RE: newly diagnosed with ipf

[Guest guest]

Hi ,

Welcome to the group. I am Joe Lamenskie=diagnosed in Jan. Of this year. First of all don't panic as there is no emergency but learn as much as you can. This group will inform you and is the greatest moral support as well as informative. The info you gather will assist you from now on. I do not get on a lot but read every day as well as my wife does too.

It is a nasty disease but with knowledge you can get by very well.

    JOE/JOANIE JOE 60 IPF1/2008

GRIFFIN, GA.

-- newly diagnosed with ipf

Help,I was diagnosed with IPF 2 days ago and am still in shock as for 6 months I'd been told this was asthma, allergies, etc. None of the inhalers I have been using seemed to present with any benefit. My mother passed away from IPF several years ago and I remember it was a horrible process for her. I could use some hand holding.

[Guest guest]

Hi ,

Welcome to the group. I am Joe Lamenskie=diagnosed in Jan. Of this year. First of all don't panic as there is no emergency but learn as much as you can. This group will inform you and is the greatest moral support as well as informative. The info you gather will assist you from now on. I do not get on a lot but read every day as well as my wife does too.

It is a nasty disease but with knowledge you can get by very well.

    JOE/JOANIE JOE 60 IPF1/2008

GRIFFIN, GA.

-- newly diagnosed with ipf

Help,I was diagnosed with IPF 2 days ago and am still in shock as for 6 months I'd been told this was asthma, allergies, etc. None of the inhalers I have been using seemed to present with any benefit. My mother passed away from IPF several years ago and I remember it was a horrible process for her. I could use some hand holding.

[Guest guest]

Welcome Kieth, You have certainly found the right group for mental and informational support. They are all going to want to know where you are from, other diseases etc. I have been dx sinc 2006 with IPF after being treated for asthma also. there will be recommendations from the group on Pulmologists, teaching hospitals. Anyway hang in, death is not imminent with IPF. Life changes possibly. Be talking to you along the way.

Steve 60 from WA IPF 2006 Parkinsons 2008

Alzheimers 2008

Reply-To: Breathe-Support To: Breathe-Support Subject: newly diagnosed with ipfDate: Sun, 22 Jun 2008 09:43:05 -0700 (PDT)

Help,I was diagnosed with IPF 2 days ago and am still in shock as for 6 months I'd been told this was asthma, allergies, etc. None of the inhalers I have been using seemed to present with any benefit. My mother passed away from IPF several years ago and I remember it was a horrible process for her. I could use some hand holding.

[Guest guest]

Welcome Kieth, You have certainly found the right group for mental and informational support. They are all going to want to know where you are from, other diseases etc. I have been dx sinc 2006 with IPF after being treated for asthma also. there will be recommendations from the group on Pulmologists, teaching hospitals. Anyway hang in, death is not imminent with IPF. Life changes possibly. Be talking to you along the way.

Steve 60 from WA IPF 2006 Parkinsons 2008

Alzheimers 2008

Reply-To: Breathe-Support To: Breathe-Support Subject: newly diagnosed with ipfDate: Sun, 22 Jun 2008 09:43:05 -0700 (PDT)

Help,I was diagnosed with IPF 2 days ago and am still in shock as for 6 months I'd been told this was asthma, allergies, etc. None of the inhalers I have been using seemed to present with any benefit. My mother passed away from IPF several years ago and I remember it was a horrible process for her. I could use some hand holding.

[Guest guest]

Hi and all newbies,

Welcome to our little safe place on the net. Sorry you have to be

here. Getting this diagnosis and absorbing the information is a

process, but educate yourself as best as you can about this disease.

This is a great place to get REAL answers from people who are living

this disease on a daily basis. They are a fantastic group of people.

When I was diagnosed over five years ago, I think I thought the same

thing as a lot of us think, " I'm going to die tomorrow " Well, it

didn't happen. In fact, I realize that pulmonary fibrosis is a

disease you can live with. Yes, you aren't able to do everything

you used to, but you are still able to do things. I like to tell

people to focus on the positives on what you can do, not what you

can't. I also realized that I have many blessings to be thankful for

as we all do. Sometimes they get lost in the shuffle....

I'm the Executive Director of the Pulmonary Fibrosis Foundation and

I don't post as much as I used to. I'm also the owner of this

board. But I would recommend you find a local support group. I

don't know where you live, but here's the listing from our website:

http://www.pulmonaryfibrosis.org/groups.htm. I've been involved with

a face to face group since diagnosis and it's been a tremendous

help. When you see other folks dealing with the disease, you realize

you are not alone. I think that's why this board is so helpful. We

get it. We understand.

If anyone is interested in receiving our patient handbook (which is

great, by the way) and our quarterly newsletters, just send your

mailing address to ls_pulmonaryfibrosis@....

Leanne uip 1/03 Illinois

>

> From: keith andersen <drkja2003yahoo (DOT) com>

> Subject: newly diagnosed with ipf

> To: Breathe-Support@ yahoogroups. com

> Date: Sunday, June 22, 2008, 4:43 PM

>

>

>

>

>

>

>

>

> Help,

>

> I was diagnosed with IPF 2 days ago and am still in shock as for 6

months I'd been told this was asthma, allergies, etc.  None of the

inhalers I  have been using seemed to present with any benefit.  My

mother passed away from IPF several years ago and I remember it was

a horrible process for her.  I could use some hand holding.

>

>

>

[Guest guest]

Hi and all newbies,

Welcome to our little safe place on the net. Sorry you have to be

here. Getting this diagnosis and absorbing the information is a

process, but educate yourself as best as you can about this disease.

This is a great place to get REAL answers from people who are living

this disease on a daily basis. They are a fantastic group of people.

When I was diagnosed over five years ago, I think I thought the same

thing as a lot of us think, " I'm going to die tomorrow " Well, it

didn't happen. In fact, I realize that pulmonary fibrosis is a

disease you can live with. Yes, you aren't able to do everything

you used to, but you are still able to do things. I like to tell

people to focus on the positives on what you can do, not what you

can't. I also realized that I have many blessings to be thankful for

as we all do. Sometimes they get lost in the shuffle....

I'm the Executive Director of the Pulmonary Fibrosis Foundation and

I don't post as much as I used to. I'm also the owner of this

board. But I would recommend you find a local support group. I

don't know where you live, but here's the listing from our website:

http://www.pulmonaryfibrosis.org/groups.htm. I've been involved with

a face to face group since diagnosis and it's been a tremendous

help. When you see other folks dealing with the disease, you realize

you are not alone. I think that's why this board is so helpful. We

get it. We understand.

If anyone is interested in receiving our patient handbook (which is

great, by the way) and our quarterly newsletters, just send your

mailing address to ls_pulmonaryfibrosis@....

Leanne uip 1/03 Illinois

>

> From: keith andersen <drkja2003yahoo (DOT) com>

> Subject: newly diagnosed with ipf

> To: Breathe-Support@ yahoogroups. com

> Date: Sunday, June 22, 2008, 4:43 PM

>

>

>

>

>

>

>

>

> Help,

>

> I was diagnosed with IPF 2 days ago and am still in shock as for 6

months I'd been told this was asthma, allergies, etc.  None of the

inhalers I  have been using seemed to present with any benefit.  My

mother passed away from IPF several years ago and I remember it was

a horrible process for her.  I could use some hand holding.

>

>

>

[Guest guest]

Hi and all newbies,

Welcome to our little safe place on the net. Sorry you have to be

here. Getting this diagnosis and absorbing the information is a

process, but educate yourself as best as you can about this disease.

This is a great place to get REAL answers from people who are living

this disease on a daily basis. They are a fantastic group of people.

When I was diagnosed over five years ago, I think I thought the same

thing as a lot of us think, " I'm going to die tomorrow " Well, it

didn't happen. In fact, I realize that pulmonary fibrosis is a

disease you can live with. Yes, you aren't able to do everything

you used to, but you are still able to do things. I like to tell

people to focus on the positives on what you can do, not what you

can't. I also realized that I have many blessings to be thankful for

as we all do. Sometimes they get lost in the shuffle....

I'm the Executive Director of the Pulmonary Fibrosis Foundation and

I don't post as much as I used to. I'm also the owner of this

board. But I would recommend you find a local support group. I

don't know where you live, but here's the listing from our website:

http://www.pulmonaryfibrosis.org/groups.htm. I've been involved with

a face to face group since diagnosis and it's been a tremendous

help. When you see other folks dealing with the disease, you realize

you are not alone. I think that's why this board is so helpful. We

get it. We understand.

If anyone is interested in receiving our patient handbook (which is

great, by the way) and our quarterly newsletters, just send your

mailing address to ls_pulmonaryfibrosis@....

Leanne uip 1/03 Illinois

>

> From: keith andersen <drkja2003yahoo (DOT) com>

> Subject: newly diagnosed with ipf

> To: Breathe-Support@ yahoogroups. com

> Date: Sunday, June 22, 2008, 4:43 PM

>

>

>

>

>

>

>

>

> Help,

>

> I was diagnosed with IPF 2 days ago and am still in shock as for 6

months I'd been told this was asthma, allergies, etc.  None of the

inhalers I  have been using seemed to present with any benefit.  My

mother passed away from IPF several years ago and I remember it was

a horrible process for her.  I could use some hand holding.

>

>

>