Re: Has Anyone Gone Through Pregnancy With PF?

[Guest guest]

ette,

I'm 48 and my son is nearly 23. I was diagnosed two years ago so obviously for me the answer is no. I have no idea how advanced your disease is so alot would depend on that.

But I can tell you that I've had conversations about this subject with my sister. She is a physician, a specialist in high risk obstetrics at Duke University medical center. She has told me that it would be possible to support a pregnancy even with disease as advanced as mine. (However not at my age lol)

It would take very careful monitoring and lots of really high quality prenatal care but it might be possible. Please know however this information is only based on casual conversations with my sister and nothing can substitute for your own doctors advice.

Are you pregnant now? Or just considering?

Beth

Age 48 Fibrotic NSIP 06/06

Change everything. Love and Forgive

Has Anyone Gone Through Pregnancy With PF?

Has anyone gone through pregnancy with PF? If so, please let me know what you feel comfortable sharing. Many thanx!ettePF/PHNew Castle, DE

[Guest guest]

ette,

I just noticed that you also have pulmonary hypertension. That presents and additional risk factor but even that doesn't entirely rule out a successful pregnancy, it just requires alot of caution and careful monitoring.

Beth

Age 48 Fibrotic NSIP 06/06

Change everything. Love and Forgive

Has Anyone Gone Through Pregnancy With PF?

Has anyone gone through pregnancy with PF? If so, please let me know what you feel comfortable sharing. Many thanx!ettePF/PHNew Castle, DE

[Guest guest]

ette,

I was diagnosed when I was 6 months pregnant w/ my daughter in 2001.

I remember symptoms back to 1998. I then had my son in 2004. Let me

know what questions you have. I have IPF and appeared stable until

about 2005/2006. We don't know what ever caused it, we don't know why

I was stable all those years, we don't know what created the downhill

slide. It's been rapid though in the past year and I'm now on the

list for bilateral transplant. I don't have any other factors at all,

I actually describe myself as a ridiculously healthy 37 year old w/

crappy lungs. I've not been on any meds really to " treat " the IPF,

just cough suppressants. My kids are fantastically wonderfully

healthy and they didn't consider either of my pregnancy's to be high-

risk necessarily. However, they did have me on steroids for both

deliveries and both were induced on their due dates so as not to go

over. I consulted w/ my Pulmo prior to deciding about the second one

and he gave me the green light. We really thought we had things in

hand, low and behold not so much and I really, really struggled w/ my

breathing so much so I was hospitalized for panic attacks after a

sinus infection in the 3rd trimester. I was on O2 at night only in

the 3rd trimester of the first and maybe the 2nd half of the 2nd

pregnancy. I'm just rambling now... let me know what you want to know

and I'll be glad to answer anything I can.

Kerry

37 IPF '01 S. IN

>

> Has anyone gone through pregnancy with PF? If so, please let me know

> what you feel comfortable sharing. Many thanx!

>

> ette

> PF/PH

> New Castle, DE

>