Re: Caregivers and Peggy

[Guest guest]

Only a second to check in here. I did just pop on before Kurt and I

head for a nap. Busy morning going to the Y to keep up my home

rehab program for transplant, then lunch, laundry and a little fun

on the Wii w/ the kids. I popped on to see if I had done a bad

thing. Peggy, my dear sweet wonderful Peggy... I just love you and

you must really be feeling down to fear this. Do you think that I

would feel this way and support their being here if that was the

tone they took. Hell no! I have only felt the love and I can't

imagine someone would come on here to say I hate taking care of my

spouse and think your lot are a pain and a burden. Obviously there

are family members who feel that way and we've heard those

unfortunate realities from our fellow IPFers. My family is not that

way and we know yours is not either ( would hold up the world

for you and I think that lovely would spin it) and for that I

remind myself daily that I am blessed. I send you a big ol' hug and

kiss w/ this post and wish I could do so in person. I will head to

nap thinking of you, your loved ones and mine and smile as I lay

down to rest.

Kerry

37 IPF '01 S. IN

>

> This may be exactly what you are hoping to avoid by simply asking

> for people to answer an anonymous poll. However, hours after voting

> I have logged back on because I just am so bothered by the question

> that I must say something. I can't imagine turning people away who

> care that much about their loved ones that they would bother to be

> part of our forum. I'm sure the caregivers side offers a lot. I

> can imagine the value of a place where they can go to discuss

topics

> near and dear to their hearts and help them in their roles. That

> said, there is just nothing like our forum to really get at the

> heart of it. Sure there's a lot of side topics, sillyness and

> sharing and that's based on the friendships we have built up and

> just to help us all get thru the day and because you have to focus

> on more than just being sick. That said the actual info shared here

> may not be found anywhere and I mean anywhere else. For those

> wonderful people who are desperately trying to understand what

their

> loved ones diagnosed w/ this are going thru... my God to turn them

> away, I can't imagine. For those that aren't computer savy or who

> can't sit at the computer or don't have the access, how do we cut

> them off when they have someone who will be their go between. Not

> to mention what we have gained from them. I so value having met

> Cyndi (and by her, knowing her huggy teddy bear of a Dad), Joanie

of

> Joanie and Bud, Gretel of Gretel and Bob, Sheila and her Mom for

> Bobby, Vrinda, Joanie and Joe, Teri does most the communicating for

> Jon, for Don. Gretel, Joanie and Cyndi were some of my most

> favorite people when I first started posting. To see the love

> Joanie has for Bud, that's a tribute and something I feel honored

to

> have witnessed. Cyndi told me once that my excursions encouraged

> her Dad to do their trip to Yosemite and that in turn helped

> encourage me to go to Hawaii. The caregivers on this site have

> helped me understand some of the challenges my husband has and some

> of the fear he must hide and some of the frustration too! I'm not

> saying I want to combine the sites, but for those that are here I

> think it's important for their loved ones and for us too. For

> anyone who feels that they don't belong, why does it hold you back

> from complaining about how your caregiver doesn't understand... go

> for it, complain they're not on here fire away. If you feel they

> don't understand how we feel, no of course they don't but they're

> here for a very important reason. They're not Joe Schmo off the

> street, they are not conducting a survey. They are Caregivers they

> are the loved ones of people just like us and they are absolutely

> fighting this monster too. This is a forum trying to help a very

> large group of people it's not going to suit all exactly. It has

> been said before if you don't like the jokes delete or don't read

> them, if you don't like the off topics filter or search, if you

only

> want to read things that apply to you use the search I mentioned.

> If you don't want to communicate w/ someone on here, then don't.

> Don't battle w/ people you don't think should be here, just be in

> your own space in this place and don't cut off someone else's

> lifeline.

>

> Apologies in advance for not holding my tongue,

> Kerry

> 37 IPF '01 S. IN

>