Guest guest Posted June 1, 2008 Report Share Posted June 1, 2008 Elissa....I'm not sure if I'd welcomed you or write to you. I do sometimes get you and confused. Not mixed up, but to whom I have written! I've been reading about the dust...you already have good advice there. Reminds me when in the early 60s we did a major remodel...I even helped sand and paper sheetrock. ! ! ! Gee, it just hit me....maybe breathing in all that dust......................... We have only two boys in 4 generations! One 46 and one just learning to walk. I'm sure you have fun with your son and I'm double sure he likes having mom at the games. Enjoy today. MamaSher, age 69.IPF 3-06,NSIP 4-08. OR.Don't fret about tomorrow, God is already there! Re: Newly DiagnosedTo: Breathe-Support@ yahoogroups. comDate: Saturday, May 31, 2008, 12:05 AM Elissa, We have been through a couple of remodelings. The guy that does our work (as recently as two months ago) hangs a tarp over the entrance way to that room. He opens a window and puts in an exhaust fan. He takes all his wood outside to saw it. He works extra hard to keep the dust away from me. So, perhaps you could talk to your person who is doing the work and make him understand how harmful the dust could be to you. Hugs, Joyce D.Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary Hypertension 2008 Mixed Connective Tissue Disease (Lupus, RA, Sjogren's, etc) Rejected for Transplant 2006 .....I will not forget you. Behold, I have engraved you on the palm of my hands. Isaiah 49: 15-16> & gt;> & gt; Hello Everyone!> & gt; > & gt; My name is Elissa (like no M). I have recenly been diagnosed > & gt; with PF. I guess I am still in the shock and comprehend stage. I am > & gt; 41 years old with a 9 year old son. I have been reading through the > & gt; messages and gained strength from all of you. However, I must > & gt; confess that I still am mourning the life I thought I would have and > & gt; preparing for this new course. I guess that's the main reason I'm > & gt; here. To find out what that course is going to be and how to prepare > & gt; for it. Awhile after I found out I have this disease, a friend the > & gt; same age died unexpectedly. Today I went to her funeral and watched > & gt; her nine year old play with mine. It put things in perspective a > & gt; bit. I have to feel some appreciation that I get the time to prepare > & gt; my family for the inevitable. On the other hand nobody knows how > & gt; much time they have and there is no truer statement than to live > & gt; everyday as if it's your last. The funny thing is, I finally > & gt; realized that about 7 months ago and decided to change my life. > & gt; After years of trying to get ahead and building 2 businesses with my > & gt; husband, I decided it's time to enjoy my son and family. Almost > & gt; immediately I got sick and never recovered. I kept telling everyone, > & gt; this is the year I get my life back. I hope this doesn't ring too > & gt; much of negativity, but I just find it ironic. I do feel there will > & gt; be many positive things to come from this situation. My family and > & gt; friends have really shown their support and love. That is such an > & gt; amazing feeling. But I must admit handling people has been a > & gt; challenge for me. I am a realist and when people say, "Oh, you'll be > & gt; fine." it is annoying to me. If anybody has any suggestions on how > & gt; to convey the situation it would be helpful. Oh, and I don't have > & gt; medical insurance. I've been paying cash to all these appointments, > & gt; x-rays, tests and the CT scan. Honestly, I still paid less than > & gt; many people pay in monthly insurance payments. My Doctor warned me > & gt; that is about to change and am scrambling to obtain insurance. I've > & gt; had Asthma since I was a child and numerous bouts with pneumonia and > & gt; bronchitis. I always joked with everyone that my lungs would kill > & gt; me. Well I hope my ramblings are not inappropriate and I do feel > & gt; better to get it off my chest. I was recently asked if I was angry > & gt; about the situation. Definately not. I believe the Lord has a plan > & gt; for me and I am scrambling to figure it out. I just want to get > & gt; through this with dignity and grace. Be a good example of a life > & gt; well lived. I know many of you are just that and I look forward to > & gt; getting to know you better. I have many questions, but another > & gt; time. Thanks for the space.> & gt; > & gt; Elissa> & gt; Age 41, PF 5/08> & gt;> Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.