Guest guest Posted June 3, 2008 Report Share Posted June 3, 2008 Irene... you are so welcome. MamaSher, age 69. IPF 3-06, OR.Don't fret about tomorrow, God is already there! Sher Hi SherThanks for the lovely gift. It just came with the mailman.IrenePF 03/07 PF 09/07Crohn's Disease 03/95 Meet the new AOL.ca. Free radio, music, videos, news & entertainment – with a Canadian perspective. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2008 Report Share Posted June 3, 2008 Irene... you are so welcome. MamaSher, age 69. IPF 3-06, OR.Don't fret about tomorrow, God is already there! Sher Hi SherThanks for the lovely gift. It just came with the mailman.IrenePF 03/07 PF 09/07Crohn's Disease 03/95 Meet the new AOL.ca. Free radio, music, videos, news & entertainment – with a Canadian perspective. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2008 Report Share Posted June 3, 2008 Irene... you are so welcome. MamaSher, age 69. IPF 3-06, OR.Don't fret about tomorrow, God is already there! Sher Hi SherThanks for the lovely gift. It just came with the mailman.IrenePF 03/07 PF 09/07Crohn's Disease 03/95 Meet the new AOL.ca. Free radio, music, videos, news & entertainment – with a Canadian perspective. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2008 Report Share Posted June 11, 2008 Are you packed for your fun meeting? Love and Prayers, PeggyIPF 2004, Florida"Worry looks around, Sorry looks back, Faith looks up." Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2008 Report Share Posted June 11, 2008 Oh I had forgotten OD I will be praying things are good and you just amaze the drs . I used to pack for Vegas for the week-end in the large BOA. Silk type clothes that roll. Oh I did love playing out there. Have a great and easy day. Love and Prayers, PeggyIPF 2004, Florida"Worry looks around, Sorry looks back, Faith looks up." Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2008 Report Share Posted June 11, 2008 Oh I had forgotten OD I will be praying things are good and you just amaze the drs . I used to pack for Vegas for the week-end in the large BOA. Silk type clothes that roll. Oh I did love playing out there. Have a great and easy day. Love and Prayers, PeggyIPF 2004, Florida"Worry looks around, Sorry looks back, Faith looks up." Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2008 Report Share Posted July 2, 2008 Jack No no no no book. If I did it would be titled " How Little Any of Us Know about PF " . The death number I last saw was about double the one you quoted. Someone as knowledgeable about any of this disease stated to me sometime back that he would trust fewer than 100 Pulmonologists in this country with PF. I know I wouldn't personally trust my diagnosis unless confirmed by a major teaching hospital, preferably one of the 13 IPF Centers of Excellence. Yes, I'm sure many have died without ever being diagnosed. However, I'm seeing some of the opposite now too in seeing people diagnosed by doctors with questionable knowledge of the disease and not really having it. Jack-I don't know when or how your diagnosis was made but if I felt that " my pulmo belongs to the ignorants " I would absolutely see someone else. A trip to a major teaching hospital or center for IPF is only a one day visit generally to have so much more information than you have currently. How are your oxygen saturation levels? Are they consistent with the diagnosis? I advise everyone that if you aren't confident in your pulmonologist or comfortable with your diagnosis get more help. Please. > > > > > > > > > > Well, I had the bloodwork and the GSE done and the last came > back > > > > > unsatisfactory. ........the results are going in to Shands > Evaluation > > > > > Team this morning and my doctor told me to expect further > testing. > > > > > > > > > > > > > > > Did anyone here ever have an Upper Gi? can you tell me what it > is > > > > like, > > > > > please.. The Gastric Stomach Emptying Study was strange. Actually > > > > > eating the scrambled eggs was the worst...they were terrible!!! > and > > > it > > > > > turns out that I only have 29% of the 60% expected for someone > my > > > > age.. > > > > > in emptying speed over 60 minutes (that is how long it is > supposed > > > to > > > > > take)....Iam supposed tp empty my stomach much faster than I am, > > > > > evidently. I was put on reglan years ago for problems and have > > > > > absolutely no symptoms or problems since, but I am wondering > about > > > my > > > > > next step - a friend told me that the Upper Gi would probably be > it. > > > > > > > > > > Thanks, > > > > > Kathy fl > > > > > pf.4/07 > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.