Re: Hi everyone I am newly diagonsed

[Guest guest]

I have a family, but I'm not married. I live with my parents, and I'm

on Social Security and Medicaid since before my bone marrow

transplant since I cannot work. I have a pulmonary doctor, I've been

seeing her on and off since my breathing problems began (I guess it

will be a more common dr appt like my oncologist is now), she first

diagonsed me with COPD/Asthma. I see her in a couple weeks for a

follow up. They have to try and get a atery blood gas since they

couldn't get one from me at the hospital for some reason.

> >

> >

> > Hi everybody - I just joined this community this morning. I

thought I

> > would introduce myself.

> >

> > My name is , 22 years old, I live in Ohio. I am a T-cell

> > Non-hodgkins Lymphoma survivor for 2 years now. I went through

> > chemotherapy and also a autologus bone marrow transplant in 2006

(it's

> > almost my second birthday for my transplant . Ever since my

> > transplant I had trouble breathing, in 2007 I had fluid build up

and my

> > lungs partially collapsed, so my doctors placed chest tubes to re-

expand

> > my lungs/drain fluid. Things were going okay until this year

(around 8

> > months later) when the shortness of breath came back with a

vengence and

> > with a sharp chest pain. I was placed on inhalers at first,

saying it

> > was asthma. But it got to the point where the pain felt like I

had a

> > semi truck running over my lungs constantly. I had to get a CT

scan to

> > check for cancer remission and it picked up some fibrosis and

partial

> > lung collapse (cancer still in remission). This last monday, I was

> > following up with the doctor that had placed the chest tubes last

year,

> > he told me it would be useless to open me up for that. He sent me

down

> > to the ER due to my shortness of breath and heart rate, I was

admitted

> > for a week. I found out I had pulmonary fibrosis (it was caused by

> > chemotherapy) but there isn't much they can do for me at the

moment.

> > Steroids wouldn't do a thing just like the tubes wouldn'tve. Got

sent

> > home with oxygen and new scripts for inhalers and also pain

patches,

> > they only gave me three this pain is horriable...I'll need more I

dunno

> > how the dr thinks I can handle it. I didn't get to much into

detail,

> > there's more but I did the short version. ;

> >

>