Guest guest Posted July 8, 2008 Report Share Posted July 8, 2008 Ruth The Helios Plus standard cannula does just come out on one side. However, there are cannulas made to take it to both sides and to get return from both sides. Now, I found the Plus inadequate for me as sometimes I need continuous and higher flows so I'm on the Helios Marathon which works great for me. I use both types of cannulas-the one that comes out on one side and the one that goes to both sides. I generally go one sided because of appearance and size (its smaller) but occasionally for better flow go to the two sided one. Both are dual meaning they give you air and they get feedback on your exhaling to know your demand. If your supplier is either unfamiliar or doesn't have the other cannulas, I'll be glad to locate some for you. > > Hi everyone, I joined the group awhile ago. > Just been reading and not shearing much. > I am almost 71, married and we are both on oxygen. > Hubby has COPD.He had a lung collapse in 1991. > He has been almost completely disable sense. > I try to take care of the both of us. > I was diagnosed with IPF. in 1992 > caused from work related chemicals,from old history. > I did public work until about 5 years ago. > I started using my oxygen to sleep with after a sleep study was done > in 2006.During the study my oxygen went down so low they woke me up > to see if I was breathing.Said I could have a heart attack from it > being so low. > My breathing just got real bad the end of 2007 now I am on it all the > time set on 3. I started using the liquid the first of this year. > Always complaining it does not work right. > It only comes out on one side of the nose tube.They tell me this is > right. > Question is who is right? They are coming out again tomorrow and I > hope get it right.When I do go out I feel like I can't hardly breath > at all. I stay home now seldom get out. just don't have the energy to > do much any more. I also have a lot of other health problems. > I would appreciate any advise on the Helios Plus. > thanks for taking the time to read this . > Ruth > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2008 Report Share Posted July 8, 2008 Terry Excellent idea and glad you're doing the project. It's much like Sher's project. As some things are less enjoyable or more difficult we must continue to search for new things to bring value and pleasure to our lives. > > From: Ruth Pierce gagrandmarucia@... > Subject: liquid oxygen > To: Breathe-Support > Date: Tuesday, July 8, 2008, 6:24 PM > > > > > > > Hi everyone, I joined the group awhile ago. > Just been reading and not shearing much. > I am almost 71, married and we are both on oxygen. > Hubby has COPD.He had a lung collapse in 1991. > He has been almost completely disable sense. > I try to take care of the both of us. > I was diagnosed with IPF. in 1992 > caused from work related chemicals,from old history. > I did public work until about 5 years ago. > I started using my oxygen to sleep with after a sleep study was done > in 2006.During the study my oxygen went down so low they woke me up > to see if I was breathing.Said I could have a heart attack from it > being so low. > My breathing just got real bad the end of 2007 now I am on it all the > time set on 3. I started using the liquid the first of this year. > Always complaining it does not work right. > It only comes out on one side of the nose tube.They tell me this is > right. > Question is who is right? They are coming out again tomorrow and I > hope get it right.When I do go out I feel like I can't hardly breath > at all. I stay home now seldom get out. just don't have the energy to > do much any more. I also have a lot of other health problems. > I would appreciate any advise on the Helios Plus. > thanks for taking the time to read this . > Ruth > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2008 Report Share Posted July 8, 2008 Thanks Sher, I think i have talked with you before. I will be 71 Aug 17th.We live in South East Ga. All the way across the states from you. Long way. I am sorry there are so many people that are sick with this disease. you are all doing a great job here. So nice a friendly. It is not so hard trying to help hubby he is very understanding and if I don't feel like doing something then it can wait.We have a hard time trying to keep the tubing separated when we dance.(just joking) Ruth -- In Breathe-Support , " Sher Bauman " wrote: > > Welcome Ruth. It's always sad to me when a " newbie " comes on the board but I know you are in such a good place for information and support. There is always someone here to be of help. Usually more than one! > I can't help with Helios but there are many here who can. I don't use liquid. > I do relate to having a lot of other health problems however. I deal with that stuff every day. > I too have little energy. I seldom go out except to Drs. > I'm turning 70 next month and was dx (diagnosed) more than 2 years ago. Until recently I have been fairly stable. > It is sad news to read your husband has COPD and I imagine it is difficult for you to take care of both of you. > Where do you live? I'm in Oregon. > Glad to have you with us. We'll get more acquainted as time goes along. > > MamaSher, age 69. IPF 3-06, OR./ Nasturtiums > Don't fret about tomorrow, God is already there! > > liquid oxygen > > > Hi everyone, I joined the group awhile ago. > Just been reading and not shearing much. > I am almost 71, married and we are both on oxygen. > Hubby has COPD.He had a lung collapse in 1991. > He has been almost completely disable sense. > I try to take care of the both of us. > I was diagnosed with IPF. in 1992 > caused from work related chemicals,from old history. > I did public work until about 5 years ago. > I started using my oxygen to sleep with after a sleep study was done > in 2006.During the study my oxygen went down so low they woke me up > to see if I was breathing.Said I could have a heart attack from it > being so low. > My breathing just got real bad the end of 2007 now I am on it all the > time set on 3. I started using the liquid the first of this year. > Always complaining it does not work right. > It only comes out on one side of the nose tube.They tell me this is > right. > Question is who is right? They are coming out again tomorrow and I > hope get it right.When I do go out I feel like I can't hardly breath > at all. I stay home now seldom get out. just don't have the energy to > do much any more. I also have a lot of other health problems. > I would appreciate any advise on the Helios Plus. > thanks for taking the time to read this . > Ruth > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2008 Report Share Posted July 8, 2008 , Thanks for clearing that up for me. I do use the concentrator inside and when I sleep. It must be the fact that I am more short winded when I go out because i am moving around more. I thought it was because the machine was not working right. Do you use the liquid all the time? I only use it when I go out. Ruth > > > Hi everyone, I joined the group awhile ago. > > Just been reading and not shearing much. > > I am almost 71, married and we are both on oxygen. > > Hubby has COPD.He had a lung collapse in 1991. > > He has been almost completely disable sense. > > I try to take care of the both of us. > > I was diagnosed with IPF. in 1992 > > caused from work related chemicals,from old history. > > I did public work until about 5 years ago. > > I started using my oxygen to sleep with after a sleep study was done > > in 2006.During the study my oxygen went down so low they woke me up > > to see if I was breathing.Said I could have a heart attack from it > > being so low. > > My breathing just got real bad the end of 2007 now I am on it all the > > time set on 3. I started using the liquid the first of this year. > > Always complaining it does not work right. > > It only comes out on one side of the nose tube.They tell me this is > > right. > > Question is who is right? They are coming out again tomorrow and I > > hope get it right.When I do go out I feel like I can't hardly breath > > at all. I stay home now seldom get out. just don't have the energy to > > do much any more. I also have a lot of other health problems. > > I would appreciate any advise on the Helios Plus. > > thanks for taking the time to read this . > > Ruth > > > > > > > >No virus found in this incoming message. > >Checked by AVG - http://www.avg.com > >Version: 8.0.138 / Virus Database: 270.4.6/1540 - Release Date: 7/8/2008 6:33 AM > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2008 Report Share Posted July 8, 2008 Ruth....of course, I remember now. Our August birthdays and GA reminded me. When you're off board for awhile I swear I just can't remember details w/o a brain kick. Rich and I are the same way. "It" can wait or not be done at all. Really, it's kind of a nice way to live. Not a lot of pressures. I hope the best/easiest for both of you Ruth. Sorry I had a brain-fade about you. I'll remember now. MamaSher, age 69. IPF 3-06, OR./ NasturtiumsDon't fret about tomorrow, God is already there! liquid oxygen> > > Hi everyone, I joined the group awhile ago.> Just been reading and not shearing much.> I am almost 71, married and we are both on oxygen. > Hubby has COPD.He had a lung collapse in 1991. > He has been almost completely disable sense. > I try to take care of the both of us. > I was diagnosed with IPF. in 1992 > caused from work related chemicals,from old history.> I did public work until about 5 years ago.> I started using my oxygen to sleep with after a sleep study was done > in 2006.During the study my oxygen went down so low they woke me up > to see if I was breathing.Said I could have a heart attack from it > being so low. > My breathing just got real bad the end of 2007 now I am on it all the > time set on 3. I started using the liquid the first of this year.> Always complaining it does not work right.> It only comes out on one side of the nose tube.They tell me this is > right.> Question is who is right? They are coming out again tomorrow and I > hope get it right.When I do go out I feel like I can't hardly breath > at all. I stay home now seldom get out. just don't have the energy to > do much any more. I also have a lot of other health problems.> I would appreciate any advise on the Helios Plus.> thanks for taking the time to read this . > Ruth> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2008 Report Share Posted July 8, 2008 Terry, honey you have been a big help just responding was great. i do a lot of crocheting mostly afghans. I don't mean to be complaining I just feel blessed this group is here for us.I do feel like I should be up and busy most of the time. After I do dinner i have to rest awhile before I am able to do the dishes.not doing a lot of exercising ,just eating and getting fat. Ruth > > > Subject: liquid oxygen > To: Breathe-Support > Date: Tuesday, July 8, 2008, 6:24 PM > > > > > > > Hi everyone, I joined the group awhile ago. > Just been reading and not shearing much. > I am almost 71, married and we are both on oxygen. > Hubby has COPD.He had a lung collapse in 1991. > He has been almost completely disable sense. > I try to take care of the both of us. > I was diagnosed with IPF. in 1992 > caused from work related chemicals,from old history. > I did public work until about 5 years ago. > I started using my oxygen to sleep with after a sleep study was done > in 2006.During the study my oxygen went down so low they woke me up > to see if I was breathing.Said I could have a heart attack from it > being so low. > My breathing just got real bad the end of 2007 now I am on it all the > time set on 3. I started using the liquid the first of this year. > Always complaining it does not work right. > It only comes out on one side of the nose tube.They tell me this is > right. > Question is who is right? They are coming out again tomorrow and I > hope get it right.When I do go out I feel like I can't hardly breath > at all. I stay home now seldom get out. just don't have the energy to > do much any more. I also have a lot of other health problems. > I would appreciate any advise on the Helios Plus. > thanks for taking the time to read this . > Ruth > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2008 Report Share Posted July 8, 2008 Bruce, thank you for the help. I will ask tomorrow when they bring the refill.I will just maybe have to change over also.I feel like this just doesn't work well for me. I will let you know if I need the supplier's name for the other type.He said he would bring a different machine,But after talking with you and I will not need this one changed for one just like it.I appreciate you answer. Ruth > > > > Hi everyone, I joined the group awhile ago. > > Just been reading and not shearing much. > > I am almost 71, married and we are both on oxygen. > > Hubby has COPD.He had a lung collapse in 1991. > > He has been almost completely disable sense. > > I try to take care of the both of us. > > I was diagnosed with IPF. in 1992 > > caused from work related chemicals,from old history. > > I did public work until about 5 years ago. > > I started using my oxygen to sleep with after a sleep study was done > > in 2006.During the study my oxygen went down so low they woke me up > > to see if I was breathing.Said I could have a heart attack from it > > being so low. > > My breathing just got real bad the end of 2007 now I am on it all the > > time set on 3. I started using the liquid the first of this year. > > Always complaining it does not work right. > > It only comes out on one side of the nose tube.They tell me this is > > right. > > Question is who is right? They are coming out again tomorrow and I > > hope get it right.When I do go out I feel like I can't hardly breath > > at all. I stay home now seldom get out. just don't have the energy to > > do much any more. I also have a lot of other health problems. > > I would appreciate any advise on the Helios Plus. > > thanks for taking the time to read this . > > Ruth > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2008 Report Share Posted July 8, 2008 Ruth, Yes I use liquid all the time..3 lpm 24/7. In the house the liquid O2 is in two huge tanks ( we call them R2D2) in separate areas so I don't have to lug more than 65 ft of tubing any time I move around. I fill up the Helios each day and get out each day even if it's just to the CVS. I sometimes drive to the nearest enclosed Mall and just walk around...have a Starbucks decaf and browse. It's exercise and retail therapy too!!! I find that getting out is very good medicine. I try to keep busy, I loved to shop but it's more difficult. I do a lot of on-line shopping with ebay, Amazon, QVC and Home shopping. I use catalogs too. I do get to the Babies R US frequently...with two little grand daughters ( Darah is 2 1/2 and Sara is 4 months) I cannot leave that store without stuff for each of them. I chuckled about the tubing getting twisted while dancing...my husband uses a CPAP at night so we're both hooked up to hoses. Who would have thought we'd need this junk Welcome again. Z fibriotic NSIP/05 Z 64, fibriotic NSIP/o5/PA And “mild” PH/10/07 and Reynaud’s too!! No, NSIP was not self-inflicted…I never smoked! Potter, reader,carousel lover and MomMom to Darah and Sara “I’m gonna be iron like a lion in Zion” Bob Marley Vinca Minor-periwinkle is my flower Ruth Pierce wrote: , Thanks for clearing that up for me. I do use the concentrator inside and when I sleep. It must be the fact that I am more short winded when I go out because i am moving around more. I thought it was because the machine was not working right. Do you use the liquid all the time? I only use it when I go out. Ruth > > > Hi everyone, I joined the group awhile ago. > > Just been reading and not shearing much. > > I am almost 71, married and we are both on oxygen. > > Hubby has COPD.He had a lung collapse in 1991. > > He has been almost completely disable sense. > > I try to take care of the both of us. > > I was diagnosed with IPF. in 1992 > > caused from work related chemicals,from old history. > > I did public work until about 5 years ago. > > I started using my oxygen to sleep with after a sleep study was done > > in 2006.During the study my oxygen went down so low they woke me up > > to see if I was breathing.Said I could have a heart attack from it > > being so low. > > My breathing just got real bad the end of 2007 now I am on it all the > > time set on 3. I started using the liquid the first of this year. > > Always complaining it does not work right. > > It only comes out on one side of the nose tube.They tell me this is > > right. > > Question is who is right? They are coming out again tomorrow and I > > hope get it right.When I do go out I feel like I can't hardly breath > > at all. I stay home now seldom get out. just don't have the energy to > > do much any more. I also have a lot of other health problems. > > I would appreciate any advise on the Helios Plus. > > thanks for taking the time to read this . > > Ruth > > > > > > > >No virus found in this incoming message. > >Checked by AVG - http://www.avg.com > >Version: 8.0.138 / Virus Database: 270.4.6/1540 - Release Date: 7/8/2008 6:33 AM > > > > > No virus found in this incoming message. Checked by AVG - http://www.avg.com Version: 8.0.138 / Virus Database: 270.4.6/1540 - Release Date: 7/8/2008 6:33 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2008 Report Share Posted July 8, 2008 , I do a lot of shopping on line also.I just love JCPenny's I used to love to go out, and shopping was my favorite thing to do,now i mostly stay in. Can't seem to breath when I go out.Carrying packages makes it worse.Now I let them bring it to me. I don't buy for grands or the great grands any more. to many of them.Sense i don't go out I don't need as much.Except food, Now we eat all the time. I don't use the liquid oxygen here at home. Ruth > > > > > > > Hi everyone, I joined the group awhile ago. > > > > Just been reading and not shearing much. > > > > I am almost 71, married and we are both on oxygen. > > > > Hubby has COPD.He had a lung collapse in 1991. > > > > He has been almost completely disable sense. > > > > I try to take care of the both of us. > > > > I was diagnosed with IPF. in 1992 > > > > caused from work related chemicals,from old history. > > > > I did public work until about 5 years ago. > > > > I started using my oxygen to sleep with after a sleep study was > > done > > > > in 2006.During the study my oxygen went down so low they woke me > > up > > > > to see if I was breathing.Said I could have a heart attack from it > > > > being so low. > > > > My breathing just got real bad the end of 2007 now I am on it all > > the > > > > time set on 3. I started using the liquid the first of this year. > > > > Always complaining it does not work right. > > > > It only comes out on one side of the nose tube.They tell me this > > is > > > > right. > > > > Question is who is right? They are coming out again tomorrow and I > > > > hope get it right.When I do go out I feel like I can't hardly > > breath > > > > at all. I stay home now seldom get out. just don't have the > > energy to > > > > do much any more. I also have a lot of other health problems. > > > > I would appreciate any advise on the Helios Plus. > > > > thanks for taking the time to read this . > > > > Ruth > > > > > > > > > > > > > > > >No virus found in this incoming message. > > > >Checked by AVG - http://www.avg.com <http://www.avg.com> > > > >Version: 8.0.138 / Virus Database: 270.4.6/1540 - Release Date: > > 7/8/2008 6:33 AM > > > > > > > > > > > > > > > > > > >No virus found in this incoming message. > >Checked by AVG - http://www.avg.com > >Version: 8.0.138 / Virus Database: 270.4.6/1540 - Release Date: 7/8/2008 6:33 AM > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2008 Report Share Posted July 8, 2008 Ruth... please don't feel guilty over what you think you "should" be doing. Shoulda, coulda, woulda. If we could do more we would do more. I often feel guilty over what Rich does 'cause he does a lot of what I used to do. I shop online too. Sometimes I get caught in that darn postage to return and shipping to exchange cycle but it's still cheaper than gas and ever so much easier on me. I like QVC and used to shop Penny's all the time. I seldom go to the mall now where they have a big store however I could still bring them up online. I really like shopping at www.Roaman's.com. Good prices. Cya tomorrow... MamaSher, age 69. IPF 3-06, OR./ NasturtiumsDon't fret about tomorrow, God is already there! liquid oxygen> > > > > > Hi everyone, I joined the group awhile ago.> > Just been reading and not shearing much.> > I am almost 71, married and we are both on oxygen. > > Hubby has COPD.He had a lung collapse in 1991. > > He has been almost completely disable sense. > > I try to take care of the both of us. > > I was diagnosed with IPF. in 1992 > > caused from work related chemicals,from old history.> > I did public work until about 5 years ago.> > I started using my oxygen to sleep with after a sleep study was > done > > in 2006.During the study my oxygen went down so low they woke me > up > > to see if I was breathing.Said I could have a heart attack from > it > > being so low. > > My breathing just got real bad the end of 2007 now I am on it all > the > > time set on 3. I started using the liquid the first of this year.> > Always complaining it does not work right.> > It only comes out on one side of the nose tube.They tell me this > is > > right.> > Question is who is right? They are coming out again tomorrow and > I > > hope get it right.When I do go out I feel like I can't hardly > breath > > at all. I stay home now seldom get out. just don't have the > energy to > > do much any more. I also have a lot of other health problems.> > I would appreciate any advise on the Helios Plus.> > thanks for taking the time to read this . > > Ruth> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2008 Report Share Posted July 9, 2008 Ruth... if you are a larger size woman like I am, the quality of Roaman's is very good and as I said, good prices too. Have a good day. MamaSher, age 69. IPF 3-06, OR./ NasturtiumsDon't fret about tomorrow, God is already there! liquid oxygen> > > > > > > > > Hi everyone, I joined the group awhile ago.> > > Just been reading and not shearing much.> > > I am almost 71, married and we are both on oxygen. > > > Hubby has COPD.He had a lung collapse in 1991. > > > He has been almost completely disable sense. > > > I try to take care of the both of us. > > > I was diagnosed with IPF. in 1992 > > > caused from work related chemicals,from old history.> > > I did public work until about 5 years ago.> > > I started using my oxygen to sleep with after a sleep study was > > done > > > in 2006.During the study my oxygen went down so low they woke > me > > up > > > to see if I was breathing.Said I could have a heart attack from > > it > > > being so low. > > > My breathing just got real bad the end of 2007 now I am on it > all > > the > > > time set on 3. I started using the liquid the first of this > year.> > > Always complaining it does not work right.> > > It only comes out on one side of the nose tube.They tell me > this > > is > > > right.> > > Question is who is right? They are coming out again tomorrow > and > > I > > > hope get it right.When I do go out I feel like I can't hardly > > breath > > > at all. I stay home now seldom get out. just don't have the > > energy to > > > do much any more. I also have a lot of other health problems.> > > I would appreciate any advise on the Helios Plus.> > > thanks for taking the time to read this . > > > Ruth> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2008 Report Share Posted July 9, 2008 Sher, I am a large size and going larger. All we do around here is eat. I read in your post that you are having a bad day. I am sorry, sure hope you can get something that will let you rest. Jack said he would be there to hold your hand, Hope there is room for me to peep over his shoulder. I will be praying for you. Ruth > > > > > > > > Welcome Ruth. It's always sad to me when a " newbie " comes on > > the > > > board but I know you are in such a good place for information > and > > > support. There is always someone here to be of help. Usually > more > > > than one! > > > > I can't help with Helios but there are many here who can. I > > don't > > > use liquid. > > > > I do relate to having a lot of other health problems however. > I > > > deal with that stuff every day. > > > > I too have little energy. I seldom go out except to Drs. > > > > I'm turning 70 next month and was dx (diagnosed) more than 2 > > years > > > ago. Until recently I have been fairly stable. > > > > It is sad news to read your husband has COPD and I imagine it > > is > > > difficult for you to take care of both of you. > > > > Where do you live? I'm in Oregon. > > > > Glad to have you with us. We'll get more acquainted as time > > goes > > > along. > > > > > > > > MamaSher, age 69. IPF 3-06, OR./ Nasturtiums > > > > Don't fret about tomorrow, God is already there! > > > > > > > > liquid oxygen > > > > > > > > > > > > Hi everyone, I joined the group awhile ago. > > > > Just been reading and not shearing much. > > > > I am almost 71, married and we are both on oxygen. > > > > Hubby has COPD.He had a lung collapse in 1991. > > > > He has been almost completely disable sense. > > > > I try to take care of the both of us. > > > > I was diagnosed with IPF. in 1992 > > > > caused from work related chemicals,from old history. > > > > I did public work until about 5 years ago. > > > > I started using my oxygen to sleep with after a sleep study > was > > > done > > > > in 2006.During the study my oxygen went down so low they woke > > me > > > up > > > > to see if I was breathing.Said I could have a heart attack > from > > > it > > > > being so low. > > > > My breathing just got real bad the end of 2007 now I am on it > > all > > > the > > > > time set on 3. I started using the liquid the first of this > > year. > > > > Always complaining it does not work right. > > > > It only comes out on one side of the nose tube.They tell me > > this > > > is > > > > right. > > > > Question is who is right? They are coming out again tomorrow > > and > > > I > > > > hope get it right.When I do go out I feel like I can't hardly > > > breath > > > > at all. I stay home now seldom get out. just don't have the > > > energy to > > > > do much any more. I also have a lot of other health problems. > > > > I would appreciate any advise on the Helios Plus. > > > > thanks for taking the time to read this . > > > > Ruth > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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