Re: Bruce

[Guest guest]

Bruce, The hay gets you sniffling because it has molds in it. maybe an allergy. A lot of people have allergy to hay because of that. it is a possibility.

God Bless !!

dragonflymcs

Mayleen 02/07 ILD / MCS/ Fibro/ RADS/ TMJD/ IRD +14

< Click on me !!

Health Care

Ratings> >> >> > The link below is to a story in Consumer Report which is entitled:Too> Much Treatment?> >> > The jest of the article is that many hospitals and areas of the> country spend more on health care for terminally ill patience than> others and the study shows very little difference in how it affectsthe> length of life of the patient. It is an interesting article no matter> where you stand on the issue..> >> > http://www.stltoday .com/stltoday/ business/ columnists.> nsf/maryjofeldst ein/story/ 47EC43A3C671CF8C 8625745E0008C18F> ?OpenDocument> >> >> > Fay> > IPF 06/06 IL> >> >> >> >> > K> > Central Il> > Hubby ipf- 2006> > As for

me and my house, we will serve the Lord> > 14> >> >> >> > K> > Central Il> > Hubby ipf- 2006> > As for me and my house, we will serve the Lord> > 14> >>

[Guest guest]

Mayleen

I have hay fever.

> > > Thanks , Very interesting article

> > > Beth

> > > Age 48 Fibrotic NSIP 06/06

> > >

> > > Change everything. Love and Forgive

> > >

> > >

> > >

> > >

> > >

> > > Health Care Ratings

> > >

> > >

> > > The link below is to a story in Consumer Report which is entitled:

> Too

> > Much Treatment?

> > >

> > > The jest of the article is that many hospitals and areas of the

> > country spend more on health care for terminally ill patience than

> > others and the study shows very little difference in how it affects

> the

> > length of life of the patient. It is an interesting article no

matter

> > where you stand on the issue..

> > >

> > > http://www.stltoday .com/stltoday/ business/ columnists.

> > nsf/maryjofeldst ein/story/ 47EC43A3C671CF8C 8625745E0008C18F

> > ?OpenDocument

> > >

> > >

> > > Fay

> > > IPF 06/06 IL

> > >

> > >

> > >

> > >

> > > K

> > > Central Il

> > > Hubby ipf- 2006

> > > As for me and my house, we will serve the Lord

> > > 14

> > >

> > >

> > >

> > > K

> > > Central Il

> > > Hubby ipf- 2006

> > > As for me and my house, we will serve the Lord

> > > 14

> > >

> >

>

[Guest guest]

Bruce, I am deffinately drunk tonight, sorry it was for , the hay, straw bails and stuff

God Bless !!

dragonflymcs

Mayleen 02/07 ILD / MCS/ Fibro/ RADS/ TMJD/ IRD +14

< Click on me !!

Health Care Ratings> > >> > >> > > The link below is to a story in Consumer Report which is entitled:> Too> > Much Treatment?> > >> > > The jest of the article is that many hospitals and areas of the> > country spend more on health care for terminally ill patience than> > others and the study shows very little difference in how it affects> the> > length of life of the patient. It is an interesting article nomatter> > where you stand on the issue..> >

>> > > http://www.stltoday .com/stltoday/ business/ columnists.> > nsf/maryjofeldst ein/story/ 47EC43A3C671CF8C 8625745E0008C18F> > ?OpenDocument> > >> > >> > > Fay> > > IPF 06/06 IL> > >> > >> > >> > >> > > K> > > Central Il> > > Hubby ipf- 2006> > > As for me and my house, we will serve the Lord> > > 14> > >> > >> > >> > > K> > > Central Il> > > Hubby ipf- 2006> > > As for me and my house, we will serve the Lord> > > 14> > >> >>

[Guest guest]

Bruce doesn't this make ya think we still need a National bus tour.. LOL  Love and Prayers, PeggyIPF  2004,  Florida"Worry looks around, Sorry looks back,  Faith looks up."

[Guest guest]

Peggy

Oh, I do wish

>

> Bruce doesn't this make ya think we still need a National bus tour..

LOL

>

>

> Love and Prayers, Peggy

> IPF 2004, Florida

>

> " Worry looks around,

> Sorry looks back,

> Faith looks up. "

>

[Guest guest]

Bruce, I understand about life style

changes. Many of my changes were not drastic either.

I have never been an active sports person ( except for watching

Phillies and Penn State Football and th March Madness basketball)

I waqs always uncoodinated large musclewise. Really I was and still am

a clutz! I have continued the pottery,

minimized the gardening into containers, still do needle-work (

knittng, crochet, needlepoint)

and read a great deal. I'm sort of a stay at home girl. I'm still a

shopper but mlre on line and catalogs than in the acutal malls.

I do go to the malls for the walking around not to shop and drag stuff

home. I can't do that with the Helios and my purse.

I did hate to "have" to stay at home when I really felt badly.

Now, with the one floor house things are so much easier I get things

done, slower, but done

My energy levels are actually higher without the steps..that's a real

morale booster.

Have a great rest of your week-end. Hope the weather in the DFW area

isn't too hot and humid.

We're in for a 90+ week-end with high humidity. It's a stay in

sort of week-end.Unless I get invited

out maybe to play with the babies! Did you see the new pictures I

posted?

Z fibriotic NSIP/05

Z 64,

fibriotic NSIP/o5/PA

And “mild”

PH/10/07 and Reynaud’s too!!

No, NSIP was not

self-inflicted…I never smoked!

Potter,

reader,carousel lover and MomMom to

Darah

and Sara

“I’m gonna

be iron like a lion in Zion” Bob Marley

Vinca

Minor-periwinkle is my flower

Bruce Moreland wrote:

I think she's dealing pretty well with the reality and trying to take

care of herself. I think this disease hits us all very different and

sometimes feel like the more active, more outdoors type you were before

the more difficult it and other diseases were. I didn't have to give up

farming or hunting or basketball or track or mowing my lawn. I either

never did some of those things or long ago had to give up the others so

it didn't change my life as much as Don's. Logically, also, I had a

great interest in things that I can still do, such as the internet.

>

> >

> > Just an update on Don. This is an email from K. which I

got

her

> > permission to post here.

> >

> > Don was sent home from the U of Chicago with the news that

there was

> > nothing more that they could do for him and "Oh yes, he would

be

remiss

> > if he didn't suggest a living will and power of attorney. Our

boys

> > were with us and we just felt like we had been slugged.

Needless to

say

> > it was not a fun ride home. We suggested transplant and they

said he

> > was too old and there were several things against him.

> >

> > I mentioned that we knew several who still would do

transplant on

older

> > patients and the doc said by all means check it out.

> >

> > Don said "NO, no more"! So we came home and he has been out

very

> > little since then. He has basically given up, which is no

surprise

to

> > anyone. He spends most of his time either in the chair or in

bed

> > sleeping. He lately has been walking and talking in his sleep

and

has

> > fallen a couple of times, one ended in a trip to the ER for

stitches.

> > After our trip to Chicago he mentioned that it is time to

contact

> > hospice and so we can get everyone ready for the transition.

That is

> > what we did. Hospice is not here so much for him as much as

for me.

He

> > is well taken care of, but I am going to need someone to call

on in

the

> > middle of the night if things go awry. The RN on the case is a

friend

> > of mine and just lives aroundd the corner. That is about all

there

is

> > going on here. I try to cope on a day by day basis.

> >

> >

> >

> >No virus found in this incoming message.

> >Checked by AVG - http://www.avg.com

> >Version: 8.0.138 / Virus Database: 270.4.7/1546 - Release Date:

7/11/2008 6:47 AM

> >

> >

>

No virus found in this incoming message.

Checked by AVG - http://www.avg.com

Version: 8.0.138 / Virus Database: 270.4.7/1546 - Release Date: 7/11/2008 6:47 AM

[Guest guest]

Oh thanks Bruce, I tell my hair dresser how cute I am every time she cuts my hair and of courseI tell I am just georgus and the best thing that ever happened to him. And I do believe that.  LOL. I do feel 32 most of the time.   Love and Prayers, Peggy   IPF  2004,  Florida"Worry looks around, Sorry looks back,  Faith looks up."

[Guest guest]

Hey Bruce, Sorry I had to shut down quickly. We had a huge storm. Anyhow I was kidding with you.... you do know that right??  32 and all....  LOL  I like to dream. Love and Prayers, Peggy   IPF  2004,  Florida"Worry looks around, Sorry looks back,  Faith looks up."

[Guest guest]

Peggy

I know.....you're really 35 but wish you were 32.

>

> Hey Bruce, Sorry I had to shut down quickly. We had a huge storm.

> Anyhow I was kidding with you.... you do know that right?? 32 and

> all.... LOL I like to dream.

>

>

> 

>

>

> Love and Prayers, Peggy

> IPF 2004, Florida

>

> " Worry looks around,

> Sorry looks back,

> Faith looks up. "

>

[Guest guest]

So I guess I win the " compulsion awaard " , eh? The pacific northwest

is a beautiful place to live from July 5 thru Sept. 30 (most years)

To the east the Cascade Mts and to the West the Olympics with ocean

beaches close by. I was born and raised here, traveled to 34 states

usually for work, lived in AK., NM, CO, KS, CA, OR, but I'm always

glad to be here until Nov. thru March. They are the longest months.

You've been traveling a bit yourself, loved the almost smile when you

met Beth.

Kathie

> >

> > I've missed you (and everybody else) so much!! I got so far

behind on

> the postings and I

> > wanted to read them all before I posted. I can't help it, it's my

> compulsive nature. I'm

> > down to only 2100 more to go!!

> >

> > A quick summary of the last month or so- Memorial Day weekend we

took

> a long

> > weekend and took our motor home (mh) up to Birch Way. That is

near the

> US/Canada

> > border. The weather was fair but we were able to get some beach

time.

> >

> > As you know, some of us up here in the NW met in June. I haven't

read

> any of the postings

> > about that but it was a great experience for me and my husband. We

> laughed, we cried

> > and then we laughed some more. Everybody took pix, except me I

forgot

> my camera. duh

> > I am so glad that I got to meet Steve and Vicki before she became

so

> ill.

> >

> > The next day I went to my daughter's for a week. It was good to

spend

> the time with them

> > but they are so busy! Just listening to them made me tired.

> Basketball, soccer, golf, tennis

> > swimming lessons and camp. But I loved the time with the grandsons

> (pix of the boys in

> > my album).

> >

> > The weekend I returned from my daughter's I was starting to get

that

> " uh-oh " feeling and

> > cough. Monday I just happened to have a Dr.'s appointment so we

caught

> that little

> > infection before it went to far. Two weeks of levaquin and

increased

> dose of prednisone

> > seems to have done the job.

> >

> > The first week of July we took the mh to Deception Pass for 6

days.

> The grandsons came

> > to visit for the day, twice. We walked on the beach, read and

relaxed.

> >

> > Last weekend we went to Sequim, the sunbelt of western WA.

Weather was

> gorgeous, we

> > ate some great seafood, dungeoness crab my fav, sat on the beach

> watched the sun set

> > with friends while the husbands made s'mores over the fire.

> >

> > This week, I've done nothing and plan on doing nothing until

Friday

> night. I'm tired, tired,

> > tired. I'm sob. This summer is the first year I don't have my

> container gardens and

> > hanging baskets. The distance i could walk on the beach was so

short.

> grrrrr

> >

> > I'm going back to read more posts. Welcome to all the newbies and

I

> have missed all of

> > you.

> >

> > Love,

> > Kathie Tacoma, WA

> > NSIP '96, PAH 03, Bronchiectasis '05, etc.

> >

>

[Guest guest]

So I guess I win the " compulsion awaard " , eh? The pacific northwest

is a beautiful place to live from July 5 thru Sept. 30 (most years)

To the east the Cascade Mts and to the West the Olympics with ocean

beaches close by. I was born and raised here, traveled to 34 states

usually for work, lived in AK., NM, CO, KS, CA, OR, but I'm always

glad to be here until Nov. thru March. They are the longest months.

You've been traveling a bit yourself, loved the almost smile when you

met Beth.

Kathie

> >

> > I've missed you (and everybody else) so much!! I got so far

behind on

> the postings and I

> > wanted to read them all before I posted. I can't help it, it's my

> compulsive nature. I'm

> > down to only 2100 more to go!!

> >

> > A quick summary of the last month or so- Memorial Day weekend we

took

> a long

> > weekend and took our motor home (mh) up to Birch Way. That is

near the

> US/Canada

> > border. The weather was fair but we were able to get some beach

time.

> >

> > As you know, some of us up here in the NW met in June. I haven't

read

> any of the postings

> > about that but it was a great experience for me and my husband. We

> laughed, we cried

> > and then we laughed some more. Everybody took pix, except me I

forgot

> my camera. duh

> > I am so glad that I got to meet Steve and Vicki before she became

so

> ill.

> >

> > The next day I went to my daughter's for a week. It was good to

spend

> the time with them

> > but they are so busy! Just listening to them made me tired.

> Basketball, soccer, golf, tennis

> > swimming lessons and camp. But I loved the time with the grandsons

> (pix of the boys in

> > my album).

> >

> > The weekend I returned from my daughter's I was starting to get

that

> " uh-oh " feeling and

> > cough. Monday I just happened to have a Dr.'s appointment so we

caught

> that little

> > infection before it went to far. Two weeks of levaquin and

increased

> dose of prednisone

> > seems to have done the job.

> >

> > The first week of July we took the mh to Deception Pass for 6

days.

> The grandsons came

> > to visit for the day, twice. We walked on the beach, read and

relaxed.

> >

> > Last weekend we went to Sequim, the sunbelt of western WA.

Weather was

> gorgeous, we

> > ate some great seafood, dungeoness crab my fav, sat on the beach

> watched the sun set

> > with friends while the husbands made s'mores over the fire.

> >

> > This week, I've done nothing and plan on doing nothing until

Friday

> night. I'm tired, tired,

> > tired. I'm sob. This summer is the first year I don't have my

> container gardens and

> > hanging baskets. The distance i could walk on the beach was so

short.

> grrrrr

> >

> > I'm going back to read more posts. Welcome to all the newbies and

I

> have missed all of

> > you.

> >

> > Love,

> > Kathie Tacoma, WA

> > NSIP '96, PAH 03, Bronchiectasis '05, etc.

> >

>

[Guest guest]

Kathie

You may win it on this one item, but I'm sure not overall...lol.

Although, some of those compulsions actually are very helpful as I live

with PF. It's using the good ones and balancing the bad ones that we

have to do.

> > >

> > > I've missed you (and everybody else) so much!! I got so far

> behind on

> > the postings and I

> > > wanted to read them all before I posted. I can't help it, it's my

> > compulsive nature. I'm

> > > down to only 2100 more to go!!

> > >

> > > A quick summary of the last month or so- Memorial Day weekend we

> took

> > a long

> > > weekend and took our motor home (mh) up to Birch Way. That is

> near the

> > US/Canada

> > > border. The weather was fair but we were able to get some beach

> time.

> > >

> > > As you know, some of us up here in the NW met in June. I haven't

> read

> > any of the postings

> > > about that but it was a great experience for me and my husband. We

> > laughed, we cried

> > > and then we laughed some more. Everybody took pix, except me I

> forgot

> > my camera. duh

> > > I am so glad that I got to meet Steve and Vicki before she became

> so

> > ill.

> > >

> > > The next day I went to my daughter's for a week. It was good to

> spend

> > the time with them

> > > but they are so busy! Just listening to them made me tired.

> > Basketball, soccer, golf, tennis

> > > swimming lessons and camp. But I loved the time with the grandsons

> > (pix of the boys in

> > > my album).

> > >

> > > The weekend I returned from my daughter's I was starting to get

> that

> > " uh-oh " feeling and

> > > cough. Monday I just happened to have a Dr.'s appointment so we

> caught

> > that little

> > > infection before it went to far. Two weeks of levaquin and

> increased

> > dose of prednisone

> > > seems to have done the job.

> > >

> > > The first week of July we took the mh to Deception Pass for 6

> days.

> > The grandsons came

> > > to visit for the day, twice. We walked on the beach, read and

> relaxed.

> > >

> > > Last weekend we went to Sequim, the sunbelt of western WA.

> Weather was

> > gorgeous, we

> > > ate some great seafood, dungeoness crab my fav, sat on the beach

> > watched the sun set

> > > with friends while the husbands made s'mores over the fire.

> > >

> > > This week, I've done nothing and plan on doing nothing until

> Friday

> > night. I'm tired, tired,

> > > tired. I'm sob. This summer is the first year I don't have my

> > container gardens and

> > > hanging baskets. The distance i could walk on the beach was so

> short.

> > grrrrr

> > >

> > > I'm going back to read more posts. Welcome to all the newbies and

> I

> > have missed all of

> > > you.

> > >

> > > Love,

> > > Kathie Tacoma, WA

> > > NSIP '96, PAH 03, Bronchiectasis '05, etc.

> > >

> >

>

[Guest guest]

Bruce

You make a good point........that was then.....now I don't go anywhere without it, including walking around the house, AND it gives me the freedom to get out and be "sort-a" normal. Still.....I like to whine about it..... :-) jim

Subject: Re: WALTTo: Breathe-Support Date: Thursday, July 31, 2008, 11:37 AM

Walt/For me I used oxygen initially for the simple reason that I want mylungs to be the first thing to go, not my kidneys, not my heart. I don'tlike having a lung disease but I just don't want more problems piled ontop of it. So, I use it to protect my other organs.Now, I realize that at this point I'd be able to enjoy very littlewithout oxygen. If I just went shopping without it my sats would be inthe 70's or lower. So, in addition to damaging myself I'd soon findmyself not going out at all or doing so in misery. With oxygen, I liveas near normally as possible. Think of it as like carrying a huge purseor a briefcase. As to appearance, well, yes...I don't like looking oldor looking like someone who needs oxygen. But, I like pain less. And, Ihave to live with the reality of the appearance. On the other hand, Iget assisted everywhere I need it, treated nicer than ever, get

greatparking. Its also led to some great conversations and meeting some greatpeople, believe it or not.While my friends are aware and understand, I'm fortunate that they treatme just like me, not like a person with a terminal disease. Even somehumor if you let it come. My ex-wife has been battling tennis elbow sowhen and I were doing things, I actually felt like the healthyone of the two of us. At its worse, I had to cut her food in therestaurant. She was embarrassed. No reason to be. We laughed about beinga pitiful twosome. But I've helped other friends with things too. Oxygenwill change your life some. However, it will be minimal if you have apositive attitude toward it. One person here just went camping. I'vetraveled loads with it. Yes, I get tired easier. But not nearly as tiredon it as I would without it.>> From: Sher Bauman bofuswbcable (DOT) net>> Subject: Re: (unknown)> To: Breathe-Support@ yahoogroups. com> Date: Thursday, July 31, 2008, 9:25 AM>>>>>> Hello Walt... I want to welcome you to the board and express mysadness that you found us, which means you have what we have!> This is the best place you could be though. There is always someone toanswer questions and we a supportive group with each other.> Those 13 years of breathing chemicals must have been the likely causeof your IPF. Many of us don't have any idea how we got IPF.> Find another Dr to see, preferably a pulmonologist and follow up withs/he. There will be breathing

tests that we all take periodically andperhaps a CAT scan. None of them painful.> If it's harder and harder to do everyday things, changes are you mayneed oxygen. Without enough O2 other organs are damaged as well.> None of us progress the same or in the same time graph...but a Dr willhelp you with your questions and you will get support and help here too.> Where do you live? (I'm in Oregon) and how old are you?> Welcome Walt, I'll watch for your posts to get to know you better.>> MamaSher, age 69. IPF 3-06, OR.> Nasturtiums> Don't fret about tomorrow, God is already there!>>> (unknown)>>>>>>>>> Hello all> New and first post.

So not sure what I am doing, I have read some ofthe postings and can say it's nice to listen to what others have tosay that "know" My family is supportive but I don't thinkthey truly understand. I was diagnose in 06 and had the bronchoscopy andthen open biopsy They gave am a list of things that is wrong and IPFbeing one. The doctors want me to have a CT every 6 months to checkprogress. I worked in a chemical plant for 13 years and had Nemoursexospheres and a few hospital trips to all kinds of chemicals, Chlorine,asbestos and Hydrochloric and sulfuric acid to name just a few. I readthat these can be a cause but when I talked to the Doctors about thisit's like they don't want to here it. I have not been back tothe doctor since 06. It's harder and harder working and to do theeveryday things. I just DON"T want to go back to the doctor (dog andpony show) Is there a chart or something I could look at to

see> where I am at or what to expect? I want to distinguish between gettingold and?> Thanks for listing> Walt>>>>>>> "Dont be afraid of dying. Be afraid of the unlived life">