Guest guest Posted June 14, 2008 Report Share Posted June 14, 2008 Steve, I'm puzzled. It's been three years since the dx. Truthfully, until the day of the dx I had never been sick except for an occasional cold and my hypthyroidism and I can't even tell that I have that. I don't smoke, don't use alcohol, my diet is mostly fruit and veggies, I don't get stressed (that's a mind control thing), I have a modest exercise program. I love and get loved. I enjoy helping people (the why of the oximeters), mostly I mentor other playwrights who range in age from twenties to my favorite, Veda, who is 98 years old. In addition to my work with my theater and my writing, I work full time (up to 50 hours a week) running my business, but I plan to give that up by the end of the year. I also work with the local lieracry volunteers program, teaching English as a foreign language. This is something I did years ago while in the USAF. But I digress. I have had a wonderful life and still do. Fibrosis is to me one more thing to deal with, and I try to do it in the most positive way I can. Joining this group and meeting some truly extraordinary and heroic people is to me positive. And finally, no I don't get chest pains nor SOB. I know that someday those things are likely to occur. Thanks to this group, I am somewhat prepared. Jack My OximeterDate: Fri, 13 Jun 2008 14:39:18 -0700 (PDT) Hello all, I followed my advice to every one else and bought myself an oximeter. Today I used it for the first time. I'm going to list my readings and hope one of you will interpret them for me: I live in a neighborhood of steep hills, so I have developed a 30 minute walk that goes down the steepest hills and up the more shallow ones. My walk today was 30 minutes, starting down hill and then level for a while. My stride was reasonably brisk. !. At six minutes, at the bottom of the hill and a short level walk: 98 2. 12 minutes on level ground: 98 3. A short rest - maybe 7 minutes. 4. Some distance across fairly level ground with a gradual increase in incline, then up the hill (less steep than the previous hill): 96 5. A short rest - 5 minutes. 6. The rest of walk was a combination of gradually rising terrain, then downhill, then rising faster to my house, ending the 30 minutes: 98 At the same time my heart rate seemed normally faster, my BP hovered around 120/60. Keep in mind that it has been 62 years since I was 17 and a raw recruit in USAF boot camp in Texas in August. I've only had the regular PFTs given at the hospital and those have little to no variation from the original. The medic posts the original up and I can watch the lines during the test as they pretty much a match. I have never had a 6 minute walk test, or any other test. So I hope my self-test shows me something, preferably positive. Jack 79/UIP - IPF/06/05 Maine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2008 Report Share Posted June 14, 2008 Senorita Bonita If you live where I do, you cannot walk anywhere in the neighbhood without going up and down hills. I happen to live at the very top of the steepest hill, and it is just fine going down hill. It's the coming back that's hard. I carry my cell phone in case I tire so I can call my chaufeur to bring around the Rolls. If I'm feeling sporty, I order Jag. These are always difficult decisions, you know, which car is most appropriate and best suits ones mood. The walk itself is pleasant. I can glimpse the Penobscot River between the buildings and gaze in appall at the huge new neo-Hollywood slot machine emporium just built along my route, rest in the park with a gigantic statue of Bunyon, then climb to top of the next hill to pass by the civic center, which fortunately has benchs in front. The rest is downhill until I get to the backside of my hill and have to go up to reach my house. Oh, I forgot the race track where on lucky days I can watch the trotters exercising. I love watching them and the aroma of fresh manure. Reinvigorating. So, mi senorta bonita, come to Maine. We're chemical free. We can walk the hills holding hands. Jack My Oximeter Hello all, I followed my advice to every one else and bought myself an oximeter. Today I used it for the first time. I'm going to list my readings and hope one of you will interpret them for me: I live in a neighborhood of steep hills, so I have developed a 30 minute walk that goes down the steepest hills and up the more shallow ones. My walk today was 30 minutes, starting down hill and then level for a while. My stride was reasonably brisk. !. At six minutes, at the bottom of the hill and a short level walk: 98 2. 12 minutes on level ground: 98 3. A short rest - maybe 7 minutes. 4. Some distance across fairly level ground with a gradual increase in incline, then up the hill (less steep than the previous hill): 96 5. A short rest - 5 minutes. 6. The rest of walk was a combination of gradually rising terrain, then downhill, then rising faster to my house, ending the 30 minutes: 98 At the same time my heart rate seemed normally faster, my BP hovered around 120/60. Keep in mind that it has been 62 years since I was 17 and a raw recruit in USAF boot camp in Texas in August. I've only had the regular PFTs given at the hospital and those have little to no variation from the original. The medic posts the original up and I can watch the lines during the test as they pretty much a match. I have never had a 6 minute walk test, or any other test. So I hope my self-test shows me something, preferably positive. Jack 79/UIP - IPF/06/05 Maine Quote Link to comment Share on other sites More sharing options...
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