Jump to content
RemedySpot.com

There is not an one answer for all our kids suffering with autism.

Rate this topic


Guest guest

Recommended Posts

,There is not a single answer for all kids with autism. If it was that easy, they all would have been better by now. Just to set the record straight I am not in cahoots with Dr. Goldberg. He did recover my son and for that I will always be grateful. But sometimes I dread going to his office because of his personality and bedside manner. I am surprised that you would attack me that way when you never even met me. The only reason I am here is to help other kids get better. I understand the anger we have cause our children are sick, I was angry too. As a matter of fact I’m still angry because there are so many out there taking advantage of our fear and desperation to help our children. Mine is recovered and in college. I don’t need to search for answers anymore. I once made a promise to God that if you make mine better, I will make them all better. I would like nothing more than to retire. I don’t need to do this anymore. And I would enjoy spending my days going out to lunch, reading books and doing what I want rather than answering posts like yours. I’m thrilled chelation helped your kiddo but are you sure that it was chelation and not something else you were doing at the same time? And are you sure of the long term effects of chelating? Dr. Goldberg (who at times I don’t even like) said there is proof on brain spects that show the damage chelating does. I may not like his antics but he did recover Stan’s son and help Cheryl’s tremendously. So maybe you should look into it. I would go to the devil himself if it would save my kid.Best,Marcia P.S. And FYI I’m only on this list and NIDS. I just recently joined the XMRV alliance group. And if anyone wants more info on NIDS, email me privately and I will forward it to you. Re: aba coverage : self funded : federally regulated ..NJ ..Help Posted by: " " shimmery315@... shimmery315@... Tue Feb 1, 2011 7:40 am (PST) I've seen that woman post on a few different sites blasting chelation. I'm pretty sure she's in cahoots w/ Dr. G. I think it's hogwash, my daughter is doing IV chelation and is doing great. It's a safe drug that has been become standard of care for heavy metal poisoning (even in kids). The government uses it in biohazard " accidents " for the people affected. The one child that died got disodium EDTA instead of calcium EDTA I believe. I almost didn't do chelation because of that ladies rants and I would have missed out. She would rather promote SSRI's... Subject: Re: aba coverage : self funded : federally regulated ..NJ ..HelpTo: lesliemom99@..., mb12 valtrex Date: Monday, 31 January, 2011, 3:50 PMPlease don’t exhaust other options before chelating. I know I’m going to be blasted by others on this list for saying that, but I can’t in good conscience watch a child possibly have negative consequences from not speaking up especially when there are so many other options to try first.. I was just told by another mom about a kid who was chelated and died as a result. This doctor’s credentials are being looked into and who knows if things were done right. But this can be dangerous. And our doctor says the damage from chelation can be seen on brain neurospects.My son is recovered and in college at 22 as a result of the NIDS protocol. Please know your son can get better with proper medical treatment and then rehabilitation. No parent should accept that their child cannot be helped. We treated with antivirals on the NIDS protocol. Maybe he has the XMRV retrovirus, and it was addressed by using the antivirals and other things we did to help his immune problem. I don’t know the answer to that question. However, is living proof that kids can get better. was diagnosed when he was four years old. A psychiatrist who was the leading authority on autism said my child would never be okay. According to this expert, was going to end up in an institution or group home. Now at 22, the only institution attends is a University where he studies mechanical engineering on a merit scholarship. excels academically and is in the Engineering Honor Society (top 10% GPA). He‘s a member of Sigma Chi Fraternity and was president of the Jewish Student Association. And he just received a NASA paid internship and scholarship. But more importantly, is a typical college student who drinks an occasional beer, goes on dates, stays out too late with friends and then sleeps through eight o’clock classes. I couldn’t be more proud!Unbelievable as it seems, this is the same child who wanted to spend all day, every day, plugging in a portable radio into each outlet in the house. Back then, I wasn’t sure if I had the strength to be more stubborn than my son. There were mornings I didn’t want to get out of bed to face another day filled with autism. The worst times were when I didn’t have a direction or a plan. I was hanging onto my sanity by my fingernails. But, at the end of the day, I was faced with a choice: let drift off forever into his own world, or drag him kicking and screaming into ours.Now it may look like we knew what we were doing back then. But we didn’t. It was trial and error to see what worked to help him. After we helped medically, it was possible for him to learn. Behavioral and educational interventions were used in conjunction with the medical treatment to catch up on everything he missed. Initially, we used Applied Behavior Analysis (ABA) for his rehabilitation and when he was ready we moved towards more natural ways of teaching. It took years to correct ’s deficits in speech and social skills. It was almost like taking a stroke victim and bringing them back. Our story is not about coping with autism, but rather fighting back and not accepting the misconceptions associated with this diagnosis. This process is definitely not for sissies or parents looking for that magic cure. If you would like more info on what we did medically, please email me privately.Hope this helps,Marcia

Link to comment
Share on other sites

Join the conversation

You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

Loading...
×
×
  • Create New...