Hello again

[Guest guest]

Lonna,

I haven't heard of Via Voice, but why not give it a try? They say it takes

a while to train the program to your voice. Congrats on your new litter.

I'm glad the new mother is being a

good mom. I don't envy the work with 10 pups!!!

a

----- Original Message -----

From: Lonna Fisher <lonnagrd@...>

Arthritis list < egroups>

Sent: Wednesday, June 07, 2000 1:42 AM

Subject: [ ] Hello again

> Hi everyone,

> I have been reading with interest all of your posts,

> sorry I have not responded before but with a newborn litter of puppies

> (see info below), my boyfriend moving in and my RA affecting my typing

> hand, things have been busy ........ smile

>

> My RA hit at the age of 20, (I am 47 now), it started out as what I

> thought was a bad case of the " flu " , a trip to the hospital (which

> lasted 3 weeks) showed I had Rheumatic Fever as well as RA, I walked

> into the hospital with difficulty and ended up walking out on two canes

> and /or using a wheelchair, since than I have never been able to touch

> much below my knees. No more touching my own feet. A small problem when

> I look at the big picture ....................... grin

> The RA has affected my hips (very bad), one knee, one shoulder and

> fingers, ...... lately though my right ankle is acting up and my poor

> right typing hand wants to curl into a fist when I try to type, so I am

> learning to type with my left hand ............. not that I ever typed

> with more than one or two fingers at a time .............. smile

> My boyfriend has a program called Via Voice, that I could use

> ............. have any of you used or heard of that program?

> I am finding out that as I age I depend on my wheelchair more, but it

> doesn't stop me from getting out, hey and I always have my chair with me

> ................. LOL

>

> I was on Naprosyn (sp) for 16, than I was on Arthrotec (sp) for two

> years, just a few months ago I was moved to Celebrex (100mg twice a

> day), I also use extra strength tylenol.

> In addition I take vitamins - Centrum, 1000mg vitamin C, 500mg Citrical

> (sp) calcium.

>

> Now my new litter information ...................... grin

>

> Our new litter was born on June 4, 2000

>

> Sire - Sunflower's Arabian Knight OFA H/E - our sable " Boss " son

> Dam - Sunflower's Lady of the North OFA Prelim H/E - our sable

> " Cincinnati " granddaughter

>

> 10 puppies, 8 Sable coloured, some very dark - 7 females, 1 male, 2 pure

> Black females

> She is proving to be an excellent mother, this is her first litter, the

> Dad on the other hand could care less ............. smile

>

> Sorry to hear about the problems some of you are and have been having,

> my best wishes and good thoughts go out to you all.

>

> Take care,

> Lonna Fisher

> Edmonton, Alberta

> Sunflower GSD

> http://members.tripod.com/~lonnagsd/index.html

>

>

>

>

>

>

>

>

>

[Guest guest]

June,

When you were taken off MTX, what happened? Did they put you on another med?

Did you flare? A million questions here.

Jeannette

[Guest guest]

In a message dated 8/13/2002 2:01:03 AM Eastern Daylight Time, jenferh@... writes:

The neurologist examined and said that she didn't

have tort but definitely had a tight muscle that he wanted us to

stretch all day long.

I find this interesting because I have heard other members say that their child does not have tort, but they have a tight neck muscle. Essentially, congenital muscular tort is a tight neck muscle, it may be caused from inutero constraint (perhaps this could be construed as different if the muscle was not allowed to grow and was stunted?) or from laying in one position (essentially the same idea here) etc- which created a tight muscle and it needs to be stretched out. Take this seriously and do those daily stretches, this is the underlying problem that is probably causing much of the plagio, so definetly be on top of this. I will attach a link that shows stretches/hold that you can do also. Good luck!

' Mom

Stretches/ Hold

[Guest guest]

I had the same questions as you. That's why we ended up going to the

therapist. It just didn't seem to make sense. I'm glad to get to

the bottom of the whole situation.

> In a message dated 8/13/2002 2:01:03 AM Eastern Daylight Time,

> jenferh@h... writes:

>

>

> > The neurologist examined and said that she didn't

> > have tort but definitely had a tight muscle that he wanted us to

> > stretch all day long.

>

> I find this interesting because I have heard other members say that

their

> child does not have tort, but they have a tight neck muscle.

Essentially,

> congenital muscular tort is a tight neck muscle, it may be caused

from

> inutero constraint (perhaps this could be construed as different if

the

> muscle was not allowed to grow and was stunted?) or from laying in

one

> position (essentially the same idea here) etc- which created a

tight muscle

> and it needs to be stretched out. Take this seriously and do those

daily

> stretches, this is the underlying problem that is probably causing

much of

> the plagio, so definetly be on top of this. I will attach a link

that shows

> stretches/hold that you can do also. Good luck!

>

> ' Mom

> <A HREF= " http://www.orthoseek.com/articles/ifs-

left.html " >Stretches/ Hold</A>

[Guest guest]

In a message dated 8/15/2002 2:47:13 AM Eastern Daylight Time, jenferh@... writes:

I had the same questions as you. That's why we ended up going to the

therapist. It just didn't seem to make sense. I'm glad to get to

the bottom of the whole situation.

Good for you Mom!!! Keep pushing until they all start making some sense! Good luck and keep us posted!

' Mom

[Guest guest]

More and more, doctors are slowly beginning to realize the problems with

ignoring pain. My old Rummy didn't believe in doing anything to comfort a

patient, so I fired him. and went to my old Rheumy. He immediately put me

back on anti-inflammatories and added Morphine for my pain. It's not only my

opinion, but pain needs to be treated like any other ailment. If your doctor

doesn't believe in taking pain meds, find another one. And talk to your GP

about treating your pain, and tell it like it is. After all, you're the boss

paying them to do your bidding (to an extent).

Dennis in Eastexas

" It's not Rocket Surgery "

[ ] Hello again

> Hi all. I know it's been awhile, but I'm still here. I just started

> my meds after years of waiting. I hope it does the trick. My Rhumy

> refuses to perscibe any pain meds for me. She says she wants to see

> if the meds are working, but doesn't perscribe pain meds to anyone. I

> like her, but the pain can get overwhelming for me. The weather is

> getting colder and it kills my hands, feet, ankles, hips, back, and

> neck. What do I do? I have a family doc, but don't want to go

> against my rhummy's wishes. It's hard to feel good about anything,

> even myself, when the pain is too much. Please email me directly if

> anyone had some ideas. Thank you for being there for me.

[Guest guest]

,

I live in New Jersey and it was about a 6 hour drive for me, too. I

had my explant surgery on a Monday and I had the drains removed on a

Friday. Some people have their drains removed earlier, it just

depends on the output - and they wouldn't allow me to leave until it

was a certain amount per day or less. I chose Dr. Feng because she

had alot of experience with explanting and I knew she'd get

everything she possibly could out of my body, and I knew my chances

of a good outcome were high if I used her. You're not being vain by

wanting your results to be good, you deserve to look good.

Sis

>

> Hello everyone,

>

> It has been a couple of months since i have been on the site but i

> wanted to wish everyone a Happy Holiday. I have been busy with

school

> and my 2 year old has recently discovered Santa so basically live

at

> the malls now and am now broke becuase he wants everything I am

> doing much better since i have joined this site, i think mainly

> becuase you have put my mind at ease so thank you for that. Sis-

you

> had mentioned that you had Dr Feng do your removal. I am planning

on

> having her do mine after the new year. I have been in contact with

her

> and they were very helpful. I will be traveling from PA to stay

there,

> which is not far compared to others; maybe 6 hours driving. How

long

> did you have to stay out there for the drains to be removed? I

was

> really glad to hear how impressed you were with her. I know it

sounds

> very vain but as glad a s i am to get these out i am concered with

how

> they will look after but i will deal with that when i have to.

> Thanks again for all of your help and stay safe over the holiday

> season.

>

[Guest guest]

Hi Sis,

Sorry it has been a couple days since i have logged on but thank you

for the info. The nurse said i would have the surgery on a Wednesday

because Dr Feng would consult with me on Tuesday so i just thought

it sounded rather quick to have the drains out that Friday since

they are not there on the weekends but as you said it all depends on

the drainage. This still just blows my mind that i have to go to

another state to have somwething that was " safe " removed properly. I

am just so glad i found this site or i would have never known.

> >

> > Hello everyone,

> >

> > It has been a couple of months since i have been on the site but

i

> > wanted to wish everyone a Happy Holiday. I have been busy with

> school

> > and my 2 year old has recently discovered Santa so basically

live

> at

> > the malls now and am now broke becuase he wants everything I

am

> > doing much better since i have joined this site, i think mainly

> > becuase you have put my mind at ease so thank you for that. Sis-

> you

> > had mentioned that you had Dr Feng do your removal. I am

planning

> on

> > having her do mine after the new year. I have been in contact

with

> her

> > and they were very helpful. I will be traveling from PA to stay

> there,

> > which is not far compared to others; maybe 6 hours driving. How

> long

> > did you have to stay out there for the drains to be removed? I

> was

> > really glad to hear how impressed you were with her. I know it

> sounds

> > very vain but as glad a s i am to get these out i am concered

with

> how

> > they will look after but i will deal with that when i have to.

> > Thanks again for all of your help and stay safe over the holiday

> > season.

> >

>

[Guest guest]

Hello beautiful family,

It's been so long since I touched base, so now that I'm getting re settled in our new house, I thought I'd come & say hi to everyone.

I'm glad that everyone was as heartened as I to read the story about and pass it on or reply

For all the newest members of the group, my name is Rhonda, just turned the big 40 & live on the east coast of New South Wales, Australia, I've just moved to a little seaside village by the name of (funnily enough) Sandy Beach, from the next seaside village over which is called (funnily enough) Emerald Beach. Yes the beach is sandy at Sandy and yes the water really is emerald at Emerald. lol

Don't get me wrong when I say village though, beachside mansions (fetching well over 2 million aussie dollars) exist in both places, so perhaps village may not be the best description, but the population of both areas is rather small. Neither has a supermarket, but both have General Store's and everyone is quite friendly towards everyone else. Idyllic really.

Anyway, I live with my 15yo son who is a lovely gentle giant and my brother moved in with me last year almost twelve months after our mum passed away unexpectedly at the age of (not quite) 57. He lived interstate with her at the time, but he & my step dad don't exactly get on that well so by mutual agreement (after living there for about 5 years) he moved out. My dad & stepmum have been very supportive & helped him move down here in September last year. It's been a bit of an adjustment for both of us, but we're very supportive of each other and we're coping well after much grief over mum and the way things have gone since she died.

We have a twelve month lease on the house so will actually be able to settle a bit. (we've just spent the last 6 weeks staying in a friends caravan with no power or water while my son stayed with a friend in Emerald Beach)

Suffice to say, we are very relieved to have finally found a place & have the internet up and running again!

A great big HI to members I know so far and a great big HI to members I haven't met yet. For all you myspacers, if you want to come & say hi, my url is www.myspace.com/rhondiel I haven't had much internet time lately, but now that things are returning to some normalcy, I'm looking forward to the social outlet it provides!

Love & light to you all!

Rhonda

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