Guest guest Posted July 8, 2008 Report Share Posted July 8, 2008 Bruce, thank you for the help. I will ask tomorrow when they bring the refill.I will just maybe have to change over also.I feel like this just doesn't work well for me. I will let you know if I need the supplier's name for the other type.He said he would bring a different machine,But after talking with you and I will not need this one changed for one just like it.I appreciate you answer. Ruth > > > > Hi everyone, I joined the group awhile ago. > > Just been reading and not shearing much. > > I am almost 71, married and we are both on oxygen. > > Hubby has COPD.He had a lung collapse in 1991. > > He has been almost completely disable sense. > > I try to take care of the both of us. > > I was diagnosed with IPF. in 1992 > > caused from work related chemicals,from old history. > > I did public work until about 5 years ago. > > I started using my oxygen to sleep with after a sleep study was done > > in 2006.During the study my oxygen went down so low they woke me up > > to see if I was breathing.Said I could have a heart attack from it > > being so low. > > My breathing just got real bad the end of 2007 now I am on it all the > > time set on 3. I started using the liquid the first of this year. > > Always complaining it does not work right. > > It only comes out on one side of the nose tube.They tell me this is > > right. > > Question is who is right? They are coming out again tomorrow and I > > hope get it right.When I do go out I feel like I can't hardly breath > > at all. I stay home now seldom get out. just don't have the energy to > > do much any more. I also have a lot of other health problems. > > I would appreciate any advise on the Helios Plus. > > thanks for taking the time to read this . > > Ruth > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2008 Report Share Posted July 8, 2008 Ruth, Yes I use liquid all the time..3 lpm 24/7. In the house the liquid O2 is in two huge tanks ( we call them R2D2) in separate areas so I don't have to lug more than 65 ft of tubing any time I move around. I fill up the Helios each day and get out each day even if it's just to the CVS. I sometimes drive to the nearest enclosed Mall and just walk around...have a Starbucks decaf and browse. It's exercise and retail therapy too!!! I find that getting out is very good medicine. I try to keep busy, I loved to shop but it's more difficult. I do a lot of on-line shopping with ebay, Amazon, QVC and Home shopping. I use catalogs too. I do get to the Babies R US frequently...with two little grand daughters ( Darah is 2 1/2 and Sara is 4 months) I cannot leave that store without stuff for each of them. I chuckled about the tubing getting twisted while dancing...my husband uses a CPAP at night so we're both hooked up to hoses. Who would have thought we'd need this junk Welcome again. Z fibriotic NSIP/05 Z 64, fibriotic NSIP/o5/PA And “mild” PH/10/07 and Reynaud’s too!! No, NSIP was not self-inflicted…I never smoked! Potter, reader,carousel lover and MomMom to Darah and Sara “I’m gonna be iron like a lion in Zion” Bob Marley Vinca Minor-periwinkle is my flower Ruth Pierce wrote: , Thanks for clearing that up for me. I do use the concentrator inside and when I sleep. It must be the fact that I am more short winded when I go out because i am moving around more. I thought it was because the machine was not working right. Do you use the liquid all the time? I only use it when I go out. Ruth > > > Hi everyone, I joined the group awhile ago. > > Just been reading and not shearing much. > > I am almost 71, married and we are both on oxygen. > > Hubby has COPD.He had a lung collapse in 1991. > > He has been almost completely disable sense. > > I try to take care of the both of us. > > I was diagnosed with IPF. in 1992 > > caused from work related chemicals,from old history. > > I did public work until about 5 years ago. > > I started using my oxygen to sleep with after a sleep study was done > > in 2006.During the study my oxygen went down so low they woke me up > > to see if I was breathing.Said I could have a heart attack from it > > being so low. > > My breathing just got real bad the end of 2007 now I am on it all the > > time set on 3. I started using the liquid the first of this year. > > Always complaining it does not work right. > > It only comes out on one side of the nose tube.They tell me this is > > right. > > Question is who is right? They are coming out again tomorrow and I > > hope get it right.When I do go out I feel like I can't hardly breath > > at all. I stay home now seldom get out. just don't have the energy to > > do much any more. I also have a lot of other health problems. > > I would appreciate any advise on the Helios Plus. > > thanks for taking the time to read this . > > Ruth > > > > > > > >No virus found in this incoming message. > >Checked by AVG - http://www.avg.com > >Version: 8.0.138 / Virus Database: 270.4.6/1540 - Release Date: 7/8/2008 6:33 AM > > > > > No virus found in this incoming message. Checked by AVG - http://www.avg.com Version: 8.0.138 / Virus Database: 270.4.6/1540 - Release Date: 7/8/2008 6:33 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2008 Report Share Posted July 8, 2008 Ruth, Yes I use liquid all the time..3 lpm 24/7. In the house the liquid O2 is in two huge tanks ( we call them R2D2) in separate areas so I don't have to lug more than 65 ft of tubing any time I move around. I fill up the Helios each day and get out each day even if it's just to the CVS. I sometimes drive to the nearest enclosed Mall and just walk around...have a Starbucks decaf and browse. It's exercise and retail therapy too!!! I find that getting out is very good medicine. I try to keep busy, I loved to shop but it's more difficult. I do a lot of on-line shopping with ebay, Amazon, QVC and Home shopping. I use catalogs too. I do get to the Babies R US frequently...with two little grand daughters ( Darah is 2 1/2 and Sara is 4 months) I cannot leave that store without stuff for each of them. I chuckled about the tubing getting twisted while dancing...my husband uses a CPAP at night so we're both hooked up to hoses. Who would have thought we'd need this junk Welcome again. Z fibriotic NSIP/05 Z 64, fibriotic NSIP/o5/PA And “mild” PH/10/07 and Reynaud’s too!! No, NSIP was not self-inflicted…I never smoked! Potter, reader,carousel lover and MomMom to Darah and Sara “I’m gonna be iron like a lion in Zion” Bob Marley Vinca Minor-periwinkle is my flower Ruth Pierce wrote: , Thanks for clearing that up for me. I do use the concentrator inside and when I sleep. It must be the fact that I am more short winded when I go out because i am moving around more. I thought it was because the machine was not working right. Do you use the liquid all the time? I only use it when I go out. Ruth > > > Hi everyone, I joined the group awhile ago. > > Just been reading and not shearing much. > > I am almost 71, married and we are both on oxygen. > > Hubby has COPD.He had a lung collapse in 1991. > > He has been almost completely disable sense. > > I try to take care of the both of us. > > I was diagnosed with IPF. in 1992 > > caused from work related chemicals,from old history. > > I did public work until about 5 years ago. > > I started using my oxygen to sleep with after a sleep study was done > > in 2006.During the study my oxygen went down so low they woke me up > > to see if I was breathing.Said I could have a heart attack from it > > being so low. > > My breathing just got real bad the end of 2007 now I am on it all the > > time set on 3. I started using the liquid the first of this year. > > Always complaining it does not work right. > > It only comes out on one side of the nose tube.They tell me this is > > right. > > Question is who is right? They are coming out again tomorrow and I > > hope get it right.When I do go out I feel like I can't hardly breath > > at all. I stay home now seldom get out. just don't have the energy to > > do much any more. I also have a lot of other health problems. > > I would appreciate any advise on the Helios Plus. > > thanks for taking the time to read this . > > Ruth > > > > > > > >No virus found in this incoming message. > >Checked by AVG - http://www.avg.com > >Version: 8.0.138 / Virus Database: 270.4.6/1540 - Release Date: 7/8/2008 6:33 AM > > > > > No virus found in this incoming message. Checked by AVG - http://www.avg.com Version: 8.0.138 / Virus Database: 270.4.6/1540 - Release Date: 7/8/2008 6:33 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2008 Report Share Posted July 8, 2008 , I do a lot of shopping on line also.I just love JCPenny's I used to love to go out, and shopping was my favorite thing to do,now i mostly stay in. Can't seem to breath when I go out.Carrying packages makes it worse.Now I let them bring it to me. I don't buy for grands or the great grands any more. to many of them.Sense i don't go out I don't need as much.Except food, Now we eat all the time. I don't use the liquid oxygen here at home. Ruth > > > > > > > Hi everyone, I joined the group awhile ago. > > > > Just been reading and not shearing much. > > > > I am almost 71, married and we are both on oxygen. > > > > Hubby has COPD.He had a lung collapse in 1991. > > > > He has been almost completely disable sense. > > > > I try to take care of the both of us. > > > > I was diagnosed with IPF. in 1992 > > > > caused from work related chemicals,from old history. > > > > I did public work until about 5 years ago. > > > > I started using my oxygen to sleep with after a sleep study was > > done > > > > in 2006.During the study my oxygen went down so low they woke me > > up > > > > to see if I was breathing.Said I could have a heart attack from it > > > > being so low. > > > > My breathing just got real bad the end of 2007 now I am on it all > > the > > > > time set on 3. I started using the liquid the first of this year. > > > > Always complaining it does not work right. > > > > It only comes out on one side of the nose tube.They tell me this > > is > > > > right. > > > > Question is who is right? They are coming out again tomorrow and I > > > > hope get it right.When I do go out I feel like I can't hardly > > breath > > > > at all. I stay home now seldom get out. just don't have the > > energy to > > > > do much any more. I also have a lot of other health problems. > > > > I would appreciate any advise on the Helios Plus. > > > > thanks for taking the time to read this . > > > > Ruth > > > > > > > > > > > > > > > >No virus found in this incoming message. > > > >Checked by AVG - http://www.avg.com <http://www.avg.com> > > > >Version: 8.0.138 / Virus Database: 270.4.6/1540 - Release Date: > > 7/8/2008 6:33 AM > > > > > > > > > > > > > > > > > > >No virus found in this incoming message. > >Checked by AVG - http://www.avg.com > >Version: 8.0.138 / Virus Database: 270.4.6/1540 - Release Date: 7/8/2008 6:33 AM > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2008 Report Share Posted July 8, 2008 Bruce, I do have an oximeter. When I use it inside it registers on about 95-98. I have not carried it out side nor have I checked it with the liquid so maybe I should carry it with me when I go out again. It does stand to reason i would need it turned up higher when I am shopping and moving faster. Thanks for the advice. Ruth > > > > > > > > > Hi everyone, I joined the group awhile ago. > > > > > Just been reading and not shearing much. > > > > > I am almost 71, married and we are both on oxygen. > > > > > Hubby has COPD.He had a lung collapse in 1991. > > > > > He has been almost completely disable sense. > > > > > I try to take care of the both of us. > > > > > I was diagnosed with IPF. in 1992 > > > > > caused from work related chemicals,from old history. > > > > > I did public work until about 5 years ago. > > > > > I started using my oxygen to sleep with after a sleep study was > > > done > > > > > in 2006.During the study my oxygen went down so low they woke me > > > up > > > > > to see if I was breathing.Said I could have a heart attack from > it > > > > > being so low. > > > > > My breathing just got real bad the end of 2007 now I am on it > all > > > the > > > > > time set on 3. I started using the liquid the first of this > year. > > > > > Always complaining it does not work right. > > > > > It only comes out on one side of the nose tube.They tell me this > > > is > > > > > right. > > > > > Question is who is right? They are coming out again tomorrow and > I > > > > > hope get it right.When I do go out I feel like I can't hardly > > > breath > > > > > at all. I stay home now seldom get out. just don't have the > > > energy to > > > > > do much any more. I also have a lot of other health problems. > > > > > I would appreciate any advise on the Helios Plus. > > > > > thanks for taking the time to read this . > > > > > Ruth > > > > > > > > > > > > > > > > > > > >No virus found in this incoming message. > > > > >Checked by AVG - http://www.avg.com > > > > >Version: 8.0.138 / Virus Database: 270.4.6/1540 - Release Date: > > > 7/8/2008 6:33 AM > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2008 Report Share Posted July 8, 2008 Bruce, I do have an oximeter. When I use it inside it registers on about 95-98. I have not carried it out side nor have I checked it with the liquid so maybe I should carry it with me when I go out again. It does stand to reason i would need it turned up higher when I am shopping and moving faster. Thanks for the advice. Ruth > > > > > > > > > Hi everyone, I joined the group awhile ago. > > > > > Just been reading and not shearing much. > > > > > I am almost 71, married and we are both on oxygen. > > > > > Hubby has COPD.He had a lung collapse in 1991. > > > > > He has been almost completely disable sense. > > > > > I try to take care of the both of us. > > > > > I was diagnosed with IPF. in 1992 > > > > > caused from work related chemicals,from old history. > > > > > I did public work until about 5 years ago. > > > > > I started using my oxygen to sleep with after a sleep study was > > > done > > > > > in 2006.During the study my oxygen went down so low they woke me > > > up > > > > > to see if I was breathing.Said I could have a heart attack from > it > > > > > being so low. > > > > > My breathing just got real bad the end of 2007 now I am on it > all > > > the > > > > > time set on 3. I started using the liquid the first of this > year. > > > > > Always complaining it does not work right. > > > > > It only comes out on one side of the nose tube.They tell me this > > > is > > > > > right. > > > > > Question is who is right? They are coming out again tomorrow and > I > > > > > hope get it right.When I do go out I feel like I can't hardly > > > breath > > > > > at all. I stay home now seldom get out. just don't have the > > > energy to > > > > > do much any more. I also have a lot of other health problems. > > > > > I would appreciate any advise on the Helios Plus. > > > > > thanks for taking the time to read this . > > > > > Ruth > > > > > > > > > > > > > > > > > > > >No virus found in this incoming message. > > > > >Checked by AVG - http://www.avg.com > > > > >Version: 8.0.138 / Virus Database: 270.4.6/1540 - Release Date: > > > 7/8/2008 6:33 AM > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2008 Report Share Posted July 9, 2008 Sher, I am learning to (accept the things I can not change). If i go out it is only a short while, I have never shoped at Roaman's but maybe I will, I checked it out last night, got some very pretty stuff.Thanks Ruth > > > > > > Welcome Ruth. It's always sad to me when a " newbie " comes on > the > > board but I know you are in such a good place for information and > > support. There is always someone here to be of help. Usually more > > than one! > > > I can't help with Helios but there are many here who can. I > don't > > use liquid. > > > I do relate to having a lot of other health problems however. I > > deal with that stuff every day. > > > I too have little energy. I seldom go out except to Drs. > > > I'm turning 70 next month and was dx (diagnosed) more than 2 > years > > ago. Until recently I have been fairly stable. > > > It is sad news to read your husband has COPD and I imagine it > is > > difficult for you to take care of both of you. > > > Where do you live? I'm in Oregon. > > > Glad to have you with us. We'll get more acquainted as time > goes > > along. > > > > > > MamaSher, age 69. IPF 3-06, OR./ Nasturtiums > > > Don't fret about tomorrow, God is already there! > > > > > > liquid oxygen > > > > > > > > > Hi everyone, I joined the group awhile ago. > > > Just been reading and not shearing much. > > > I am almost 71, married and we are both on oxygen. > > > Hubby has COPD.He had a lung collapse in 1991. > > > He has been almost completely disable sense. > > > I try to take care of the both of us. > > > I was diagnosed with IPF. in 1992 > > > caused from work related chemicals,from old history. > > > I did public work until about 5 years ago. > > > I started using my oxygen to sleep with after a sleep study was > > done > > > in 2006.During the study my oxygen went down so low they woke > me > > up > > > to see if I was breathing.Said I could have a heart attack from > > it > > > being so low. > > > My breathing just got real bad the end of 2007 now I am on it > all > > the > > > time set on 3. I started using the liquid the first of this > year. > > > Always complaining it does not work right. > > > It only comes out on one side of the nose tube.They tell me > this > > is > > > right. > > > Question is who is right? They are coming out again tomorrow > and > > I > > > hope get it right.When I do go out I feel like I can't hardly > > breath > > > at all. I stay home now seldom get out. just don't have the > > energy to > > > do much any more. I also have a lot of other health problems. > > > I would appreciate any advise on the Helios Plus. > > > thanks for taking the time to read this . > > > Ruth > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2008 Report Share Posted July 10, 2008 Ruth, wherever I am and whom ever I am wtih, there will always be room for you. Jack79/IPF - UIP/dx06/05 Maine liquid oxygen> > > > > > > > > > > > Hi everyone, I joined the group awhile ago.> > > > Just been reading and not shearing much.> > > > I am almost 71, married and we are both on oxygen. > > > > Hubby has COPD.He had a lung collapse in 1991. > > > > He has been almost completely disable sense. > > > > I try to take care of the both of us. > > > > I was diagnosed with IPF. in 1992 > > > > caused from work related chemicals,from old history.> > > > I did public work until about 5 years ago.> > > > I started using my oxygen to sleep with after a sleep study > was > > > done > > > > in 2006.During the study my oxygen went down so low they woke > > me > > > up > > > > to see if I was breathing.Said I could have a heart attack > from > > > it > > > > being so low. > > > > My breathing just got real bad the end of 2007 now I am on it > > all > > > the > > > > time set on 3. I started using the liquid the first of this > > year.> > > > Always complaining it does not work right.> > > > It only comes out on one side of the nose tube.They tell me > > this > > > is > > > > right.> > > > Question is who is right? They are coming out again tomorrow > > and > > > I > > > > hope get it right.When I do go out I feel like I can't hardly > > > breath > > > > at all. I stay home now seldom get out. just don't have the > > > energy to > > > > do much any more. I also have a lot of other health problems.> > > > I would appreciate any advise on the Helios Plus.> > > > thanks for taking the time to read this . > > > > Ruth> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
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