Re: Call from Sher's pulmonologist

[Guest guest]

Oh, I'm glad there has been little progression. Is this a new doc? He's on your wavelength which is a good thing.

Love Ze xx>> Dr called today w/results on the testing I had a couple of weeks ago.> There has been some progression but nothing gigantic. That's about it in a nutshell.> We did discuss the change in my IPF dx to NSIP (by another Dr.) and this one says he does not agree. I definitely have a form of PF but he is not sure "what form". He says I have an "atypical" form because of the pattern of progression (or lack of).> But what the hell, it's all PF when the chips are called in, so I'm just not going to focus on it. The way it is is the way it is.> I am very grateful there has been little progression and I did talk with him about being so sob and yet my sats are normal. He says I'm sob because I have a lung disease and my lungs are stiff and will get stiffer. So when I'm sob, sit and rest until I'm better, or if O2 helps, use it. Regardless of what the sats "read".> Now this is a logical answer and one I can understand.> > MamaSher, age 69. IPF 3-06, OR./ Nasturtiums> Don't fret about tomorrow, God is already there!>

[Guest guest]

Sher,

I'm very happy to hear there's been only minimal progression. That's excellent news!

The sob with normal sats is something we've talked about before and your doctor told you exactly what I've been told many times. Because our lungs are scarred and stiff, it's difficult for us to get air in to them. Our brains interpret this difficulty as shortness of breath even though our sats are normal. It stinks but it is what it is.

Happy your reasonably stable!

Beth

Age 48 Fibrotic NSIP 06/06

Change everything. Love and Forgive

Call from Sher's pulmonologist

Dr called today w/results on the testing I had a couple of weeks ago.

There has been some progression but nothing gigantic. That's about it in a nutshell.

We did discuss the change in my IPF dx to NSIP (by another Dr.) and this one says he does not agree. I definitely have a form of PF but he is not sure "what form". He says I have an "atypical" form because of the pattern of progression (or lack of).

But what the hell, it's all PF when the chips are called in, so I'm just not going to focus on it. The way it is is the way it is.

I am very grateful there has been little progression and I did talk with him about being so sob and yet my sats are normal. He says I'm sob because I have a lung disease and my lungs are stiff and will get stiffer. So when I'm sob, sit and rest until I'm better, or if O2 helps, use it. Regardless of what the sats "read".

Now this is a logical answer and one I can understand.

MamaSher, age 69. IPF 3-06, OR./ NasturtiumsDon't fret about tomorrow, God is already there!

[Guest guest]

Sher, I think that is pretty good news "little progression" I hope it is at least another year before you change again. This dropping business stinks. Love and Prayers, Peggy   IPF  2004,  Florida"Worry looks around, Sorry looks back,  Faith looks up."

[Guest guest]

Mama Sher, Your doctor sounds like a

winner!!!

His attitude about your condition and o2 use is very understandable.

Have a great 4th and just enjoy!

Z fibriotic NSIP/05

Z 64,

fibriotic NSIP/o5/PA

And “mild”

PH/10/07 and Reynaud’s too!!

No, NSIP was not

self-inflicted…I never smoked!

Potter,

reader,carousel lover and MomMom to

Darah

and Sara      

“I’m gonna

be iron like a lion in Zion”  Bob Marley

Vinca

Minor-periwinkle is my flower

 

 

Sher Bauman wrote:

Dr called today w/results on the

testing I had a couple of weeks ago.

There has been some progression

but nothing gigantic. That's about it in a nutshell.

We did discuss the change in my

IPF dx to NSIP (by another Dr.) and this one says he does not agree. I

definitely have a form of PF but he is not sure "what form". He says I

have an "atypical" form because of the pattern of progression (or lack

of).

But what the hell, it's all PF

when the chips are called in,  so I'm just not going to focus on it. 

The way it is is the way it is.

I am very grateful there has been

little progression and I did talk with him about being so sob and yet

my sats are normal. He says I'm sob because I have a lung disease and

my lungs are stiff and will get stiffer. So when I'm sob, sit and rest

until I'm better, or if O2 helps, use it. Regardless of what the sats

"read".

Now this is a logical answer and

one I can understand.

 

MamaSher, age 69. IPF 3-06, OR./ 

Nasturtiums

Don't fret about tomorrow, God is already there!

No virus found in this incoming message.

Checked by AVG. Version: 8.0.134 / Virus Database: 270.4.3/1529 - Release Date: 7/1/2008 7:23 PM

[Guest guest]

Mama Sher, Your doctor sounds like a

winner!!!

His attitude about your condition and o2 use is very understandable.

Have a great 4th and just enjoy!

Z fibriotic NSIP/05

Z 64,

fibriotic NSIP/o5/PA

And “mild”

PH/10/07 and Reynaud’s too!!

No, NSIP was not

self-inflicted…I never smoked!

Potter,

reader,carousel lover and MomMom to

Darah

and Sara      

“I’m gonna

be iron like a lion in Zion”  Bob Marley

Vinca

Minor-periwinkle is my flower

 

 

Sher Bauman wrote:

Dr called today w/results on the

testing I had a couple of weeks ago.

There has been some progression

but nothing gigantic. That's about it in a nutshell.

We did discuss the change in my

IPF dx to NSIP (by another Dr.) and this one says he does not agree. I

definitely have a form of PF but he is not sure "what form". He says I

have an "atypical" form because of the pattern of progression (or lack

of).

But what the hell, it's all PF

when the chips are called in,  so I'm just not going to focus on it. 

The way it is is the way it is.

I am very grateful there has been

little progression and I did talk with him about being so sob and yet

my sats are normal. He says I'm sob because I have a lung disease and

my lungs are stiff and will get stiffer. So when I'm sob, sit and rest

until I'm better, or if O2 helps, use it. Regardless of what the sats

"read".

Now this is a logical answer and

one I can understand.

 

MamaSher, age 69. IPF 3-06, OR./ 

Nasturtiums

Don't fret about tomorrow, God is already there!

No virus found in this incoming message.

Checked by AVG. Version: 8.0.134 / Virus Database: 270.4.3/1529 - Release Date: 7/1/2008 7:23 PM

[Guest guest]

Peggy... I know, "this dropping business stinks" is for sure! I'm so sorry you are experiencing a drop. Are you breathing any easier? You were having trouble on the higher flow...

MamaSher, age 69. IPF 3-06, OR./ NasturtiumsDon't fret about tomorrow, God is already there!

Re: Call from Sher's pulmonologist

Sher, I think that is pretty good news "little progression" I hope it is at least another year before you change again. This dropping business stinks.

Love and Prayers, Peggy

IPF 2004, Florida

"Worry looks around,

Sorry looks back,

Faith looks up."

[Guest guest]

... you have probably read in other posts that my current pulmonologist is the very first one I started with. I did the circuit and ended right back with him.

He is a good Dr and looking back I should have stayed put. I was not rational for a few months after my dx. It's a real emotional twister to find out online that PF

is fatal . At any rate, I'll stay put now.

Hope you're doing well.

MamaSher, age 69. IPF 3-06, OR./ NasturtiumsDon't fret about tomorrow, God is already there!

Re: Call from Sher's pulmonologist

Mama Sher, Your doctor sounds like a winner!!!His attitude about your condition and o2 use is very understandable.Have a great 4th and just enjoy!

Z 64, fibriotic NSIP/o5/PA

And “mild” PH/10/07 and Reynaud’s too!!

No, NSIP was not self-inflicted…I never smoked!

Potter, reader,carousel lover and MomMom to Darah

and Sara

“I’m gonna be iron like a lion in Zion” Bob Marley

Vinca Minor-periwinkle is my flower

<!--[if !supportEmptyParas]--> <!--[endif]-->

<!--[if !supportEmptyParas]--> <!--[endif]-->Sher Bauman wrote:

Dr called today w/results on the testing I had a couple of weeks ago.

There has been some progression but nothing gigantic. That's about it in a nutshell.

We did discuss the change in my IPF dx to NSIP (by another Dr.) and this one says he does not agree. I definitely have a form of PF but he is not sure "what form". He says I have an "atypical" form because of the pattern of progression (or lack of).

But what the hell, it's all PF when the chips are called in, so I'm just not going to focus on it. The way it is is the way it is.

I am very grateful there has been little progression and I did talk with him about being so sob and yet my sats are normal. He says I'm sob because I have a lung disease and my lungs are stiff and will get stiffer. So when I'm sob, sit and rest until I'm better, or if O2 helps, use it. Regardless of what the sats "read".

Now this is a logical answer and one I can understand.

MamaSher, age 69. IPF 3-06, OR./ NasturtiumsDon't fret about tomorrow, God is already there!

No virus found in this incoming message.

Checked by AVG. Version: 8.0.134 / Virus Database: 270.4.3/1529 - Release Date: 7/1/2008 7:23 PM