Guest guest Posted June 14, 2008 Report Share Posted June 14, 2008 Hi Ismith,thanks for writing I feel like a wimp after reading about some of the people here. I have not responed to any others post but I have read a few.looks like I found a careing place even tho most of us wish we did not have to be,I am a little shy so it is kinda hard for me to write sometimes. I wish Dr's would and could take a few mins to listen maybe we would be feeling a lot better. I used to work for Mead Paper in Atlanta Ga. and I was working with heated glue,Not relizeing that it was messing with my insides. (i am not the smartest person in the world) i had to make a liveing regardless.i was around the glue for about 12 yrs. there and 5 years at a simular place.So i know now what caused my lungs to be so bad. hope you are having a great day. Ruth -- In Breathe-Support , " lsmith7892006 " wrote: > > Sorry you had to look for us but glad you found us. Welcome. Feel > free to come and go as you please and unload your thoughts and fears > as you need. GP docs really don't understand. Mine recently > referred to my disease as ARDS even though he has a copy of my biopsy > and knows exactly what its name is, not ARDS. Even my pulmo has a > difficult time understanding. I told him I can feel it when it is > going to act up. He says there are no nerve feelings in the lungs > and that is not possible. But I do feel it. > > Please take care of yourself in the sweltering heat and humidity over > there. > > S, Lubbock, TX > NSIP w/PF 12/2006 > > > > > > > > > > > > You're welcome, Grandma. There's plenty of us here who also > > > are > > > > grands. This is a good place to learn about fibrosis and > > > associated > > > > diseases. It' been my school for a few months now. I'm about > to > > > > finish grade school, and look forward to moving on to high > > > school. I > > > > am very ambitious and hope to get my PHD some day. > > > > > Jack > > > > > 79/UIP - IPF/06/005 Maine > > > > > > > > > > > > > > > looking for information & friends > > > > > > > > > > > > > > > hi Everyone,just wanted to drop in and say hello.I have > read > > > some > > > > of > > > > > your post and found them very interesting. Hope you didn't > > mind. > > > > > I was introduced to PF years ago. I am on oxygen. > > > > > I can tell my breathing is getting a lot worse. > > > > > My dh has had COPD for years, and i have been takeing care > of > > > him. > > > > > So if i get really bad then we will be in bad shape. > > > > > This computer is the only friend I have to the out side > > > world.I'm > > > > not > > > > > really good on it but i do like to visit and learn what I > can. > > > > > Thanks for shareing with me, > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2008 Report Share Posted June 14, 2008 Welcome, Ruth! I am so glad you found this place too. I have been here about a month and found everyone to be real patient and kind. I have asked many questions I know have been answered over and over, but people will still take the time to give me a personal answer. No one has made me feel like an idiot yet, although the meds I'm taking are making me not quite myself on just about everything. I hope to get to know you better through your posts! (PF ,Sjogren's Apr.'08)age 52>> Sorry you had to look for us but glad you found us. Welcome. Feel > free to come and go as you please and unload your thoughts and fears > as you need. GP docs really don't understand. Mine recently > referred to my disease as ARDS even though he has a copy of my biopsy > and knows exactly what its name is, not ARDS. Even my pulmo has a > difficult time understanding. I told him I can feel it when it is > going to act up. He says there are no nerve feelings in the lungs > and that is not possible. But I do feel it.> > Please take care of yourself in the sweltering heat and humidity over > there.> > S, Lubbock, TX> NSIP w/PF 12/2006> > > > > > >> > > > > You're welcome, Grandma. There's plenty of us here who also > > > are > > > > grands. This is a good place to learn about fibrosis and > > > associated > > > > diseases. It' been my school for a few months now. I'm about > to > > > > finish grade school, and look forward to moving on to high > > > school. I > > > > am very ambitious and hope to get my PHD some day.> > > > > Jack> > > > > 79/UIP - IPF/06/005 Maine> > > > > > > > > > > > > > > looking for information & friends> > > > > > > > > > > > > > > hi Everyone,just wanted to drop in and say hello.I have > read > > > some > > > > of > > > > > your post and found them very interesting. Hope you didn't > > mind.> > > > > I was introduced to PF years ago. I am on oxygen.> > > > > I can tell my breathing is getting a lot worse. > > > > > My dh has had COPD for years, and i have been takeing care > of > > > him. > > > > > So if i get really bad then we will be in bad shape.> > > > > This computer is the only friend I have to the out side > > > world.I'm > > > > not > > > > > really good on it but i do like to visit and learn what I > can.> > > > > Thanks for shareing with me,> > > > >> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2008 Report Share Posted June 15, 2008 thanks , I hope I can say no one has made me feel like an idiot after a month. I have had lots of welcomes, which has made me feel good. thanks for the reply and I look forward to hearing from you often. Ruth > & gt; & gt; & gt; & gt; & gt; > & gt; & gt; & gt; & gt; & gt; You're welcome, Grandma. There's plenty of us here who > also > & gt; & gt; & gt; are > & gt; & gt; & gt; & gt; grands. This is a good place to learn about fibrosis and > & gt; & gt; & gt; associated > & gt; & gt; & gt; & gt; diseases. It' been my school for a few months now. I'm > about > & gt; to > & gt; & gt; & gt; & gt; finish grade school, and look forward to moving on to high > & gt; & gt; & gt; school. I > & gt; & gt; & gt; & gt; am very ambitious and hope to get my PHD some day. > & gt; & gt; & gt; & gt; & gt; Jack > & gt; & gt; & gt; & gt; & gt; 79/UIP - IPF/06/005 Maine > & gt; & gt; & gt; & gt; & gt; > & gt; & gt; & gt; & gt; & gt; > & gt; & gt; & gt; & gt; & gt; looking for information & amp; > friends > & gt; & gt; & gt; & gt; & gt; > & gt; & gt; & gt; & gt; & gt; > & gt; & gt; & gt; & gt; & gt; hi Everyone,just wanted to drop in and say hello.I have > & gt; read > & gt; & gt; & gt; some > & gt; & gt; & gt; & gt; of > & gt; & gt; & gt; & gt; & gt; your post and found them very interesting. Hope you > didn't > & gt; & gt; mind. > & gt; & gt; & gt; & gt; & gt; I was introduced to PF years ago. I am on oxygen. > & gt; & gt; & gt; & gt; & gt; I can tell my breathing is getting a lot worse. > & gt; & gt; & gt; & gt; & gt; My dh has had COPD for years, and i have been takeing > care > & gt; of > & gt; & gt; & gt; him. > & gt; & gt; & gt; & gt; & gt; So if i get really bad then we will be in bad shape. > & gt; & gt; & gt; & gt; & gt; This computer is the only friend I have to the out side > & gt; & gt; & gt; world.I'm > & gt; & gt; & gt; & gt; not > & gt; & gt; & gt; & gt; & gt; really good on it but i do like to visit and learn what I > & gt; can. > & gt; & gt; & gt; & gt; & gt; Thanks for shareing with me, > & gt; & gt; & gt; & gt; & gt; > & gt; & gt; & gt; & gt; > & gt; & gt; & gt; > & gt; & gt; > & gt; > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2008 Report Share Posted June 15, 2008 Hi Zena, thank you, I never expected so many welcomes. I am so thankful I found this board. Now to dig my heels in and find out all I can about this disease. The Dr's never take the time to explane things. Maybe thay think we are suppose to be as smart as they are. I don't know. I just hope I can make someone feel as good as you people have made me feel. Ruth > > > > > > > > > > > > > > You're welcome, Grandma. There's plenty of us here who > > also > > > > > are > > > > > > grands. This is a good place to learn about fibrosis and > > > > > associated > > > > > > diseases. It' been my school for a few months now. I'm > > about > > > to > > > > > > finish grade school, and look forward to moving on to high > > > > > school. I > > > > > > am very ambitious and hope to get my PHD some day. > > > > > > > Jack > > > > > > > 79/UIP - IPF/06/005 Maine > > > > > > > > > > > > > > > > > > > > > looking for information & > > friends > > > > > > > > > > > > > > > > > > > > > hi Everyone,just wanted to drop in and say hello.I have > > > read > > > > > some > > > > > > of > > > > > > > your post and found them very interesting. Hope you > > didn't > > > > mind. > > > > > > > I was introduced to PF years ago. I am on oxygen. > > > > > > > I can tell my breathing is getting a lot worse. > > > > > > > My dh has had COPD for years, and i have been takeing > > care > > > of > > > > > him. > > > > > > > So if i get really bad then we will be in bad shape. > > > > > > > This computer is the only friend I have to the out side > > > > > world.I'm > > > > > > not > > > > > > > really good on it but i do like to visit and learn what I > > > can. > > > > > > > Thanks for shareing with me, > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2008 Report Share Posted June 15, 2008 Hi Zena, thank you, I never expected so many welcomes. I am so thankful I found this board. Now to dig my heels in and find out all I can about this disease. The Dr's never take the time to explane things. Maybe thay think we are suppose to be as smart as they are. I don't know. I just hope I can make someone feel as good as you people have made me feel. Ruth > > > > > > > > > > > > > > You're welcome, Grandma. There's plenty of us here who > > also > > > > > are > > > > > > grands. This is a good place to learn about fibrosis and > > > > > associated > > > > > > diseases. It' been my school for a few months now. I'm > > about > > > to > > > > > > finish grade school, and look forward to moving on to high > > > > > school. I > > > > > > am very ambitious and hope to get my PHD some day. > > > > > > > Jack > > > > > > > 79/UIP - IPF/06/005 Maine > > > > > > > > > > > > > > > > > > > > > looking for information & > > friends > > > > > > > > > > > > > > > > > > > > > hi Everyone,just wanted to drop in and say hello.I have > > > read > > > > > some > > > > > > of > > > > > > > your post and found them very interesting. Hope you > > didn't > > > > mind. > > > > > > > I was introduced to PF years ago. I am on oxygen. > > > > > > > I can tell my breathing is getting a lot worse. > > > > > > > My dh has had COPD for years, and i have been takeing > > care > > > of > > > > > him. > > > > > > > So if i get really bad then we will be in bad shape. > > > > > > > This computer is the only friend I have to the out side > > > > > world.I'm > > > > > > not > > > > > > > really good on it but i do like to visit and learn what I > > > can. > > > > > > > Thanks for shareing with me, > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2008 Report Share Posted June 15, 2008 Hi Zena, thank you, I never expected so many welcomes. I am so thankful I found this board. Now to dig my heels in and find out all I can about this disease. The Dr's never take the time to explane things. Maybe thay think we are suppose to be as smart as they are. I don't know. I just hope I can make someone feel as good as you people have made me feel. Ruth > > > > > > > > > > > > > > You're welcome, Grandma. There's plenty of us here who > > also > > > > > are > > > > > > grands. This is a good place to learn about fibrosis and > > > > > associated > > > > > > diseases. It' been my school for a few months now. I'm > > about > > > to > > > > > > finish grade school, and look forward to moving on to high > > > > > school. I > > > > > > am very ambitious and hope to get my PHD some day. > > > > > > > Jack > > > > > > > 79/UIP - IPF/06/005 Maine > > > > > > > > > > > > > > > > > > > > > looking for information & > > friends > > > > > > > > > > > > > > > > > > > > > hi Everyone,just wanted to drop in and say hello.I have > > > read > > > > > some > > > > > > of > > > > > > > your post and found them very interesting. Hope you > > didn't > > > > mind. > > > > > > > I was introduced to PF years ago. I am on oxygen. > > > > > > > I can tell my breathing is getting a lot worse. > > > > > > > My dh has had COPD for years, and i have been takeing > > care > > > of > > > > > him. > > > > > > > So if i get really bad then we will be in bad shape. > > > > > > > This computer is the only friend I have to the out side > > > > > world.I'm > > > > > > not > > > > > > > really good on it but i do like to visit and learn what I > > > can. > > > > > > > Thanks for shareing with me, > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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