Re: Re: Don't know how much more I can take......UPDATE

January 30, 2011

Thanks to all who helped yesterday.....after 1 dose of antibiotics my son has

had a much better day.....this appears to have been a PANDAS issue...and not the

valtrex.

--

Kasey Dettinger

---- pom5903 wrote:

> You need to get blood work such as ASO and anti-Dnase antibody titers to see

if there has ever been a strep exposure, in the present or past. PANDAS experts

are finding that not only strep is causing symptoms of PANDAS, but mycoplasma

pneumonia (test myco-p IgA and IgM), lyme, and viral infections. Strep is often

the first infection to start it, but any of these subsequent infections can

exacerbate the craziness again.

>

> > > > RUN to your dr and get him tested for strep you just discribed PANDAS to

a T and it's treatable and you can get QUICK results with the right antibiotic

> > > >

> > > > From: kldett@...

> > > > Sent: Saturday, January 29, 2011 10:19 AM

> > > > Subject: Don't know how much more I can take......

> > > >

> > > > I wrote a few days ago how awful this regression has been from the

valtrex and diflucan....and someone suggested to go back and read Stan's paper

which I did. It's been about 5 weeks and seriously I don't know how much longer

I can watch him hit his head and bite and scratch himself/others. I am afraid he

is going to hurt his sister. I can tell something is coming out of him right now

because he is very raspy and sounds like his throat hurts. How bad do you let it

get before you call it quits.....it is really affecting everyone in our

home.....

> > > > --

> > > > Kasey

> > > >

> > >

> >

>

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