days ago our new insurance began refusing to cover Valtrex. At $5 a pill 3x a day we cannot afford to pay out of pocket for it since we have been paying out of pocket for so many other interventions. So we decided to see how he does off of it. So far a little more stimmy but no regressions yet. > > > > We would like to try a natural antiviral instead and wanted to know what people have had success with. We are looking into Virastop, OLE or Lysine. My son was the kind of kid who was sick all the time last year and since starting Valtrex his immune system has really gotten much stronger and now he rarely gets sick and fights off viruses much faster. Which natural antivirals can help keep his immune system strong? We are already on Vitamin C, Zinc and Colostrum. Also, can I go off rx antifungals and switch to natural antifungals as well? > > > > Thanks so much for your input! > > > > Shiri > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2011 Report Share Posted February 3, 2011 I was able to get Medical to pay 100% for the cost of Valtrex. Get a letter drafted from your DAN/Pediatrician stating that it's absolutely necessary for this medication because your child is allergic to the blue dyes that the generics are injected with. Then have the pharmacy submit a TAR form to Medical along with the signed letter from your DAN, and they should cover it 100%. So, if you have Medical, I'd advise going that route. Best of Luck! > > > > > Hi all, > > > We've been on Valtrex/diflucan or Nizoral for the past 9 months. 2 days ago > >our new insurance began refusing to cover Valtrex. At $5 a pill 3x a day we > >cannot afford to pay out of pocket for it since we have been paying out of > >pocket for so many other interventions. So we decided to see how he does off of > >it. So far a little more stimmy but no regressions yet. > > > > > > We would like to try a natural antiviral instead and wanted to know what > >people have had success with. We are looking into Virastop, OLE or Lysine. My > >son was the kind of kid who was sick all the time last year and since starting > >Valtrex his immune system has really gotten much stronger and now he rarely gets > >sick and fights off viruses much faster. Which natural antivirals can help keep > >his immune system strong? We are already on Vitamin C, Zinc and Colostrum. Also, > >can I go off rx antifungals and switch to natural antifungals as well? > > > > > > Thanks so much for your input! > > > > > > Shiri > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2011 Report Share Posted February 3, 2011 , LDN is next on our list of things to try. But since we just started with AC chelation we want to give it a fair trial before we add to many new things at once. I want to make sure I know what is working or not. His DAN has very good experiences with LDN and also thinks we should try it once we establish if he is a responder to chelation. I love the idea of a cream as opposed to wiping of the pills and crushing them then hounding my son for a half an hour to drink his juice > > > > Subject: Insurance won't cover Valtrex, natural antivirals? > To: mb12 valtrex > Date: Thursday, February 3, 2011, 11:29 AM > > > Â > > > > Hi all, > We've been on Valtrex/diflucan or Nizoral for the past 9 months. 2 days ago our new insurance began refusing to cover Valtrex. At $5 a pill 3x a day we cannot afford to pay out of pocket for it since we have been paying out of pocket for so many other interventions. So we decided to see how he does off of it. So far a little more stimmy but no regressions yet. > > We would like to try a natural antiviral instead and wanted to know what people have had success with. We are looking into Virastop, OLE or Lysine. My son was the kind of kid who was sick all the time last year and since starting Valtrex his immune system has really gotten much stronger and now he rarely gets sick and fights off viruses much faster. Which natural antivirals can help keep his immune system strong? We are already on Vitamin C, Zinc and Colostrum. Also, can I go off rx antifungals and switch to natural antifungals as well? > > Thanks so much for your input! > > Shiri > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2011 Report Share Posted February 3, 2011 , LDN is next on our list of things to try. But since we just started with AC chelation we want to give it a fair trial before we add to many new things at once. I want to make sure I know what is working or not. His DAN has very good experiences with LDN and also thinks we should try it once we establish if he is a responder to chelation. I love the idea of a cream as opposed to wiping of the pills and crushing them then hounding my son for a half an hour to drink his juice > > > > Subject: Insurance won't cover Valtrex, natural antivirals? > To: mb12 valtrex > Date: Thursday, February 3, 2011, 11:29 AM > > > Â > > > > Hi all, > We've been on Valtrex/diflucan or Nizoral for the past 9 months. 2 days ago our new insurance began refusing to cover Valtrex. At $5 a pill 3x a day we cannot afford to pay out of pocket for it since we have been paying out of pocket for so many other interventions. So we decided to see how he does off of it. So far a little more stimmy but no regressions yet. > > We would like to try a natural antiviral instead and wanted to know what people have had success with. We are looking into Virastop, OLE or Lysine. My son was the kind of kid who was sick all the time last year and since starting Valtrex his immune system has really gotten much stronger and now he rarely gets sick and fights off viruses much faster. Which natural antivirals can help keep his immune system strong? We are already on Vitamin C, Zinc and Colostrum. Also, can I go off rx antifungals and switch to natural antifungals as well? > > Thanks so much for your input! > > Shiri > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2011 Report Share Posted February 3, 2011 , LDN is next on our list of things to try. But since we just started with AC chelation we want to give it a fair trial before we add to many new things at once. I want to make sure I know what is working or not. His DAN has very good experiences with LDN and also thinks we should try it once we establish if he is a responder to chelation. I love the idea of a cream as opposed to wiping of the pills and crushing them then hounding my son for a half an hour to drink his juice > > > > Subject: Insurance won't cover Valtrex, natural antivirals? > To: mb12 valtrex > Date: Thursday, February 3, 2011, 11:29 AM > > > Â > > > > Hi all, > We've been on Valtrex/diflucan or Nizoral for the past 9 months. 2 days ago our new insurance began refusing to cover Valtrex. At $5 a pill 3x a day we cannot afford to pay out of pocket for it since we have been paying out of pocket for so many other interventions. So we decided to see how he does off of it. So far a little more stimmy but no regressions yet. > > We would like to try a natural antiviral instead and wanted to know what people have had success with. We are looking into Virastop, OLE or Lysine. My son was the kind of kid who was sick all the time last year and since starting Valtrex his immune system has really gotten much stronger and now he rarely gets sick and fights off viruses much faster. Which natural antivirals can help keep his immune system strong? We are already on Vitamin C, Zinc and Colostrum. Also, can I go off rx antifungals and switch to natural antifungals as well? > > Thanks so much for your input! > > Shiri > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2011 Report Share Posted February 3, 2011 I don't remember my son complaining as much about the acyclovir as he did valtrex but I honestly don't know for sure. Cheryl ~http://www.gryffins-tail.blogspot.com~~@Gryffins_Tail~ Cheryl, Thanks for the tip, I'm going to try the ice cream trick if the acyclovir goes through, especially since its dosed at 4-5x a day. Do you know if that tastes bad as well? > > > > > > > > > From: Shiri <shiriw@> > > > Subject: Insurance won't cover Valtrex, natural antivirals? > > > To: mb12 valtrex > > > Date: Thursday, February 3, 2011, 11:29 AM > > > > > > > > > Â > > > > > > > > > > > > Hi all, > > > We've been on Valtrex/diflucan or Nizoral for the past 9 months. 2 days ago our new insurance began refusing to cover Valtrex. At $5 a pill 3x a day we cannot afford to pay out of pocket for it since we have been paying out of pocket for so many other interventions. So we decided to see how he does off of it. So far a little more stimmy but no regressions yet. > > > > > > We would like to try a natural antiviral instead and wanted to know what people have had success with. We are looking into Virastop, OLE or Lysine. My son was the kind of kid who was sick all the time last year and since starting Valtrex his immune system has really gotten much stronger and now he rarely gets sick and fights off viruses much faster. Which natural antivirals can help keep his immune system strong? We are already on Vitamin C, Zinc and Colostrum. Also, can I go off rx antifungals and switch to natural antifungals as well? > > > > > > Thanks so much for your input! > > > > > > Shiri > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2011 Report Share Posted February 3, 2011 I don't remember my son complaining as much about the acyclovir as he did valtrex but I honestly don't know for sure. Cheryl ~http://www.gryffins-tail.blogspot.com~~@Gryffins_Tail~ Cheryl, Thanks for the tip, I'm going to try the ice cream trick if the acyclovir goes through, especially since its dosed at 4-5x a day. Do you know if that tastes bad as well? > > > > > > > > > From: Shiri <shiriw@> > > > Subject: Insurance won't cover Valtrex, natural antivirals? > > > To: mb12 valtrex > > > Date: Thursday, February 3, 2011, 11:29 AM > > > > > > > > > Â > > > > > > > > > > > > Hi all, > > > We've been on Valtrex/diflucan or Nizoral for the past 9 months. 2 days ago our new insurance began refusing to cover Valtrex. At $5 a pill 3x a day we cannot afford to pay out of pocket for it since we have been paying out of pocket for so many other interventions. So we decided to see how he does off of it. So far a little more stimmy but no regressions yet. > > > > > > We would like to try a natural antiviral instead and wanted to know what people have had success with. We are looking into Virastop, OLE or Lysine. My son was the kind of kid who was sick all the time last year and since starting Valtrex his immune system has really gotten much stronger and now he rarely gets sick and fights off viruses much faster. Which natural antivirals can help keep his immune system strong? We are already on Vitamin C, Zinc and Colostrum. Also, can I go off rx antifungals and switch to natural antifungals as well? > > > > > > Thanks so much for your input! > > > > > > Shiri > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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