Re: aba coverage : self funded : federally regulated ..NJ ..Help

January 31, 2011

Please don’t exhaust other options before chelating. I know I’m going to be blasted by others on this list for saying that, but I can’t in good conscience watch a child possibly have negative consequences from not speaking up especially when there are so many other options to try first.. I was just told by another mom about a kid who was chelated and died as a result. This doctor’s credentials are being looked into and who knows if things were done right. But this can be dangerous. And our doctor says the damage from chelation can be seen on brain neurospects.My son is recovered and in college at 22 as a result of the NIDS protocol. Please know your son can get better with proper medical treatment and then rehabilitation. No parent should accept that their child cannot be helped. We treated with antivirals on the NIDS protocol. Maybe he has the XMRV retrovirus, and it was addressed by using the antivirals and other things we did to help his immune problem. I don’t know the answer to that question. However, is living proof that kids can get better. was diagnosed when he was four years old. A psychiatrist who was the leading authority on autism said my child would never be okay. According to this expert, was going to end up in an institution or group home. Now at 22, the only institution attends is a University where he studies mechanical engineering on a merit scholarship. excels academically and is in the Engineering Honor Society (top 10% GPA). He‘s a member of Sigma Chi Fraternity and was president of the Jewish Student Association. And he just received a NASA paid internship and scholarship. But more importantly, is a typical college student who drinks an occasional beer, goes on dates, stays out too late with friends and then sleeps through eight o’clock classes. I couldn’t be more proud!Unbelievable as it seems, this is the same child who wanted to spend all day, every day, plugging in a portable radio into each outlet in the house. Back then, I wasn’t sure if I had the strength to be more stubborn than my son. There were mornings I didn’t want to get out of bed to face another day filled with autism. The worst times were when I didn’t have a direction or a plan. I was hanging onto my sanity by my fingernails. But, at the end of the day, I was faced with a choice: let drift off forever into his own world, or drag him kicking and screaming into ours.Now it may look like we knew what we were doing back then. But we didn’t. It was trial and error to see what worked to help him. After we helped medically, it was possible for him to learn. Behavioral and educational interventions were used in conjunction with the medical treatment to catch up on everything he missed. Initially, we used Applied Behavior Analysis (ABA) for his rehabilitation and when he was ready we moved towards more natural ways of teaching. It took years to correct ’s deficits in speech and social skills. It was almost like taking a stroke victim and bringing them back. Our story is not about coping with autism, but rather fighting back and not accepting the misconceptions associated with this diagnosis. This process is definitely not for sissies or parents looking for that magic cure. If you would like more info on what we did medically, please email me privately. Hope this helps,Marcia

January 31, 2011

Please don’t exhaust other options before chelating. I know I’m going to be blasted by others on this list for saying that, but I can’t in good conscience watch a child possibly have negative consequences from not speaking up especially when there are so many other options to try first.. I was just told by another mom about a kid who was chelated and died as a result. This doctor’s credentials are being looked into and who knows if things were done right. But this can be dangerous. And our doctor says the damage from chelation can be seen on brain neurospects.My son is recovered and in college at 22 as a result of the NIDS protocol. Please know your son can get better with proper medical treatment and then rehabilitation. No parent should accept that their child cannot be helped. We treated with antivirals on the NIDS protocol. Maybe he has the XMRV retrovirus, and it was addressed by using the antivirals and other things we did to help his immune problem. I don’t know the answer to that question. However, is living proof that kids can get better. was diagnosed when he was four years old. A psychiatrist who was the leading authority on autism said my child would never be okay. According to this expert, was going to end up in an institution or group home. Now at 22, the only institution attends is a University where he studies mechanical engineering on a merit scholarship. excels academically and is in the Engineering Honor Society (top 10% GPA). He‘s a member of Sigma Chi Fraternity and was president of the Jewish Student Association. And he just received a NASA paid internship and scholarship. But more importantly, is a typical college student who drinks an occasional beer, goes on dates, stays out too late with friends and then sleeps through eight o’clock classes. I couldn’t be more proud!Unbelievable as it seems, this is the same child who wanted to spend all day, every day, plugging in a portable radio into each outlet in the house. Back then, I wasn’t sure if I had the strength to be more stubborn than my son. There were mornings I didn’t want to get out of bed to face another day filled with autism. The worst times were when I didn’t have a direction or a plan. I was hanging onto my sanity by my fingernails. But, at the end of the day, I was faced with a choice: let drift off forever into his own world, or drag him kicking and screaming into ours.Now it may look like we knew what we were doing back then. But we didn’t. It was trial and error to see what worked to help him. After we helped medically, it was possible for him to learn. Behavioral and educational interventions were used in conjunction with the medical treatment to catch up on everything he missed. Initially, we used Applied Behavior Analysis (ABA) for his rehabilitation and when he was ready we moved towards more natural ways of teaching. It took years to correct ’s deficits in speech and social skills. It was almost like taking a stroke victim and bringing them back. Our story is not about coping with autism, but rather fighting back and not accepting the misconceptions associated with this diagnosis. This process is definitely not for sissies or parents looking for that magic cure. If you would like more info on what we did medically, please email me privately. Hope this helps,Marcia

January 31, 2011

>

> Please don’t exhaust other options before chelating. I know I’m going to be

blasted by others on this list for saying that,

No, you're not. Caution is, in my opinion, always warranted in everything you

do. That doesn't mean that everyone is going to have your opinion on chelation,

though.

> but I can’t in good conscience watch a child possibly have negative

consequences from not speaking up especially when there are so many other

options to try first.. I was just told by another mom about a kid who was

chelated and died as a result. This doctor’s credentials are being looked into

and who knows if things were done right. But this can be dangerous.

I have no intention of arguing with you about the merits of chelation. I really

just want to address the very tragic death.

This is an old story. He is not currently being investigated for anything

related to this because it's over and done. Here is what happened to the

doctor. http://www.casewatch.org/board/med/kerry/complaint.shtml (this of

course, was posted by someone who is very much anti-biomed since he left out

some very important information - meaning what he says is very true, but certain

things left out to give a certain impression). You'll notice he says what

medication the boy was given, that he has autism and then goes into the theory

of metals/autism. But he leaves out one very crucial piece of information.

The fact of the matter is, he was given the wrong medication and did die as a

result. The boy's name was Abubakar Tariq Nadama and it was tragic. There are

lots of stories online that make a lot of claims and assumptions but it wasn't

chelation that killed him, it was the wrong drug. This was in 2005, I believe.

To my knowledge, he's the only child that has died from chelation with a DAN (I

believe Usman was his actual Dr. - he went to Kerry for the IV). There are two

types of EDTA and he was given Disodium EDTA instead of Calcium Disodium EDTA.

Here is the autopsy report, interpreted by the CDC, from the Pittsburgh Post

Gazette http://www.post-gazette.com/pg/06018/639721.stm

I specifically chose not to send a link from a pro-biomed source so you can see

that it's not something just made up by the autism community.

You can google his name and you will find a slew of negative things being said.

I'm telling you this because the information is readily available and much of it

is completely unreliable - but out there. It's easy for people that don't

actually know anything about it to sling the mud. It's easy for those that only

hear the horror of Tariq's death to sit in judgment. There's more than one way

to chelate. And there are alternatives to IV and high dose chelation. But the

baby gets thrown out with the bath water because people that don't actually know

anything about chelation think it's okay to sit in judgment and yack loudly and

proudly about something they don't even understand and leave out certain details

in order to make themselves sound more compelling. The story is used to somehow

" prove " that chelation is dangerous and terrible and unfounded when the sad fact

is the boy died. And died because he was given the wrong medication. It's

tragic and the whole ordeal has been used as some kind of pawn in the autism vs.

the rest of medicine game. Clearly something went wrong and I would have sued

that a$$hole doctor that did something so careless and permanent myself. And I

don't doubt he tried to do whatever he could to try to worm his way out of it -

it's human nature to want to save yourself. Mistakes happen - unfortunately

this one took a life. My husbands former boss's wife also had the wrong lung

removed in a transplant surgery. It happens in mainstream medicine, too.

t happened 6 years ago and is no less tragic now than it was then. His story

keeps getting passed around and somehow, it keeps sounding like this is

something that just happened recently and then there's confusion that this is a

*new* boy. It's one boy's story being told over and over trying to make people

believe it happened yesterday and trying to make people believe that chelation

is unwarranted - something that today is still unproven *either way*.

Safety and efficacy of the choices anyone makes should always be researched.

There's plenty of debate *within* biomed about the different types of chelation

therapies and there safety. Personally, I would never IV chelate. Nor would I

consider high dose chelation. But that's because I researched and made a choice

that was right for us.

A family was crushed and will never fully recover. I don't blame the parents

for any reaction they have, even if it's to rain down hellfire on any kind of

alternative treatments. They have that right, they lost a child in their quest

for help. I don't know how I would react in their shoes.

He needs to be remembered for being a boy that needed help. A boy that could

have had a future and parents that could have had their son for so much longer

than they got. A boy that died because of a mistake. Not some poster-child to

support an agenda he doesn't even fit.

Cheryl

January 31, 2011