Hi Ruth

[Guest guest]

Sorry you had to look for us but glad you found us. Welcome. Feel

free to come and go as you please and unload your thoughts and fears

as you need. GP docs really don't understand. Mine recently

referred to my disease as ARDS even though he has a copy of my biopsy

and knows exactly what its name is, not ARDS. Even my pulmo has a

difficult time understanding. I told him I can feel it when it is

going to act up. He says there are no nerve feelings in the lungs

and that is not possible. But I do feel it.

Please take care of yourself in the sweltering heat and humidity over

there.

S, Lubbock, TX

NSIP w/PF 12/2006

> > > >

> > > > You're welcome, Grandma. There's plenty of us here who also

> > are

> > > grands. This is a good place to learn about fibrosis and

> > associated

> > > diseases. It' been my school for a few months now. I'm about

to

> > > finish grade school, and look forward to moving on to high

> > school. I

> > > am very ambitious and hope to get my PHD some day.

> > > > Jack

> > > > 79/UIP - IPF/06/005 Maine

> > > >

> > > >

> > > > looking for information & friends

> > > >

> > > >

> > > > hi Everyone,just wanted to drop in and say hello.I have

read

> > some

> > > of

> > > > your post and found them very interesting. Hope you didn't

> mind.

> > > > I was introduced to PF years ago. I am on oxygen.

> > > > I can tell my breathing is getting a lot worse.

> > > > My dh has had COPD for years, and i have been takeing care

of

> > him.

> > > > So if i get really bad then we will be in bad shape.

> > > > This computer is the only friend I have to the out side

> > world.I'm

> > > not

> > > > really good on it but i do like to visit and learn what I

can.

> > > > Thanks for shareing with me,

> > > >

> > >

> >

>