Guest guest Posted June 26, 2008 Report Share Posted June 26, 2008 I'm very excited - we've had our third HPS lung transplant and the gal that got it is doing great. They're calling her the superstar at the hospital. Grin! And, her explanted lung went to research on pulmonary fibrosis at NIH. Yoohoo! Kirkwood Director of Outreach, Vice President Hermansky-Pudlak Syndrome Network One South Road Oyster Bay, NY 11771 1 (800) 789-9HPS www.hermansky-pudlak.org Personal blog: www.heatherkirkwood.blogspot.com Search the Web at www.goodsearch.com and choose the HPS Network as your charity! Quote Link to comment Share on other sites More sharing options...
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