Re: Genetic testing for IPF

[Guest guest]

Jeam, you would be eligible for elderly susidized housing based on your disability. Your rent is 30% of your adjusted income. For example, is your adjusted annual income is $4,000.00, your rent would be $100 per month. Typically, you would pay your utilities. For this, there is an utility allowance. If the average monthly utiility cost for your size apartment is $50.00 a month, that is subtracted from your rent.

Thus in our example, your cash rent is $50.00 a month. If you are frugal and keep your utility costs down and pay less than the $50.00, you gain. It you are not careful with utilities and the cost is greater than $50.00, you lose.

You are also eligible for family subsidized housing, but the senior housing is calmer. The same rules for determing rent are the same. "Adjusted Income" means that all of your medical expenses, including mileage for travelling for health reasons, in-house care, etc., is subtracted from your income in determining your rent.

If you were living in Maine, I would set you up in one of my projects, as long as you don't use illegal drugs, get drunk and noisy, have wild parties, or beat up your boyfriend.

Jack

79/UIP - IPF/06/05 Maine

Genetic testing for IPF

Hi Everybody,

When I learned the outcome of my coronary biopsies revealed fibrosis, my cardiologist, (to whom I had been referred following my first catheterization) , referred me to a geneticist in the cardiology department. Labs were drawn to determine the presence of two genes that are currently identiable as carriers of IPF. There is only a 10% chance, however, that even if I am carrying the genes, that they will show up as positive. The results will take 6 weeks to 2 months. The geneticist was also going to send some blood to a researcher down in Texas for further evaluation. As my father died of IPF when I was 19, she felt it important at this time to do this testing to provide this information to my siblings, as well as my children. I had never heard before that fibrosis can appear in the heart tissue. I was told that persons who might be in their 80's let's say, might present with some fibrosis in their heart

tissue. I am 52. I'll let you all know what I learn. By the way, I applied for disability about two months ago, and I've been told that it still may be a while before I hear. Does anyone know about any additional sites who can provide help with insurance premiums, etc., because my income will be so dramatically reduced on disability, I don't know how I will make ends meet. Thank you for your suggestions of modestneeds. com, and carringvoice. com. I am in process of looking into them. God bless you all on your journeys, for He cares about you.

Jean

[Guest guest]

Yeah, yeah, it's the heat!

I manage my pain with pain meds. I go to a pain clinic and they adjust as needed. So many meds I have been allergic to and others have side effects. So I'm getting limited.

Thanks for asking.

MamaSher, age 69. IPF 3-06, OR./ NasturtiumsDon't fret about tomorrow, God is already there!

Re: Genetic testing for IPF

Mama-Sher, here's an interesting tidbit though. My older sister hadendometriosis in the uterus, and was also having a lot of pain in herelbow...and yup, you guessed it, they found the endometrial cells inher elbow!!! I can't remember what they did to fix it but was amazedto learn that those cells could travel to other parts of the body.Aren't we all just an amazing and fascinating machine?How are you managing the pain? You may have said before, but my brainis foggy a lot more these days...must be the heat. Yeah, yeah, that'sit, it's the heat! LOL!Hugs to you!Babs in Texas> > > >> > > > Hi Everybody,> > > > When I learned the outcome of my coronary biopsies revealed> > > fibrosis, my cardiologist, (to whom I had been referredfollowing my> > > first catheterization), referred me to a geneticist in the> cardiology> > > department.. Labs were drawn to determine the presence of twogenes> > > that are currently identiable as carriers of IPF. There is only> a 10%> > > chance, however, that even if I am carrying the genes, that they> will> > > show up as positive. The results will take 6 weeks to 2months. The> > > geneticist was also going to send some blood to a researcherdown in> > > Texas for further evaluation. As my father died of IPF when I> was 19,> > > she felt it important at this time to do this testing to provide> this> > > information to my siblings, as well as my children. I had never> heard> > > before that fibrosis can appear in the heart tissue. I wastold that> > > persons who might be in their 80's let's say, might present with> some> > > fibrosis in their heart tissue. I am 52. I'll let you all> > > > know what I learn. By the way, I applied for disabilityabout two> > > months ago, and I've been told that it still may be a whilebefore I> > > hear. Does anyone know about any additional sites who can provide> > > help with insurance premiums, etc., because my income will be so> > > dramatically reduced on disability, I don't know how I will make> ends> > > meet. Thank you for your suggestions of modestneeds.com, and> > > carringvoice.com. I am in process of looking into them. God bless> > > you all on your journeys, for He cares about you.> > > > Jean> > > >> > >> >>