more help needed

[Guest guest]

Hi Peggy,

I am getting VERY frustrated. Can't even get in to see a new GP

until 23 June -- don't have a pulmonary doc anymore. He would not

even talk to me on the phone. There is one a few miles away in the

next town, but his first opening is in August.

My husband has been so upset that he was rushed by ambulance (looked

like he was having a heart attack - was gastritis). I am helpless

without his care. Friends from Kentucky are here this week helping

us, but are leaving Thursday.

I rec'd paperwork from MAYO - ville and am attempting to put

the paperwork together.

Having difficulity breathing with minimal activity. 02 is now at 3.5

and just going into the bathroom with O2 it drops to the 80's.

Thanks for letting me vent ... how do you die with this disease -

sufficate ???

Trying to leave things in God's hands - but would sure like some

insight.

a

>

> I am recovering from double phnumonia (1st time). On O2 at 3 24/7.

> Getting PT and Nurse visits at home now. All new to me. My O2 is at

> about 94 on 3ltr at rest, but as soon as I stand up and do anything

it

> drops to low 80's. Will this improve?

>

> I have IPF, COPD, Fibromyalgia and CAD. Can you tell me how long I

> should wait to get another opinion on my dx. Only one pulm in town

and

> not very co-operative. Any info I have had to get myself. Results

came

> from CT taken last week in hospital that said there is significant

> increase of disease from last yr CT.

> Working on appt at Mayo in ville.

>

> Any help much appreciated.

>

> a Daughton

>