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Beth, Bruce, et all. I too have the

yawning problem. I have difficulty fully yawning without going into a

coughing jag!!! I hadn't even realized that this had anything to do

with the NSIP.

I found out something else today as well. I've begun to have what I

thought was althlete's foot

areas on my left foot. I had no itching or burning just redness that

kept getting worse.

I used the Lotrimin foot spray over the week-end and it did not help

at all.

I could not figure out this morning which doctor I should

call...podiatrist, family practice or

dermatologist. I finally called the family practice. got an

appointment for 3:15 this afternoon.

...He said that there was no rash, it wasn't athlete's

foot, not a fungus.He feels that it is bruising from my shoes (which

by the way do not hurt at all)

He feels that the redness is another side effect from the prednisone

and Imuran making me bruise

so easily. that my feet are very sensitive. Who would have thought!!!

So he had blood work done to check again for all the white cell and red

cell

counts. They were fine a month ago! But who knows?

Z fibriotic NSIP/05

Z 64,

fibriotic NSIP/o5/PA

And “mild”

PH/10/07 and Reynaud’s too!!

No, NSIP was not

self-inflicted…I never smoked!

Potter,

reader,carousel lover and MomMom to

Darah

and Sara

“I’m gonna

be iron like a lion in Zion” Bob Marley

Vinca

Minor-periwinkle is my flower

Bruce Moreland wrote:

MB

Oh my.....yawning is still the worst thing to do. Who would have ever

thought a simple yawn would be difficult or painful. I thought it was

just me....

>

> Diane,

> It's so hard to say because what every person feels within his or

her

own body is so subjective. I've definitely had what I'd call tightness

in my chest. I'd describe it as a feeling of having a band tightly

wrapped around my upper body and the inability to take a deep breath.

One of the first things I remember noticing, long before I felt

significantly short of breath was that I somehow lost the ability to

yawn. I'd start to yawn and then suddenly on the inhale I'd just stop,

I couldn't get the amount of air in that was required for a nice big

yawn. I remember thinking it was weird but since I had no other

symptoms at the time I didn't think too much of it.

> Since my period of treatment with predinisone and my continuous

oxygen

use along with pulmonary rehab and regular exercise my shortness of

breath and that feeling of tightness is greatly diminished. I still

can't yawn very well but I've learned to live with it. I hope that

somehow answers your question, I do think the answer will be somewhat

different for each individual.

> Good luck!

>

> Beth

> Age 48 Fibrotic NSIP 06/06

>

> Change everything. Love and Forgive

>

>

>

>

>

> chest tightness

>

>

> Hello everyone,

> I¢ve been diagnosed with PF. I have a question regarding chest

tightness.

> First off, my heart is in great shape. It has been checked by

multiple

doctors and a half dozen tests, so it is not a heart issue.

> My chest and throat tightness is chronic and increasing. It isn¢t

painful, just tight. It started out as fleeting, then only after sitting

for a while.

> Then it was most of the day, but exercising or sleep would stop it.

Now it is all the time, no matter sitting, sleeping, exercising, or

standing.

> Is this related to PF?

> Thanks for your responses.

>

No virus found in this incoming message.

Checked by AVG - http://www.avg.com

Version: 8.0.138 / Virus Database: 270.4.6/1538 - Release Date: 7/7/2008 7:40 AM

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Share on other sites

Guest guest

Beth, Bruce, et all. I too have the

yawning problem. I have difficulty fully yawning without going into a

coughing jag!!! I hadn't even realized that this had anything to do

with the NSIP.

I found out something else today as well. I've begun to have what I

thought was althlete's foot

areas on my left foot. I had no itching or burning just redness that

kept getting worse.

I used the Lotrimin foot spray over the week-end and it did not help

at all.

I could not figure out this morning which doctor I should

call...podiatrist, family practice or

dermatologist. I finally called the family practice. got an

appointment for 3:15 this afternoon.

...He said that there was no rash, it wasn't athlete's

foot, not a fungus.He feels that it is bruising from my shoes (which

by the way do not hurt at all)

He feels that the redness is another side effect from the prednisone

and Imuran making me bruise

so easily. that my feet are very sensitive. Who would have thought!!!

So he had blood work done to check again for all the white cell and red

cell

counts. They were fine a month ago! But who knows?

Z fibriotic NSIP/05

Z 64,

fibriotic NSIP/o5/PA

And “mild”

PH/10/07 and Reynaud’s too!!

No, NSIP was not

self-inflicted…I never smoked!

Potter,

reader,carousel lover and MomMom to

Darah

and Sara

“I’m gonna

be iron like a lion in Zion” Bob Marley

Vinca

Minor-periwinkle is my flower

Bruce Moreland wrote:

MB

Oh my.....yawning is still the worst thing to do. Who would have ever

thought a simple yawn would be difficult or painful. I thought it was

just me....

>

> Diane,

> It's so hard to say because what every person feels within his or

her

own body is so subjective. I've definitely had what I'd call tightness

in my chest. I'd describe it as a feeling of having a band tightly

wrapped around my upper body and the inability to take a deep breath.

One of the first things I remember noticing, long before I felt

significantly short of breath was that I somehow lost the ability to

yawn. I'd start to yawn and then suddenly on the inhale I'd just stop,

I couldn't get the amount of air in that was required for a nice big

yawn. I remember thinking it was weird but since I had no other

symptoms at the time I didn't think too much of it.

> Since my period of treatment with predinisone and my continuous

oxygen

use along with pulmonary rehab and regular exercise my shortness of

breath and that feeling of tightness is greatly diminished. I still

can't yawn very well but I've learned to live with it. I hope that

somehow answers your question, I do think the answer will be somewhat

different for each individual.

> Good luck!

>

> Beth

> Age 48 Fibrotic NSIP 06/06

>

> Change everything. Love and Forgive

>

>

>

>

>

> chest tightness

>

>

> Hello everyone,

> I¢ve been diagnosed with PF. I have a question regarding chest

tightness.

> First off, my heart is in great shape. It has been checked by

multiple

doctors and a half dozen tests, so it is not a heart issue.

> My chest and throat tightness is chronic and increasing. It isn¢t

painful, just tight. It started out as fleeting, then only after sitting

for a while.

> Then it was most of the day, but exercising or sleep would stop it.

Now it is all the time, no matter sitting, sleeping, exercising, or

standing.

> Is this related to PF?

> Thanks for your responses.

>

No virus found in this incoming message.

Checked by AVG - http://www.avg.com

Version: 8.0.138 / Virus Database: 270.4.6/1538 - Release Date: 7/7/2008 7:40 AM

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Share on other sites

Guest guest

Beth, Bruce, et all. I too have the

yawning problem. I have difficulty fully yawning without going into a

coughing jag!!! I hadn't even realized that this had anything to do

with the NSIP.

I found out something else today as well. I've begun to have what I

thought was althlete's foot

areas on my left foot. I had no itching or burning just redness that

kept getting worse.

I used the Lotrimin foot spray over the week-end and it did not help

at all.

I could not figure out this morning which doctor I should

call...podiatrist, family practice or

dermatologist. I finally called the family practice. got an

appointment for 3:15 this afternoon.

...He said that there was no rash, it wasn't athlete's

foot, not a fungus.He feels that it is bruising from my shoes (which

by the way do not hurt at all)

He feels that the redness is another side effect from the prednisone

and Imuran making me bruise

so easily. that my feet are very sensitive. Who would have thought!!!

So he had blood work done to check again for all the white cell and red

cell

counts. They were fine a month ago! But who knows?

Z fibriotic NSIP/05

Z 64,

fibriotic NSIP/o5/PA

And “mild”

PH/10/07 and Reynaud’s too!!

No, NSIP was not

self-inflicted…I never smoked!

Potter,

reader,carousel lover and MomMom to

Darah

and Sara

“I’m gonna

be iron like a lion in Zion” Bob Marley

Vinca

Minor-periwinkle is my flower

Bruce Moreland wrote:

MB

Oh my.....yawning is still the worst thing to do. Who would have ever

thought a simple yawn would be difficult or painful. I thought it was

just me....

>

> Diane,

> It's so hard to say because what every person feels within his or

her

own body is so subjective. I've definitely had what I'd call tightness

in my chest. I'd describe it as a feeling of having a band tightly

wrapped around my upper body and the inability to take a deep breath.

One of the first things I remember noticing, long before I felt

significantly short of breath was that I somehow lost the ability to

yawn. I'd start to yawn and then suddenly on the inhale I'd just stop,

I couldn't get the amount of air in that was required for a nice big

yawn. I remember thinking it was weird but since I had no other

symptoms at the time I didn't think too much of it.

> Since my period of treatment with predinisone and my continuous

oxygen

use along with pulmonary rehab and regular exercise my shortness of

breath and that feeling of tightness is greatly diminished. I still

can't yawn very well but I've learned to live with it. I hope that

somehow answers your question, I do think the answer will be somewhat

different for each individual.

> Good luck!

>

> Beth

> Age 48 Fibrotic NSIP 06/06

>

> Change everything. Love and Forgive

>

>

>

>

>

> chest tightness

>

>

> Hello everyone,

> I¢ve been diagnosed with PF. I have a question regarding chest

tightness.

> First off, my heart is in great shape. It has been checked by

multiple

doctors and a half dozen tests, so it is not a heart issue.

> My chest and throat tightness is chronic and increasing. It isn¢t

painful, just tight. It started out as fleeting, then only after sitting

for a while.

> Then it was most of the day, but exercising or sleep would stop it.

Now it is all the time, no matter sitting, sleeping, exercising, or

standing.

> Is this related to PF?

> Thanks for your responses.

>

No virus found in this incoming message.

Checked by AVG - http://www.avg.com

Version: 8.0.138 / Virus Database: 270.4.6/1538 - Release Date: 7/7/2008 7:40 AM

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Share on other sites

Guest guest

, I always bruised easily when I was on prednisone but I never thought of my feet. Pays to check with the doctor huh?

The yawning is a funny kind of symptom. I always associated it with the fibrosis I guess because of my overall inability to take a really deep breath. But I remember mentioning it to my doctor in NY and he said, yup it's part of the package.

I miss yawning!

Beth

Age 48 Fibrotic NSIP 06/06

Change everything. Love and Forgive

chest tightness>>> Hello everyone,> I¢ve been diagnosed with PF. I have a question regarding chesttightness.> First off, my heart is in great shape. It has been checked by multipledoctors and a half dozen tests, so it is not a heart issue.> My chest and throat tightness is chronic and increasing. It isn¢tpainful, just tight. It started out as fleeting, then only after sittingfor a while.> Then it was most of the day, but exercising or sleep would stop it.Now it is all the time, no matter sitting, sleeping, exercising, orstanding.> Is this related to PF?> Thanks for your responses.>No virus found in this incoming message.

Checked by AVG - http://www.avg. com Version: 8.0.138 / Virus Database: 270.4.6/1538 - Release Date: 7/7/2008 7:40 AM

Link to comment
Share on other sites

Guest guest

, I always bruised easily when I was on prednisone but I never thought of my feet. Pays to check with the doctor huh?

The yawning is a funny kind of symptom. I always associated it with the fibrosis I guess because of my overall inability to take a really deep breath. But I remember mentioning it to my doctor in NY and he said, yup it's part of the package.

I miss yawning!

Beth

Age 48 Fibrotic NSIP 06/06

Change everything. Love and Forgive

chest tightness>>> Hello everyone,> I¢ve been diagnosed with PF. I have a question regarding chesttightness.> First off, my heart is in great shape. It has been checked by multipledoctors and a half dozen tests, so it is not a heart issue.> My chest and throat tightness is chronic and increasing. It isn¢tpainful, just tight. It started out as fleeting, then only after sittingfor a while.> Then it was most of the day, but exercising or sleep would stop it.Now it is all the time, no matter sitting, sleeping, exercising, orstanding.> Is this related to PF?> Thanks for your responses.>No virus found in this incoming message.

Checked by AVG - http://www.avg. com Version: 8.0.138 / Virus Database: 270.4.6/1538 - Release Date: 7/7/2008 7:40 AM

Link to comment
Share on other sites

Guest guest

, I always bruised easily when I was on prednisone but I never thought of my feet. Pays to check with the doctor huh?

The yawning is a funny kind of symptom. I always associated it with the fibrosis I guess because of my overall inability to take a really deep breath. But I remember mentioning it to my doctor in NY and he said, yup it's part of the package.

I miss yawning!

Beth

Age 48 Fibrotic NSIP 06/06

Change everything. Love and Forgive

chest tightness>>> Hello everyone,> I¢ve been diagnosed with PF. I have a question regarding chesttightness.> First off, my heart is in great shape. It has been checked by multipledoctors and a half dozen tests, so it is not a heart issue.> My chest and throat tightness is chronic and increasing. It isn¢tpainful, just tight. It started out as fleeting, then only after sittingfor a while.> Then it was most of the day, but exercising or sleep would stop it.Now it is all the time, no matter sitting, sleeping, exercising, orstanding.> Is this related to PF?> Thanks for your responses.>No virus found in this incoming message.

Checked by AVG - http://www.avg. com Version: 8.0.138 / Virus Database: 270.4.6/1538 - Release Date: 7/7/2008 7:40 AM

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Share on other sites

Guest guest

Bruce, The Doctor seemed concerned about

that too!!!

He'll get the blood tests rresults and then talk to the Pulmonologist

as well.

Just what I needed!

My shoes are never tight..I only wear comfortable ones..no socks this

time of year.

I promise not to take this lightly.

Z fibriotic NSIP/05

Z 64,

fibriotic NSIP/o5/PA

And “mild”

PH/10/07 and Reynaud’s too!!

No, NSIP was not

self-inflicted…I never smoked!

Potter,

reader,carousel lover and MomMom to

Darah

and Sara

“I’m gonna

be iron like a lion in Zion” Bob Marley

Vinca

Minor-periwinkle is my flower

Bruce Moreland wrote:

Watch your feet very closely. While it may be directly from the Imuran

or Prednisone and is something to be watched if so, it could also be a

warning that you're approaching diabetes. Either way its something to

make sure your pulmonologist is aware of, as strange as that sounds. Now

it also could be from swelling and shoes and looser shoes and even

diabetic socks might help. Just don't say something like "oh its just me

feet, it's nothing" and dismiss it too lightly.

> > >

> > > Diane,

> > > It's so hard to say because what every person feels

within his or

her

> > own body is so subjective. I've definitely had what I'd call

tightness

> > in my chest. I'd describe it as a feeling of having a band

tightly

> > wrapped around my upper body and the inability to take a deep

breath.

> > One of the first things I remember noticing, long before I

felt

> > significantly short of breath was that I somehow lost the

ability to

> > yawn. I'd start to yawn and then suddenly on the inhale I'd

just

stop,

> > I couldn't get the amount of air in that was required for a

nice big

> > yawn. I remember thinking it was weird but since I had no

other

> > symptoms at the time I didn't think too much of it.

> > > Since my period of treatment with predinisone and my

continuous

oxygen

> > use along with pulmonary rehab and regular exercise my

shortness of

> > breath and that feeling of tightness is greatly diminished. I

still

> > can't yawn very well but I've learned to live with it. I hope

that

> > somehow answers your question, I do think the answer will be

somewhat

> > different for each individual.

> > > Good luck!

> > >

> > > Beth

> > > Age 48 Fibrotic NSIP 06/06

> > >

> > > Change everything. Love and Forgive

> > >

> > >

> > >

> > >

> > >

> > > chest tightness

> > >

> > >

> > > Hello everyone,

> > > I¢ve been diagnosed with PF. I have a question regarding

chest

> > tightness.

> > > First off, my heart is in great shape. It has been

checked by

multiple

> > doctors and a half dozen tests, so it is not a heart issue.

> > > My chest and throat tightness is chronic and increasing.

It

isn¢t

> > painful, just tight. It started out as fleeting, then only

after

sitting

> > for a while.

> > > Then it was most of the day, but exercising or sleep

would stop

it.

> > Now it is all the time, no matter sitting, sleeping,

exercising, or

> > standing.

> > > Is this related to PF?

> > > Thanks for your responses.

> > >

> >

> >

> >

> >No virus found in this incoming message.

> >Checked by AVG - http://www.avg.com

> >Version: 8.0.138 / Virus Database: 270.4.6/1538 - Release Date:

7/7/2008 7:40 AM

> >

> >

>

No virus found in this incoming message.

Checked by AVG - http://www.avg.com

Version: 8.0.138 / Virus Database: 270.4.6/1538 - Release Date: 7/7/2008 7:40 AM

Link to comment
Share on other sites

Guest guest

Bruce, The Doctor seemed concerned about

that too!!!

He'll get the blood tests rresults and then talk to the Pulmonologist

as well.

Just what I needed!

My shoes are never tight..I only wear comfortable ones..no socks this

time of year.

I promise not to take this lightly.

Z fibriotic NSIP/05

Z 64,

fibriotic NSIP/o5/PA

And “mild”

PH/10/07 and Reynaud’s too!!

No, NSIP was not

self-inflicted…I never smoked!

Potter,

reader,carousel lover and MomMom to

Darah

and Sara

“I’m gonna

be iron like a lion in Zion” Bob Marley

Vinca

Minor-periwinkle is my flower

Bruce Moreland wrote:

Watch your feet very closely. While it may be directly from the Imuran

or Prednisone and is something to be watched if so, it could also be a

warning that you're approaching diabetes. Either way its something to

make sure your pulmonologist is aware of, as strange as that sounds. Now

it also could be from swelling and shoes and looser shoes and even

diabetic socks might help. Just don't say something like "oh its just me

feet, it's nothing" and dismiss it too lightly.

> > >

> > > Diane,

> > > It's so hard to say because what every person feels

within his or

her

> > own body is so subjective. I've definitely had what I'd call

tightness

> > in my chest. I'd describe it as a feeling of having a band

tightly

> > wrapped around my upper body and the inability to take a deep

breath.

> > One of the first things I remember noticing, long before I

felt

> > significantly short of breath was that I somehow lost the

ability to

> > yawn. I'd start to yawn and then suddenly on the inhale I'd

just

stop,

> > I couldn't get the amount of air in that was required for a

nice big

> > yawn. I remember thinking it was weird but since I had no

other

> > symptoms at the time I didn't think too much of it.

> > > Since my period of treatment with predinisone and my

continuous

oxygen

> > use along with pulmonary rehab and regular exercise my

shortness of

> > breath and that feeling of tightness is greatly diminished. I

still

> > can't yawn very well but I've learned to live with it. I hope

that

> > somehow answers your question, I do think the answer will be

somewhat

> > different for each individual.

> > > Good luck!

> > >

> > > Beth

> > > Age 48 Fibrotic NSIP 06/06

> > >

> > > Change everything. Love and Forgive

> > >

> > >

> > >

> > >

> > >

> > > chest tightness

> > >

> > >

> > > Hello everyone,

> > > I¢ve been diagnosed with PF. I have a question regarding

chest

> > tightness.

> > > First off, my heart is in great shape. It has been

checked by

multiple

> > doctors and a half dozen tests, so it is not a heart issue.

> > > My chest and throat tightness is chronic and increasing.

It

isn¢t

> > painful, just tight. It started out as fleeting, then only

after

sitting

> > for a while.

> > > Then it was most of the day, but exercising or sleep

would stop

it.

> > Now it is all the time, no matter sitting, sleeping,

exercising, or

> > standing.

> > > Is this related to PF?

> > > Thanks for your responses.

> > >

> >

> >

> >

> >No virus found in this incoming message.

> >Checked by AVG - http://www.avg.com

> >Version: 8.0.138 / Virus Database: 270.4.6/1538 - Release Date:

7/7/2008 7:40 AM

> >

> >

>

No virus found in this incoming message.

Checked by AVG - http://www.avg.com

Version: 8.0.138 / Virus Database: 270.4.6/1538 - Release Date: 7/7/2008 7:40 AM

Link to comment
Share on other sites

Guest guest

Bruce, The Doctor seemed concerned about

that too!!!

He'll get the blood tests rresults and then talk to the Pulmonologist

as well.

Just what I needed!

My shoes are never tight..I only wear comfortable ones..no socks this

time of year.

I promise not to take this lightly.

Z fibriotic NSIP/05

Z 64,

fibriotic NSIP/o5/PA

And “mild”

PH/10/07 and Reynaud’s too!!

No, NSIP was not

self-inflicted…I never smoked!

Potter,

reader,carousel lover and MomMom to

Darah

and Sara

“I’m gonna

be iron like a lion in Zion” Bob Marley

Vinca

Minor-periwinkle is my flower

Bruce Moreland wrote:

Watch your feet very closely. While it may be directly from the Imuran

or Prednisone and is something to be watched if so, it could also be a

warning that you're approaching diabetes. Either way its something to

make sure your pulmonologist is aware of, as strange as that sounds. Now

it also could be from swelling and shoes and looser shoes and even

diabetic socks might help. Just don't say something like "oh its just me

feet, it's nothing" and dismiss it too lightly.

> > >

> > > Diane,

> > > It's so hard to say because what every person feels

within his or

her

> > own body is so subjective. I've definitely had what I'd call

tightness

> > in my chest. I'd describe it as a feeling of having a band

tightly

> > wrapped around my upper body and the inability to take a deep

breath.

> > One of the first things I remember noticing, long before I

felt

> > significantly short of breath was that I somehow lost the

ability to

> > yawn. I'd start to yawn and then suddenly on the inhale I'd

just

stop,

> > I couldn't get the amount of air in that was required for a

nice big

> > yawn. I remember thinking it was weird but since I had no

other

> > symptoms at the time I didn't think too much of it.

> > > Since my period of treatment with predinisone and my

continuous

oxygen

> > use along with pulmonary rehab and regular exercise my

shortness of

> > breath and that feeling of tightness is greatly diminished. I

still

> > can't yawn very well but I've learned to live with it. I hope

that

> > somehow answers your question, I do think the answer will be

somewhat

> > different for each individual.

> > > Good luck!

> > >

> > > Beth

> > > Age 48 Fibrotic NSIP 06/06

> > >

> > > Change everything. Love and Forgive

> > >

> > >

> > >

> > >

> > >

> > > chest tightness

> > >

> > >

> > > Hello everyone,

> > > I¢ve been diagnosed with PF. I have a question regarding

chest

> > tightness.

> > > First off, my heart is in great shape. It has been

checked by

multiple

> > doctors and a half dozen tests, so it is not a heart issue.

> > > My chest and throat tightness is chronic and increasing.

It

isn¢t

> > painful, just tight. It started out as fleeting, then only

after

sitting

> > for a while.

> > > Then it was most of the day, but exercising or sleep

would stop

it.

> > Now it is all the time, no matter sitting, sleeping,

exercising, or

> > standing.

> > > Is this related to PF?

> > > Thanks for your responses.

> > >

> >

> >

> >

> >No virus found in this incoming message.

> >Checked by AVG - http://www.avg.com

> >Version: 8.0.138 / Virus Database: 270.4.6/1538 - Release Date:

7/7/2008 7:40 AM

> >

> >

>

No virus found in this incoming message.

Checked by AVG - http://www.avg.com

Version: 8.0.138 / Virus Database: 270.4.6/1538 - Release Date: 7/7/2008 7:40 AM

Link to comment
Share on other sites

Guest guest

, There is no burning or swelling or

tingling at all.In fact If I hadn't looked at my foot I

 would not know any thing was wrong at all!  My mild Reynauld's only

drives me nuts in the winter!

 The fingers get blue at the slightest cold. I wear gloves  sometimes

in the house too!

I've been on both Prednisone ( from 40 down to 10) and Imuran ( from

100 now 87.5) for 3 years.

Now this stuff is happening!!!

Z fibriotic NSIP/05

Z 64,

fibriotic NSIP/o5/PA

And “mild”

PH/10/07 and Reynaud’s too!!

No, NSIP was not

self-inflicted…I never smoked!

Potter,

reader,carousel lover and MomMom to

Darah

and Sara      

“I’m gonna

be iron like a lion in Zion”  Bob Marley

Vinca

Minor-periwinkle is my flower

 

 

wrote:

,

 

  I am also on Prednisone ( down to 25mgs.) and Imuran (

for 2 weeks) and have Reynaud's. My feet have been swelling and the

veins popping out. They tingle and burn. My hands and arms burn and my

fingers swell. When I went to rheumatologist two weeks ago, I had all

of those things except for swelling in my feet. She said these things

were related to the Raynaud's and gave me nitoglycerin cream to rub on

my hands and feet.  Since I've started taking Imuran, my hands and feet

are swelling continually. It's hard to differentiate the Reynaud's from

the side effects of the two meds. Knowing that Prednisone can lead to

diabetes, I'm watching for signs and taking care of my feet. How does

your Raynaud's effect you? Before prednisone, it was only in

the shriveling and discoloration of my fingers. Now, I have these

"monster" hands and feet that swell, burn and throb. I'll be watching

closely to see what your doctor says. It's enough that we are dealing

with a major lung issue without all these little side trips cropping

up!

PF, Sjogren's, Reynaud's Apr.'08

TX age 52

Watch your feet very closely. While it may be directly from the Imuran

or Prednisone and is something to be watched if so, it could also be a

warning that you're approaching diabetes. Either way its something to

make sure your pulmonologist is aware of, as strange as that sounds. Now

it also could be from swelling and shoes and looser shoes and even

diabetic socks might help. Just don't say something like "oh its just me

feet, it's nothing" and dismiss it too lightly.

> > >

> > > Diane,

> > > It's so hard to say because what every person feels

within his or

her

> > own body is so subjective. I've definitely had what I'd call

tightness

> > in my chest. I'd describe it as a feeling of having a band

tightly

> > wrapped around my upper body and the inability to take a deep

breath.

> > One of the first things I remember noticing, long before I

felt

> > significantly short of breath was that I somehow lost the

ability to

> > yawn. I'd start to yawn and then suddenly on the inhale I'd

just

stop,

> > I couldn't get the amount of air in that was required for a

nice big

> > yawn. I remember thinking it was weird but since I had no

other

> > symptoms at the time I didn't think too much of it.

> > > Since my period of treatment with predinisone and my

continuous

oxygen

> > use along with pulmonary rehab and regular exercise my

shortness of

> > breath and that feeling of tightness is greatly diminished. I

still

> > can't yawn very well but I've learned to live with it. I hope

that

> > somehow answers your question, I do think the answer will be

somewhat

> > different for each individual.

> > > Good luck!

> > >

> > > Beth

> > > Age 48 Fibrotic NSIP 06/06

> > >

> > > Change everything. Love and Forgive

> > >

> > >

> > >

> > >

> > >

> > > chest tightness

> > >

> > >

> > > Hello everyone,

> > > I¢ve been diagnosed with PF. I have a question regarding

chest

> > tightness.

> > > First off, my heart is in great shape. It has been

checked by

multiple

> > doctors and a half dozen tests, so it is not a heart issue.

> > > My chest and throat tightness is chronic and increasing.

It

isn¢t

> > painful, just tight. It started out as fleeting, then only

after

sitting

> > for a while.

> > > Then it was most of the day, but exercising or sleep

would stop

it.

> > Now it is all the time, no matter sitting, sleeping,

exercising, or

> > standing.

> > > Is this related to PF?

> > > Thanks for your responses.

> > >

> >

> >

> >

> >No virus found in this incoming message.

> >Checked by AVG - http://www.avg. com

> >Version: 8.0.138 / Virus Database: 270.4.6/1538 - Release Date:

7/7/2008 7:40 AM

> >

> >

>

No virus found in this incoming message.

Checked by AVG - http://www.avg. com

Version: 8.0.138 / Virus Database: 270.4.6/1538 - Release Date: 7/7/2008 7:40 AM

No virus found in this incoming message.

Checked by AVG - http://www.avg.com

Version: 8.0.138 / Virus Database: 270.4.6/1540 - Release Date: 7/8/2008 6:33 AM

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