Re: Re: Sick and Tired of being Sick and Tired

[Guest guest]

Sending you hugs, Joyce. I hope you feel better soon.CaroASTHMA 1976,OSTEOARTHRITIS 2002, COPD 02/06, IPF 08/07, UIP 01/08, RHEUMATOID ARTHRITIS 03/08Mississippi

Subject: Re: Sick and Tired of being Sick and TiredTo: Breathe-Support Date: Thursday, June 26, 2008, 3:15 AM

(((Joyce))) Sending you much love and strength. Here's hoping the Levsin does the trick

Love Ze xx>> > I haven't been posting much lately and I know that I have missed some> newbie posts. Still reading. I have been so very sick. I have had> really bad stomach pain, diarrhea, fever, etc. etc. I finally shared> this with the doc in exchange for phenegran. That didn't give me relief> so he prescribed Levsin. Good stuff. Of course all of that stuff makes> you looney.> > Then, came a battery of cultures and testing. I don't have results back> yet, but I saw blood in my sputum and stool. I have lost 10 pounds in> about 3 weeks. I am really fighting depression. It is just so> difficult to deal with this stuff day after day. It seems like one> thing will get a little better and two more things happen.> >

My Coumadin dosage gets changed every few days because of my weight> loss. I am so afraid that they are going to have to take me off the> medication and that would mean stopping Flolan. That would mean that I> would die.> > Just pray for me. I am so weak and so very tired. I have been able to> eat a little today with the Levsin. That is an improvement.> > My husband is pleased to see me sitting at the computer. Sitting up at> all. All I have wanted to do is sleep.> > I am trying to read posts and contribute here and there. Don't you all> forget that you are important to me. I wouldn't have made it this far> without your support.> > Hugs, Joyce Dalton> Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary Hypertension> 2008> Mixed Connective Tissue Disease (Lupus, RA, Sjogren's, etc) Rejected> for Transplant 2006>

......I will not forget you. Behold, I have engraved you on the palm of> my hands. Isaiah 49: 15-16>

[Guest guest]

Joyce, I hope that they get the answers

soon. That is stressful enough!

The Levaquin can be causing the spasms too!!!Be sure that you take it

WTH

FOOD. You need to eat...just light ..The BRAT diet gets me through IBS

flare-ups.Broth, rice, applesause and

toast...plus loads of liquids!!!! Wishing you a better day.

Z fibriotic NSIP/05

Z 64,

fibriotic NSIP/o5/PA

And “mild”

PH/10/07 and Reynaud’s too!!

No, NSIP was not

self-inflicted…I never smoked!

Potter,

reader,carousel lover and MomMom to

Darah

and Sara

“I’m gonna

be iron like a lion in Zion” Bob Marley

Vinca

Minor-periwinkle is my flower

Joyce wrote:

,

I had never taken it

before, but it does the trick. At least stops the spasms that are so

painful. I have experienced dizziness but assumed it was because I

wasn't eating.

The doc called today

and said they had found infection in my sputum...which of course is

going through my digestive system as well. That with enough stress to

cause a irritable bowel situation may be the answer to everything. I

started on Levaquin. They have not identified the exact infection but

are doing cultures. I have to go in for more testing on Monday.

Aaaargh.

You know, ,

this sickie stuff just gets old! I cannot find of bit of humor in it

anymore!

Hugs, Joyce D.

Pulmonary

Fibrosis 1997 Bronchiectasis 2004 Pulmonary Hypertension 2008

Mixed Connective Tissue

Disease (Lupus, RA, Sjogren's, etc) Rejected for Transplant 2006

......I will not forget you. Behold, I have engraved you on the palm of

my hands. Isaiah 49: 15-16

>

> > I haven't been posting much lately and I know that I have

missed some

> > newbie posts. Still reading. I have been so very sick. I have

had

> > really bad stomach pain, diarrhea, fever, etc. etc. I finally

shared

> > this with the doc in exchange for phenegran. That didn't give

me

> > relief so he prescribed Levsin. Good stuff. Of course all of

that

> > stuff makes you looney.

> >

> > Then, came a battery of cultures and testing. I don't have

results

> > back yet, but I saw blood in my sputum and stool. I have lost

10

> > pounds in about 3 weeks. I am really fighting depression. It

is just

> > so difficult to deal with this stuff day after day. It seems

like one

> > thing will get a little better and two more things happen.

> >

> > My Coumadin dosage gets changed every few days because of my

weight

> > loss. I am so afraid that they are going to have to take me

off

> > the medication and that would mean stopping Flolan. That

would mean

> > that I would die.

> >

> > Just pray for me. I am so weak and so very tired. I have been

able

> > to eat a little today with the Levsin. That is an

improvement.

> >

> > My husband is pleased to see me sitting at the computer.

Sitting up

> > at all. All I have wanted to do is sleep.

> >

> > I am trying to read posts and contribute here and there.

Don't you

> > all forget that you are important to me. I wouldn't have made

it this

> > far without your support.

> >

> > Hugs, Joyce Dalton

> > Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary

> > Hypertension 2008

> > Mixed Connective Tissue Disease (Lupus, RA, Sjogren's, etc)

Rejected

> > for Transplant 2006

> > .....I will not forget you. Behold, I have engraved you on

the palm

> > of my hands. Isaiah 49: 15-16

> >

> >

> >

> >

> >------------------------------------------------------------------------

> >

> >

> >No virus found in this incoming message.

> >Checked by AVG.

> >Version: 8.0.100 / Virus Database: 270.4.1/1517 - Release

Date: 6/24/2008 8:41 PM

> >

> >

>

No virus found in this incoming message.

Checked by AVG. Version: 8.0.101 / Virus Database: 270.4.1/1519 - Release Date: 6/25/2008 4:13 PM