Guest guest Posted July 7, 2008 Report Share Posted July 7, 2008 Hello everyone, I’ve been diagnosed with PF. I have a question regarding chest tightness. First off, my heart is in great shape. It has been checked by multiple doctors and a half dozen tests, so it is not a heart issue. My chest and throat tightness is chronic and increasing. It isn’t painful, just tight. It started out as fleeting, then only after sitting for a while. Then it was most of the day, but exercising or sleep would stop it. Now it is all the time, no matter sitting, sleeping, exercising, or standing. Is this related to PF? Thanks for your responses. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2008 Report Share Posted July 7, 2008 My chest pains are painful and feel more like a charlie horse than tightness, in any case as much as I did not to use prednisone 60mg for this session it seemed the only thing that stopped the chest pain, I was told it was due to the amount of work my lungs had to do. Hopefully you will recieve alot of different answers giving you a list of many NEW questions to ask your doctor or alot of the same answer giving your a new request of treatment or testing your dr needs to administer. In any case this support group has been for me a great place to start. With Warm Regards, Ali Klisser"Be who you are, & say what you feel, because those who mind don't matter, & those who matter don't mind." ~Dr. Suess ~ To: Breathe-Support From: dormond2@...Date: Mon, 7 Jul 2008 13:47:53 -0600Subject: chest tightness Hello everyone, I’ve been diagnosed with PF. I have a question regarding chest tightness. First off, my heart is in great shape. It has been checked by multiple doctors and a half dozen tests, so it is not a heart issue. My chest and throat tightness is chronic and increasing. It isn’t painful, just tight. It started out as fleeting, then only after sitting for a while. Then it was most of the day, but exercising or sleep would stop it. Now it is all the time, no matter sitting, sleeping, exercising, or standing. Is this related to PF? Thanks for your responses. Use video conversation to talk face-to-face with Windows Live Messenger. Get started. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2008 Report Share Posted July 7, 2008 Diane, It's so hard to say because what every person feels within his or her own body is so subjective. I've definitely had what I'd call tightness in my chest. I'd describe it as a feeling of having a band tightly wrapped around my upper body and the inability to take a deep breath. One of the first things I remember noticing, long before I felt significantly short of breath was that I somehow lost the ability to yawn. I'd start to yawn and then suddenly on the inhale I'd just stop, I couldn't get the amount of air in that was required for a nice big yawn. I remember thinking it was weird but since I had no other symptoms at the time I didn't think too much of it. Since my period of treatment with predinisone and my continuous oxygen use along with pulmonary rehab and regular exercise my shortness of breath and that feeling of tightness is greatly diminished. I still can't yawn very well but I've learned to live with it. I hope that somehow answers your question, I do think the answer will be somewhat different for each individual. Good luck! Beth Age 48 Fibrotic NSIP 06/06 Change everything. Love and Forgive chest tightness Hello everyone, I¢ve been diagnosed with PF. I have a question regarding chest tightness. First off, my heart is in great shape. It has been checked by multiple doctors and a half dozen tests, so it is not a heart issue. My chest and throat tightness is chronic and increasing. It isn¢t painful, just tight. It started out as fleeting, then only after sitting for a while. Then it was most of the day, but exercising or sleep would stop it. Now it is all the time, no matter sitting, sleeping, exercising, or standing. Is this related to PF? Thanks for your responses. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2008 Report Share Posted July 7, 2008 MB Oh my.....yawning is still the worst thing to do. Who would have ever thought a simple yawn would be difficult or painful. I thought it was just me.... > > Diane, > It's so hard to say because what every person feels within his or her own body is so subjective. I've definitely had what I'd call tightness in my chest. I'd describe it as a feeling of having a band tightly wrapped around my upper body and the inability to take a deep breath. One of the first things I remember noticing, long before I felt significantly short of breath was that I somehow lost the ability to yawn. I'd start to yawn and then suddenly on the inhale I'd just stop, I couldn't get the amount of air in that was required for a nice big yawn. I remember thinking it was weird but since I had no other symptoms at the time I didn't think too much of it. > Since my period of treatment with predinisone and my continuous oxygen use along with pulmonary rehab and regular exercise my shortness of breath and that feeling of tightness is greatly diminished. I still can't yawn very well but I've learned to live with it. I hope that somehow answers your question, I do think the answer will be somewhat different for each individual. > Good luck! > > Beth > Age 48 Fibrotic NSIP 06/06 > > Change everything. Love and Forgive > > > > > > chest tightness > > > Hello everyone, > I¢ve been diagnosed with PF. I have a question regarding chest tightness. > First off, my heart is in great shape. It has been checked by multiple doctors and a half dozen tests, so it is not a heart issue. > My chest and throat tightness is chronic and increasing. It isn¢t painful, just tight. It started out as fleeting, then only after sitting for a while. > Then it was most of the day, but exercising or sleep would stop it. Now it is all the time, no matter sitting, sleeping, exercising, or standing. > Is this related to PF? > Thanks for your responses. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2008 Report Share Posted July 7, 2008 Thanks for all the responses. Yes, I have GERD and take Prilosec generic. Swallowing is not a problem. No high blood pressure. I’ll look up pulmonary hypertension because that hasn’t come up. Too new of a diagnosis, so don’t know about autoimmune. They said biopsy not worth it because wouldn’t change the treatment or outcome. No soreness anywhere, no matter where pressed. Is an inhaler for asthma type stuff? I don’t have COPD. Yes, feel like a band tightly wrapped around body, and a fuzzball in my throat. However, I can take deep breaths. It isn’t affecting me (yet), but is an irritating sensation. No problem yet with yawning. I’ll watch for it. So far, no treatment plan. CT scan showed scarring and left lung size reduction (about 2/3 normal size). Breathing tests also showed 2/3 functionality for my age (59). From: Breathe-Support [mailto:Breathe-Support ] On Behalf Of Bruce Moreland Sent: Monday, July 07, 2008 3:02 PM To: Breathe-Support Subject: Re: chest tightness MB Oh my.....yawning is still the worst thing to do. Who would have ever thought a simple yawn would be difficult or painful. I thought it was just me.... > > Diane, > It's so hard to say because what every person feels within his or her own body is so subjective. I've definitely had what I'd call tightness in my chest. I'd describe it as a feeling of having a band tightly wrapped around my upper body and the inability to take a deep breath. One of the first things I remember noticing, long before I felt significantly short of breath was that I somehow lost the ability to yawn. I'd start to yawn and then suddenly on the inhale I'd just stop, I couldn't get the amount of air in that was required for a nice big yawn. I remember thinking it was weird but since I had no other symptoms at the time I didn't think too much of it. > Since my period of treatment with predinisone and my continuous oxygen use along with pulmonary rehab and regular exercise my shortness of breath and that feeling of tightness is greatly diminished. I still can't yawn very well but I've learned to live with it. I hope that somehow answers your question, I do think the answer will be somewhat different for each individual. > Good luck! > > Beth > Age 48 Fibrotic NSIP 06/06 > > Change everything. Love and Forgive > > > > > > chest tightness > > > Hello everyone, > I¢ve been diagnosed with PF. I have a question regarding chest tightness. > First off, my heart is in great shape. It has been checked by multiple doctors and a half dozen tests, so it is not a heart issue. > My chest and throat tightness is chronic and increasing. It isn¢t painful, just tight. It started out as fleeting, then only after sitting for a while. > Then it was most of the day, but exercising or sleep would stop it. Now it is all the time, no matter sitting, sleeping, exercising, or standing. > Is this related to PF? > Thanks for your responses. > No virus found in this incoming message. Checked by AVG. Version: 8.0.100 / Virus Database: 270.4.6/1538 - Release Date: 7/7/2008 7:40 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2008 Report Share Posted July 7, 2008 Until reading these posts I never gave it any thought that I too have trouble yawning. How strange. I get about 1/2 way into a yawn and then go on "hold" for a couple of seconds and then continue with the yawn in 2 or 3 more inhales. Like Bruce, I thought it was just me... MamaSher, age 69. IPF 3-06, OR./ NasturtiumsDon't fret about tomorrow, God is already there! chest tightness>>> Hello everyone,> I¢ve been diagnosed with PF. I have a question regarding chesttightness.> First off, my heart is in great shape. It has been checked by multipledoctors and a half dozen tests, so it is not a heart issue.> My chest and throat tightness is chronic and increasing. It isn¢tpainful, just tight. It started out as fleeting, then only after sittingfor a while.> Then it was most of the day, but exercising or sleep would stop it.Now it is all the time, no matter sitting, sleeping, exercising, orstanding.> Is this related to PF?> Thanks for your responses.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2008 Report Share Posted July 7, 2008 Hi Dianne... a quick hello from me and welcome to our board. We'll get more acquainted as time goes on. When you sign your name to the bottom of a post, would you add your dx (diagnosis) and date of and your age if you want to and your state? Thanks. You may notice flower names behind some of our signatures...they are flowers we have chosen to be our memorial. I'm one of the older ones on the board....70 in August. Dx 3-06 and fairly stable since until a couple of months ago and latest PFTs show progression of my IPF. Glad you found the board and nearly everything you need to know you can find here. welcome to the real world MamaSher, age 69. IPF 3-06, OR./ NasturtiumsDon't fret about tomorrow, God is already there! chest tightness>>> Hello everyone,> I¢ve been diagnosed with PF. I have a question regarding chesttightness.> First off, my heart is in great shape. It has been checked by multipledoctors and a half dozen tests, so it is not a heart issue.> My chest and throat tightness is chronic and increasing. It isn¢tpainful, just tight. It started out as fleeting, then only after sittingfor a while.> Then it was most of the day, but exercising or sleep would stop it.Now it is all the time, no matter sitting, sleeping, exercising, orstanding.> Is this related to PF?> Thanks for your responses.> No virus found in this incoming message.Checked by AVG.Version: 8.0.100 / Virus Database: 270.4.6/1538 - Release Date: 7/7/2008 7:40 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2008 Report Share Posted July 7, 2008 Dianne Have you had an upper endoscopy recently? You mention GERD and you're talking about a fuzzball in your throat and it would at least seem to indicate the need to see your gastroenterologist. One thing we all need to do is not assume whether it's Prilosec or Protonix or Nexium that its getting the job done and the only way I know to determine if its adequate and other possible issues is an upper endoscopy, which is one of the easiest procedures we get done. You said they said the biopsy wouldn't change the treatment or outcome. Did they tell you what form of PF they believe you have? Did they discuss possible treatments based on the different forms or the conflicting opinions or the side effects of the possible meds or reasons to take or not take? It's not their place to decide whether a biopsy is worth it or whether the meds are but rather to inform you and advise and let you make an educated and personal choice. Maybe thats what they did and I'm just misinterpreting your answer. But, if you search here, you'll find many reasons for and against biopsies and also arguments on both sides as to whether to try Imuran and Prednisone or not. The single most important advise I can give you is that it is your life and you must be the one who manages your Medical Treatment. This is not the disease to entrust the decisions to anyone else nor to assume anything. We're all different. There are many opinions and no absolutes. I also recommend second opinions if you haven't gotten one, preferably at a teaching hospital and even better at one of the 13 IPF Centers of Excellence. If they haven't tested adequately for autoimmune diseases, I'd certainly recommend it. > > > > Diane, > > It's so hard to say because what every person feels within his or her > own body is so subjective. I've definitely had what I'd call tightness > in my chest. I'd describe it as a feeling of having a band tightly > wrapped around my upper body and the inability to take a deep breath. > One of the first things I remember noticing, long before I felt > significantly short of breath was that I somehow lost the ability to > yawn. I'd start to yawn and then suddenly on the inhale I'd just stop, > I couldn't get the amount of air in that was required for a nice big > yawn. I remember thinking it was weird but since I had no other > symptoms at the time I didn't think too much of it. > > Since my period of treatment with predinisone and my continuous oxygen > use along with pulmonary rehab and regular exercise my shortness of > breath and that feeling of tightness is greatly diminished. I still > can't yawn very well but I've learned to live with it. I hope that > somehow answers your question, I do think the answer will be somewhat > different for each individual. > > Good luck! > > > > Beth > > Age 48 Fibrotic NSIP 06/06 > > > > Change everything. Love and Forgive > > > > > > > > > > > > chest tightness > > > > > > Hello everyone, > > I¢ve been diagnosed with PF. I have a question regarding chest > tightness. > > First off, my heart is in great shape. It has been checked by multiple > doctors and a half dozen tests, so it is not a heart issue. > > My chest and throat tightness is chronic and increasing. It isn¢t > painful, just tight. It started out as fleeting, then only after sitting > for a while. > > Then it was most of the day, but exercising or sleep would stop it. > Now it is all the time, no matter sitting, sleeping, exercising, or > standing. > > Is this related to PF? > > Thanks for your responses. > > > > > > No virus found in this incoming message. > Checked by AVG. > Version: 8.0.100 / Virus Database: 270.4.6/1538 - Release Date: 7/7/2008 > 7:40 AM > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2008 Report Share Posted July 8, 2008 Hi Dianne, By now you've got the idea...chest tightness goes with the territory...there's a whole list of stuff that you'll realise is connected as you go. Welcome aboard even if you'd rather you were joining some OTHER fun, frivolous Chat Group that had nothing to do with illness. Well here we all, are stuck in the same predicament...there's lots of good advice to be found here & sincere support. My tip is to make good use of the Web-site Message Board even if you get your mail delivered straight into your personal e-mail system. If you do that you'll notice that you can click straight onto the web-site & find all the Data Bases, Photos etc. There is also the SEARCH BUTTON on the Web-site Message Board which is great for looking back over discussions that have been had previously. Just put in a word you're interested in ie, oxygen, Biopsy or Prednisone or Immuran or Flower or whatever....you can then browse through heaps of Posts on those subjects. Cheers, in Oz (Australia) Red Kangaroo Paw IPF: Fibrotic NSIP/UIP?? Reynauds' May 2007 >> Hello everyone,> > I've been diagnosed with PF. I have a question regarding chest tightness.> > First off, my heart is in great shape. It has been checked by multiple> doctors and a half dozen tests, so it is not a heart issue.> > My chest and throat tightness is chronic and increasing. It isn't painful,> just tight. It started out as fleeting, then only after sitting for a while.> > Then it was most of the day, but exercising or sleep would stop it. Now it> is all the time, no matter sitting, sleeping, exercising, or standing.> > Is this related to PF?> > Thanks for your responses.> Quote Link to comment Share on other sites More sharing options...
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