Guest guest Posted June 24, 2008 Report Share Posted June 24, 2008 Oh. You mean Kim...I hadn't read her post yet. How can this be?????????? MamaSher, age 69. IPF 3-06, OR./ NasturtiumsDon't fret about tomorrow, God is already there! Little Rant The past few days have been okay, adjusting to being on oxygen all the time and all that. But this morning the dreadful cough came back while I was trying to eat lunch. Then I noticed all the windows were open in the house and it's starting to get a little bit more warmer, so it's prolly the warmness. With the cough I always bring up phlegm or at least produce it enough to irriate my throat, so I had to stop eating for the moment and go back to the comfort of my oxygen tube (I decided to walk to the living room without it figured I'd be okay if I was sitting). I'd had lost alot of weight prior to this diagonsis (after bone marrow transplant I stayed around 90-110...then I dropped drastically to my current weight of 70), so not being able to finish lunch made me feel a little mad. Trying to gain weight has been hard for me and my oncologist has been harping on me about it. Stuck at why did this disease have to come get me, I already beat cancer, let me get back to my life. The same kind of thoughts I had at my cancer diagonsis over 2 years ago. Can't work and I really want to go back to work, I keep making empty promises to my employer that I'd be back and it has yet to happen. Have to go next week after I get my social secuity checks deposited to tell them about my fibrosis. The cough has settled down some, I'm going to try and eat more lunch. Thanks for letting me rant. /22/Ohio ~ Non-Hodgkins Lymphoma Survivor of 2 years 12/2005 ~ Autologus Bone Marrow Transplant 09/2006 ~ Pulmonary Fibrosis caused by chemotherapy 06/2008 ~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2008 Report Share Posted June 24, 2008 Kim...how can you function at 70 pounds?? MamaSher, age 69. IPF 3-06, OR./ NasturtiumsDon't fret about tomorrow, God is already there! Little Rant The past few days have been okay, adjusting to being on oxygen all the time and all that. But this morning the dreadful cough came back while I was trying to eat lunch. Then I noticed all the windows were open in the house and it's starting to get a little bit more warmer, so it's prolly the warmness. With the cough I always bring up phlegm or at least produce it enough to irriate my throat, so I had to stop eating for the moment and go back to the comfort of my oxygen tube (I decided to walk to the living room without it figured I'd be okay if I was sitting). I'd had lost alot of weight prior to this diagonsis (after bone marrow transplant I stayed around 90-110...then I dropped drastically to my current weight of 70), so not being able to finish lunch made me feel a little mad. Trying to gain weight has been hard for me and my oncologist has been harping on me about it. Stuck at why did this disease have to come get me, I already beat cancer, let me get back to my life. The same kind of thoughts I had at my cancer diagonsis over 2 years ago. Can't work and I really want to go back to work, I keep making empty promises to my employer that I'd be back and it has yet to happen. Have to go next week after I get my social secuity checks deposited to tell them about my fibrosis. The cough has settled down some, I'm going to try and eat more lunch. Thanks for letting me rant. /22/Ohio ~ Non-Hodgkins Lymphoma Survivor of 2 years 12/2005 ~ Autologus Bone Marrow Transplant 09/2006 ~ Pulmonary Fibrosis caused by chemotherapy 06/2008 ~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2008 Report Share Posted June 24, 2008 Good question, lol. They tell me I eat enough to maintain what I have but my oncologist put me on a 3,500 calorie diet. Just haven't gained anything back yet though I eat like all day long! /22/Ohio ~ Non-Hodgkins Lymphoma Survivor of 2 years 12/2005 ~ Autologus Bone Marrow Transplant 09/2006 ~ Pulmonary Fibrosis caused by chemotherapy 06/2008 ~ > > Kim...how can you function at 70 pounds?? > > MamaSher, age 69. IPF 3-06, OR./ Nasturtiums > Don't fret about tomorrow, God is already there! > > Little Rant > > > > The past few days have been okay, adjusting to being on oxygen all the time and all that. But this morning the dreadful cough came back while I was trying to eat lunch. Then I noticed all the windows were open in the house and it's starting to get a little bit more warmer, so it's prolly the warmness. With the cough I always bring up phlegm or at least produce it enough to irriate my throat, so I had to stop eating for the moment and go back to the comfort of my oxygen tube (I decided to walk to the living room without it figured I'd be okay if I was sitting). I'd had lost alot of weight prior to this diagonsis (after bone marrow transplant I stayed around 90-110...then I dropped drastically to my current weight of 70), so not being able to finish lunch made me feel a little mad. Trying to gain weight has been hard for me and my oncologist has been harping on me about it. > > Stuck at why did this disease have to come get me, I already beat cancer, let me get back to my life. The same kind of thoughts I had at my cancer diagonsis over 2 years ago. Can't work and I really want to go back to work, I keep making empty promises to my employer that I'd be back and it has yet to happen. Have to go next week after I get my social secuity checks deposited to tell them about my fibrosis. > > The cough has settled down some, I'm going to try and eat more lunch. Thanks for letting me rant. > > /22/Ohio ~ Non-Hodgkins Lymphoma Survivor of 2 years 12/2005 ~ Autologus Bone Marrow Transplant 09/2006 ~ Pulmonary Fibrosis caused by chemotherapy 06/2008 ~ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2008 Report Share Posted June 24, 2008 Kim... I apparently made a wrong assumption....I thought you being out 2 or so years would have given you some weight back. What did you weigh 2 years ago? MamaSher, age 69. IPF 3-06, OR./ NasturtiumsDon't fret about tomorrow, God is already there! Little Rant> > > > The past few days have been okay, adjusting to being on oxygen all the time and all that. But this morning the dreadful cough came back while I was trying to eat lunch. Then I noticed all the windows were open in the house and it's starting to get a little bit more warmer, so it's prolly the warmness. With the cough I always bring up phlegm or at least produce it enough to irriate my throat, so I had to stop eating for the moment and go back to the comfort of my oxygen tube (I decided to walk to the living room without it figured I'd be okay if I was sitting). I'd had lost alot of weight prior to this diagonsis (after bone marrow transplant I stayed around 90-110...then I dropped drastically to my current weight of 70), so not being able to finish lunch made me feel a little mad. Trying to gain weight has been hard for me and my oncologist has been harping on me about it. > > Stuck at why did this disease have to come get me, I already beat cancer, let me get back to my life. The same kind of thoughts I had at my cancer diagonsis over 2 years ago. Can't work and I really want to go back to work, I keep making empty promises to my employer that I'd be back and it has yet to happen. Have to go next week after I get my social secuity checks deposited to tell them about my fibrosis.> > The cough has settled down some, I'm going to try and eat more lunch. Thanks for letting me rant. > > /22/Ohio ~ Non-Hodgkins Lymphoma Survivor of 2 years 12/2005 ~ Autologus Bone Marrow Transplant 09/2006 ~ Pulmonary Fibrosis caused by chemotherapy 06/2008 ~> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2008 Report Share Posted June 24, 2008 Before my cancer diagonsis I was like 125-130, a little over weight then. /22/Ohio ~ Non-Hodgkins Lymphoma Survivor of 2 years 12/2005 ~ Autologus Bone Marrow Transplant 09/2006 ~ Pulmonary Fibrosis caused by chemotherapy 06/2008 ~ > > > > Kim...how can you function at 70 pounds?? > > > > MamaSher, age 69. IPF 3-06, OR./ Nasturtiums > > Don't fret about tomorrow, God is already there! > > > > Little Rant > > > > > > > > The past few days have been okay, adjusting to being on oxygen > all the time and all that. But this morning the dreadful cough came > back while I was trying to eat lunch. Then I noticed all the windows > were open in the house and it's starting to get a little bit more > warmer, so it's prolly the warmness. With the cough I always bring up > phlegm or at least produce it enough to irriate my throat, so I had > to stop eating for the moment and go back to the comfort of my oxygen > tube (I decided to walk to the living room without it figured I'd be > okay if I was sitting). I'd had lost alot of weight prior to this > diagonsis (after bone marrow transplant I stayed around 90- 110...then > I dropped drastically to my current weight of 70), so not being able > to finish lunch made me feel a little mad. Trying to gain weight has > been hard for me and my oncologist has been harping on me about it. > > > > Stuck at why did this disease have to come get me, I already > beat cancer, let me get back to my life. The same kind of thoughts I > had at my cancer diagonsis over 2 years ago. Can't work and I really > want to go back to work, I keep making empty promises to my employer > that I'd be back and it has yet to happen. Have to go next week after > I get my social secuity checks deposited to tell them about my > fibrosis. > > > > The cough has settled down some, I'm going to try and eat more > lunch. Thanks for letting me rant. > > > > /22/Ohio ~ Non-Hodgkins Lymphoma Survivor of 2 years > 12/2005 ~ Autologus Bone Marrow Transplant 09/2006 ~ Pulmonary > Fibrosis caused by chemotherapy 06/2008 ~ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2008 Report Share Posted June 24, 2008 Kim... I'm wondering why your Dr. doesn't suggest some inpatient care for you... MamaSher, age 69. IPF 3-06, OR./ NasturtiumsDon't fret about tomorrow, God is already there! Little Rant> > > > > > > > The past few days have been okay, adjusting to being on oxygen > all the time and all that. But this morning the dreadful cough came > back while I was trying to eat lunch. Then I noticed all the windows > were open in the house and it's starting to get a little bit more > warmer, so it's prolly the warmness. With the cough I always bring up > phlegm or at least produce it enough to irriate my throat, so I had > to stop eating for the moment and go back to the comfort of my oxygen > tube (I decided to walk to the living room without it figured I'd be > okay if I was sitting). I'd had lost alot of weight prior to this > diagonsis (after bone marrow transplant I stayed around 90-110...then > I dropped drastically to my current weight of 70), so not being able > to finish lunch made me feel a little mad. Trying to gain weight has > been hard for me and my oncologist has been harping on me about it. > > > > Stuck at why did this disease have to come get me, I already > beat cancer, let me get back to my life. The same kind of thoughts I > had at my cancer diagonsis over 2 years ago. Can't work and I really > want to go back to work, I keep making empty promises to my employer > that I'd be back and it has yet to happen. Have to go next week after > I get my social secuity checks deposited to tell them about my > fibrosis.> > > > The cough has settled down some, I'm going to try and eat more > lunch. Thanks for letting me rant. > > > > /22/Ohio ~ Non-Hodgkins Lymphoma Survivor of 2 years > 12/2005 ~ Autologus Bone Marrow Transplant 09/2006 ~ Pulmonary > Fibrosis caused by chemotherapy 06/2008 ~> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2008 Report Share Posted June 24, 2008 Hi Kim, Rant away lovely., I know I do! To be honest, with everything you've been through, I'm not surprised your weight has been affected. Have you seen a dietician? Lots of high caloried, low density food for you, like nuts and cheese. The oxygen hose will take some getting used to I'm afraid. I've had mine since november and between my partner, my daughter and my dog getting tangled in it along with it getting stuck around furniture and doors and things it still drives me nuts from time to time, but for the most part now I can forget I've got it. In fact, I usually do until it gets stuck. Do you wear yours at night? I find a few coils of hose up on the bed helps to stop it from falling off and pulling at my ears. Mind you, I'm a bit of a night time revolver and wake up with it wrapped round my neck a few times! Have you got an Oxymeter. They are invaluable, especially if you don't need the O2 all the time. I have also introduced a 15min rule. This is where I have a task to complete, so I set a timer for 15mins and when the timer goes off, sit down and rest before starting again. Take care Love Ze xx>> > The past few days have been okay, adjusting to being on oxygen all the> time and all that. But this morning the dreadful cough came back while I> was trying to eat lunch. Then I noticed all the windows were open in the> house and it's starting to get a little bit more warmer, so it's prolly> the warmness. With the cough I always bring up phlegm or at least> produce it enough to irriate my throat, so I had to stop eating for the> moment and go back to the comfort of my oxygen tube (I decided to walk> to the living room without it figured I'd be okay if I was sitting). I'd> had lost alot of weight prior to this diagonsis (after bone marrow> transplant I stayed around 90-110...then I dropped drastically to my> current weight of 70), so not being able to finish lunch made me feel a> little mad. Trying to gain weight has been hard for me and my oncologist> has been harping on me about it.> > Stuck at why did this disease have to come get me, I already beat> cancer, let me get back to my life. The same kind of thoughts I had at> my cancer diagonsis over 2 years ago. Can't work and I really want to go> back to work, I keep making empty promises to my employer that I'd be> back and it has yet to happen. Have to go next week after I get my> social secuity checks deposited to tell them about my fibrosis.> > The cough has settled down some, I'm going to try and eat more lunch.> Thanks for letting me rant. > > /22/Ohio ~ Non-Hodgkins Lymphoma Survivor of 2 years 12/2005 ~> Autologus Bone Marrow Transplant 09/2006 ~ Pulmonary Fibrosis caused by> chemotherapy 06/2008 ~> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2008 Report Share Posted June 24, 2008 I don't know, maybe they want me to try and gain it on my own first. I'm sick of being in hospitals, I was in the hospital all last week. If I put my mind to it I'm sure I'll be able to do it. =) I don't give up that easy! /22/Ohio ~ Non-Hodgkins Lymphoma Survivor of 2 years 12/2005 ~ Autologus Bone Marrow Transplant 09/2006 ~ Pulmonary Fibrosis caused by chemotherapy 06/2008 ~ > > > > > > Kim...how can you function at 70 pounds?? > > > > > > MamaSher, age 69. IPF 3-06, OR./ Nasturtiums > > > Don't fret about tomorrow, God is already there! > > > > > > Little Rant > > > > > > > > > > > > The past few days have been okay, adjusting to being on oxygen > > all the time and all that. But this morning the dreadful cough > came > > back while I was trying to eat lunch. Then I noticed all the > windows > > were open in the house and it's starting to get a little bit more > > warmer, so it's prolly the warmness. With the cough I always > bring up > > phlegm or at least produce it enough to irriate my throat, so I > had > > to stop eating for the moment and go back to the comfort of my > oxygen > > tube (I decided to walk to the living room without it figured I'd > be > > okay if I was sitting). I'd had lost alot of weight prior to this > > diagonsis (after bone marrow transplant I stayed around 90- > 110...then > > I dropped drastically to my current weight of 70), so not being > able > > to finish lunch made me feel a little mad. Trying to gain weight > has > > been hard for me and my oncologist has been harping on me about > it. > > > > > > Stuck at why did this disease have to come get me, I already > > beat cancer, let me get back to my life. The same kind of > thoughts I > > had at my cancer diagonsis over 2 years ago. Can't work and I > really > > want to go back to work, I keep making empty promises to my > employer > > that I'd be back and it has yet to happen. Have to go next week > after > > I get my social secuity checks deposited to tell them about my > > fibrosis. > > > > > > The cough has settled down some, I'm going to try and eat more > > lunch. Thanks for letting me rant. > > > > > > /22/Ohio ~ Non-Hodgkins Lymphoma Survivor of 2 years > > 12/2005 ~ Autologus Bone Marrow Transplant 09/2006 ~ Pulmonary > > Fibrosis caused by chemotherapy 06/2008 ~ > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2008 Report Share Posted June 24, 2008 I feel sooo sorry for you and what you have been trough keep hope alive friend. Guy > > > > > > Kim...how can you function at 70 pounds?? > > > > > > MamaSher, age 69. IPF 3-06, OR./ Nasturtiums > > > Don't fret about tomorrow, God is already there! > > > > > > Little Rant > > > > > > > > > > > > The past few days have been okay, adjusting to being on oxygen > > all the time and all that. But this morning the dreadful cough > came > > back while I was trying to eat lunch. Then I noticed all the > windows > > were open in the house and it's starting to get a little bit more > > warmer, so it's prolly the warmness. With the cough I always > bring up > > phlegm or at least produce it enough to irriate my throat, so I > had > > to stop eating for the moment and go back to the comfort of my > oxygen > > tube (I decided to walk to the living room without it figured I'd > be > > okay if I was sitting). I'd had lost alot of weight prior to this > > diagonsis (after bone marrow transplant I stayed around 90- > 110...then > > I dropped drastically to my current weight of 70), so not being > able > > to finish lunch made me feel a little mad. Trying to gain weight > has > > been hard for me and my oncologist has been harping on me about > it. > > > > > > Stuck at why did this disease have to come get me, I already > > beat cancer, let me get back to my life. The same kind of > thoughts I > > had at my cancer diagonsis over 2 years ago. Can't work and I > really > > want to go back to work, I keep making empty promises to my > employer > > that I'd be back and it has yet to happen. Have to go next week > after > > I get my social secuity checks deposited to tell them about my > > fibrosis. > > > > > > The cough has settled down some, I'm going to try and eat more > > lunch. Thanks for letting me rant. > > > > > > /22/Ohio ~ Non-Hodgkins Lymphoma Survivor of 2 years > > 12/2005 ~ Autologus Bone Marrow Transplant 09/2006 ~ Pulmonary > > Fibrosis caused by chemotherapy 06/2008 ~ > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2008 Report Share Posted June 24, 2008 Yep, I have a dietician. When I drag the tube around it looks like it threw up cause it's in all sorts of crazy directions. lol. My dad told me to watch where I go with it. The couch is my least fav place to walk by cause it gets stuck. I wear mine at night, but I have it so it's hanging down and not wrapped against anything. I'll have to ask my pulmologist about a oxy meter, I see her for my post-hospital follow up on the 7th. /22/Ohio ~ Non-Hodgkins Lymphoma Survivor of 2 years 12/2005 ~ Autologus Bone Marrow Transplant 09/2006 ~ Pulmonary Fibrosis caused by chemotherapy 06/2008 ~ > > > > > > The past few days have been okay, adjusting to being on oxygen all the > > time and all that. But this morning the dreadful cough came back while > I > > was trying to eat lunch. Then I noticed all the windows were open in > the > > house and it's starting to get a little bit more warmer, so it's > prolly > > the warmness. With the cough I always bring up phlegm or at least > > produce it enough to irriate my throat, so I had to stop eating for > the > > moment and go back to the comfort of my oxygen tube (I decided to walk > > to the living room without it figured I'd be okay if I was sitting). > I'd > > had lost alot of weight prior to this diagonsis (after bone marrow > > transplant I stayed around 90-110...then I dropped drastically to my > > current weight of 70), so not being able to finish lunch made me feel > a > > little mad. Trying to gain weight has been hard for me and my > oncologist > > has been harping on me about it. > > > > Stuck at why did this disease have to come get me, I already beat > > cancer, let me get back to my life. The same kind of thoughts I had at > > my cancer diagonsis over 2 years ago. Can't work and I really want to > go > > back to work, I keep making empty promises to my employer that I'd be > > back and it has yet to happen. Have to go next week after I get my > > social secuity checks deposited to tell them about my fibrosis. > > > > The cough has settled down some, I'm going to try and eat more lunch. > > Thanks for letting me rant. > > > > /22/Ohio ~ Non-Hodgkins Lymphoma Survivor of 2 years 12/2005 ~ > > Autologus Bone Marrow Transplant 09/2006 ~ Pulmonary Fibrosis caused > by > > chemotherapy 06/2008 ~ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2008 Report Share Posted June 24, 2008 , I've been out of circulation for awhile, don't get in here with the group as much as I used to. I say this because I'm certain that others here are aware of your situation and have responded to you. I so identify with you..............you really touched my heart, young lady. My IPF was caused by radiation to my chest to treat lung cancer, which after 3 years is still backed away in a corner somewhere. I hear your pain, your fear, and your anger. I've often thought it's about as "unfair" as it gets........to get a cancer diagnosis with all that goes with it, and what it does to our heads, all the fear and uncertainty. We fight it....we seem to win, at least for now, then BAM. We are barely back on our feet and we get hit again. I don't know why I'm telling you all this, you certainly know it already. I guess to tell you that it can get better. I honestly don't know what is worst.......the physical stuff, the coughing fits, the gasping for breath, the "I-can't-do-anything-anymore" feeling OR the mental toll this takes. I can tell you honestly that if it wasn't for wonderful people to support me and a gifted shrink, I'd probably be dead. I was crazy there for awhile. I know we are all different !!! You are obviously a strong person. You may not feel that way right now, but I can hear it in your writing. All this to say......... the depression and despair have been as bad, and as dangerous, as any physical disease. I hope and pray that you have support around you, and I hope you will consider, if not already, getting some help from a professional. I've been on a ton of meds during the last 5 years. I believe the most beneficial has been the anti-depressant that I still take. And besides..........my oldest daughter is Kimberley. (an extra "e") What can I say? jim IPF 05 alaska wrote: The past few days have been okay, adjusting to being on oxygen all the time and all that. But this morning the dreadful cough came back while I was trying to eat lunch. Then I noticed all the windows were open in the house and it's starting to get a little bit more warmer, so it's prolly the warmness. With the cough I always bring up phlegm or at least produce it enough to irriate my throat, so I had to stop eating for the moment and go back to the comfort of my oxygen tube (I decided to walk to the living room without it figured I'd be okay if I was sitting). I'd had lost alot of weight prior to this diagonsis (after bone marrow transplant I stayed around 90-110...then I dropped drastically to my current weight of 70), so not being able to finish lunch made me feel a little mad. Trying to gain weight has been hard for me and my oncologist has been harping on me about it. Stuck at why did this disease have to come get me, I already beat cancer, let me get back to my life. The same kind of thoughts I had at my cancer diagonsis over 2 years ago. Can't work and I really want to go back to work, I keep making empty promises to my employer that I'd be back and it has yet to happen. Have to go next week after I get my social secuity checks deposited to tell them about my fibrosis. The cough has settled down some, I'm going to try and eat more lunch. Thanks for letting me rant. /22/Ohio ~ Non-Hodgkins Lymphoma Survivor of 2 years 12/2005 ~ Autologus Bone Marrow Transplant 09/2006 ~ Pulmonary Fibrosis caused by chemotherapy 06/2008 ~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2008 Report Share Posted June 24, 2008 Thanks =) I hope things are well for you! /22/Ohio ~ Non-Hodgkins Lymphoma Survivor of 2 years 12/2005 ~ Autologus Bone Marrow Transplant 09/2006 ~ Pulmonary Fibrosis caused by chemotherapy 06/2008 ~ > The past few days have been okay, adjusting to being on oxygen all the time and all that. But this morning the dreadful cough came back while I was trying to eat lunch. Then I noticed all the windows were open in the house and it's starting to get a little bit more warmer, so it's prolly the warmness. With the cough I always bring up phlegm or at least produce it enough to irriate my throat, so I had to stop eating for the moment and go back to the comfort of my oxygen tube (I decided to walk to the living room without it figured I'd be okay if I was sitting). I'd had lost alot of weight prior to this diagonsis (after bone marrow transplant I stayed around 90-110...then I dropped drastically to my current weight of 70), so not being able to finish lunch made me feel a little mad. Trying to gain weight has been hard for me and my oncologist has been harping on me about it. > Stuck at why did this disease have to come get me, I already beat cancer, let me get back to my life. The same kind of thoughts I had at my cancer diagonsis over 2 years ago. Can't work and I really want to go back to work, I keep making empty promises to my employer that I'd be back and it has yet to happen. Have to go next week after I get my social secuity checks deposited to tell them about my fibrosis. > The cough has settled down some, I'm going to try and eat more lunch. Thanks for letting me rant. > /22/Ohio ~ Non-Hodgkins Lymphoma Survivor of 2 years 12/2005 ~ Autologus Bone Marrow Transplant 09/2006 ~ Pulmonary Fibrosis caused by chemotherapy 06/2008 ~ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2008 Report Share Posted June 24, 2008 , That was a remarkably tiny rant considering all you've had to cope with. I hope the cough stayed settled so that you could eat your lunch. Do you monitor your oxygen sats? I'm just wondering because I know the main time that I cough is if my sats go lower than 89 or 90. If my sats are up, I generally don't cough much. Anytime you need to rant, feel free to come her and let it all out. We've either said or heard it all, we can take it! Beth Age 48 Fibrotic NSIP 06/06 Change everything. Love and Forgive Little Rant The past few days have been okay, adjusting to being on oxygen all the time and all that. But this morning the dreadful cough came back while I was trying to eat lunch. Then I noticed all the windows were open in the house and it's starting to get a little bit more warmer, so it's prolly the warmness. With the cough I always bring up phlegm or at least produce it enough to irriate my throat, so I had to stop eating for the moment and go back to the comfort of my oxygen tube (I decided to walk to the living room without it figured I'd be okay if I was sitting). I'd had lost alot of weight prior to this diagonsis (after bone marrow transplant I stayed around 90-110...then I dropped drastically to my current weight of 70), so not being able to finish lunch made me feel a little mad. Trying to gain weight has been hard for me and my oncologist has been harping on me about it. Stuck at why did this disease have to come get me, I already beat cancer, let me get back to my life. The same kind of thoughts I had at my cancer diagonsis over 2 years ago. Can't work and I really want to go back to work, I keep making empty promises to my employer that I'd be back and it has yet to happen. Have to go next week after I get my social secuity checks deposited to tell them about my fibrosis. The cough has settled down some, I'm going to try and eat more lunch. Thanks for letting me rant. /22/ Ohio ~ Non-Hodgkins Lymphoma Survivor of 2 years 12/2005 ~ Autologus Bone Marrow Transplant 09/2006 ~ Pulmonary Fibrosis caused by chemotherapy 06/2008 ~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2008 Report Share Posted June 24, 2008 When I was doing my walking test at the hospital a few minutes after I hit the mid 80s I started to cough alot more. I was able to eat more after it settled, so all is good. I haven't coughed too bad (used to cough and cough and cough till I exhausted myself out, like need a nap exhausted) since I'm taking more caution in what I do to exert myself now since I've gotten home. I'm just wearing my oxygen all day today, I feel like I need it more. When I see my lung doctor on the 7th I'll ask her about getting something to monitor my oxy stats. I googled it online, so I could get my own machine, but they are expensive!! /22/Ohio ~ Non-Hodgkins Lymphoma Survivor of 2 years 12/2005 ~ Autologus Bone Marrow Transplant 09/2006 ~ Pulmonary Fibrosis caused by chemotherapy 06/2008 ~ > > , > That was a remarkably tiny rant considering all you've had to cope with. I hope the cough stayed settled so that you could eat your lunch. Do you monitor your oxygen sats? I'm just wondering because I know the main time that I cough is if my sats go lower than 89 or 90. If my sats are up, I generally don't cough much. > Anytime you need to rant, feel free to come her and let it all out. We've either said or heard it all, we can take it! > >  Beth > Age 48 Fibrotic NSIP 06/06 >  > Change everything. Love and Forgive   >  >  > > > > Little Rant > > > The past few days have been okay, adjusting to being on oxygen all the time and all that. But this morning the dreadful cough came back while I was trying to eat lunch. Then I noticed all the windows were open in the house and it's starting to get a little bit more warmer, so it's prolly the warmness. With the cough I always bring up phlegm or at least produce it enough to irriate my throat, so I had to stop eating for the moment and go back to the comfort of my oxygen tube (I decided to walk to the living room without it figured I'd be okay if I was sitting). I'd had lost alot of weight prior to this diagonsis (after bone marrow transplant I stayed around 90-110...then I dropped drastically to my current weight of 70), so not being able to finish lunch made me feel a little mad. Trying to gain weight has been hard for me and my oncologist has been harping on me about it. > Stuck at why did this disease have to come get me, I already beat cancer, let me get back to my life. The same kind of thoughts I had at my cancer diagonsis over 2 years ago. Can't work and I really want to go back to work, I keep making empty promises to my employer that I'd be back and it has yet to happen. Have to go next week after I get my social secuity checks deposited to tell them about my fibrosis. > The cough has settled down some, I'm going to try and eat more lunch. Thanks for letting me rant. > /22/ Ohio ~ Non-Hodgkins Lymphoma Survivor of 2 years 12/2005 ~ Autologus Bone Marrow Transplant 09/2006 ~ Pulmonary Fibrosis caused by chemotherapy 06/2008 ~ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2008 Report Share Posted June 24, 2008 Kim... I am among the others who purchased my oximeter from www.portablenebs.com. It works very well and is accurate to within one number. Also gives you your heart rate. Check it out. MamaSher, age 69. IPF 3-06, OR./ NasturtiumsDon't fret about tomorrow, God is already there! Little Rant> > > The past few days have been okay, adjusting to being on oxygen all the time and all that. But this morning the dreadful cough came back while I was trying to eat lunch. Then I noticed all the windows were open in the house and it's starting to get a little bit more warmer, so it's prolly the warmness. With the cough I always bring up phlegm or at least produce it enough to irriate my throat, so I had to stop eating for the moment and go back to the comfort of my oxygen tube (I decided to walk to the living room without it figured I'd be okay if I was sitting). I'd had lost alot of weight prior to this diagonsis (after bone marrow transplant I stayed around 90-110...then I dropped drastically to my current weight of 70), so not being able to finish lunch made me feel a little mad. Trying to gain weight has been hard for me and my oncologist has been harping on me about it. > Stuck at why did this disease have to come get me, I already beat cancer, let me get back to my life. The same kind of thoughts I had at my cancer diagonsis over 2 years ago. Can't work and I really want to go back to work, I keep making empty promises to my employer that I'd be back and it has yet to happen. Have to go next week after I get my social secuity checks deposited to tell them about my fibrosis.> The cough has settled down some, I'm going to try and eat more lunch. Thanks for letting me rant. > /22/ Ohio ~ Non-Hodgkins Lymphoma Survivor of 2 years 12/2005 ~ Autologus Bone Marrow Transplant 09/2006 ~ Pulmonary Fibrosis caused by chemotherapy 06/2008 ~> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2008 Report Share Posted June 24, 2008 Hi , As I read your post I was thinking about all the difficulty I had with the coughing spells,phlegm and the sore throats along with my ribs hurting so bad from the coughing. I went to 4 different Dr's before I finally found one that gave me a rx for Benzonatate (tesselon pearls) (200mg). Over a period of 2 days, I went from coughing about 1,000 times a day down to a very liveable 50-100 and now I hardly cough at all. It worked for me but some people it doesn't--go figure. I am not on oxygen at this time---so I try to do breathing exercises during the course of the day and do take the dog (Dakota) to the park about 2 blocks away to throw the ball for him---in general I try to keep busy and physically active. I like reading your posts--as I think you are a mentally tough person with a purpose in life and I have the feeling you are not going to let this think get you down---and I know this board is going to help you on the days, (that we all have) that suck. Being some what of a baseball fan---you remind me of the batter that gets a pitch throw at him and has to hit the dirt to keep from getting hit---and two pitches later charges the mound to let the pitcher know that he isn't controlling the game. So keep it up---I love your attitude. G. UIP/IPF 5/07 AZ. Subject: Little RantTo: Breathe-Support Date: Tuesday, June 24, 2008, 4:28 PM The past few days have been okay, adjusting to being on oxygen all the time and all that. But this morning the dreadful cough came back while I was trying to eat lunch. Then I noticed all the windows were open in the house and it's starting to get a little bit more warmer, so it's prolly the warmness. With the cough I always bring up phlegm or at least produce it enough to irriate my throat, so I had to stop eating for the moment and go back to the comfort of my oxygen tube (I decided to walk to the living room without it figured I'd be okay if I was sitting). I'd had lost alot of weight prior to this diagonsis (after bone marrow transplant I stayed around 90-110...then I dropped drastically to my current weight of 70), so not being able to finish lunch made me feel a little mad. Trying to gain weight has been hard for me and my oncologist has been harping on me about it. Stuck at why did this disease have to come get me, I already beat cancer, let me get back to my life. The same kind of thoughts I had at my cancer diagonsis over 2 years ago. Can't work and I really want to go back to work, I keep making empty promises to my employer that I'd be back and it has yet to happen. Have to go next week after I get my social secuity checks deposited to tell them about my fibrosis. The cough has settled down some, I'm going to try and eat more lunch. Thanks for letting me rant. /22/ Ohio ~ Non-Hodgkins Lymphoma Survivor of 2 years 12/2005 ~ Autologus Bone Marrow Transplant 09/2006 ~ Pulmonary Fibrosis caused by chemotherapy 06/2008 ~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2008 Report Share Posted June 24, 2008 Aw, thanks alot, gives me lots of encouragement. Lots of hugs to everybody! Tonight, I had another set of coughing spells, but I'm hoping my Advair does the trick and cut it back so I can stop. I could see my oxy stats fall in my head as the coughs increased with the invisible oximeter. ; But I'm grateful that this is the first night I had a spell and it hasn't been every single night since I came home from the hospital. Would be better without it, but I will deal with it as it comes, one day at a time. /22/ Ohio ~ Non-Hodgkins Lymphoma Survivor of 2 years 12/2005 ~ Autologus Bone Marrow Transplant 09/2006 ~ Pulmonary Fibrosis caused by chemotherapy 06/2008 ~ > > > Subject: Little Rant > To: Breathe-Support > Date: Tuesday, June 24, 2008, 4:28 PM > > > > > > > > The past few days have been okay, adjusting to being on oxygen all the time and all that. But this morning the dreadful cough came back while I was trying to eat lunch. Then I noticed all the windows were open in the house and it's starting to get a little bit more warmer, so it's prolly the warmness. With the cough I always bring up phlegm or at least produce it enough to irriate my throat, so I had to stop eating for the moment and go back to the comfort of my oxygen tube (I decided to walk to the living room without it figured I'd be okay if I was sitting). I'd had lost alot of weight prior to this diagonsis (after bone marrow transplant I stayed around 90-110...then I dropped drastically to my current weight of 70), so not being able to finish lunch made me feel a little mad. Trying to gain weight has been hard for me and my oncologist has been harping on me about it. > Stuck at why did this disease have to come get me, I already beat cancer, let me get back to my life. The same kind of thoughts I had at my cancer diagonsis over 2 years ago. Can't work and I really want to go back to work, I keep making empty promises to my employer that I'd be back and it has yet to happen. Have to go next week after I get my social secuity checks deposited to tell them about my fibrosis. > The cough has settled down some, I'm going to try and eat more lunch. Thanks for letting me rant. > /22/ Ohio ~ Non-Hodgkins Lymphoma Survivor of 2 years 12/2005 ~ Autologus Bone Marrow Transplant 09/2006 ~ Pulmonary Fibrosis caused by chemotherapy 06/2008 ~ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2008 Report Share Posted June 25, 2008 Hi Kim, I don't know what oxymeters you've been looking at, but the fingertip ones are fairly reliable, that's what I've got and I test mine against the blood gases when they do that, I think in the US you can get them for about $65. I got mine from e-bay. Love Ze xx > >> > ,> > That was a remarkably tiny rant considering all you've had to cope > with. I hope the cough stayed settled so that you could eat your > lunch. Do you monitor your oxygen sats? I'm just wondering because I > know the main time that I cough is if my sats go lower than 89 or 90. > If my sats are up, I generally don't cough much.> > Anytime you need to rant, feel free to come her and let it all out. > We've either said or heard it all, we can take it!> > > > Beth > > Age 48 Fibrotic NSIP 06/06> > > > Change everything. Love and Forgive > > > > > > > > > > > > Little Rant> > > > > > The past few days have been okay, adjusting to being on oxygen all > the time and all that. But this morning the dreadful cough came back > while I was trying to eat lunch. Then I noticed all the windows were > open in the house and it's starting to get a little bit more warmer, > so it's prolly the warmness. With the cough I always bring up phlegm > or at least produce it enough to irriate my throat, so I had to stop > eating for the moment and go back to the comfort of my oxygen tube (I > decided to walk to the living room without it figured I'd be okay if > I was sitting). I'd had lost alot of weight prior to this diagonsis > (after bone marrow transplant I stayed around 90-110...then I dropped > drastically to my current weight of 70), so not being able to finish > lunch made me feel a little mad. Trying to gain weight has been hard > for me and my oncologist has been harping on me about it. > > Stuck at why did this disease have to come get me, I already beat > cancer, let me get back to my life. The same kind of thoughts I had > at my cancer diagonsis over 2 years ago. Can't work and I really want > to go back to work, I keep making empty promises to my employer that > I'd be back and it has yet to happen. Have to go next week after I > get my social secuity checks deposited to tell them about my fibrosis.> > The cough has settled down some, I'm going to try and eat more > lunch. Thanks for letting me rant. > > /22/ Ohio ~ Non-Hodgkins Lymphoma Survivor of 2 years > 12/2005 ~ Autologus Bone Marrow Transplant 09/2006 ~ Pulmonary > Fibrosis caused by chemotherapy 06/2008 ~> >> Quote Link to comment Share on other sites More sharing options...
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