Guest guest Posted July 4, 2008 Report Share Posted July 4, 2008 ... what did you click on to get started? Do you mean literally, filling out the entry form is all? MamaSher, age 69. IPF 3-06, OR./ NasturtiumsDon't fret about tomorrow, God is already there! Jimmie FoundationTo: Breathe-Support , "HART, MARI-EMORY" , "LINDA EMORY PF GROUP" Date: Friday, July 4, 2008, 12:35 AM LET'S GET ON THE BANDWAGON AND ENTER FOR IPF, JOE AND I HAVE ENTERED SEPERATELY AND THE MORE THE BETTER CHANCE OF ACKNOWLEDGEMENT. ..PASS THIS ON,,,,REMEMBER, BREAST CANCER TAKES AS MANY PEOPLE IN A YEAR AS DOES PF...SO LET'S GET LOUDER!!! JOE AND JOANIE LAMENSKIE http://www.jimmiejo hnsonfoundation. org/hope. html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2008 Report Share Posted July 4, 2008 ... what did you click on to get started? Do you mean literally, filling out the entry form is all? MamaSher, age 69. IPF 3-06, OR./ NasturtiumsDon't fret about tomorrow, God is already there! Jimmie FoundationTo: Breathe-Support , "HART, MARI-EMORY" , "LINDA EMORY PF GROUP" Date: Friday, July 4, 2008, 12:35 AM LET'S GET ON THE BANDWAGON AND ENTER FOR IPF, JOE AND I HAVE ENTERED SEPERATELY AND THE MORE THE BETTER CHANCE OF ACKNOWLEDGEMENT. ..PASS THIS ON,,,,REMEMBER, BREAST CANCER TAKES AS MANY PEOPLE IN A YEAR AS DOES PF...SO LET'S GET LOUDER!!! JOE AND JOANIE LAMENSKIE http://www.jimmiejo hnsonfoundation. org/hope. html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2008 Report Share Posted July 4, 2008 ... what did you click on to get started? Do you mean literally, filling out the entry form is all? MamaSher, age 69. IPF 3-06, OR./ NasturtiumsDon't fret about tomorrow, God is already there! Jimmie FoundationTo: Breathe-Support , "HART, MARI-EMORY" , "LINDA EMORY PF GROUP" Date: Friday, July 4, 2008, 12:35 AM LET'S GET ON THE BANDWAGON AND ENTER FOR IPF, JOE AND I HAVE ENTERED SEPERATELY AND THE MORE THE BETTER CHANCE OF ACKNOWLEDGEMENT. ..PASS THIS ON,,,,REMEMBER, BREAST CANCER TAKES AS MANY PEOPLE IN A YEAR AS DOES PF...SO LET'S GET LOUDER!!! JOE AND JOANIE LAMENSKIE http://www.jimmiejo hnsonfoundation. org/hope. html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2008 Report Share Posted July 4, 2008 Joe and Joanie, Thank you so much for posting this....to make it easier for folks to apply, here's our mission statement from our website. Of course, you can paraphrase from it: The Mission of the Pulmonary Fibrosis Foundation is to fund research which increases the understanding of and will find a cure for Pulmonary Fibrosis. As part of our advocacy program, we petitioned congress to increase funding for the National Institutes of Health and have lobbied the NIH to make Pulmonary Fibrosis a major focus area. This has been achieved to a substantial degree but much more needs to be done. We will not rest until there are successful treatments available for Pulmonary Fibrosis. As a result of our advocacy program the NIH has established a National Network for Clinical Research in Pulmonary Fibrosis. This effort involves eleven of the most prestigious research centers in the United States. The medical community is deficient in its knowledge about Pulmonary Fibrosis. Most Internal Medicine specialists and even many Pulmonologists lack the diagnostic skills required to make an early and accurate diagnosis of Pulmonary Fibrosis. Proper diagnosis is the only hope for remediation for most sufferers. Therefore, we provide educational materials to Internists and Pulmonologists to correct this deficiency. We have been successful in getting some of the major drug companies to initiate new studies, which hopefully will find effective treatments for Pulmonary Fibrosis. We are partnering with them in the development of these pharmacological treatments. Finally, we work to educate the general public to increase awareness and understanding of this disorder. In summary, we are working hard to improve the quality of life for Pulmonary Fibrosis sufferers. We provide hope, support, education, research, awareness and advocacy Our website address is www.pulmonaryfibrosis.org Contact name would be me: Leanne Storch Phone Let's let Helmet of Hope take notice of this little known disease. It would be great to raise awareness by getting our logo on his helment. Thanks in advance for doing this. Leanne Storch Executive Director Pulmonary Fibrosis Foundation 1332 N. Halsted, Suite 201 Chicago, IL 60642-2642 www.pulmonaryfibrosis.org A cure is just a breath away > > > LET'S GET ON THE BANDWAGON AND ENTER FOR IPF, JOE AND I HAVE ENTERED > SEPERATELY AND THE MORE THE BETTER CHANCE OF ACKNOWLEDGEMENT...PASS THIS ON, > ,,REMEMBER, BREAST CANCER TAKES AS MANY PEOPLE IN A YEAR AS DOES PF...SO LET > S GET LOUDER!!! > > JOE AND JOANIE LAMENSKIE > > > > > > http://www.jimmiejohnsonfoundation.org/hope.html > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2008 Report Share Posted July 4, 2008 Joe and Joanie, Thank you so much for posting this....to make it easier for folks to apply, here's our mission statement from our website. Of course, you can paraphrase from it: The Mission of the Pulmonary Fibrosis Foundation is to fund research which increases the understanding of and will find a cure for Pulmonary Fibrosis. As part of our advocacy program, we petitioned congress to increase funding for the National Institutes of Health and have lobbied the NIH to make Pulmonary Fibrosis a major focus area. This has been achieved to a substantial degree but much more needs to be done. We will not rest until there are successful treatments available for Pulmonary Fibrosis. As a result of our advocacy program the NIH has established a National Network for Clinical Research in Pulmonary Fibrosis. This effort involves eleven of the most prestigious research centers in the United States. The medical community is deficient in its knowledge about Pulmonary Fibrosis. Most Internal Medicine specialists and even many Pulmonologists lack the diagnostic skills required to make an early and accurate diagnosis of Pulmonary Fibrosis. Proper diagnosis is the only hope for remediation for most sufferers. Therefore, we provide educational materials to Internists and Pulmonologists to correct this deficiency. We have been successful in getting some of the major drug companies to initiate new studies, which hopefully will find effective treatments for Pulmonary Fibrosis. We are partnering with them in the development of these pharmacological treatments. Finally, we work to educate the general public to increase awareness and understanding of this disorder. In summary, we are working hard to improve the quality of life for Pulmonary Fibrosis sufferers. We provide hope, support, education, research, awareness and advocacy Our website address is www.pulmonaryfibrosis.org Contact name would be me: Leanne Storch Phone Let's let Helmet of Hope take notice of this little known disease. It would be great to raise awareness by getting our logo on his helment. Thanks in advance for doing this. Leanne Storch Executive Director Pulmonary Fibrosis Foundation 1332 N. Halsted, Suite 201 Chicago, IL 60642-2642 www.pulmonaryfibrosis.org A cure is just a breath away > > > LET'S GET ON THE BANDWAGON AND ENTER FOR IPF, JOE AND I HAVE ENTERED > SEPERATELY AND THE MORE THE BETTER CHANCE OF ACKNOWLEDGEMENT...PASS THIS ON, > ,,REMEMBER, BREAST CANCER TAKES AS MANY PEOPLE IN A YEAR AS DOES PF...SO LET > S GET LOUDER!!! > > JOE AND JOANIE LAMENSKIE > > > > > > http://www.jimmiejohnsonfoundation.org/hope.html > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2008 Report Share Posted July 4, 2008 Joe and Joanie, Thank you so much for posting this....to make it easier for folks to apply, here's our mission statement from our website. Of course, you can paraphrase from it: The Mission of the Pulmonary Fibrosis Foundation is to fund research which increases the understanding of and will find a cure for Pulmonary Fibrosis. As part of our advocacy program, we petitioned congress to increase funding for the National Institutes of Health and have lobbied the NIH to make Pulmonary Fibrosis a major focus area. This has been achieved to a substantial degree but much more needs to be done. We will not rest until there are successful treatments available for Pulmonary Fibrosis. As a result of our advocacy program the NIH has established a National Network for Clinical Research in Pulmonary Fibrosis. This effort involves eleven of the most prestigious research centers in the United States. The medical community is deficient in its knowledge about Pulmonary Fibrosis. Most Internal Medicine specialists and even many Pulmonologists lack the diagnostic skills required to make an early and accurate diagnosis of Pulmonary Fibrosis. Proper diagnosis is the only hope for remediation for most sufferers. Therefore, we provide educational materials to Internists and Pulmonologists to correct this deficiency. We have been successful in getting some of the major drug companies to initiate new studies, which hopefully will find effective treatments for Pulmonary Fibrosis. We are partnering with them in the development of these pharmacological treatments. Finally, we work to educate the general public to increase awareness and understanding of this disorder. In summary, we are working hard to improve the quality of life for Pulmonary Fibrosis sufferers. We provide hope, support, education, research, awareness and advocacy Our website address is www.pulmonaryfibrosis.org Contact name would be me: Leanne Storch Phone Let's let Helmet of Hope take notice of this little known disease. It would be great to raise awareness by getting our logo on his helment. Thanks in advance for doing this. Leanne Storch Executive Director Pulmonary Fibrosis Foundation 1332 N. Halsted, Suite 201 Chicago, IL 60642-2642 www.pulmonaryfibrosis.org A cure is just a breath away > > > LET'S GET ON THE BANDWAGON AND ENTER FOR IPF, JOE AND I HAVE ENTERED > SEPERATELY AND THE MORE THE BETTER CHANCE OF ACKNOWLEDGEMENT...PASS THIS ON, > ,,REMEMBER, BREAST CANCER TAKES AS MANY PEOPLE IN A YEAR AS DOES PF...SO LET > S GET LOUDER!!! > > JOE AND JOANIE LAMENSKIE > > > > > > http://www.jimmiejohnsonfoundation.org/hope.html > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2008 Report Share Posted July 4, 2008 , Thank you so much for posting this! I just finished the entry form and submitted it. I'd encourage everyone to do this. The form is easy to fill out and for the essay just write a few words on how the disease has affected you. This would be fabulous exposure for the Foundation! Beth Age 48 Fibrotic NSIP 06/06 Change everything. Love and Forgive Jimmie FoundationTo: Breathe-Support , "HART, MARI-EMORY" , "LINDA EMORY PF GROUP" Date: Friday, July 4, 2008, 12:35 AM LET'S GET ON THE BANDWAGON AND ENTER FOR IPF, JOE AND I HAVE ENTERED SEPERATELY AND THE MORE THE BETTER CHANCE OF ACKNOWLEDGEMENT. ..PASS THIS ON,,,,REMEMBER, BREAST CANCER TAKES AS MANY PEOPLE IN A YEAR AS DOES PF...SO LET'S GET LOUDER!!! JOE AND JOANIE LAMENSKIE http://www.jimmiejo hnsonfoundation. org/hope. html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2008 Report Share Posted July 4, 2008 , Thank you so much for posting this! I just finished the entry form and submitted it. I'd encourage everyone to do this. The form is easy to fill out and for the essay just write a few words on how the disease has affected you. This would be fabulous exposure for the Foundation! Beth Age 48 Fibrotic NSIP 06/06 Change everything. Love and Forgive Jimmie FoundationTo: Breathe-Support , "HART, MARI-EMORY" , "LINDA EMORY PF GROUP" Date: Friday, July 4, 2008, 12:35 AM LET'S GET ON THE BANDWAGON AND ENTER FOR IPF, JOE AND I HAVE ENTERED SEPERATELY AND THE MORE THE BETTER CHANCE OF ACKNOWLEDGEMENT. ..PASS THIS ON,,,,REMEMBER, BREAST CANCER TAKES AS MANY PEOPLE IN A YEAR AS DOES PF...SO LET'S GET LOUDER!!! JOE AND JOANIE LAMENSKIE http://www.jimmiejo hnsonfoundation. org/hope. html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2008 Report Share Posted July 4, 2008 LEANNE, THANKS FOR THE MISSION STATEMENT...WE HAD A SUPPORT GROUP MEETING AT EMORY 2 WEEKS AGO AND WHEN WE MEET AGAIN IN 3 MONTHS WE ARE TO BRING SUGGESTIONS FOR A FUNDRAISER...SO IF YOU COULD PASS ON SOME IDEAS JOE AND I WOULD APPRECIATE YOUR THOUGHTS ON THIS ISSUE. WE MET JANE (TOODLES-PIANO LADY) THROUGH THIS WEBSITE THEN AGAIN AT EMORY AND ALSO ONE OTHER COUPLE FROM OUR COUNTY AT THE SUPPORT GROUP MEETING. IT STILL AMAZES US HOW WE CAN START A CONVERSATION WITH A STRANGER AND YET HAVE SO MUCH IN COMMON..(A SURE GIVE AWAY IS OFTEN A CANULLA) AN EXAMPLE OF THIS FOLLOWS: I AM AN INSTRUCTOR FOR THE AARP DRIVERS COURSE AND THE GENTLEMAN ABOVE ME IN THE PECKING ORDER WAS AWARE OF PF BECAUSE OUR STATE COORDINATOR RECENTLY DIED FROM PF. ANYWAY WHEN JOE WAS DIAGNOSED AND I HAD TO CANCEL A COUPLE OF CLASSES DUE TO DR. APPT.'S AND SUPPORT GROUP MEETINGS AND EXPLAINED WHY, THIS GENTLEMAN SAID A NEIGHBOR ON HIS STREET HAS HAD PF FOR 3 YEARS! LO AND BEHOLD WE MET HIM AT EMORYS' SUPPORT GROUP AND HE WAS ALSO AT EMORY 2 FRIDAYS' AGO WHEN JOE HAD HIS 6 MONTH CHECK UP. BEFORE JOE'S DIAGNOSIS I OFTEN WOULD THINK THAT SOMEONE ON OXYGEN HAD TO HAVE BEEN A SMOKER...IGNORANCE IS BLISS!! SO BOTTOM LINE IF ANYONE CAN SUGGEST A FUNDRAISER TO BE HELD IN OUR COMMUNITY PLEASE PASS ON YOUR SUGGESTIONS. JOE HAS A SON THAT OWNS A MOTORCYCLE SHOP AND HIS LAST FUNDRAISER-BIKE RIDE WAS FOR DEPT. OF CHILDRENS' SERVICES FOR HIS COUNTY. WE HAVE ASKED HIM TO MAKE HIS NEXT RIDE FOR PF BUT WE STILL WOULD LIKE MORE IDEAS.     JOE/JOANIE JOE 60 IPF1/2008 GRIFFIN, GA. -- Re: Jimmie Foundation Joe and Joanie,Thank you so much for posting this....to make it easier for folks to apply, here's our mission statement from our website. Of course, you can paraphrase from it:The Mission of the Pulmonary Fibrosis Foundation is to fund research which increases the understanding of and will find a cure for Pulmonary Fibrosis. As part of our advocacy program, we petitioned congress to increase funding for the National Institutes of Health and have lobbied the NIH to make Pulmonary Fibrosis a major focus area. This has been achieved to a substantial degree but much more needs to be done. We will not rest until there are successful treatments available for Pulmonary Fibrosis. As a result of our advocacy program the NIH has established a National Network for Clinical Research in Pulmonary Fibrosis. This effort involves eleven of the most prestigious research centers in the United States. The medical community is deficient in its knowledge about Pulmonary Fibrosis. Most Internal Medicine specialists and even many Pulmonologists lack the diagnostic skills required to make an early and accurate diagnosis of Pulmonary Fibrosis. Proper diagnosis is the only hope for remediation for most sufferers. Therefore, we provide educational materials to Internists and Pulmonologists to correct this deficiency. We have been successful in getting some of the major drug companies to initiate new studies, which hopefully will find effective treatments for Pulmonary Fibrosis. We are partnering with them in the development of these pharmacological treatments. Finally, we work to educate the general public to increase awareness and understanding of this disorder. In summary, we are working hard to improve the quality of life for Pulmonary Fibrosis sufferers. We provide hope, support, education, research, awareness and advocacyOur website address is www.pulmonaryfibrosis.orgContact name would be me: Leanne Storch Phone Let's let Helmet of Hope take notice of this little known disease. It would be great to raise awareness by getting our logo on his helment.Thanks in advance for doing this.Leanne StorchExecutive DirectorPulmonary Fibrosis Foundation1332 N. Halsted, Suite 201Chicago, IL 60642-2642www.pulmonaryfibrosis.orgA cure is just a breath away>> > LET'S GET ON THE BANDWAGON AND ENTER FOR IPF, JOE AND I HAVE ENTERED> SEPERATELY AND THE MORE THE BETTER CHANCE OF ACKNOWLEDGEMENT...PASS THIS ON,> ,,REMEMBER, BREAST CANCER TAKES AS MANY PEOPLE IN A YEAR AS DOES PF...SO LET> S GET LOUDER!!!> > JOE AND JOANIE LAMENSKIE> > > > > > http://www.jimmiejohnsonfoundation.org/hope.html> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2008 Report Share Posted July 4, 2008 LEANNE, THANKS FOR THE MISSION STATEMENT...WE HAD A SUPPORT GROUP MEETING AT EMORY 2 WEEKS AGO AND WHEN WE MEET AGAIN IN 3 MONTHS WE ARE TO BRING SUGGESTIONS FOR A FUNDRAISER...SO IF YOU COULD PASS ON SOME IDEAS JOE AND I WOULD APPRECIATE YOUR THOUGHTS ON THIS ISSUE. WE MET JANE (TOODLES-PIANO LADY) THROUGH THIS WEBSITE THEN AGAIN AT EMORY AND ALSO ONE OTHER COUPLE FROM OUR COUNTY AT THE SUPPORT GROUP MEETING. IT STILL AMAZES US HOW WE CAN START A CONVERSATION WITH A STRANGER AND YET HAVE SO MUCH IN COMMON..(A SURE GIVE AWAY IS OFTEN A CANULLA) AN EXAMPLE OF THIS FOLLOWS: I AM AN INSTRUCTOR FOR THE AARP DRIVERS COURSE AND THE GENTLEMAN ABOVE ME IN THE PECKING ORDER WAS AWARE OF PF BECAUSE OUR STATE COORDINATOR RECENTLY DIED FROM PF. ANYWAY WHEN JOE WAS DIAGNOSED AND I HAD TO CANCEL A COUPLE OF CLASSES DUE TO DR. APPT.'S AND SUPPORT GROUP MEETINGS AND EXPLAINED WHY, THIS GENTLEMAN SAID A NEIGHBOR ON HIS STREET HAS HAD PF FOR 3 YEARS! LO AND BEHOLD WE MET HIM AT EMORYS' SUPPORT GROUP AND HE WAS ALSO AT EMORY 2 FRIDAYS' AGO WHEN JOE HAD HIS 6 MONTH CHECK UP. BEFORE JOE'S DIAGNOSIS I OFTEN WOULD THINK THAT SOMEONE ON OXYGEN HAD TO HAVE BEEN A SMOKER...IGNORANCE IS BLISS!! SO BOTTOM LINE IF ANYONE CAN SUGGEST A FUNDRAISER TO BE HELD IN OUR COMMUNITY PLEASE PASS ON YOUR SUGGESTIONS. JOE HAS A SON THAT OWNS A MOTORCYCLE SHOP AND HIS LAST FUNDRAISER-BIKE RIDE WAS FOR DEPT. OF CHILDRENS' SERVICES FOR HIS COUNTY. WE HAVE ASKED HIM TO MAKE HIS NEXT RIDE FOR PF BUT WE STILL WOULD LIKE MORE IDEAS.     JOE/JOANIE JOE 60 IPF1/2008 GRIFFIN, GA. -- Re: Jimmie Foundation Joe and Joanie,Thank you so much for posting this....to make it easier for folks to apply, here's our mission statement from our website. Of course, you can paraphrase from it:The Mission of the Pulmonary Fibrosis Foundation is to fund research which increases the understanding of and will find a cure for Pulmonary Fibrosis. As part of our advocacy program, we petitioned congress to increase funding for the National Institutes of Health and have lobbied the NIH to make Pulmonary Fibrosis a major focus area. This has been achieved to a substantial degree but much more needs to be done. We will not rest until there are successful treatments available for Pulmonary Fibrosis. As a result of our advocacy program the NIH has established a National Network for Clinical Research in Pulmonary Fibrosis. This effort involves eleven of the most prestigious research centers in the United States. The medical community is deficient in its knowledge about Pulmonary Fibrosis. Most Internal Medicine specialists and even many Pulmonologists lack the diagnostic skills required to make an early and accurate diagnosis of Pulmonary Fibrosis. Proper diagnosis is the only hope for remediation for most sufferers. Therefore, we provide educational materials to Internists and Pulmonologists to correct this deficiency. We have been successful in getting some of the major drug companies to initiate new studies, which hopefully will find effective treatments for Pulmonary Fibrosis. We are partnering with them in the development of these pharmacological treatments. Finally, we work to educate the general public to increase awareness and understanding of this disorder. In summary, we are working hard to improve the quality of life for Pulmonary Fibrosis sufferers. We provide hope, support, education, research, awareness and advocacyOur website address is www.pulmonaryfibrosis.orgContact name would be me: Leanne Storch Phone Let's let Helmet of Hope take notice of this little known disease. It would be great to raise awareness by getting our logo on his helment.Thanks in advance for doing this.Leanne StorchExecutive DirectorPulmonary Fibrosis Foundation1332 N. Halsted, Suite 201Chicago, IL 60642-2642www.pulmonaryfibrosis.orgA cure is just a breath away>> > LET'S GET ON THE BANDWAGON AND ENTER FOR IPF, JOE AND I HAVE ENTERED> SEPERATELY AND THE MORE THE BETTER CHANCE OF ACKNOWLEDGEMENT...PASS THIS ON,> ,,REMEMBER, BREAST CANCER TAKES AS MANY PEOPLE IN A YEAR AS DOES PF...SO LET> S GET LOUDER!!!> > JOE AND JOANIE LAMENSKIE> > > > > > http://www.jimmiejohnsonfoundation.org/hope.html> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2008 Report Share Posted July 4, 2008 LEANNE, THANKS FOR THE MISSION STATEMENT...WE HAD A SUPPORT GROUP MEETING AT EMORY 2 WEEKS AGO AND WHEN WE MEET AGAIN IN 3 MONTHS WE ARE TO BRING SUGGESTIONS FOR A FUNDRAISER...SO IF YOU COULD PASS ON SOME IDEAS JOE AND I WOULD APPRECIATE YOUR THOUGHTS ON THIS ISSUE. WE MET JANE (TOODLES-PIANO LADY) THROUGH THIS WEBSITE THEN AGAIN AT EMORY AND ALSO ONE OTHER COUPLE FROM OUR COUNTY AT THE SUPPORT GROUP MEETING. IT STILL AMAZES US HOW WE CAN START A CONVERSATION WITH A STRANGER AND YET HAVE SO MUCH IN COMMON..(A SURE GIVE AWAY IS OFTEN A CANULLA) AN EXAMPLE OF THIS FOLLOWS: I AM AN INSTRUCTOR FOR THE AARP DRIVERS COURSE AND THE GENTLEMAN ABOVE ME IN THE PECKING ORDER WAS AWARE OF PF BECAUSE OUR STATE COORDINATOR RECENTLY DIED FROM PF. ANYWAY WHEN JOE WAS DIAGNOSED AND I HAD TO CANCEL A COUPLE OF CLASSES DUE TO DR. APPT.'S AND SUPPORT GROUP MEETINGS AND EXPLAINED WHY, THIS GENTLEMAN SAID A NEIGHBOR ON HIS STREET HAS HAD PF FOR 3 YEARS! LO AND BEHOLD WE MET HIM AT EMORYS' SUPPORT GROUP AND HE WAS ALSO AT EMORY 2 FRIDAYS' AGO WHEN JOE HAD HIS 6 MONTH CHECK UP. BEFORE JOE'S DIAGNOSIS I OFTEN WOULD THINK THAT SOMEONE ON OXYGEN HAD TO HAVE BEEN A SMOKER...IGNORANCE IS BLISS!! SO BOTTOM LINE IF ANYONE CAN SUGGEST A FUNDRAISER TO BE HELD IN OUR COMMUNITY PLEASE PASS ON YOUR SUGGESTIONS. JOE HAS A SON THAT OWNS A MOTORCYCLE SHOP AND HIS LAST FUNDRAISER-BIKE RIDE WAS FOR DEPT. OF CHILDRENS' SERVICES FOR HIS COUNTY. WE HAVE ASKED HIM TO MAKE HIS NEXT RIDE FOR PF BUT WE STILL WOULD LIKE MORE IDEAS.     JOE/JOANIE JOE 60 IPF1/2008 GRIFFIN, GA. -- Re: Jimmie Foundation Joe and Joanie,Thank you so much for posting this....to make it easier for folks to apply, here's our mission statement from our website. Of course, you can paraphrase from it:The Mission of the Pulmonary Fibrosis Foundation is to fund research which increases the understanding of and will find a cure for Pulmonary Fibrosis. As part of our advocacy program, we petitioned congress to increase funding for the National Institutes of Health and have lobbied the NIH to make Pulmonary Fibrosis a major focus area. This has been achieved to a substantial degree but much more needs to be done. We will not rest until there are successful treatments available for Pulmonary Fibrosis. As a result of our advocacy program the NIH has established a National Network for Clinical Research in Pulmonary Fibrosis. This effort involves eleven of the most prestigious research centers in the United States. The medical community is deficient in its knowledge about Pulmonary Fibrosis. Most Internal Medicine specialists and even many Pulmonologists lack the diagnostic skills required to make an early and accurate diagnosis of Pulmonary Fibrosis. Proper diagnosis is the only hope for remediation for most sufferers. Therefore, we provide educational materials to Internists and Pulmonologists to correct this deficiency. We have been successful in getting some of the major drug companies to initiate new studies, which hopefully will find effective treatments for Pulmonary Fibrosis. We are partnering with them in the development of these pharmacological treatments. Finally, we work to educate the general public to increase awareness and understanding of this disorder. In summary, we are working hard to improve the quality of life for Pulmonary Fibrosis sufferers. We provide hope, support, education, research, awareness and advocacyOur website address is www.pulmonaryfibrosis.orgContact name would be me: Leanne Storch Phone Let's let Helmet of Hope take notice of this little known disease. It would be great to raise awareness by getting our logo on his helment.Thanks in advance for doing this.Leanne StorchExecutive DirectorPulmonary Fibrosis Foundation1332 N. Halsted, Suite 201Chicago, IL 60642-2642www.pulmonaryfibrosis.orgA cure is just a breath away>> > LET'S GET ON THE BANDWAGON AND ENTER FOR IPF, JOE AND I HAVE ENTERED> SEPERATELY AND THE MORE THE BETTER CHANCE OF ACKNOWLEDGEMENT...PASS THIS ON,> ,,REMEMBER, BREAST CANCER TAKES AS MANY PEOPLE IN A YEAR AS DOES PF...SO LET> S GET LOUDER!!!> > JOE AND JOANIE LAMENSKIE> > > > > > http://www.jimmiejohnsonfoundation.org/hope.html> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2008 Report Share Posted July 5, 2008 OK...I did my thing on the JJF. Let's hope we race forward! MamaSher, age 69. IPF 3-06, OR./ NasturtiumsDon't fret about tomorrow, God is already there! Jimmie FoundationTo: Breathe-Support , "HART, MARI-EMORY" <mbhartemory (DOT) edu>, "RAFAEL PEREZ" <rperezemory (DOT) edu>, "LINDA EMORY PF GROUP" <lindan34comcast (DOT) net>, "Jane/IPF" <jjarrettoptilink (DOT) us>Date: Friday, July 4, 2008, 12:35 AM LET'S GET ON THE BANDWAGON AND ENTER FOR IPF, JOE AND I HAVE ENTERED SEPERATELY AND THE MORE THE BETTER CHANCE OF ACKNOWLEDGEMENT. ..PASS THIS ON,,,,REMEMBER, BREAST CANCER TAKES AS MANY PEOPLE IN A YEAR AS DOES PF...SO LET'S GET LOUDER!!! JOE AND JOANIE LAMENSKIE http://www.jimmiejo hnsonfoundation. org/hope. html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2008 Report Share Posted July 5, 2008 I sent my entry in for support. It is very easy since all you need to know is provided by Leanne in her email. Thank you for bringing it to our attention Joe. Let us hope to get on the helmet. Fay IPF 06/06 IL Jimmie FoundationTo: Breathe-Support@ yahoogroups. com, "HART, MARI-EMORY" <mbhartemory (DOT) edu>, "RAFAEL PEREZ" <rperezemory (DOT) edu>, "LINDA EMORY PF GROUP" <lindan34comcast (DOT) net>, "Jane/IPF" <jjarrettoptilink (DOT) us>Date: Friday, July 4, 2008, 12:35 AM LET'S GET ON THE BANDWAGON AND ENTER FOR IPF, JOE AND I HAVE ENTERED SEPERATELY AND THE MORE THE BETTER CHANCE OF ACKNOWLEDGEMENT. ..PASS THIS ON,,,,REMEMBER, BREAST CANCER TAKES AS MANY PEOPLE IN A YEAR AS DOES PF...SO LET'S GET LOUDER!!! JOE AND JOANIE LAMENSKIE http://www.jimmiejo hnsonfoundation. org/hope. html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2008 Report Share Posted July 5, 2008 SELECT THE ACORN...THANKS , JOANIE -- Re: Jimmie Foundation What logo did you select to represent IPF on the helmet? Fay IPF 06/06 Jimmie FoundationTo: Breathe-Support , "HART, MARI-EMORY" <mbhartemory (DOT) edu>, "RAFAEL PEREZ" <rperezemory (DOT) edu>, "LINDA EMORY PF GROUP" <lindan34comcast (DOT) net>, "Jane/IPF" <jjarrettoptilink (DOT) us>Date: Friday, July 4, 2008, 12:35 AM LET'S GET ON THE BANDWAGON AND ENTER FOR IPF, JOE AND I HAVE ENTERED SEPERATELY AND THE MORE THE BETTER CHANCE OF ACKNOWLEDGEMENT. ..PASS THIS ON,,,,REMEMBER, BREAST CANCER TAKES AS MANY PEOPLE IN A YEAR AS DOES PF...SO LET'S GET LOUDER!!! JOE AND JOANIE LAMENSKIE http://www.jimmiejo hnsonfoundation. org/hope. html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2008 Report Share Posted July 5, 2008 SELECT THE ACORN...THANKS , JOANIE -- Re: Jimmie Foundation What logo did you select to represent IPF on the helmet? Fay IPF 06/06 Jimmie FoundationTo: Breathe-Support , "HART, MARI-EMORY" <mbhartemory (DOT) edu>, "RAFAEL PEREZ" <rperezemory (DOT) edu>, "LINDA EMORY PF GROUP" <lindan34comcast (DOT) net>, "Jane/IPF" <jjarrettoptilink (DOT) us>Date: Friday, July 4, 2008, 12:35 AM LET'S GET ON THE BANDWAGON AND ENTER FOR IPF, JOE AND I HAVE ENTERED SEPERATELY AND THE MORE THE BETTER CHANCE OF ACKNOWLEDGEMENT. ..PASS THIS ON,,,,REMEMBER, BREAST CANCER TAKES AS MANY PEOPLE IN A YEAR AS DOES PF...SO LET'S GET LOUDER!!! JOE AND JOANIE LAMENSKIE http://www.jimmiejo hnsonfoundation. org/hope. html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2008 Report Share Posted July 5, 2008 SELECT THE ACORN...THANKS , JOANIE -- Re: Jimmie Foundation What logo did you select to represent IPF on the helmet? Fay IPF 06/06 Jimmie FoundationTo: Breathe-Support , "HART, MARI-EMORY" <mbhartemory (DOT) edu>, "RAFAEL PEREZ" <rperezemory (DOT) edu>, "LINDA EMORY PF GROUP" <lindan34comcast (DOT) net>, "Jane/IPF" <jjarrettoptilink (DOT) us>Date: Friday, July 4, 2008, 12:35 AM LET'S GET ON THE BANDWAGON AND ENTER FOR IPF, JOE AND I HAVE ENTERED SEPERATELY AND THE MORE THE BETTER CHANCE OF ACKNOWLEDGEMENT. ..PASS THIS ON,,,,REMEMBER, BREAST CANCER TAKES AS MANY PEOPLE IN A YEAR AS DOES PF...SO LET'S GET LOUDER!!! JOE AND JOANIE LAMENSKIE http://www.jimmiejo hnsonfoundation. org/hope. html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2008 Report Share Posted July 5, 2008 My understanding is that the Foundation's logo would go on the helmet. Our logo is one the home page.... Leanne > > > Subject: Jimmie Foundation > To: Breathe-Support , " HART, MARI-EMORY " , > RAFAEL PEREZ " , " LINDA EMORY PF GROUP " <lindan34@comcast > net>, " Jane/IPF " > Date: Friday, July 4, 2008, 12:35 AM > > > > LET'S GET ON THE BANDWAGON AND ENTER FOR IPF, JOE AND I HAVE ENTERED > SEPERATELY AND THE MORE THE BETTER CHANCE OF ACKNOWLEDGEMENT. ..PASS THIS ON > ,,,REMEMBER, BREAST CANCER TAKES AS MANY PEOPLE IN A YEAR AS DOES PF...SO > LET'S GET LOUDER!!! > > JOE AND JOANIE LAMENSKIE > > > > > > http://www.jimmiejo hnsonfoundation. org/hope. html > Quote Link to comment Share on other sites More sharing options...
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