Re: *sigh*

[Guest guest]

don't throw in the towel yet!! It is good that you just gave up the coke.

Even if you don't lose weight, you will probably feel better. How much pred

are you on??

Zanna

[Guest guest]

Dawn... I think one week isn't long enough to make a difference. You're

right to give it another week. Annette

*Sigh*

Well, after 1 week of doing absolutely perfect on my diet and drinking

tons of water and not ONE SIP of Coke, I weighed myself this morning and

haven't lost a pound~!! I am so discouraged. I have always been one to

lose weight very easily and just don't understand this. I'm presuming

it's the Prednisone, could this be the case? I feel like throwing in

the towel. No sense in torturing myself if I'm not going to see any

results. However, I will give it another week and see what next

Friday's results are. *sigh*

Dawn from Blimpville.....

[Guest guest]

Don't you be discouraged!! Ok, I have another story...success

story. I met a lady back in '86...she weighed close to 500 lbs.

Every three months she had to have her glasses changed for the fat

pressed so severely on the optic nerve, the doc told her she'd be

blind before she was 38. Her primary doc referred her to the

university hospital where they were conducting behavior modification

studies related to obesity. She was immediately accepted into the

program...and went through the planning stages. Now, she was as good

as gold the first month (no weighing allowed!) She could only walk

the distance of 4 townhouses, but she was exercising and eating as

the program prescribed.

So, she went in to her second month's meeting...got weighed...and

lost 5 lbs. She cried, honest...I had to sit with her for a long

time and get her calmed down. But, she just got determined...and

stuck with it, going to meetings, etc...by the second month, she lost

50 lbs.!! That one success gave her the motivation to continue.

She went on to loose 300 lbs. Forget how long it took. But as she

did, she talked to local groups about the success of it...met

who sent her a dozen roses when she weighed in at 198. What

a day that was!! Talk about major skinny partying! LOL! It was

wonderful.

She had been abandoned by her husband, no money at all, two sons, no

job...but she overcame it all and her own personal cross...so, don't

give up...you are so worth it!

Lynn

> > Well, after 1 week of doing absolutely perfect on my diet and

> drinking

> > tons of water and not ONE SIP of Coke, I weighed myself this

> morning and

> > haven't lost a pound~!! I am so discouraged. I have always been

> one to

> > lose weight very easily and just don't understand this. I'm

> presuming

> > it's the Prednisone, could this be the case? I feel like

throwing

> in

> > the towel. No sense in torturing myself if I'm not going to see

any

> > results. However, I will give it another week and see what next

> > Friday's results are. *sigh*

> >

> > Dawn from Blimpville.....

[Guest guest]

Yippee skippy!!! I'm anxiously awaiting these positive changes. I know what

you mean about the

40 mg. (or even worse 60 mg., which is where I was at for what seemed like

forever). The one

thing that I loved about being on high doses of steroids, my acne cleared up. I

have suffered

from really bad acne all my life and for once it was GONE. It was wonderful.

Now it's back full

force. ICK!!!

Dawn

PS.....What's " eeww pfui " mean?? Sorry, I don't get it. )

Lynn wrote:

> I started loosing my Pred. swelling when I got down to

> 10 mg., Dawn....sigh...now, eeww pfui! So you will

> see positive changes!

>

> Major suckimoto at 40mg...

>

> Lynn

>

> --- Dawn Green wrote:

> > Hi, Zanna. I'm on 15 mg. of Pred., until tomorrow,

> > then I drop down to 10 mg.

> >

> > Dawn

> >

> > wischic68@... wrote:

> >

> > > don't throw in the towel yet!! It is good that

> > you just gave up the coke.

> > > Even if you don't lose weight, you will probably

> > feel better. How much pred

> > > are you on??

> > >

> > > Zanna

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Beck,

I feel so bad for you and Lem. Just when things are bad enough. I wish I

could give you one of my rhuemy's-I have two for just this one more month! I

love them both.

I am with you on the roughing it.....bed, toilet, electricity.....LOL. I

love to eat fish but will not touch them or clean them!!! We used to make

beer battered fish-mmmmm.

When I got to the point where I needed answers, I along with my OB thought,

MS. I had read an article about a lady with MS and the symptoms were so

familiar. I felt like I had written the article. I was diagnosed with PM

shortly after. All I know is I wouldn't wish this on 'almost' anyone!! Only

the Dr. Stupid's out there that have told us all we were crazy.....LOL.

I need to get a bunch of license plates and send them out to y'all!!

Lots of love

Zanna

[Guest guest]

Dear Bek...thanks so much for your update on Lem. I've said for years that medicine has changed drastically since the introduction of "deep pocket insurance" and it sure hasn't changed for the better when it comes to patients. I think it's one of America's great shames. My very best to both of you. Annette

-----Original Message-----From: lem1432 Sent: Thursday, August 22, 2002 1:41 AMTo: OurMyositis Subject: *sigh*Hi everyone, this is one of those days when life just beats you down. Lem is so upset with his rhummy Dr. He had a apt. with him this morning except at 4:00pm Tues. the nurse called and said she was canceling his apt. for this morning. The reason was he was no longer taking our ins. I asked them if he could see Lem one more time since he had been in the hospital and was not feeling well yet and he is going through this taping of his pred and to just talk to him and get him referred and established with another Dr. She just said no, talk to your ins. co. So I called Lems primary Dr. here in town, and he's gone on vacation. So now what do we do??? I just cried. Guess I shouldn't let it upset me that way but this is so unprofessional and worrisome. The nurse at the primary Dr. office told me they wont return their calls either and they had called numerous times. Lelia you are so right about people not caring and understanding or really wanting to really know how are you doing. I am so glad we have all of you to talk to because you do understand. Sometimes we both feel so along. I really get tired of the struggling. You know what it was weird when Lem started having symptoms and he wasn't DX his symptoms were so much like MS. Numbness, dizziness, blury vision. I thought he couldn't have MS also. Vicki, you asked Lem about his bp and lopressor. His bp is staying around 130/85 and his pulse is averaging about 85. He was on the lopressor but when he started having the tachyacardia attacks they changed him to Toprol XL. 100mg in the am and 50mg in the pm. He also takes digoxin to help strenghten the heart and control his heart beat. Well girls I am not a fisher woman. My sister loves to fish and is trying to get us to go to the lake next month with her. We usually go to Lake Tenkiller. It is close to the Arkansas line. When you get to it there are mountains, or really big hills, lol. The land here is very flat so we enjoy driving around and around the mountain. We rent a cabin there that is fully furnished, with running water a potty and air conditioner. My kind of roughing it! LOL I love going just don't like to fish. I just enjoy going on walks and reading and I am the chicken fryer. My sis loves my fried chicken. I don't know if Lem would go, I think he is afraid he will get down there and have a attack. The nearest town with a hospital is probably Tulsa, about 60 miles from the lake. My sister teases me because I am the only person she knows he does not fish and got fined for fishing without a license. Lem loves catfish, crappie and trout. The fish there are pretty flavorable due to the water being pretty blue. Here in the flat lands it is red mud like Teddi said. Annette, you are in our prayers. Sorry you didn't get to see your dr. either. Sue thank you for the info on the scooter. I am so glad you got yours and it is so much help for you. Zanna, I'm like Sue, I want one of those cute name tags. I could put it on my bike, hehe.Well I feel better already just talking to our friends here. I read some post to Lem, he just lies in his bed and smiles at you guys. Love, prayers and health to all of you. beck

[Guest guest]

Oh dear, Lem and Beck, I'm so sorry you have yet another obstacle to overcome. At the very least, your old rheumy should have referred you to another doctor. Perhaps you or Beck should call back...explain this puts you in a pickle and can they please at least refer you to another rheumy (or two...so you can have a choice!) Tell them the primary is gone for a while and Lem is fresh out of the hospital...maybe the rheumy could even make a call to a new rheumy and get Lem in quick...think maybe it's worth a shot?

I'm not quite sure about your primary doctor...don't understand the part where the nurse said they're not returning phone calls?? Isn't there another doc covering for yours while on vacation? Of course, like just what happened to me, they may be reluctant to do anything other than listen.

Like you, Beck, my idea of roughing it is the 's! LOL!!! Tents and I do not get along! But fishing is kinda nice...peaceful and quiet. Gives the heart and soul a chance to rest and get back to the important things of life.

Bless ya!

Lynn

lem1432 wrote:

Hi everyone, this is one of those days when life just beats you down. Lem is so upset with his rhummy Dr. He had a apt. with him this morning except at 4:00pm Tues. the nurse called and said she was canceling his apt. for this morning. The reason was he was no longer taking our ins. I asked them if he could see Lem one more time since he had been in the hospital and was not feeling well yet and he is going through this taping of his pred and to just talk to him and get him referred and established with another Dr. She just said no, talk to your ins. co. So I called Lems primary Dr. here in town, and he's gone on vacation. So now what do we do??? I just cried. Guess I shouldn't let it upset me that way but this is so unprofessional and worrisome. The nurse at the primary Dr. office told me they wont return their calls either and they had called numerous times. Lelia you are so right about people not caring and understanding or really wanting to really know how are you doing. I am so glad we have all of you to talk to because you do understand. Sometimes we both feel so along. I really get tired of the struggling. You know what it was weird when Lem started having symptoms and he wasn't DX his symptoms were so much like MS. Numbness, dizziness, blury vision. I thought he couldn't have MS also. Vicki, you asked Lem about his bp and lopressor. His bp is staying around 130/85 and his pulse is averaging about 85. He was on the lopressor but when he started having the tachyacardia attacks they changed him to Toprol XL. 100mg in the am and 50mg in the pm. He also takes digoxin to help strenghten the heart and control his heart beat. Well girls I am not a fisher woman. My sister loves to fish and is trying to get us to go to the lake next month with her. We usually go to Lake Tenkiller. It is close to the Arkansas line. When you get to it there are mountains, or really big hills, lol. The land here is very flat so we enjoy driving around and around the mountain. We rent a cabin there that is fully furnished, with running water a potty and air conditioner. My kind of roughing it! LOL I love going just don't like to fish. I just enjoy going on walks and reading and I am the chicken fryer. My sis loves my fried chicken. I don't know if Lem would go, I think he is afraid he will get down there and have a attack. The nearest town with a hospital is probably Tulsa, about 60 miles from the lake. My sister teases me because I am the only person she knows he does not fish and got fined for fishing without a license. Lem loves catfish, crappie and trout. The fish there are pretty flavorable due to the water being pretty blue. Here in the flat lands it is red mud like Teddi said. Annette, you are in our prayers. Sorry you didn't get to see your dr. either. Sue thank you for the info on the scooter. I am so glad you got yours and it is so much help for you. Zanna, I'm like Sue, I want one of those cute name tags. I could put it on my bike, hehe.Well I feel better already just talking to our friends here. I read some post to Lem, he just lies in his bed and smiles at you guys. Love, prayers and health to all of you. beck

[Guest guest]

Oh Beck, I'm so sorry to hear Lem is going through all this trouble with his

Dr. Makes me soooo mad!!! And I agree....it's not professional at all. You

think out of courtesy (let alone that he's a very sick man) they would make

an exception and see him this one more time. UGH!! How much is an appt.

w/out insurance? Is that an option? I worry about him, especially since

he's been having those problems with his heart. Does he have a

cardiologist? Maybe they could treat him for other symptoms as well. I hope

things work out for you both.

Funny story that you were fined for fishing without a license and it was

probably just a fluke that you were even fishing in the first place. That

cracked me up!

Hang in there,

Dawn

lem1432 wrote:

> Hi everyone, this is one of those days when life just beats you down.

> Lem is so upset with his rhummy Dr. He had a apt. with him this

> morning except at 4:00pm Tues. the nurse called and said she was

> canceling his apt. for this morning. The reason was he was no longer

> taking our ins. I asked them if he could see Lem one more time since

> he had been in the hospital and was not feeling well yet and he is

> going through this taping of his pred and to just talk to him and get

> him referred and established with another Dr. She just said no, talk

> to your ins. co. So I called Lems primary Dr. here in town, and he's

> gone on vacation. So now what do we do??? I just cried. Guess I

> shouldn't let it upset me that way but this is so unprofessional and

> worrisome. The nurse at the primary Dr. office told me they wont

> return their calls either and they had called numerous times.

> Lelia you are so right about people not caring and understanding or

> really wanting to really know how are you doing. I am so glad we have

> all of you to talk to because you do understand. Sometimes we both

> feel so along. I really get tired of the struggling. You know what it

> was weird when Lem started having symptoms and he wasn't DX his

> symptoms were so much like MS. Numbness, dizziness, blury vision. I

> thought he couldn't have MS also.

> Vicki, you asked Lem about his bp and lopressor. His bp is staying

> around 130/85 and his pulse is averaging about 85. He was on the

> lopressor but when he started having the tachyacardia attacks they

> changed him to Toprol XL. 100mg in the am and 50mg in the pm. He also

> takes digoxin to help strenghten the heart and control his heart

> beat.

> Well girls I am not a fisher woman. My sister loves to fish and is

> trying to get us to go to the lake next month with her. We usually go

> to Lake Tenkiller. It is close to the Arkansas line. When you get to

> it there are mountains, or really big hills, lol. The land here is

> very flat so we enjoy driving around and around the mountain. We rent

> a cabin there that is fully furnished, with running water a potty and

> air conditioner. My kind of roughing it! LOL I love going just don't

> like to fish. I just enjoy going on walks and reading and I am the

> chicken fryer. My sis loves my fried chicken. I don't know if Lem

> would go, I think he is afraid he will get down there and have a

> attack. The nearest town with a hospital is probably Tulsa, about 60

> miles from the lake. My sister teases me because I am the only person

> she knows he does not fish and got fined for fishing without a

> license.

> Lem loves catfish, crappie and trout. The fish there are pretty

> flavorable due to the water being pretty blue. Here in the flat lands

> it is red mud like Teddi said.

> Annette, you are in our prayers. Sorry you didn't get to see your

> dr. either.

> Sue thank you for the info on the scooter. I am so glad you got

> yours and it is so much help for you.

> Zanna, I'm like Sue, I want one of those cute name tags. I could put

> it on my bike, hehe.

> Well I feel better already just talking to our friends here. I read

> some post to Lem, he just lies in his bed and smiles at you guys.

> Love, prayers and health to all of you. beck

>

>

>

>

>

[Guest guest]

Patti Thorp wrote:

> Can I ask what the logic is behind the belief? Sometimes it's easier to

> change a belief if we know what the reasoning is. Why would you think a

> friend was an idiot for eating all of the food?

Because if you know the consequences and you don't like them but you do

it anyway. That's the reason I yell at myself. I'm an idiot because I

KNOW the consequences of overeating, yet I continue DOING it! :-/

Best wishes

s.

[Guest guest]

jain_daugh wrote:

> Maybe instead of trying to embrace your

> inner child, how about conjuring up an ideal child that you always wanted

> to be? Then you can love her like she (and you!) need too. BEST to you -

That's an interesting idea.

Best wishes

s.

[Guest guest]

Love the way your guardian angel helped you to see that for yourself Sandy. Have

to wonder what it would feel like to step on a scale and see 2.2 pounds - what a

great giggle!!

Katcha

IEing since March 2007

> >

> >

> >

> > There was a lot of overeating this past week and of course I gained

> > weight since i also didn't exercise despite walkng instead of taking the

> > bus to the seminar.

> >

> >

> > Could you stop weighing yourself? Scales lie.

> >

> >

> >

> >

> > I guess I'm not very compassionate in general. I would be tempted to

> > tell a good friend that he/she was an idiot for eating all of this food

> > despite knowing he would feel bad about it later. Of course I wouldn't,

> > I would simply lie and tell him/her something about how it's not that

> > bad or how they should be compassionate and blablabla but it would still

> > be a lie.

> >

> >

> > Can I ask what the logic is behind the belief? Sometimes it's easier to

> > change a belief if we know what the reasoning is. Why would you think a

> > friend was an idiot for eating all of the food?

> >

> > Btw, I'm a newcomer, but not new to this philosophy. I just needed to get

> > back on track as the whole crazy diet mentality snuck back into my life.

> >

> > Patti

> >

> >

>

[Guest guest]

I think all of these responses have been so wonderfully *supportive* that it's really helped me to realize the beauty of a group like this. And even though everyone has been 'supporting' Styxia I'v found all of the messages very enlightening too! 

Katcha, your statement " perhaps instead of working so HARD at this... " really drove something home for me. It's taken me a long time to learn (and I still have to remember it constantly as it goes so against my grain) how opposite of everything about a diet IE is. That it's not about being perfect, or doing " good, " or working hard or any of those things. I've been having a rough time lately, constantly emotionally eating, and I keep thinking about how I need to " do better " at IE. And while I really do want to get at the root of what's causing my emotional issues and focus on being satisfied when I eat, I've only now realized that this is all very different from the diet mentality I'm so used to. Meaning that last night I thought " Now I'm really going to DO IE. " And after I thought it I realized how silly it was, that I was treating IE like a diet, that I needed to " get back on plan. " I have been doing IE all this time, I'm just having a hard time and turning to food for it and need to take it as a learning opportunity. I realized that I'm never going to have that pre-diet rush. You all know the feeling, right? The " I'm going to be so good and so perfect...tomorrow morning " feeling. Because IE isn't about doing the plan or being good or bad, it's just about living and learning about our bodies and emotions. It's NOT about working hard (so much, there are points thought that are very hard).

So much of what I have a hard time leaving behind from diet-land is the " rush. " The giddy feeling of starting a new diet. Or the high when decide to throw out the diet and just eat a whole lot of treats for the night. I need to find a new way to be ok with this non-exciting, rush-free lifestyle. It takes a long time to learn how not to live in that " hard work, must be good and perfect " diet-land. 

[Guest guest]

there must be a reason for overeating, since you choose to do it. maybe it's comforting, maybe it tastes good, maybe something else.so i don't think you are stupid... there's logic behind it! just because it's not logic that you agree with doesn't mean it's not there...I agree. Not stupid. You just need another way of coping with your problems. Patti