Re: Question

[Guest guest]

I am sorry I cannot help you with that question!! I could only guess that

going down too fast could cause a flare. It makes sense, right?? I have

never had the chance to do that. When I quit taking pred, I just quit taking

it. No lectures please, that was a long time ago and I learned my

lesson!!!! From what I have read though, you need to down like one mg. at a

time after 10.

Zanna

[Guest guest]

It's hard to know, Dawn...remember my rheumy said she decreased me too fast and it sent me into a flare, and that was going from 20 to 10! Now I read that getting off Pred. is pretty painful, so...I guess bloodwork would determine if it's a flare or not...but then, you can have pain without an elevation - oh heck - how do you know?? Say, what about your Methotrexate? Maybe if it was increased, you'd be in a better place! Lynn

Dawn Green wrote:

Okay, as you all know my Rheumy has me on a crazy tapering schedule of myPred. Since I always get soooo sore when I'm down around 5 mg., my Dr. putme back up to 12.5 for a couple weeks, then down to 10. My question isthis. If I don't go slow after I reach 10 mg. and automatically go down to 5mg., I already know I'm going to be in pain (my joints really start hurtingat this dose), but will it send me into a flare as well? I'm just curious,because I was thinking if it's just the pain I have to put up with, I couldtry to get through it in order to get off the Pred. I'm just wondering if myCPK's will also go up again and will send me into a flare or if it's justsomething I'll feel in my body. Does this make any sense? LOL. Thanks inadvance.Love,Dawnmjboyce25ca wrote:> and I haven't posted in a while. Sorry everyone, but it seems that> work always expands to fill the time you have available, and this is> what has happened to me.>> Our move-in is just about completed. Very few of our things are put> away, but they are now in the correct rooms, at least. And the> weather has, I think, finally changed. It was just a bit cool this> morning, which means that fall is on the way here in the South.>> The last few days I have been busy assembling bookcases for the main> floor. I hadn't realized I had so many books squirreled away in the> basement of our old house. And now that they'll fit on the main> floor, I'm not allowed to keep them in boxes any more.>> Welcome to the newcomers. Two Eds! This will be interesting...>> , whatever decision you make about selling or not selling,> moving or not moving, try to get a firm estimate on what your present> place is worth (me, I would have asked $375,000.... just kidding!).> And find out how much it would cost you to get the home you want at> the place you plan to move to.>> Annette, I hope you continue to feel better each day. It is really> great to read your posts.>> And all the rest of you, please take care and stay cool.>> Mike B>>>>>

[Guest guest]

Hi Dawn,

MY dr has me down to 5mg now and keeping me there for awhile, then we will go down 1mg at a time. Yes the pain is still there, how ever so far no real flares. I will see about the count as I go in today for lab work. But as I have learned from this group that your count can still go down and you can still get a flare? Have a good day and take care, get lots of rest.

Sherri

Dawn Green wrote:

Okay, as you all know my Rheumy has me on a crazy tapering schedule of myPred. Since I always get soooo sore when I'm down around 5 mg., my Dr. putme back up to 12.5 for a couple weeks, then down to 10. My question isthis. If I don't go slow after I reach 10 mg. and automatically go down to 5mg., I already know I'm going to be in pain (my joints really start hurtingat this dose), but will it send me into a flare as well? I'm just curious,because I was thinking if it's just the pain I have to put up with, I couldtry to get through it in order to get off the Pred. I'm just wondering if myCPK's will also go up again and will send me into a flare or if it's justsomething I'll feel in my body. Does this make any sense? LOL. Thanks inadvance.Love,Dawnmjboyce25ca wrote:> and I haven't posted in a while. Sorry everyone, but it seems that> work always expands to fill the time you have available, and this is> what has happened to me.>> Our move-in is just about completed. Very few of our things are put> away, but they are now in the correct rooms, at least. And the> weather has, I think, finally changed. It was just a bit cool this> morning, which means that fall is on the way here in the South.>> The last few days I have been busy assembling bookcases for the main> floor. I hadn't realized I had so many books squirreled away in the> basement of our old house. And now that they'll fit on the main> floor, I'm not allowed to keep them in boxes any more.>> Welcome to the newcomers. Two Eds! This will be interesting...>> , whatever decision you make about selling or not selling,> moving or not moving, try to get a firm estimate on what your present> place is worth (me, I would have asked $375,000.... just kidding!).> And find out how much it would cost you to get the home you want at> the place you plan to move to.>> Annette, I hope you continue to feel better each day. It is really> great to read your posts.>> And all the rest of you, please take care and stay cool.>> Mike B>>>>>

[Guest guest]

Hi, Lynn. My Rheumy increased my Methx. the last time I went to see him

from 15 to 20 mg. That's why I find I'm so fatigued for 2 or 3 days

after I take it on Thurs. nights. He did that so I would be able to

tolerate the taper better, but it didn't seem to work this last time and

I had to go back up to 12.5 mg. I was just wondering if he would be

able to see it in my CK's. Thanks.

How are you feeling these days??

Dawn

Lynn wrote:

>

>

> It's hard to know, Dawn...remember my rheumy said she decreased me too

> fast and it sent me into a flare, and that was going from 20 to 10!

> Now I read that getting off Pred. is pretty painful, so...I guess

> bloodwork would determine if it's a flare or not...but then, you can

> have pain without an elevation - oh heck - how do you know??

>

> Say, what about your Methotrexate? Maybe if it was increased, you'd

> be in a better place!

>

> Lynn

>

> Dawn Green wrote:

>

> Okay, as you all know my Rheumy has me on a crazy tapering

> schedule of my

> Pred. Since I always get soooo sore when I'm down around 5

> mg., my Dr. put

> me back up to 12.5 for a couple weeks, then down to 10. My

> question is

> this. If I don't go slow after I reach 10 mg. and

> automatically go down to 5

> mg., I already know I'm going to be in pain (my joints

> really start hurting

> at this dose), but will it send me into a flare as well? I'm

> just curious,

> because I was thinking if it's just the pain I have to put

> up with, I could

> try to get through it in order to get off the Pred. I'm just

> wondering if my

> CPK's will also go up again and will send me into a flare or

> if it's just

> something I'll feel in my body. Does this make any sense?

> LOL. Thanks in

> advance.

>

> Love,

> Dawn

>

> mjboyce25ca wrote:

>

> > and I haven't posted in a while. Sorry everyone, but it

> seems that

> > work always expands to fill the time you have available,

> and this is

> > what has happened to me.

> >

> > Our move-in is just about completed. Very few of our

> things are put

> > away, but they are now in the correct rooms, at least. And

> the

> > weather has, I think, finally changed. It was just a bit

> cool this

> > morning, which means that fall is on the way here in the

> South.

> >

> > The last few days I have been busy assembling bookcases

> for the main

> > floor. I hadn't realized I had so many books squirreled

> away in the

> > basement of our old house. And now that they'll fit on the

> main

> > floor, I'm not allowed to keep them in boxes any more.

> >

> > Welcome to the newcomers. Two Eds! This will be

> interesting...

> >

> > , whatever decision you make about selling or not

> selling,

> > moving or not moving, try to get a firm estimate on what

> your present

> > place is worth (me, I would have asked $375,000.... just

> kidding!).

> > And find out how much it would cost you to get the home

> you want at

> > the place you plan to move to.

> >

> > Annette, I hope you continue to feel better each day. It

> is really

> > great to read your posts.

> >

> > And all the rest of you, please take care and stay cool.

> >

> > Mike B

> >

> >

> >

> >

> >

[Guest guest]

Thanks, Zanna. That's what I gather, too.

Dawn

mrsxanadu@... wrote:

> I am sorry I cannot help you with that question!! I could only guess that

> going down too fast could cause a flare. It makes sense, right?? I have

> never had the chance to do that. When I quit taking pred, I just quit taking

> it. No lectures please, that was a long time ago and I learned my

> lesson!!!! From what I have read though, you need to down like one mg. at a

> time after 10.

>

> Zanna

>

>

>

>

>

[Guest guest]

Hiya Dawn!

I'm up to 25 mg of Methx, and not feeling too bad with the Pred. taper. I'm noticing my knees ache every so often, and that burning pain will come back in my foot (I'm wondering if it's a bunion or the malformed bone.)

Going to the doc today for my shoulder and neck (and now spine) aches...so we'll see what she suggests. Cancelled my PT until I can ask if I should lay off it for a while.

My son is in town...did I tell y'all? Met my new daughter in law, she's an angel...so we're off to the doc today, then will do some bumming around...hot again, only 90 though....LOL!

Talk to you later

Lynn

Dawn Green wrote:

Hi, Lynn. My Rheumy increased my Methx. the last time I went to see himfrom 15 to 20 mg. That's why I find I'm so fatigued for 2 or 3 daysafter I take it on Thurs. nights. He did that so I would be able totolerate the taper better, but it didn't seem to work this last time andI had to go back up to 12.5 mg. I was just wondering if he would beable to see it in my CK's. Thanks.How are you feeling these days??DawnLynn wrote:>>> It's hard to know, Dawn...remember my rheumy said she decreased me too> fast and it sent me into a flare, and that was going from 20 to 10!> Now I read that getting off Pred. is pretty painful, so...I guess> bloodwork would determine if it's a flare or not...but then, you can> have pain without an elevation - oh heck - how do you know??>> Say, what about your Methotrexate? Maybe if it was increased, you'd> be in a better place!>> Lynn>> Dawn Green wrote:>> Okay, as you all know my Rheumy has me on a crazy tapering> schedule of my> Pred. Since I always get soooo sore when I'm down around 5> mg., my Dr. put> me back up to 12.5 for a couple weeks, then down to 10. My> question is> this. If I don't go slow after I reach 10 mg. and> automatically go down to 5> mg., I already know I'm going to be in pain (my joints> really start hurting> at this dose), but will it send me into a flare as well? I'm> just curious,> because I was thinking if it's just the pain I have to put> up with, I could> try to get through it in order to get off the Pred. I'm just> wondering if my> CPK's will also go up again and will send me into a flare or> if it's just> something I'll feel in my body. Does this make any sense?> LOL. Thanks in> advance.>> Love,> Dawn>> mjboyce25ca wrote:>> > and I haven't posted in a while. Sorry everyone, but it> seems that> > work always expands to fill the time you have available,> and this is> > what has happened to me.> >> > Our move-in is just about completed. Very few of our> things are put> > away, but they are now in the correct rooms, at least. And> the> > weather has, I think, finally changed. It was just a bit> cool this> > morning, which means that fall is on the way here in the> South.> >> > The last few days I have been busy assembling bookcases> for the main> > floor. I hadn't realized I had so many books squirreled> away in the> > basement of our old house. And now that they'll fit on the> main> > floor, I'm not allowed to keep them in boxes any more.> >> > Welcome to the newcomers. Two Eds! This will be> interesting...> >> > , whatever decision you make about selling or not> selling,> > moving or not moving, try to get a firm estimate on what> your present> > place is worth (me, I would have asked $375,000.... just> kidding!).> > And find out how much it would cost you to get the home> you want at> > the place you plan to move to.> >> > Annette, I hope you continue to feel better each day. It> is really> > great to read your posts.> >> > And all the rest of you, please take care and stay cool.> >> > Mike B> >> >> >> >> >

[Guest guest]

Thanks, Sherri. I hope your CPK's aren't elevated and you're still able

to go down 1 mg. at a time. It will feel soooo good to be off the Pred.

Dawn

S. Berglund wrote:

>

>

> Hi Dawn,

>

> MY dr has me down to 5mg now and keeping me there for awhile, then we

> will go down 1mg at a time. Yes the pain is still there, how ever so

> far no real flares. I will see about the count as I go in today for

> lab work. But as I have learned from this group that your count can

> still go down and you can still get a flare? Have a good day and take

> care, get lots of rest.

>

> Sherri

>

> Dawn Green wrote:

>

> Okay, as you all know my Rheumy has me on a crazy tapering

> schedule of my

> Pred. Since I always get soooo sore when I'm down around 5

> mg., my Dr. put

> me back up to 12.5 for a couple weeks, then down to 10. My

> question is

> this. If I don't go slow after I reach 10 mg. and

> automatically go down to 5

> mg., I already know I'm going to be in pain (my joints

> really start hurting

> at this dose), but will it send me into a flare as well?

> I'm just curious,

> because I was thinking if it's just the pain I have to put

> up with, I could

> try to get through it in order to get off the Pred. I'm

> just wondering if my

> CPK's will also go up again and will send me into a flare or

> if it's just

> something I'll feel in my body. Does this make any sense?

> LOL. Thanks in

> advance.

>

> Love,

> Dawn

>

> mjboyce25ca wrote:

>

> > and I haven't posted in a while. Sorry everyone, but it

> seems that

> > work always expands to fill the time you have available,

> and this is

> > what has happened to me.

> >

> > Our move-in is just about completed. Very few of our

> things are put

> > away, but they are now in the correct rooms, at least. And

> the

> > weather has, I think, finally changed. It was just a bit

> cool this

> > morning, which means that fall is on the way here in the

> South.

> >

> > The last few days I have been busy assembling bookcases

> for the main

> > floor. I hadn't realized I had so many books squirreled

> away in the

> > basement of our old house. And now that they'll fit on the

> main

> > floor, I'm not allowed to keep them in boxes any more.

> >

> > Welcome to the newcomers. Two Eds! This will be

> interesting...

> >

> > , whatever decision you make about selling or not

> selling,

> > moving or not moving, try to get a firm estimate on what

> your present

> > place is worth (me, I would have asked $375,000.... just

> kidding!).

> > And find out how much it would cost you to get the home

> you want at

> > the place you plan to move to.

> >

> > Annette, I hope you continue to feel better each day. It

> is really

> > great to read your posts.

> >

> > And all the rest of you, please take care and stay cool.

> >

> > Mike B

> >

> >

> >

> >

> >

[Guest guest]

Hi, Lynn. Yes, you mentioned that your son & his wife were visiting.

You must love having them around!! Is this the first time you've met

his wife? How long have they been married? Enjoy every minute of your

time with them. )

I hope your Dr. appt. goes well today & it's nothing too major with your

shoulder, neck & spine. You must feel like you've been run over by a

truck. Ugh!!

When I've tapered down on my Pred., that's where I start feeling alot of

pain too. Knees, elbows, ankles, finger....joints, period. Strange,

isn't it, since this is a muscle disease and not joint. Hmm....

Have a great day with your son & wifey.

Take care,

Dawn

Lynn wrote:

>

>

> Hiya Dawn!

>

> I'm up to 25 mg of Methx, and not feeling too bad with the Pred.

> taper. I'm noticing my knees ache every so often, and that burning

> pain will come back in my foot (I'm wondering if it's a bunion or the

> malformed bone.)

>

> Going to the doc today for my shoulder and neck (and now spine)

> aches...so we'll see what she suggests. Cancelled my PT until I can

> ask if I should lay off it for a while.

>

> My son is in town...did I tell y'all? Met my new daughter in law,

> she's an angel...so we're off to the doc today, then will do some

> bumming around...hot again, only 90 though....LOL!

>

> Talk to you later [image]

>

> Lynn

>

>

>

> Dawn Green wrote:

>

> Hi, Lynn. My Rheumy increased my Methx. the last time I went

> to see him

> from 15 to 20 mg. That's why I find I'm so fatigued for 2 or

> 3 days

> after I take it on Thurs. nights. He did that so I would be

> able to

> tolerate the taper better, but it didn't seem to work this

> last time and

> I had to go back up to 12.5 mg. I was just wondering if he

> would be

> able to see it in my CK's. Thanks.

>

> How are you feeling these days??

>

> Dawn

>

> Lynn wrote:

>

> >

> >

> > It's hard to know, Dawn...remember my rheumy said she

> decreased me too

> > fast and it sent me into a flare, and that was going from

> 20 to 10!

> > Now I read that getting off Pred. is pretty painful,

> so...I guess

> > bloodwork would determine if it's a flare or not...but

> then, you can

> > have pain without an elevation - oh heck - how do you

> know??

> >

> > Say, what about your Methotrexate? Maybe if it was

> increased, you'd

> > be in a better place!

> >

> > Lynn

> >

> > Dawn Green wrote:

> >

> > Okay, as you all know my Rheumy has me on a crazy tapering

>

> > schedule of my

> > Pred. Since I always get soooo sore when I'm down around 5

>

> > mg., my Dr. put

> > me back up to 12.5 for a couple weeks, then down to 10. My

>

> > question is

> > this. If I don't go slow after I reach 10 mg. and

> > automatically go down to 5

> > mg., I already know I'm going to be in pain (my joints

> > really start hurting

> > at this dose), but will it send me into a flare as well?

> I'm

> > just curious,

> > because I was thinking if it's just the pain I have to put

>

> > up with, I could

> > try to get through it in order to get off the Pred. I'm

> just

> > wondering if my

> > CPK's will also go up again and will send me into a flare

> or

> > if it's just

> > something I'll feel in my body. Does this make any sense?

> > LOL. Thanks in

> > advance.

> >

> > Love,

> > Dawn

> >

> > mjboyce25ca wrote:

> >

> > > and I haven't posted in a while. Sorry everyone, but it

> > seems that

> > > work always expands to fill the time you have available,

>

> > and this is

> > > what has happened to me.

> > >

> > > Our move-in is just about completed. Very few of our

> > things are put

> > > away, but they are now in the correct rooms, at least.

> And

> > the

> > > weather has, I think, finally changed. It was just a bit

>

> > cool this

> > > morning, which means that fall is on the way here in the

>

> > South.

> > >

> > > The last few days I have been busy assembling bookcases

> > for the main

> > > floor. I hadn't realized I had so many books squirreled

> > away in the

> > > basement of our old house. And now that they'll fit on

> the

> > main

> > > floor, I'm not allowed to keep them in boxes any more.

> > >

> > > Welcome to the newcomers. Two Eds! This will be

> > interesting...

> > >

> > > , whatever decision you make about selling or not

> > selling,

> > > moving or not moving, try to get a firm estimate on what

>

> > your present

> > > place is worth (me, I would have asked $375,000.... just

>

> > kidding!).

> > > And find out how much it would cost you to get the home

> > you want at

> > > the place you plan to move to.

> > >

> > > Annette, I hope you continue to feel better each day. It

>

> > is really

> > > great to read your posts.

> > >

> > > And all the rest of you, please take care and stay cool.

>

> > >

> > > Mike B

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Dawn, I can't wait either, if I had my choice I would not take any pills, I was one who didn't even take a asprin for a headache. Now I have all this stuff to take, Yuk. But I am still alive and kickin.

Sherri

Dawn Green wrote:

Thanks, Sherri. I hope your CPK's aren't elevated and you're still ableto go down 1 mg. at a time. It will feel soooo good to be off the Pred.DawnS. Berglund wrote:>>> Hi Dawn,>> MY dr has me down to 5mg now and keeping me there for awhile, then we> will go down 1mg at a time. Yes the pain is still there, how ever so> far no real flares. I will see about the count as I go in today for> lab work. But as I have learned from this group that your count can> still go down and you can still get a flare? Have a good day and take> care, get lots of rest.>> Sherri>> Dawn Green wrote:>> Okay, as you all know my Rheumy has me on a crazy tapering> schedule of my> Pred. Since I always get soooo sore when I'm down around 5> mg., my Dr. put> me back up to 12.5 for a couple weeks, then down to 10. My> question is> this. If I don't go slow after I reach 10 mg. and> automatically go down to 5> mg., I already know I'm going to be in pain (my joints> really start hurting> at this dose), but will it send me into a flare as well?> I'm just curious,> because I was thinking if it's just the pain I have to put> up with, I could> try to get through it in order to get off the Pred. I'm> just wondering if my> CPK's will also go up again and will send me into a flare or> if it's just> something I'll feel in my body. Does this make any sense?> LOL. Thanks in> advance.>> Love,> Dawn>> mjboyce25ca wrote:>> > and I haven't posted in a while. Sorry everyone, but it> seems that> > work always expands to fill the time you have available,> and this is> > what has happened to me.> >> > Our move-in is just about completed. Very few of our> things are put> > away, but they are now in the correct rooms, at least. And> the> > weather has, I think, finally changed. It was just a bit> cool this> > morning, which means that fall is on the way here in the> South.> >> > The last few days I have been busy assembling bookcases> for the main> > floor. I hadn't realized I had so many books squirreled> away in the> > basement of our old house. And now that they'll fit on the> main> > floor, I'm not allowed to keep them in boxes any more.> >> > Welcome to the newcomers. Two Eds! This will be> interesting...> >> > , whatever decision you make about selling or not> selling,> > moving or not moving, try to get a firm estimate on what> your present> > place is worth (me, I would have asked $375,000.... just> kidding!).> > And find out how much it would cost you to get the home> you want at> > the place you plan to move to.> >> > Annette, I hope you continue to feel better each day. It> is really> > great to read your posts.> >> > And all the rest of you, please take care and stay cool.> >> > Mike B> >> >> >> >> >

[Guest guest]

That's the main thing, Sherri. I hate all the meds., too, but when I

think about how much pain I was in before starting them, I'm grateful

for all they do. Hang in there....

Dawn

S. Berglund wrote:

>

>

> Dawn, I can't wait either, if I had my choice I would not take any

> pills, I was one who didn't even take a asprin for a headache. Now I

> have all this stuff to take, Yuk. But I am still alive and kickin.

>

> Sherri

>

> Dawn Green wrote:

>

> Thanks, Sherri. I hope your CPK's aren't elevated and

> you're still able

> to go down 1 mg. at a time. It will feel soooo good to be

> off the Pred.

>

> Dawn

>

> S. Berglund wrote:

>

> >

> >

> > Hi Dawn,

> >

> > MY dr has me down to 5mg now and keeping me there for

> awhile, then we

> > will go down 1mg at a time. Yes the pain is still there,

> how ever so

> > far no real flares. I will see about the count as I go in

> today for

> > lab work. But as I have learned from this group that your

> count can

> > still go down and you can still get a flare? Have a good

> day and take

> > care, get lots of rest.

> >

> > Sherri

> >

> > Dawn Green wrote:

> >

> > Okay, as you all know my Rheumy has me on a crazy

> tapering

> > schedule of my

> > Pred. Since I always get soooo sore when I'm down

> around 5

> > mg., my Dr. put

> > me back up to 12.5 for a couple weeks, then down to

> 10. My

> > question is

> > this. If I don't go slow after I reach 10 mg. and

> > automatically go down to 5

> > mg., I already know I'm going to be in pain (my

> joints

> > really start hurting

> > at this dose), but will it send me into a flare as

> well?

> > I'm just curious,

> > because I was thinking if it's just the pain I have

> to put

> > up with, I could

> > try to get through it in order to get off the Pred.

> I'm

> > just wondering if my

> > CPK's will also go up again and will send me into a

> flare or

> > if it's just

> > something I'll feel in my body. Does this make any

> sense?

> > LOL. Thanks in

> > advance.

> >

> > Love,

> > Dawn

> >

> > mjboyce25ca wrote:

> >

> > > and I haven't posted in a while. Sorry everyone,

> but it

> > seems that

> > > work always expands to fill the time you have

> available,

> > and this is

> > > what has happened to me.

> > >

> > > Our move-in is just about completed. Very few of

> our

> > things are put

> > > away, but they are now in the correct rooms, at

> least. And

> > the

> > > weather has, I think, finally changed. It was just

> a bit

> > cool this

> > > morning, which means that fall is on the way here

> in the

> > South.

> > >

> > > The last few days I have been busy assembling

> bookcases

> > for the main

> > > floor. I hadn't realized I had so many books

> squirreled

> > away in the

> > > basement of our old house. And now that they'll fit

> on the

> > main

> > > floor, I'm not allowed to keep them in boxes any

> more.

> > >

> > > Welcome to the newcomers. Two Eds! This will be

> > interesting...

> > >

> > > , whatever decision you make about selling or

> not

> > selling,

> > > moving or not moving, try to get a firm estimate on

> what

> > your present

> > > place is worth (me, I would have asked $375,000....

> just

> > kidding!).

> > > And find out how much it would cost you to get the

> home

> > you want at

> > > the place you plan to move to.

> > >

> > > Annette, I hope you continue to feel better each

> day. It

> > is really

> > > great to read your posts.

> > >

> > > And all the rest of you, please take care and stay

> cool.

> > >

> > > Mike B

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Thanks I will, or not my arms might get a little tired hanging,LOL. Get lots of rest and take care,Sherri

Dawn Green wrote:

That's the main thing, Sherri. I hate all the meds., too, but when Ithink about how much pain I was in before starting them, I'm gratefulfor all they do. Hang in there....DawnS. Berglund wrote:>>> Dawn, I can't wait either, if I had my choice I would not take any> pills, I was one who didn't even take a asprin for a headache. Now I> have all this stuff to take, Yuk. But I am still alive and kickin.>> Sherri>> Dawn Green wrote:>> Thanks, Sherri. I hope your CPK's aren't elevated and> you're still able> to go down 1 mg. at a time. It will feel soooo good to be> off the Pred.>> Dawn>> S. Berglund wrote:>> >> >> > Hi Dawn,> >> > MY dr has me down to 5mg now and keeping me there for> awhile, then we> > will go down 1mg at a time. Yes the pain is still there,> how ever so> > far no real flares. I will see about the count as I go in> today for> > lab work. But as I have learned from this group that your> count can> > still go down and you can still get a flare? Have a good> day and take> > care, get lots of rest.> >> > Sherri> >> > Dawn Green wrote:> >> > Okay, as you all know my Rheumy has me on a crazy> tapering> > schedule of my> > Pred. Since I always get soooo sore when I'm down> around 5> > mg., my Dr. put> > me back up to 12.5 for a couple weeks, then down to> 10. My> > question is> > this. If I don't go slow after I reach 10 mg. and> > automatically go down to 5> > mg., I already know I'm going to be in pain (my> joints> > really start hurting> > at this dose), but will it send me into a flare as> well?> > I'm just curious,> > because I was thinking if it's just the pain I have> to put> > up with, I could> > try to get through it in order to get off the Pred.> I'm> > just wondering if my> > CPK's will also go up again and will send me into a> flare or> > if it's just> > something I'll feel in my body. Does this make any> sense?> > LOL. Thanks in> > advance.> >> > Love,> > Dawn> >> > mjboyce25ca wrote:> >> > > and I haven't posted in a while. Sorry everyone,> but it> > seems that> > > work always expands to fill the time you have> available,> > and this is> > > what has happened to me.> > >> > > Our move-in is just about completed. Very few of> our> > things are put> > > away, but they are now in the correct rooms, at> least. And> > the> > > weather has, I think, finally changed. It was just> a bit> > cool this> > > morning, which means that fall is on the way here> in the> > South.> > >> > > The last few days I have been busy assembling> bookcases> > for the main> > > floor. I hadn't realized I had so many books> squirreled> > away in the> > > basement of our old house. And now that they'll fit> on the> > main> > > floor, I'm not allowed to keep them in boxes any> more.> > >> > > Welcome to the newcomers. Two Eds! This will be> > interesting...> > >> > > , whatever decision you make about selling or> not> > selling,> > > moving or not moving, try to get a firm estimate on> what> > your present> > > place is worth (me, I would have asked $375,000....> just> > kidding!).> > > And find out how much it would cost you to get the> home> > you want at> > > the place you plan to move to.> > >> > > Annette, I hope you continue to feel better each> day. It> > is really> > > great to read your posts.> > >> > > And all the rest of you, please take care and stay> cool.> > >> > > Mike B> > >> > >> > >> > >> > >

[Guest guest]

I WOULD GO TO ANOTHER DOCTOR. I HOPE THAT YOUR OB TAKES MORE TIME AND IS

UNDERSTANDING. IT IS IMPORTANT TO KNOW WHICH ONE YOU HAVE JUST FOR YOUR OWN

INFO. PLUS, (NOT TO SCARE YOU) BUT YOU NEED TO KNOW THE RISKS OF MA'S IN

PREGNANCY SO THAT YOUR OB CAN KEEP AN EYE ON YOU. I AM 13 WEEKS NOW AND I AM

GLAD THAT I HAVE A MIDWIFE AND PERI THAT I CAN TALK TO. YOU NEED TO BE

REASSURED ESP. WHEN YOU HAVE COMPLICATIONS. I HAVE A PARTIAL SU THAT THEY

THOUGHT WAS BU AT FIRST. I ALSO HAVE AN ARCUATE SHAPED UTERUS. I HAS A HSG

AND 3D ULTRASOUND THAT HELPED THEM. ED ULTRASOUNDS ARE GREAT. THE HSG WAS

HARD FOR THEM TO TELL, BUT WITH BOTH THEY DID IT RIGHT. IF NOT, A LAP IS

PROBABLY YOUR BEST BET.

GOOD LUCK~

SABRINA

" What we have once enjoyed we can never lose, all that we love deeply

becomes a part of us. " -Helen Keller

>

>Reply-To: MullerianAnomalies

>To: MullerianAnomalies

>Subject: Question

>Date: Mon, 29 Mar 2004 10:23:19 -0500

>

>I was wondering if anyone had any ideas on my situation.

>

>I am 18 weeks pregnant. From an HSG I had done several years ago it

>showed either a BU or small SU. My infertility doctor couldn't really

>say for sure. He said it shouldn't be too much of a problem and we went

>on with the IVF. Then at week 15 I went to the ER with really painful

>contractions every hour. The US that night showed a significant heart

>shaped uterus and they said I was having pain because of my septate

>uterus. The radiologist there diagnosed from my US that I had a septate

>uterus.

>

>I was referred to a peri. I went last thursday. He said he saw no signs

>of a septate or anything wrong with my uterus. He said baby was fine and

>I am fine. On the US I couldn't see the heartshape that we had seen 3

>weeks earlier. I did not like the peri. He was so backed up and I was

>rushed in and rushed out. Everytime I asked a question he was very

>dismissive with me. He was more or less shouting at me asking who an

>earth had diagnosed me? I explained that my infertility doctor couldn't

>actually tell from the HSG but we never did a lap to find out for sure.

>He said that is ridiculous and ofcourse a doctor could tell if it is

>septate form an HSG. My husband then said we hoped he could tell us

>whether it is or not! Anyway he went ballistic at that point, claiming

>how the heck was he supposed to tell???? The man is supposedly the best

>in our area and I found him frightening.

>

>So we came away being told we are both fine and I am a normal pregnancy.

>I want to feel relieved but at the same time I feel worried. This whole

>pregnancy has been touch and go from the start. We did IVF and then at

>week 7 I had alot of bleeding from a hematoma and then 2 or 3 weeks more

>bleeding until that finally went at week 15. Then the contraction thing

>and the worry over the possible septate. I go to my regular OB today for

>a normal appointment so I will discuss all this with him. He has a

>really crappy US machine so it is really hard to tell the shape of the

>uterus on his.

>

>Does this make any sense to anyone that suddenly the BU or SU is gone

>and my uterus is now round shaped rather than heart shaped?

>

>Thanks

>

>Louise

>

>--

>Louise Jordan

>Business Manager

>CNI - 1.

>

>

_________________________________________________________________

Get tax tips, tools and access to IRS forms – all in one place at MSN Money!

http://moneycentral.msn.com/tax/home.asp

[Guest guest]

>Here is why I'm asking - I've found that when I add back in grains -

>portions and types according to the book - I do not lose anything and I'm

>hungry all the time. When I cut out grains and up my protein intake for a

>few days, I'm satisfied and not ravenous. At which time I can then cut

>back all dairy, veggies and protein portions.

>

>Thoughts - or ideas where I can do some more nutritional research on the

>net? Sites you've found to be especially helpful and informative?

try looking at food allergy, candidiasis or autoimmune disorder sites.

i have a few friends who are desperately allergic to all and every grain out

there for varying reasons, and get their fiber from stuff like psyllium husks or

beans or flaxseed. they get their carbs from various sources as well, and while

it is by no means *easy* for them, you might want to check it out and see if

there's any suggestions or research there you can use for this WOE.

you might also experiment with variant grains such as amaranthe and quinoa and

see if they do the same thing to you.

~risa

[Guest guest]

Thanks so much!!! ~

~Jesus loves you whether you like it or not!~

,

Whole Wheat Tortillas - You can't have them on phase 1. But in phase 2

you can

Avocados - You can have on phase 1.

Paola

>whether I can have them in Phase 1... wheat tortillas and avacados??

__________________________________________________

[Guest guest]

Avacado is considered an "oil" and needs to be counted as an oil serving. So you'd need to limit your portion

Unfortunately, no tortillas until Phase 2.

If you can live through the "detox" phase 1, you can add the tortillas back in Phase 2 (slow goes it though). I was able to give up my wine for 2 weeks - you can do ANYTHING for 2 weeks, knowing it's not forever! Just give yourself a reward when you make it. After Phase 1, I treated myself to steamed crab legs with the Joe's crab shack sauce from the cookbook, fresh asparagus and tomatoes (this was in the heart of summer, thank God for fresh tomatoes!), and a nice NICE bottle of white wine (I had 2+ glasses as a treat)! Didn't even need dessert!

Hang in there, and start planning your reward dinner!

Question

Okay I've been reading the books and even asked my mom this but shecouldn't answer it for me. Two things that I'm completely unsure aboutwhether I can have them in Phase 1... wheat tortillas and avacados??Thanks for the help. ~~Jesus loves you whether you like it or not!~Reminder: The South Beach Diet is not low-carb. Nor is it low-fat. The South Beach Diet teaches you to rely on the right carbs and the right fats-the good ones - and enables you to live quite happily without the bad carbs and bad fats. For more on this Way Of Eating please read "The South Beach Diet" by Arthur Agatston, MD. ISBN 1-57954-814-8

[Guest guest]

Thanks, that sounds pretty good. Is there a limit on mayo?? ~

~Jesus loves you whether you like it or not!~

---1/2 a can of Solid white Albacore Tuna, mixed w/ some Vidalia

onion and mayo put a fork full at a time on a romaine leaf is very

good, takes along time to eat, and is perfect for your WOE.

Kay

In South-Beach-Diet-Getting-It-Right ,

GodsDaughter75@w... wrote:

> Thanks a bunch!! Guess I'll be using the lettuce leaves to make my

wrap

> sandwiches. Never tried it that way but it doesn't sound to bad.

> ~

>

> ~Jesus loves you whether you like it or not!~

>

>

> Avacado is considered an " oil " and needs to be counted as an oil

serving. So you'd need to limit your portion

>

> Unfortunately, no tortillas until Phase 2.

>

> If you can live through the " detox " phase 1, you can add the

tortillas back in Phase 2 (slow goes it though). I was able to give

up my wine for 2 weeks - you can do ANYTHING for 2 weeks, knowing

it's not forever! Just give yourself a reward when you make it.

After Phase 1, I treated myself to steamed crab legs with the Joe's

crab shack sauce from the cookbook, fresh asparagus and tomatoes

(this was in the heart of summer, thank God for fresh tomatoes!), and

a nice NICE bottle of white wine (I had 2+ glasses as a treat)!

Didn't even need dessert!

>

> Hang in there, and start planning your reward dinner!

> Question

>

>

> Okay I've been reading the books and even asked my mom this but

she

> couldn't answer it for me. Two things that I'm completely unsure

about

> whether I can have them in Phase 1... wheat tortillas and

avacados??

> Thanks for the help. ~

>

> ~Jesus loves you whether you like it or not!~

>

>

>

> Reminder: The South Beach Diet is not low-carb. Nor is it low-

fat. The South Beach Diet teaches you to rely on the right carbs and

the right fats-the good ones - and enables you to live quite happily

without the bad carbs and bad fats.

>

> For more on this Way Of Eating please read " The South Beach Diet "

by Arthur Agatston, MD. ISBN 1-57954-814-8

>

>

>

> --------------------------------------------------------------------

----------

>

[Guest guest]

You can alter it by buying FF mayo which in my opinion isn't very good, or reduced fat mayo, or you can mix a couple of T of low fat cottage cheese with your full fat mayo and use that, which is what I suggest you try

I woudl rather have a little of the real thing esepcially mayo than play around with the lf or ff. If I lose a bit slower, so be it - there are some things I just won't give up on.

~~ in NJ~~So Many Books, So Little TimeModerator: http://groups.yahoo.com/group/WeeklyReads/Currently Reading: In the Company of Cheerful Ladies by McCall Just Finished: Retribution by Jilliane Hoffman (B+)

[Guest guest]

Hi ,

That sounds like a neat idea.. I was thinking of

cottage cheese earlier when I replied to the mayo

post.. but I was thinking along the lines of no mayo

at all.. this sounds like a good way of cutting it to

my ears..

--- NRK18@... wrote:

>

>

> In a message dated 6/2/2005 10:35:07 PM Eastern

> Standard Time,

> magiclea@... writes:

>

> You can alter it by

> buying FF mayo which in my opinion isn't very good,

> or reduced fat

> mayo, or you can mix a couple of T of low fat

> cottage cheese with your

> full fat mayo and use that, which is what I suggest

> you try

>

>

> I woudl rather have a little of the real thing

> esepcially mayo than play

> around with the lf or ff. If I lose a bit slower,

> so be it - there are some

> things I just won't give up on.

>

> ~~ in NJ~~

> So Many Books, So Little Time

> Moderator:

> _http://groups.yahoo.com/group/WeeklyReads/_

> (http://groups.yahoo.com/group/WeeklyReads/)

> Currently Reading: In the Company of Cheerful

> Ladies by McCall

>

> Just Finished: Retribution by Jilliane Hoffman (B+)

>

Just hanging out at the beach and playing in the

sandbox...http://www3.sympatico.ca/kdworkin/mycover.jpg

__________________________________________________

[Guest guest]

If you are dying to eat it - no.

If you actually eat it - maybe.

Could you eat it with no ill effects? Possibly.

Do you really want to chance it?

Chuck

Question

Okay, I love SBD and this is a life change for me, I know this is how I am going to base the way I eat forever. What if two months down the road I am dying to eat a Snickers bar. Do I have to detox all over again?

Robin

[Guest guest]

If you are dying to eat it - no.

If you actually eat it - maybe.

Could you eat it with no ill effects? Possibly.

Do you really want to chance it?

I don't think you need to detox necessarily and I'm not sure I would go along with the idea of chancing it. I do think we need to be realistic as people suggested when I was going to the wedding. If every so often you go off this WOE, so be it, the idea is to get right back on the horse. Deprivations is not a good feeling.

My friend who lost a good deal of weight on SBD never did Phase 1 and worked the program the best whay she could for herslf. And eventually I plan on doing phase 1 mainly with fruit and sparing servings of whole wheat breads and brown rice and sweet potatoes but not too often cause even the whole wheat I can obsess over and that won't be any good either. If every so often I have a cup of white pasta, I'm sure my weight won't go way up and I will adjust for it. And it sure beats pizza every day with M & M's. lol

~~ in NJ~~So Many Books, So Little TimeModerator: http://groups.yahoo.com/group/WeeklyReads/Currently Reading: Summer's Child by Luanne RiceJust Finished: Retribution by Jilliane Hoffman (B+)

[Guest guest]

Hi Robin,

I find it hard for me to answer this since I have had

my WOE for over 20 years now and going out for dinner

and eating something that I would not normally eat

does not effect me.

I do worry though about someone that has not been

eating this way for all that long to go off plan. It

could well mean a backslide into where you were

before.

You really should not feel like you are dying to eat a

particular sinful food.. That in and of itself would

concern me.

I love the food I eat daily and when I partake of

something I would not normally eat I simply think of

it just that way. It never is a particular food I

sought out to find and eat.. but rather it was there

and I decided to try a piece.

So my answer would be if you are dying to eat it and

seek it out.. stay away from eating it..

> Question

>

>

> Okay, I love SBD and this is a life change for me,

> I know this is how I am going to base the way I eat

> forever. What if two months down the road I am

> dying to eat a Snickers bar. Do I have to detox all

> over again?

>

> Robin

Just hanging out at the beach and playing in the

sandbox...http://www3.sympatico.ca/kdworkin/mycover.jpg

__________________________________________________

[Guest guest]

But you have to look behind why it is comforting. Actually if you are sick saltines are a good choice: They are gentle on the stomach and may supply some salt that you need. But you may eat chocolate chip cookies because you remember making cookies with your Mom and eating them warm from the oven. You have to realize that the brief feeling of comfort from the cookie will be gone soon and then you may have bad feeling of eating something you shouldn't have. Is it really worth it?

June

-- RE: Re: Question

Couldn't it also be a comfort food?For instance, when I was sick this past winter, I was "dying" to eatsaltines. Why? Simply because before sbd, I would always eat saltines whenI was sick. I think my body was just used to a routine and it was anotherhabit I had to break. I did give in and eat some, but I don't think 8 in a3 day span will do any harm.

[Guest guest]

Yes, tomato juice has 8 carbs per 6 ounces and V8 has 10 carbs per 8 ounces. Hope this helps.

Wall

Question

Can someone tell me if tomato or vegetable juice has any carbs in it ?

Thanks,

Ginny

Reminder: The South Beach Diet is not low-carb. Nor is it low-fat. The South Beach Diet teaches you to rely on the right carbs and the right fats-the good ones - and enables you to live quite happily without the bad carbs and bad fats. For more on this Way Of Eating please read "The South Beach Diet" by Arthur Agatston, MD. ISBN 1-57954-814-8

[Guest guest]

It shouldn't matter because you aren't counting carbs at all. These are good carbs and allowed. Carol

Question

Can someone tell me if tomato or vegetable juice has any carbs in it ?

Thanks,

Ginny

Reminder: The South Beach Diet is not low-carb. Nor is it low-fat. The South Beach Diet teaches you to rely on the right carbs and the right fats-the good ones - and enables you to live quite happily without the bad carbs and bad fats. For more on this Way Of Eating please read "The South Beach Diet" by Arthur Agatston, MD. ISBN 1-57954-814-8

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[Guest guest]

You can use www.fitday.com and put foods in there and it will tell you how many carbs and other things are in the foods you are eating when you can't find out on the package. Carol

Re: Question

It matters to me because I'm diabetic and I can't just eat what I want when it comes to carbs. I'm carefully adding them in small amounts to see waht I can tolerate without making my blood sugar go up. It's a whole different ball game !

Just thought I'd ask since I don't have any on hand.

Ginny

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