Guest guest Posted July 13, 2008 Report Share Posted July 13, 2008 Jmbo Didn't know we had another member in Lubbock. Do you know Wally in Snyder or in Lubbock? If not, they would be absolutely great people to meet. I've had that privilege. I'd even come to Lubbock for a greater Lubbock area get together. Now as to hospice and your health. It's hard to know where any of us stand, especially when we do have setbacks such as pneumonia. However, even if you're not to the point of needing hospice, I, personally find it in my nature to want to talk to them and fully understand and choose the one I like well in advance. Don't be too quick to judge where you are right after something like pneumonia. On the other hand, I hope finding out how hospice can comfort you when they are necessary will be a positive experience, even if scary to think of. > > Bruce et al. Even tho I have not been an active participant in the groups > chatter I have read each blog religiously and do thank you all. After reading > Bruce's blog about Don I thought I would pass on my current status because I > too have been told two months and maybe six. Scheduled to talk to Hospice and > not really looking forward to that because a sense of finality registers with > the word " Hospice " . I do know that very suddenly this crap took a serious > unexpected turn for the worse. Hospitalized for 6 days and shot up with heavy > doses of steroids and anti-biotics.. Oxygen levels drop drastically when any > exertion is done. > I didn't think this time would ever come and it does become quite > frightening. I have a great belief in my GOD which is a great help mentally. I was > diagnosed with IPF two years ago and now looks as tho I have entered the final > stages. Best of all things for Don and every member of this strong, insightful, > caring group. > Jimbo, Lubbock, Tx, IPF 2006 > > > > **************Get the scoop on last night's hottest shows and the live music > scene in your area - Check out TourTracker.com! > (http://www.tourtracker.com?NCID=aolmus00050000000112) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2008 Report Share Posted July 13, 2008 Peggy I'm not minimizing any of what this disease has done to you or to your husband, . However, when you say you grieve for the life you had planned on, i know you do, but then I think of all the wonderful time the two of you have really spent together since he retired. While you had dreams don't you sometimes wonder when or if he would have retired otherwise and if you would have ever actually experienced such time together or if he would have been on the road and going from one project to another. Now that doesn't mean that having this disease is good but sure shows us lessons about valuing every day. I wish I could pass those lessons on to those who are healthy but they don't listen any better than I ever did. I have friends and relatives who I know could afford to retire today and have nice comfortable lives, although not unlimited finances. Yet, they still are working to get more and I fear something happening before they ever enjoy relaxing and just spending time together. I see you and and I see a closeness that few find. I know one wishes you could have had these same times without the illness, but with so many couples something prevents that from happening. I know your illness is worsening and its painful physically and emotionally. Yet, I picture such a serenity when I think of your home, the land around, the porch, and you and there together. > > Hi Jimbo, I am so sorry this monster is pushing you to place none of > us want to go. I was DX in 2004 with IPF and stayed stable for the > first few years them out of nowhere I just got short of breath > on 4 & 5 L with activity, now I'm on 8L walking IF I walk very slowly > ( I just can't seen to do that part) I am recently getting the > smothering feeling in my throat and chest.. This is such a nasty > disease. My Dr. hasn't said end anything so I go and do as much as I > can. It is good to hear from you. > I to trust in the Lord. I have peace as I walk this walk. God is such > a comforter. > Take care of you, God Bless and give you strength. > > I have been through a lot of stages. I get ANGRY when I want to go > into town BY MYSELF. I grieve for the life my wonderful husband and I > had hoped for. I have been through the fright, sadness and all the > other feelings we in this group have been through. I don't know how > anyone can go through this without the Lord. > > > >  > > > Love and Prayers, Peggy > IPF 2004, Florida > > " Worry looks around, > Sorry looks back, > Faith looks up. " > Quote Link to comment Share on other sites More sharing options...
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