Re: Just approved for disability

[Guest guest]

Congratulations on being approved so rapidly for SSDI. I know it's not much but it's something and sounds like it will at least keep a roof over your head. My life changed utterly and completely when I became ill. I went from a single mom working 50-60 hours a week to disabled and unable to work in a weekend.

A couple of thoughts....www.needymeds.com is a great resource to all the programs available from the different pharmaceutical companies for thousands of different meds. You'll have to fill out forms and prove your financial situation but I've gotten both Nexium and Advair for a full year at no charge from their respective manufacturers.

You probably should sit down and have an honest conversation with your children regarding finances. My son lives on his own now and he understands that I'm not able to help him financially as much as I'd like to be able to. We've filed Fafsa and he's going to school on Pell grants and other financial aid. There is an awful lot of aid out there for children whose parents are disabled.

Speaking of that your children who are under 19 should be eligible for Social Security payments based on your disability. You should also sit down and have a conversation with your pastor. There may be programs or aid available from your church that you would not have any knowledge of unless you ask.

Bruce makes a good point about Tina. I'm hoping she will respond to your post. She's a single mom with a little guy and this illness on top.

It's so frustrating to have to do all this work and advocate for ourselves when we're already sick but unfortunately that's the way it is. Don't get discouraged and keep coming back here to ask for help and ideas. I'll keep my thinking cap on for you Jean. God Bless you!

Beth

Age 48 Fibrotic NSIP 06/06

Change everything. Love and Forgive

Just approved for disability

Hi Everybody,

I just learned that I was approved for SSDI. The process took less than two months. I have felt very emotional, for at 52, my brain hasn't caught up with my diagnosis, and I don't think of myself as being that sick, unable to work, disabled, and all the rest. I don't think I've even begun to think about the "what now" piece. But the truth is, my disability benefit is so small, it will only pay my mortgage, and nothing else. I have contacted caringvoice. com, and spoke to them at length. They were very caring and kind, but admitted that they could offer no help, as I am not taking any trial or experimental medications that would qualify for their reimbursement. I am a single mother with four children, ages 18, 20, 22, and 23. I have two sons who have graduated from college, one of them at home for the summer, deciding on his next direction, the other living and working in Idaho. My daughter will

be a junior in college and my youngest son will be a senior in high school. Can ANYONE offer any help as to how they make it? God is mighty and able, and in Him all things are possible. He is more than able to do above and beyond all that we would dare ask, hope, or think. I am trusting in Him for all things. My fellow sojourners, if you can offer your insight, I would welcome it. Thank you for listening.

(Dx. with IPF 11/07)

[Guest guest]

Congratulations on being approved so rapidly for SSDI. I know it's not much but it's something and sounds like it will at least keep a roof over your head. My life changed utterly and completely when I became ill. I went from a single mom working 50-60 hours a week to disabled and unable to work in a weekend.

A couple of thoughts....www.needymeds.com is a great resource to all the programs available from the different pharmaceutical companies for thousands of different meds. You'll have to fill out forms and prove your financial situation but I've gotten both Nexium and Advair for a full year at no charge from their respective manufacturers.

You probably should sit down and have an honest conversation with your children regarding finances. My son lives on his own now and he understands that I'm not able to help him financially as much as I'd like to be able to. We've filed Fafsa and he's going to school on Pell grants and other financial aid. There is an awful lot of aid out there for children whose parents are disabled.

Speaking of that your children who are under 19 should be eligible for Social Security payments based on your disability. You should also sit down and have a conversation with your pastor. There may be programs or aid available from your church that you would not have any knowledge of unless you ask.

Bruce makes a good point about Tina. I'm hoping she will respond to your post. She's a single mom with a little guy and this illness on top.

It's so frustrating to have to do all this work and advocate for ourselves when we're already sick but unfortunately that's the way it is. Don't get discouraged and keep coming back here to ask for help and ideas. I'll keep my thinking cap on for you Jean. God Bless you!

Beth

Age 48 Fibrotic NSIP 06/06

Change everything. Love and Forgive

Just approved for disability

Hi Everybody,

I just learned that I was approved for SSDI. The process took less than two months. I have felt very emotional, for at 52, my brain hasn't caught up with my diagnosis, and I don't think of myself as being that sick, unable to work, disabled, and all the rest. I don't think I've even begun to think about the "what now" piece. But the truth is, my disability benefit is so small, it will only pay my mortgage, and nothing else. I have contacted caringvoice. com, and spoke to them at length. They were very caring and kind, but admitted that they could offer no help, as I am not taking any trial or experimental medications that would qualify for their reimbursement. I am a single mother with four children, ages 18, 20, 22, and 23. I have two sons who have graduated from college, one of them at home for the summer, deciding on his next direction, the other living and working in Idaho. My daughter will

be a junior in college and my youngest son will be a senior in high school. Can ANYONE offer any help as to how they make it? God is mighty and able, and in Him all things are possible. He is more than able to do above and beyond all that we would dare ask, hope, or think. I am trusting in Him for all things. My fellow sojourners, if you can offer your insight, I would welcome it. Thank you for listening.

(Dx. with IPF 11/07)