THANK YOU

[Guest guest]

At your consultation with Dr. Oro on the 30th, if he has all you necessary

MRI's, and he feels surgery is in your best interest, he will have Diane Mueller

go ahead and schedule surgery and she will call you within a few days. For our

March consultation, he scheduled my sister for July 1st, first available.

Hanson thehansons5@... can help you out with Angel Flight info. She was to

fly to Missouri today with them to see Dr. Oro. Email her. Good luck. You will

really like Dr. Oro. Cannon

vicky81551@... wrote: Just wanted to thank you all for your response to the

rain issue. I have

another question??? When I go to see Dr. Oro on the 30th will he decide then

if i need surgery are not? Also, What is an angel flight? Thanks Vicky

[Guest guest]

Hi to all the group:

I only posted a message on Monday and have already had so many emails with

advice and names of 2 doctors in Toronto. I went to my new GP today who didn't

have a problem referring me ( the first time in 4 1/2 years I didn't have to try

and convince a doctor.....I just gave him the write up on P.O.T.S. and chiari

and he agreed with me...I'm still in shock!!) So hopefully I won't have to wait

too long for the appointment.

One questions that I have that's always puzzled me I seem to get my energy at

night usually around 10 pm. I don't know if that's the sleep apnea or chiari

related but it seems the less sleep I get like just a few hours the better I am,

also if I don't eat a meal I'm better too, could that be because of the csf

flow?

I would like to say a big thank you to all of you and as I begin the next phase

in this weird illness at least I know now that someone actually understands

what's going on.

Thank you

Take Care

Dianne

[Guest guest]

Good morning everyone,I just wanted to pop in here and thank you all for your thoughts and prayersI haven't been doing all that good since the last time we spoke but Im hanging in therethe biopsy that was scheduled for monday was rescheduled for this friday the procedure is kind of unique and the two Drs. that are going to do it had to rearrange there scheduleso Im in limbo still , until friday at 1:00 (can't wait to get this over with) I have been trying to keep busy with work and of course chasing aroundI don't know if she can sense that something is wrong or what, but she has been vary clingy lately , she won't let anyone else hold her and when I get home from workshe doesn't leave my side . I hope everyone is doing well and staying cool and comfortable and again thank you allfor the thought's and prayer's I know that it has helped my family and myself immensely so until next time I'll leave you with a couple pic's of my little angel , my everything Brett Bowser familial UIP/IPF 11/07 40 Mi.

[Guest guest]

THANK YOUGood morning everyone, I just wanted to pop in here and thank you all for your thoughts and prayers

I haven't been doing all that good since the last time we spoke but Im hanging in there

the biopsy that was scheduled for monday was rescheduled for this friday

the procedure is kind of unique and the two Drs. that are going to do it had to rearrange there schedule

so Im in limbo still , until friday at 1:00 (can't wait to get this over with)

I have been trying to keep busy with work and of course chasing around

I don't know if she can sense that something is wrong or what, but she has been

vary clingy lately , she won't let anyone else hold her and when I get home from work

she doesn't leave my side .

I hope everyone is doing well and staying cool and comfortable and again thank you all

for the thought's and prayer's I know that it has helped my family and myself immensely

so until next time I'll leave you with a couple pic's of my little angel , my everything

Brett Bowser

familial UIP/IPF 11/07 40 Mi.