Re: There is not an one answer for all our kids suffering with autism.

[Guest guest]

Marcia, you do all of us a great service! Please don't let a few nay Sayers run you off. I glean so much from you and the entire NIDS board. Because of you, I plan to start the NIDS protocol and help my kids. My younger is a tough nut and I had just about given up on him. I have tried chelation on both my boys, low dose AC chelation and my youngest still can't handle it. It has helped my oldest lots. He does really well. But my younger son, his body just isn't ready. I may address it at a later date but for now, virus' are the worse offender and allergies,poor immune system. But you, Bill, and have been a wealth of knowledge! You are accomplishing you goal. Don't let a few people people run you off! We need you and the hope you bring!Rhonda Masengale

,There is not a single answer for all kids with autism. If it was that easy, they all would have been better by now. Just to set the record straight I am not in cahoots with Dr. Goldberg. He did recover my son and for that I will always be grateful. But sometimes I dread going to his office because of his personality and bedside manner. I am surprised that you would attack me that way when you never even met me. The only reason I am here is to help other kids get better. I understand the anger we have cause our children are sick, I was angry too. As a matter of fact I’m still angry because there are so many out there taking advantage of our fear and desperation to help our children. Mine is recovered and in college. I don’t need to search for answers anymore. I once made a promise to God that if you make mine better, I will make them all better. I would like nothing more than to retire. I don’t need to do this anymore. And I would enjoy spending my days going out to lunch, reading books and doing what I want rather than answering posts like yours. I’m thrilled chelation helped your kiddo but are you sure that it was chelation and not something else you were doing at the same time? And are you sure of the long term effects of chelating? Dr. Goldberg (who at times I don’t even like) said there is proof on brain spects that show the damage chelating does. I may not like his antics but he did recover Stan’s son and help Cheryl’s tremendously. So maybe you should look into it. I would go to the devil himself if it would save my kid.Best,Marcia P.S. And FYI I’m only on this list and NIDS. I just recently joined the XMRV alliance group. And if anyone wants more info on NIDS, email me privately and I will forward it to you. Re: aba coverage : self funded : federally regulated ..NJ ..Help Posted by: "" shimmery315@... shimmery315@... Tue Feb 1, 2011 7:40 am (PST) I've seen that woman post on a few different sites blasting chelation. I'm pretty sure she's in cahoots w/ Dr. G. I think it's hogwash, my daughter is doing IV chelation and is doing great. It's a safe drug that has been become standard of care for heavy metal poisoning (even in kids). The government uses it in biohazard "accidents" for the people affected. The one child that died got disodium EDTA instead of calcium EDTA I believe. I almost didn't do chelation because of that ladies rants and I would have missed out. She would rather promote SSRI's... Subject: Re: aba coverage : self funded : federally regulated ..NJ ..HelpTo: lesliemom99@..., mb12 valtrex Date: Monday, 31 January, 2011, 3:50 PMPlease don’t exhaust other options before chelating. I know I’m going to be blasted by others on this list for saying that, but I can’t in good conscience watch a child possibly have negative consequences from not speaking up especially when there are so many other options to try first.. I was just told by another mom about a kid who was chelated and died as a result. This doctor’s credentials are being looked into and who knows if things were done right. But this can be dangerous. And our doctor says the damage from chelation can be seen on brain neurospects.My son is recovered and in college at 22 as a result of the NIDS protocol. Please know your son can get better with proper medical treatment and then rehabilitation. No parent should accept that their child cannot be helped. We treated with antivirals on the NIDS protocol. Maybe he has the XMRV retrovirus, and it was addressed by using the antivirals and other things we did to help his immune problem. I don’t know the answer to that question. However, is living proof that kids can get better. was diagnosed when he was four years old. A psychiatrist who was the leading authority on autism said my child would never be okay. According to this expert, was going to end up in an institution or group home. Now at 22, the only institution attends is a University where he studies mechanical engineering on a merit scholarship. excels academically and is in the Engineering Honor Society (top 10% GPA). He‘s a member of Sigma Chi Fraternity and was president of the Jewish Student Association. And he just received a NASA paid internship and scholarship. But more importantly, is a typical college student who drinks an occasional beer, goes on dates, stays out too late with friends and then sleeps through eight o’clock classes. I couldn’t be more proud!Unbelievable as it seems, this is the same child who wanted to spend all day, every day, plugging in a portable radio into each outlet in the house. Back then, I wasn’t sure if I had the strength to be more stubborn than my son. There were mornings I didn’t want to get out of bed to face another day filled with autism. The worst times were when I didn’t have a direction or a plan. I was hanging onto my sanity by my fingernails. But, at the end of the day, I was faced with a choice: let drift off forever into his own world, or drag him kicking and screaming into ours.Now it may look like we knew what we were doing back then. But we didn’t. It was trial and error to see what worked to help him. After we helped medically, it was possible for him to learn. Behavioral and educational interventions were used in conjunction with the medical treatment to catch up on everything he missed. Initially, we used Applied Behavior Analysis (ABA) for his rehabilitation and when he was ready we moved towards more natural ways of teaching. It took years to correct ’s deficits in speech and social skills. It was almost like taking a stroke victim and bringing them back. Our story is not about coping with autism, but rather fighting back and not accepting the misconceptions associated with this diagnosis. This process is definitely not for sissies or parents looking for that magic cure. If you would like more info on what we did medically, please email me privately.Hope this helps,Marcia

[Guest guest]

I am happy to hear of so many many options out there. I am lucky the gf diet with bio meds followed with OSR cheleation has seved our sanity and except for a few sensory, irrational issues, etc, we are managable. Sam is active, plays bball on a team and is a regular kid. NOT where we were. If anyone needs help or anything I can do, please email me as to what worked for us. Good to know so many options are out there. Will admit some seem out there but HEY, many fam and friends thought I was "Out there" when I chose wholistic healing in lieu of a chill pill and psycologist. Point is WE are the MOMS, and the best dr for our child! Amen

Always Call

Christie Gravatt

We are not human beings having a spiritual experience, we are spiritual beings having a human experience!

,

There is not a single answer for all kids with autism. If it was that easy, they all would have been better by now. Just to set the record straight I am not in cahoots with Dr. Goldberg. He did recover my son and for that I will always be grateful. But sometimes I dread going to his office because of his personality and bedside manner.

I am surprised that you would attack me that way when you never even met me. The only reason I am here is to help other kids get better. I understand the anger we have cause our children are sick, I was angry too. As a matter of fact I’m still angry because there are so many out there taking advantage of our fear and desperation to help our children.

Mine is recovered and in college. I don’t need to search for answers anymore. I once made a promise to God that if you make mine better, I will make them all better. I would like nothing more than to retire. I don’t need to do this anymore. And I would enjoy spending my days going out to lunch, reading books and doing what I want rather than answering posts like yours.

I’m thrilled chelation helped your kiddo but are you sure that it was chelation and not something else you were doing at the same time? And are you sure of the long term effects of chelating? Dr. Goldberg (who at times I don’t even like) said there is proof on brain spects that show the damage chelating does. I may not like his antics but he did recover Stan’s son and help Cheryl’s tremendously. So maybe you should look into it. I would go to the devil himself if it would save my kid.

Best,

Marcia

P.S. And FYI I’m only on this list and NIDS. I just recently joined the XMRV alliance group. And if anyone wants more info on NIDS, email me privately and I will forward it to you.

Re: aba coverage : self funded : federally regulated ..NJ ..Help

Posted by: "" shimmery315@... shimmery315@...

Tue Feb 1, 2011 7:40 am (PST)

I've seen that woman post on a few different sites blasting chelation. I'm pretty sure she's in cahoots w/ Dr. G. I think it's hogwash, my daughter is doing IV chelation and is doing great. It's a safe drug that has been become standard of care for heavy metal poisoning (even in kids). The government uses it in biohazard "accidents" for the people affected. The one child that died got disodium EDTA instead of calcium EDTA I believe. I almost didn't do chelation because of that ladies rants and I would have missed out. She would rather promote SSRI's...

Subject: Re: aba coverage : self funded : federally regulated ..NJ ..HelpTo: lesliemom99@..., mb12 valtrex Date: Monday, 31 January, 2011, 3:50 PMPlease don’t exhaust other options before chelating. I know I’m going to be blasted by

others on this list for saying that, but I can’t in good conscience watch a child possibly have negative consequences from not speaking up especially when there are so many other options to try first.. I was just told by another mom about a kid who was chelated and died as a result. This doctor’s credentials are being looked into and who knows if things were done right. But this can be dangerous. And our doctor says the damage from chelation can be seen on brain neurospects.My son is recovered and in college at 22 as a result of the NIDS protocol. Please know your son can get better with proper medical treatment and then rehabilitation. No parent should accept that their child cannot be helped. We treated with antivirals on the NIDS protocol. Maybe he has the XMRV retrovirus, and it was addressed by using the antivirals and other things we did to help his immune problem. I don’t know the answer to that question. However, is

living proof that kids can get better. was diagnosed when he was four years old. A psychiatrist who was the leading authority on autism said my child would never be okay. According to this expert, was going to end up in an institution or group home. Now at 22, the only institution attends is a University where he studies mechanical engineering on a merit scholarship. excels academically and is in the Engineering Honor Society (top 10% GPA). He‘s a member of Sigma Chi Fraternity and was president of the Jewish Student Association. And he just received a NASA paid internship and scholarship. But more importantly, is a typical college student who drinks an occasional beer, goes on dates, stays out too late with friends and then sleeps through eight o’clock classes. I couldn’t be more proud!Unbelievable as it seems, this is the same child who wanted to spend all day, every day, plugging in a portable radio into

each outlet in the house. Back then, I wasn’t sure if I had the strength to be more stubborn than my son. There were mornings I didn’t want to get out of bed to face another day filled with autism. The worst times were when I didn’t have a direction or a plan. I was hanging onto my sanity by my fingernails. But, at the end of the day, I was faced with a choice: let drift off forever into his own world, or drag him kicking and screaming into ours.Now it may look like we knew what we were doing back then. But we didn’t. It was trial and error to see what worked to help him. After we helped medically, it was possible for him to learn. Behavioral and educational interventions were used in conjunction with the medical treatment to catch up on everything he missed. Initially, we used Applied Behavior Analysis (ABA) for his rehabilitation and when he was ready we moved towards more natural ways of teaching. It took years to

correct ’s deficits in speech and social skills. It was almost like taking a stroke victim and bringing them back. Our story is not about coping with autism, but rather fighting back and not accepting the misconceptions associated with this diagnosis. This process is definitely not for sissies or parents looking for that magic cure. If you would like more info on what we did medically, please email me privately.Hope this helps,Marcia

[Guest guest]

I am happy to hear of so many many options out there. I am lucky the gf diet with bio meds followed with OSR cheleation has seved our sanity and except for a few sensory, irrational issues, etc, we are managable. Sam is active, plays bball on a team and is a regular kid. NOT where we were. If anyone needs help or anything I can do, please email me as to what worked for us. Good to know so many options are out there. Will admit some seem out there but HEY, many fam and friends thought I was "Out there" when I chose wholistic healing in lieu of a chill pill and psycologist. Point is WE are the MOMS, and the best dr for our child! Amen

Always Call

Christie Gravatt

We are not human beings having a spiritual experience, we are spiritual beings having a human experience!

,

There is not a single answer for all kids with autism. If it was that easy, they all would have been better by now. Just to set the record straight I am not in cahoots with Dr. Goldberg. He did recover my son and for that I will always be grateful. But sometimes I dread going to his office because of his personality and bedside manner.

I am surprised that you would attack me that way when you never even met me. The only reason I am here is to help other kids get better. I understand the anger we have cause our children are sick, I was angry too. As a matter of fact I’m still angry because there are so many out there taking advantage of our fear and desperation to help our children.

Mine is recovered and in college. I don’t need to search for answers anymore. I once made a promise to God that if you make mine better, I will make them all better. I would like nothing more than to retire. I don’t need to do this anymore. And I would enjoy spending my days going out to lunch, reading books and doing what I want rather than answering posts like yours.

I’m thrilled chelation helped your kiddo but are you sure that it was chelation and not something else you were doing at the same time? And are you sure of the long term effects of chelating? Dr. Goldberg (who at times I don’t even like) said there is proof on brain spects that show the damage chelating does. I may not like his antics but he did recover Stan’s son and help Cheryl’s tremendously. So maybe you should look into it. I would go to the devil himself if it would save my kid.

Best,

Marcia

P.S. And FYI I’m only on this list and NIDS. I just recently joined the XMRV alliance group. And if anyone wants more info on NIDS, email me privately and I will forward it to you.

Re: aba coverage : self funded : federally regulated ..NJ ..Help

Posted by: "" shimmery315@... shimmery315@...

Tue Feb 1, 2011 7:40 am (PST)

I've seen that woman post on a few different sites blasting chelation. I'm pretty sure she's in cahoots w/ Dr. G. I think it's hogwash, my daughter is doing IV chelation and is doing great. It's a safe drug that has been become standard of care for heavy metal poisoning (even in kids). The government uses it in biohazard "accidents" for the people affected. The one child that died got disodium EDTA instead of calcium EDTA I believe. I almost didn't do chelation because of that ladies rants and I would have missed out. She would rather promote SSRI's...

Subject: Re: aba coverage : self funded : federally regulated ..NJ ..HelpTo: lesliemom99@..., mb12 valtrex Date: Monday, 31 January, 2011, 3:50 PMPlease don’t exhaust other options before chelating. I know I’m going to be blasted by

others on this list for saying that, but I can’t in good conscience watch a child possibly have negative consequences from not speaking up especially when there are so many other options to try first.. I was just told by another mom about a kid who was chelated and died as a result. This doctor’s credentials are being looked into and who knows if things were done right. But this can be dangerous. And our doctor says the damage from chelation can be seen on brain neurospects.My son is recovered and in college at 22 as a result of the NIDS protocol. Please know your son can get better with proper medical treatment and then rehabilitation. No parent should accept that their child cannot be helped. We treated with antivirals on the NIDS protocol. Maybe he has the XMRV retrovirus, and it was addressed by using the antivirals and other things we did to help his immune problem. I don’t know the answer to that question. However, is

living proof that kids can get better. was diagnosed when he was four years old. A psychiatrist who was the leading authority on autism said my child would never be okay. According to this expert, was going to end up in an institution or group home. Now at 22, the only institution attends is a University where he studies mechanical engineering on a merit scholarship. excels academically and is in the Engineering Honor Society (top 10% GPA). He‘s a member of Sigma Chi Fraternity and was president of the Jewish Student Association. And he just received a NASA paid internship and scholarship. But more importantly, is a typical college student who drinks an occasional beer, goes on dates, stays out too late with friends and then sleeps through eight o’clock classes. I couldn’t be more proud!Unbelievable as it seems, this is the same child who wanted to spend all day, every day, plugging in a portable radio into

each outlet in the house. Back then, I wasn’t sure if I had the strength to be more stubborn than my son. There were mornings I didn’t want to get out of bed to face another day filled with autism. The worst times were when I didn’t have a direction or a plan. I was hanging onto my sanity by my fingernails. But, at the end of the day, I was faced with a choice: let drift off forever into his own world, or drag him kicking and screaming into ours.Now it may look like we knew what we were doing back then. But we didn’t. It was trial and error to see what worked to help him. After we helped medically, it was possible for him to learn. Behavioral and educational interventions were used in conjunction with the medical treatment to catch up on everything he missed. Initially, we used Applied Behavior Analysis (ABA) for his rehabilitation and when he was ready we moved towards more natural ways of teaching. It took years to

correct ’s deficits in speech and social skills. It was almost like taking a stroke victim and bringing them back. Our story is not about coping with autism, but rather fighting back and not accepting the misconceptions associated with this diagnosis. This process is definitely not for sissies or parents looking for that magic cure. If you would like more info on what we did medically, please email me privately.Hope this helps,Marcia

[Guest guest]

I am happy to hear of so many many options out there. I am lucky the gf diet with bio meds followed with OSR cheleation has seved our sanity and except for a few sensory, irrational issues, etc, we are managable. Sam is active, plays bball on a team and is a regular kid. NOT where we were. If anyone needs help or anything I can do, please email me as to what worked for us. Good to know so many options are out there. Will admit some seem out there but HEY, many fam and friends thought I was "Out there" when I chose wholistic healing in lieu of a chill pill and psycologist. Point is WE are the MOMS, and the best dr for our child! Amen

Always Call

Christie Gravatt

We are not human beings having a spiritual experience, we are spiritual beings having a human experience!

,

There is not a single answer for all kids with autism. If it was that easy, they all would have been better by now. Just to set the record straight I am not in cahoots with Dr. Goldberg. He did recover my son and for that I will always be grateful. But sometimes I dread going to his office because of his personality and bedside manner.

I am surprised that you would attack me that way when you never even met me. The only reason I am here is to help other kids get better. I understand the anger we have cause our children are sick, I was angry too. As a matter of fact I’m still angry because there are so many out there taking advantage of our fear and desperation to help our children.

Mine is recovered and in college. I don’t need to search for answers anymore. I once made a promise to God that if you make mine better, I will make them all better. I would like nothing more than to retire. I don’t need to do this anymore. And I would enjoy spending my days going out to lunch, reading books and doing what I want rather than answering posts like yours.

I’m thrilled chelation helped your kiddo but are you sure that it was chelation and not something else you were doing at the same time? And are you sure of the long term effects of chelating? Dr. Goldberg (who at times I don’t even like) said there is proof on brain spects that show the damage chelating does. I may not like his antics but he did recover Stan’s son and help Cheryl’s tremendously. So maybe you should look into it. I would go to the devil himself if it would save my kid.

Best,

Marcia

P.S. And FYI I’m only on this list and NIDS. I just recently joined the XMRV alliance group. And if anyone wants more info on NIDS, email me privately and I will forward it to you.

Re: aba coverage : self funded : federally regulated ..NJ ..Help

Posted by: "" shimmery315@... shimmery315@...

Tue Feb 1, 2011 7:40 am (PST)

I've seen that woman post on a few different sites blasting chelation. I'm pretty sure she's in cahoots w/ Dr. G. I think it's hogwash, my daughter is doing IV chelation and is doing great. It's a safe drug that has been become standard of care for heavy metal poisoning (even in kids). The government uses it in biohazard "accidents" for the people affected. The one child that died got disodium EDTA instead of calcium EDTA I believe. I almost didn't do chelation because of that ladies rants and I would have missed out. She would rather promote SSRI's...

Subject: Re: aba coverage : self funded : federally regulated ..NJ ..HelpTo: lesliemom99@..., mb12 valtrex Date: Monday, 31 January, 2011, 3:50 PMPlease don’t exhaust other options before chelating. I know I’m going to be blasted by

others on this list for saying that, but I can’t in good conscience watch a child possibly have negative consequences from not speaking up especially when there are so many other options to try first.. I was just told by another mom about a kid who was chelated and died as a result. This doctor’s credentials are being looked into and who knows if things were done right. But this can be dangerous. And our doctor says the damage from chelation can be seen on brain neurospects.My son is recovered and in college at 22 as a result of the NIDS protocol. Please know your son can get better with proper medical treatment and then rehabilitation. No parent should accept that their child cannot be helped. We treated with antivirals on the NIDS protocol. Maybe he has the XMRV retrovirus, and it was addressed by using the antivirals and other things we did to help his immune problem. I don’t know the answer to that question. However, is

living proof that kids can get better. was diagnosed when he was four years old. A psychiatrist who was the leading authority on autism said my child would never be okay. According to this expert, was going to end up in an institution or group home. Now at 22, the only institution attends is a University where he studies mechanical engineering on a merit scholarship. excels academically and is in the Engineering Honor Society (top 10% GPA). He‘s a member of Sigma Chi Fraternity and was president of the Jewish Student Association. And he just received a NASA paid internship and scholarship. But more importantly, is a typical college student who drinks an occasional beer, goes on dates, stays out too late with friends and then sleeps through eight o’clock classes. I couldn’t be more proud!Unbelievable as it seems, this is the same child who wanted to spend all day, every day, plugging in a portable radio into

each outlet in the house. Back then, I wasn’t sure if I had the strength to be more stubborn than my son. There were mornings I didn’t want to get out of bed to face another day filled with autism. The worst times were when I didn’t have a direction or a plan. I was hanging onto my sanity by my fingernails. But, at the end of the day, I was faced with a choice: let drift off forever into his own world, or drag him kicking and screaming into ours.Now it may look like we knew what we were doing back then. But we didn’t. It was trial and error to see what worked to help him. After we helped medically, it was possible for him to learn. Behavioral and educational interventions were used in conjunction with the medical treatment to catch up on everything he missed. Initially, we used Applied Behavior Analysis (ABA) for his rehabilitation and when he was ready we moved towards more natural ways of teaching. It took years to

correct ’s deficits in speech and social skills. It was almost like taking a stroke victim and bringing them back. Our story is not about coping with autism, but rather fighting back and not accepting the misconceptions associated with this diagnosis. This process is definitely not for sissies or parents looking for that magic cure. If you would like more info on what we did medically, please email me privately.Hope this helps,Marcia

[Guest guest]

Worms grow very easily in undigested food. So it will probably not go away for good until we are able to fix those issues.To: mb12 valtrex Sent: Thu, February 3, 2011 11:45:02 AMSubject: Re: Re: There is not an one

answer for all our kids suffering with autism.

I think the relationship between parasites and our kids is that our kids have atypical immune systems that don't work properly and when something that shouldn't be there enters the body, the immune system doesn't act appropriately and instead, chooses to react to foods and other benign things -- almost wastes all kinds of resources for the sake of reacting to foods but does nothing when worms enter the system...it's that the immune system almost sees them as "friendlies" and doesn't (or cannot) fight them off.

If we are able to fix their immune systems, then the worms, metals, metabolism, viral issues, bacteria, yeast, etc. would be resolved.

My son has been on antibiotics for 3 years -- not a popular decision, but it has been great for him.

Now that we discoverd the worms in my son, I am starting to wonder if all of our kids have worms and that bacteria, viruses and metals are all inside the worms. Each kid is different based on what pathogens they have had in life that is still inside the worms. Every time we kill the worms.

So maybe my kid does well on antibiotics, yours on chelation and hers on anti-virals. BUT, maybe all of our kids would get better if we just killed the worms.

I believe this is somewhat Hulda e's theory, but it is starting to make more sense to me. For years, I was sure my son did not have worms, then finally I found them.

Caryn

>

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> ,

> There is not a single answer for all kids with autism. If it was that easy, they all would have been better by now. Just to set the record straight I am not in cahoots with Dr. Goldberg. He did recover my son and for that I will always be grateful. But sometimes I dread going to his office because of his personality and bedside manner.Â

> Â

> I am surprised that you would attack me that way when you never even met me. The only reason I am here is to help other kids get better. I understand the anger we have cause our children are sick, I was angry too. As a matter of fact I’m still angry because there are so many out there taking advantage of our fear and desperation to help our children.

> Â

> Mine is recovered and in college.  I don’t need to search for answers anymore.  I once made a promise to God that if you make mine better, I will make them all better. I would like nothing more than to retire. I don’t need to do this anymore. And I would enjoy spending my days going out to lunch, reading books and doing what I want rather than answering posts like yours.Â

> Â

> I’m thrilled chelation helped your kiddo but are you sure that it was chelation and not something else you were doing at the same time? And are you sure of the long term effects of chelating? Dr. Goldberg (who at times I don’t even like) said there is proof on brain spects that show the damage chelating does. I may not like his antics but he did recover Stan’s son and help Cheryl’s tremendously. So maybe you should look into it. I would go to the devil himself if it would save my kid.

> Best,

> Marcia

> Â

> P.S. And FYI I’m only on this list and NIDS.  I just recently joined the XMRV alliance group. And if anyone wants more info on NIDS, email me privately and I will forward it to you.

> Â

> Re: aba coverage : self funded : federally regulated ..NJ ..Help

> Posted by: "" shimmery315@... Â shimmery315@...

> Tue Feb 1, 2011 7:40 am (PST)

>

>

> I've seen that woman post on a few different sites blasting chelation. I'm pretty sure she's in cahoots w/ Dr. G. I think it's hogwash, my daughter is doing IV chelation and is doing great. It's a safe drug that has been become standard of care for heavy metal poisoning (even in kids). The government uses it in biohazard "accidents" for the people affected. The one child that died got disodium EDTA instead of calcium EDTA I believe.

>

> I almost didn't do chelation because of that ladies rants and I would have missed out. She would rather promote SSRI's...

> Â

>

>

> Subject: Re: aba coverage : self funded : federally regulated ..NJ ..Help

> To: lesliemom99@..., mb12 valtrex

> Date: Monday, 31 January, 2011, 3:50 PM

>

> Please don’t exhaust other options before chelating. I know I’m going to be blasted by others on this list for saying that, but I can’t in good conscience watch a child possibly have negative consequences from not speaking up especially when there are so many other options to try first.. I was just told by another mom about a kid who was chelated and died as a result. This doctor’s credentials are being looked into and who knows if things were done right. But this can be dangerous. And our doctor says the damage from chelation can be seen on brain neurospects.

>

> My son is recovered and in college at 22 as a result of the NIDS protocol. Please know your son can get better with proper medical treatment and then rehabilitation. No parent should accept that their child cannot be helped. We treated with antivirals on the NIDS protocol. Maybe he has the XMRV retrovirus, and it was addressed by using the antivirals and other things we did to help his immune problem. I don’t know the answer to that question. However, is living proof that kids can get better.

>

> was diagnosed when he was four years old. A psychiatrist who was the leading authority on autism said my child would never be okay. According to this expert, was going to end up in an institution or group home. Now at 22, the only institution attends is a University where he studies mechanical engineering on a merit scholarship. excels academically and is in the Engineering Honor Society (top 10% GPA). He‘s a member of Sigma Chi Fraternity and was president of the Jewish Student Association. And he just received a NASA paid internship and scholarship. But more importantly, is a typical college student who drinks an occasional beer, goes on dates, stays out too late with friends and then sleeps through eight o’clock classes. I couldn’t be more proud!

>

> Unbelievable as it seems, this is the same child who wanted to spend all day, every day, plugging in a portable radio into each outlet in the house. Back then, I wasn’t sure if I had the strength to be more stubborn than my son. There were mornings I didn’t want to get out of bed to face another day filled with autism. The worst times were when I didn’t have a direction or a plan. I was hanging onto my sanity by my fingernails. But, at the end of the day, I was faced with a choice: let drift off forever into his own world, or drag him kicking and screaming into ours.

>

> Now it may look like we knew what we were doing back then. But we didn’t. It was trial and error to see what worked to help him. After we helped medically, it was possible for him to learn. Behavioral and educational interventions were used in conjunction with the medical treatment to catch up on everything he missed. Initially, we used Applied Behavior Analysis (ABA) for his rehabilitation and when he was ready we moved towards more natural ways of teaching. It took years to correct ’s deficits in speech and social skills. It was almost like taking a stroke victim and bringing them back. Our story is not about coping with autism, but rather fighting back and not accepting the misconceptions associated with this diagnosis. This process is definitely not for sissies or parents looking for that magic cure. If you would like more info on what we did medically, please email me privately.

>

> Hope this helps,

>

> Marcia

> Â

>

[Guest guest]

lol! And I would be remiss if I didn't add that I think they are suffer from a

severe inability to absorb nutrients. (Because my stance is that *all disease

and disorder* stems from a lack of adequate nutrition - as the short answer.)

that's why everyone should juice - daily!!!!

Toni, you forgot to add we should all try low oxalates (worked for me!!)

If you ask Sally M. Pacholok, R.N. she would say it's a B12 deficiency. (That's

why she wrote the book, " Could it be B12? An Epidemic of a Misdiagnosis.)

and while we all approach it differently and from different angles, we are all

trying to get the same place...

> > >

> > > My son has been on antibiotics for 3 years -- not a popular decision, but

> > it has been great for him.

> > >

> > > Now that we discoverd the worms in my son, I am starting to wonder if all

> > of our kids have worms and that bacteria, viruses and metals are all inside

> > the worms. Each kid is different based on what pathogens they have had in

> > life that is still inside the worms. Every time we kill the worms.

> > >

> > > So maybe my kid does well on antibiotics, yours on chelation and hers on

> > anti-virals. BUT, maybe all of our kids would get better if we just killed

> > the worms.

> > >

> > > I believe this is somewhat Hulda e's theory, but it is starting to

> > make more sense to me. For years, I was sure my son did not have worms, then

> > finally I found them.

> > >

> > > Caryn

> > >

> >

> >

> >

> >

>

>

>

> --

> Toni

>

> ------

> Mind like a steel trap...

> Rusty and illegal in 37 states.

>

[Guest guest]

If you are already doing biomed and have a good protocol in place it probably

includes most the items on the list. So for example if you are using 500mg mag

based on a doc or Dans recommendation (or your own experience as that is what

is needed) then you would continue to use 500mg.

Dan recommendations wouldnt change at first, just add the iodine and if there is

an item not being given add it.

For those that havent started biomed or dont have a dan doc's recommendations

starting at the basic Iodine protocol level is a place to start. It might be

enough. Depends on damage. It may not be comprehensive enough to heal the damage

most autisic children have very quickly. D3, Enzymes, Tyrosine, Probiotics, DMG,

Vit A, MB12, B6, Folinic, one or all might also be needed or speed things along

or if there is inadequate nutrition (as in they only eat chicken nuggets!) .

The iodine protocol is adult dosage(with moderate to severe damage). I tend to

think of child's dosage at 1/4 for kids up to puberty, 1/8th for babies and

toddlers. Not very scientific, just my own opinion keeping it simple. There is

no set right amount for every person at the beginning. Starting less is ok, too.

I tend to think a very healthy adult with little damage or symptoms wouldnt need

full protocol to achieve sufficiency. Someone with advanced cancer might need

100mg of Iodine. Or even 200mg. It's all variable.

Autism protocols (which are typically comprehensive) are geared toward what has

been found to help autistic kids so combining the 2 makes sense.

---------

The Iodine Protocol

50 mg Iodine

Vitamin C - 3,000 mg per day

300-600 mg magnesium oxide

200 mcg selenium

500 mg niacin (B3) twice a day (NOT niacinamide)

100 mg Vitamin B2 three times a day.

A comprehensive vitamin and nutrition program.

--------

The last one is the most important. Comprehensive nutrition program.

Note: I dont get the mag oxide recommendation, but that might be cause i know

its not very effective and it makes my stomach hurt whereas mag citrate or mag

malate sooths, but thats what it says.

Some think mixing Vit C and Iodine should be avoided. The C changes the iodine

to iodide and so the body has to work to change it back. And with our kids we

know they have issues with bioavailability so avoiding that step is probably

good.

If detoxing badly, in addition to the salt, Magnesium Chloride transdermally

works for many. Easiest way to give the body enough mag with no digestive

irritation, too. Very calming and soothing.

Keep in mind that when iodine sufficiency is obtained(believed to be 3 to 6

months depending on iodine dosage) the need for some of these supplements can

change. The lack of Iodine has effected the availability of other minerals so

once that is fixed the body is able to utilize all others more effectively, so

less may be needed depending on

I hope somewhere in there is your answer ;-) I am rambling again. Just so hard

to explain in 10 words or less!

Cheryl

>

>

> Cheryl,

>

> Thank you so much for that. I read every word. Just a quick question about

companion supps (because that's where the confusion lies for me). Like I said,

I'll be giving this to three-year-olds. You told me how to start out slow with

the iodine, but how do I know how much of the other supps to give? Also, do you

give the supps at the same time as the iodine or is it better to space them out?

And, when/if severe detox symptoms occur, do you load up on any other supps or

just the salts? My Lugols should get here tomorrow and I just want to be

prepared. Thanks again for all the great info!

>

>

> - Kirk-