Guest guest Posted June 25, 2008 Report Share Posted June 25, 2008 Hi Everybody, When I learned the outcome of my coronary biopsies revealed fibrosis, my cardiologist, (to whom I had been referred following my first catheterization), referred me to a geneticist in the cardiology department. Labs were drawn to determine the presence of two genes that are currently identiable as carriers of IPF. There is only a 10% chance, however, that even if I am carrying the genes, that they will show up as positive. The results will take 6 weeks to 2 months. The geneticist was also going to send some blood to a researcher down in Texas for further evaluation. As my father died of IPF when I was 19, she felt it important at this time to do this testing to provide this information to my siblings, as well as my children. I had never heard before that fibrosis can appear in the heart tissue. I was told that persons who might be in their 80's let's say, might present with some fibrosis in their heart tissue. I am 52. I'll let you all know what I learn. By the way, I applied for disability about two months ago, and I've been told that it still may be a while before I hear. Does anyone know about any additional sites who can provide help with insurance premiums, etc., because my income will be so dramatically reduced on disability, I don't know how I will make ends meet. Thank you for your suggestions of modestneeds.com, and carringvoice.com. I am in process of looking into them. God bless you all on your journeys, for He cares about you. Jean Quote Link to comment Share on other sites More sharing options...
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